Reproducing Dignity: Race, Disability, and Reproductive Controls
Total Page:16
File Type:pdf, Size:1020Kb
Load more
Recommended publications
-
Reproductive Injustice: Racism, Pregnancy, and Premature Birth W
Racism Is a Public Health Crisis History, Race, and Gynecology Maggie Unverzagt Goddard (she/her) Brown University Department of American Studies CDC Pregnancy Mortality Surveillance System From 2011 to 2016, the national mortality ratio for pregnancy-related deaths per 100,000 lives births per year was: 16.9 During 2011–2016, the pregnancy-related mortality ratios per 100,000 live births per year were: o 42.4 deaths for black non-Hispanic women o 30.4 deaths for American Indian/Alaskan Native non- Hispanic women o 14.1 deaths for Asian/Pacific Islander non-Hispanic women o 13.0 deaths for white non-Hispanic women o 11.3 deaths for Hispanic women During 2011–2016, the pregnancy-related mortality ratios per 100,000 live births per year were: o 42.4 deaths for black non-Hispanic women o 30.4 deaths for American Indian/Alaskan Native non- Hispanic women o 14.1 deaths for Asian/Pacific Islander non-Hispanic women o 13.0 deaths for white non-Hispanic women o 11.3 deaths for Hispanic women Current health disparities stem from a long history of racism in medicine. Contraceptive Trials in Puerto Rico 99% Invisible, “Repackaging the Pill” Laura Briggs, Race, Sex, Science, and U.S. Imperialism in Puerto Rico 76.6% African-American respondents believe that it is possible for a study like the USPHS Syphilis Study to happen again, according to a 2005 article in the Journal of the National Medical Association. Less than half of the white respondents agreed. As a specialty, gynecology developed out of slavery. -
Nontherapeutic Growth Attenuation, Parental Medical Decision Making, and the Profoundly Developmentally Disabled Child’S Right to Bodily Integrity
KOLL.DOCX (DO NOT DELETE) 12/17/2009 2:48 PM GROWTH, INTERRUPTED: NONTHERAPEUTIC GROWTH ATTENUATION, PARENTAL MEDICAL DECISION MAKING, AND THE PROFOUNDLY DEVELOPMENTALLY DISABLED CHILD’S RIGHT TO BODILY INTEGRITY MARY KOLL* Should parents of a profoundly developmentally disabled child be permitted to permanently terminate their child’s healthy bodily de- velopment in order to arguably increase the child’s quality of life? While such a procedure may sound like something out of science fic- tion, a highly publicized medical journal article released in 2006 de- scribed the case of Ashley X, a profoundly developmentally disabled child who received high-dose hormone treatment—along with a mas- tectomy and a hysterectomy—to permanently stunt her growth and al- legedly increase her quality of life. Though the authors of the article presented this type of nontherapeutic growth attenuation as a viable medical option for profoundly disabled children, critics from all over the world characterized the procedure—which came to be known as the “Ashley Treatment”—as a grave and unacceptable human rights violation. Nonetheless, the Ashley Treatment has also been met with support from some, most notably the parents of profoundly disabled children, many of whom have expressed a desire for their own child- ren to undergo similar procedures. This Note explores the question of whether parents should be permitted to choose such interventions on behalf of a child from the perspective of the child’s rights, specifi- cally, the child’s fundamental right to bodily integrity. Following a brief description of the case of Ashley X and the ensuing controversy, the author describes the right to bodily integrity, including its origins, its modern constitutional status, and its application to profoundly dis- abled children. -
Thesis Statement
PERSONAL ASSISTANTS AND COLLABORATIVE DECISION MAKING: PROMOTING A BETTER BALANCE OF AUTONOMY AND WELL-BEING FOR ADULTS WITH MODERATE, MILD, AND BORDERLINE MENTAL RETARDATION by Sarah M. Pope B.S., University of New Hampshire, 2000 J.D., University of Pittsburgh, 2007 Submitted to the Graduate Faculty of The Center for Bioethics and Health Law in partial fulfillment of the requirements for the degree of Master of Arts University of Pittsburgh 2007 UNIVERSITY OF PITTSBURGH THE CENTER FOR BIOETHICS AND HEALTH LAW This thesis was presented by Sarah M. Pope It was defended on April 13, 2007 and approved by Elizabeth Chaitin, DHCE, Center for Bioethics and Health Law James Flannery, JD, School of Law Thesis Advisor: Alan Meisel, JD, Center for Bioethics and Health Law, School of Law ii Copyright © by Sarah M. Pope 2007 iii PERSONAL ASSISTANTS AND COLLABORATIVE DECISION MAKING: PROMOTING A BETTER BALANCE OF AUTONOMY AND WELL-BEING FOR ADULTS WITH MODERATE, MILD, AND BORDERLINE MENTAL RETARDATION Sarah M. Pope, J.D., M.A. University of Pittsburgh, 2007 Autonomy is a core value of American tradition and is promoted in health care through the doctrine of informed consent. The notion underlying informed consent is that patients should have the right to decide, and are often in the best position to know, what will enhance their own well-being. Although this ethic has been extended to incompetent patients, by employing surrogate decision making, providing surrogate decision makers for adults with moderate, mild, and borderline mental retardation (“M-BMR”), who could potentially make their own decisions if adequate supports were offered, unreasonably restricts the autonomy of such individuals and often results in disregard for the patients’ human dignity. -
The Strange Case of Ashley X
Forever Small: The Strange Case of Ashley X EVA FEDER KITTAY I explore the ethics of altering the body of a child with severe cognitive disabilities in such a way that keeps the child ‘‘forever small.’’ The parents of Ashley, a girl of six with severe cognitive and developmental disabilities, in collaboration with her physi- cians and the Hospital Ethics Committee, chose to administer growth hormones that would inhibit her growth. They also decided to remove her uterus and breast buds, assuring that she would not go through the discomfort of menstruation and would not grow breasts. In this way she would stay ‘‘forever small’’ and be able to be carried and handled by family members. They claimed that doing this would ensure that she would be able to be part of the family and of family activities and to have familial care. But the procedure has raised thorny ethical questions. I wish to explore these questions philosophically by bringing to bear my own experiences as a mother of a grown daugh- ter with severe cognitive impairments. PRELUDE THE CASE In 2002, the parents of a six-year-old girl with a condition that will require physical care throughout her life, and who had begun to exhibit signs of pre- cocious puberty, requested, and were granted, permission to have high doses of estrogen administered to induce the premature closing of the long-bone epiphyses, thus maintaining the girl’s height at 4’5’’. The intention was to facilitate her care by keeping her small. To reduce the uterine bleeding that accompanies the procedure, as well as the risk of uterine cancer, she underwent a hysterectomy prior to the estrogen treatment. -
The Ashley Treatment: the Current Legal Framework Protects the Wrong Rights
Minnesota Journal of Law, Science & Technology Volume 10 Issue 2 Article 12 2009 The Ashley Treatment: The Current Legal Framework Protects the Wrong Rights Jillian Kornblatt Follow this and additional works at: https://scholarship.law.umn.edu/mjlst Recommended Citation Jillian Kornblatt, The Ashley Treatment: The Current Legal Framework Protects the Wrong Rights, 10 MINN. J.L. SCI. & TECH. 773 (2009). Available at: https://scholarship.law.umn.edu/mjlst/vol10/iss2/12 The Minnesota Journal of Law, Science & Technology is published by the University of Minnesota Libraries Publishing. KORNBLATT J. The Ashley Treatment: The Current Legal Framework Protects the Wrong Rights. MINN. J.L. SCI. & TECH. 2009;10(2): 773-800. Note The Ashley Treatment: The Current Legal Framework Protects the Wrong Rights Jillian Kornblatt* In 2006 two Seattle doctors performed several procedures to attenuate the growth of a profoundly neurologically and cognitively disabled six-year-old girl. When the doctors described the treatment in a medical journal, the story gained worldwide publicity and quickly became the subject of a highly contentious and emotionally charged controversy. As a result, a federally-sanctioned disability rights protection organization conducted an investigation and concluded that the treatment should not have been performed without a court order and that doing so violated the girl’s constitutional rights. Part I of this Note considers the legal framework applied to the treatment decision and how the framework would apply to other children whose parents requested the treatment. Part II then analyzes whether this framework adequately protects the best interests and constitutional rights of potential candidates for this treatment and their parents. -
Fact Sheet: Women with Disabilities and Legal Issues
TASC is sponsored by the Administration on Developmental Disabilities (ADD), the Center for Mental Health Services (CMHS), the Rehabilitation Services Administration (RSA), the Social Security Administration (SSA), and the Health Resources Services Administration (HRSA). TASC is a division of the National Disability Rights Network (NDRN). Fact Sheet: Women with Disabilities and Legal Issues Concerning Reproductive Health August, 2011 Prepared by: National Health Law Program Jina Dhillon and Celine Lefebvre1 with a grant from the Training and Advocacy Support Center (TASC) Introduction This fact sheet describes significant reproductive health-related legal issues that women with disabilities may face. Women with disabilities are particularly susceptible to discriminatory standards of care, coercion and misinformation about their reproductive autonomy. Courts have issued decisions involving the capacity to consent to sterilization, abortion and similar procedures, or the ability of a guardian to make reproductive health determinations in the best interests of the individual. This fact sheet provides an overview of case law in this area as well as a brief discussion of other issues identified by legal scholars as important areas for advocacy. Reproductive Health Issues Sterilization People with mental and physical disabilities have often been subjected to forced sterilization. The notion that these women and men are unable to make meaningful decisions about their reproductive capacity often leads caretakers, guardians, and the courts to consider sterilization as the best option for them. Case law regarding sterilization stems from the United States Supreme Court’s 1927 decision in Buck v. Bell, in which the U.S. Supreme Court upheld a Virginia statute that instituted compulsory sterilization of individuals with mental disabilities.2 Since then, many cases have addressed the issue of sterilization of women with disabilities. -
An Exploration of the Societal Impact of Neuroethics in Scientific and General Communities
Syracuse University SURFACE Syracuse University Honors Program Capstone Syracuse University Honors Program Capstone Projects Projects Spring 5-1-2015 An Exploration of the Societal Impact of Neuroethics in Scientific and General Communities Katelyn Marie Edel Syracuse University Follow this and additional works at: https://surface.syr.edu/honors_capstone Part of the Ethics and Political Philosophy Commons, and the Other Neuroscience and Neurobiology Commons Recommended Citation Edel, Katelyn Marie, "An Exploration of the Societal Impact of Neuroethics in Scientific and General Communities" (2015). Syracuse University Honors Program Capstone Projects. 847. https://surface.syr.edu/honors_capstone/847 This Honors Capstone Project is brought to you for free and open access by the Syracuse University Honors Program Capstone Projects at SURFACE. It has been accepted for inclusion in Syracuse University Honors Program Capstone Projects by an authorized administrator of SURFACE. For more information, please contact [email protected]. An Exploration of the Societal Impact of Neuroethics in Scientific and General Communities A Capstone Project Submitted in Partial Fulfillment of the Requirements of the Renée Crown University Honors Program at Syracuse University Katelyn Marie Edel Candidate for Bachelor of Arts and Renée Crown University Honors May 2015 Honors Capstone Project in Neuroscience Capstone Project Advisor: ___________________________ William Peace, Professor in the Renée Crown University Honors Program Capstone Project Reader: ____________________________ -
Victor D. Quintanilla Curriculum Vitae
VICTOR D. QUINTANILLA CURRICULUM VITAE Indiana University Maurer School of Law 211 South Indiana Avenue Bloomington, IN 47405 [email protected] ACADEMIC APPOINTMENT Indiana University Maurer School of Law, Bloomington, IN Indiana University Bicentennial Professor, January 2019 – Present Professor of Law, July 2018 – Present Van Nolan Faculty Fellow, June 2020 – Present Associate Professor of Law, July 2012 – June 2018 Teaching: Civil Procedure, Advanced Civil Procedure, Law & Social Psychology, Access-to-Justice Civil Justice Design Project Management Indiana University Center for Law, Society & Culture, Bloomington, IN Co-Director, June 2017 – Present Indiana University Access-to-Justice Service Learning Program, Bloomington, IN Director, August 2017 – Present Indiana University Department of Psychological and Brain Sciences, Bloomington, IN Affiliated Professor, March 2015 – Present Stanford University, The Center for Advanced Study in the Behavioral Sciences (CASBS) Stanford, CA Fellow, September 2015 – July 2016 EDUCATION Indiana University, Bloomington, IN Ph.D., May 2025* Social Psychology, Department of Psychological and Brain Sciences, Dissertation Advisor: Dr. Kurt Hugenberg Dissertation Topic: Doing Unrepresented Status: The Social Construction of Pro Se Persons Georgetown University Law Center, Washington, DC Juris Doctor, May 2004 GPA: 3.83 Ranking: Top 2%, Magna Cum Laude Honors and Awards: Order of the Coif, Highest grade in Torts & Contracts (Fall semester), Dean’s List (all semesters), Pro Bono Pledge Award, Reynolds Scholarship, Dean’s Scholar. The University of Texas at Austin, Austin, TX Master of Professional Accounting and Bachelor of Business Administration, May 2001 GPA: 3.83 (Graduate) 3.60 (Undergraduate) Honors and Awards: University Honors and College Scholar, Dean’s Dozen, National Collegiate Minority Leadership Award, Texas Appleseed Kaplan Diversity Legal Scholar. -
Case Studies in Nursing Ethics Fourth Edition
CASE STUDIES IN NURSING ETHICS FOURTH EDITION Sara T. Fry, PhD, RN Brewster, Massachusetts Robert M. Veatch, PhD Georgetown University Kennedy Institute of Ethics Washington, DC Carol Taylor, PhD, RN Georgetown University Center for Clinical Bioethics Washington, DC 80319_FMXx_ttlpg.indd 1 6/24/10 3:31 PM World Headquarters Jones & Bartlett Learning Jones & Bartlett Learning Jones & Bartlett Learning 40 Tall Pine Drive Canada International Sudbury, MA 01776 6339 Ormindale Way Barb House, Barb Mews 978-443-5000 Mississauga, Ontario L5V 1J2 London W6 7PA [email protected] Canada United Kingdom www.jblearning.com Jones & Bartlett Learning books and products are available through most bookstores and online booksellers. To contact Jones & Bartlett Learning directly, call 800-832-0034, fax 978-443-8000, or visit our website, www.jblearning.com. Substantial discounts on bulk quantities of Jones & Bartlett Learning publications are available to corporations, professional associations, and other qualified organizations. For details and specific discount information, contact the special sales department at Jones & Bartlett Learning via the above contact information or send an email to [email protected]. Copyright © 2011 by Jones & Bartlett Learning, LLC All rights reserved. No part of the material protected by this copyright may be reproduced or utilized in any form, electronic or mechanical, including photocopying, recording, or by any information storage and retrieval system, without written permission from the copyright owner. The authors, editor, and publisher have made every effort to provide accurate information. However, they are not responsible for errors, omissions, or for any outcomes related to the use of the contents of this book and take no re- sponsibility for the use of the products and procedures described. -
Minimum Wage and Abortion Access GETTING WHAT YOU [CAN't] PAY FOR
Minimum Wage and Abortion Access GETTING WHAT YOU [CAN'T] PAY FOR About the National Partnership The National Partnership for Women & Families is a nonprofit, nonpartisan advocacy group dedicated to promoting fairness in the workplace, reproductive health and rights, access to quality, affordable health care and policies that help all people meet the dual demands of work and family. Learn more: NationalPartnership.org About the authors This resource was authored by Asees Bhasin, Georgetown Women’s Law and Public Policy Fellow at the National Partnership. The following people also contributed: • Shaina Goodman, Director of Reproductive Health and Rights • Jessica Mason, Senior Policy Analyst, Economic Justice • Sinsi Hernández-Cancio, Vice President for Health Justice • Jessi Leigh Swenson, Director, Congressional Relations, Health Justice • Michelle McGrain, Director, Congressional Relations, Economic Justice • Jorge Morales, independent editor Minimum Wage and Abortion Access: GETTING WHAT YOU [CAN'T] PAY FOR In the United States, people with lower incomes, people with disabilities, and people of color have never fully enjoyed reproductive freedom. Whether a person wants to have a child or wants to not have children, their ability to exercise these rights has consistently been thwarted. On the one hand, people’s decisions to have a child or grow their family have been interfered with by policies such as forced sterilization or caps on the number of children someone can have and still be eligible for public benefits. On the other hand, those who do not want to have children are often denied meaningful access to abortion care, or even contraception, through policies that put that care financially or geographically out of reach or otherwise make access nearly impossible. -
Health Law & Policy Brief
Volume 1, Issue 2 Fall 2007 HHEALTHEALTH LLAWAW PPOLICYOLICY The Health Care Crisis in America: 2 &Is Universal Healthcare the Solution to Our Problems? Charisse Y. Gates The Legal and Moral 12 Implications of Growth Attenuation Meryl Eschen Mills Where the Action is: 24 Innovative State Health Care Initiatives Nalini K. Pande CAFTA-DR, TRIPS, and Pharmaceuticals 28 Jennifer Cadena The ERISA Roadblock: Can States Overcome ERISA 34 Preemption and Enact Meaningful Health Care Reforms? Sabrina Dunlap The ‘Benghazi Six’ and International 42 Medical Neutrality in Times of War and Peace Johanna Michaels Kreisel COLUMNS 51 AULawBook.indd 1 12/10/07 7:22:49 AM Health Law & Policy 2007-2008 Staff EDITORS-IN-CHIEF Georgiana Avramidis Jennifer Cadena Gabrielle A. Mulnick SENIOR ARTICLES EDITOR Alexander J. Weber MANAGING EDITORS Vashti Mercado Rebecca L. Wolf SENIOR STAFF Bridget Behling Jenny M. Knopinski Eduardo Pezo Jessica E. Smith JUNIOR STAFF Sherine B. Abdul-Khaliq Biswajit Chatterjee Chandana Kolavala William N. Papain Jillanne M. Schulte ADVISOR Corrine Parver, Esq. Practitioner-In-Residence and Executive Director, Health Law Project LL.M. Program on Law & Government COVER DESIGN Cesar Lujan Health Law & Policy (HLP) is a publication of American University’s Washington College of Law (WCL) and the Health Law Project LL.M. Program on Law & Government. No portion of this publication may be reprinted without express permistion of HLP. Views expressed herein do not reflect thos of HLP or WCL. AULawBook.indd 2 12/10/07 7:22:49 AM LETTER FROM THE EDITORS Dear Health Law & Policy Reader: On behalf of the Editorial Board, it is with great enthusiasm that we present our second issue of Health Law & Policy. -
P R a X I S Where Reflection & Practice Meet
P R A X I S Where Reflection & Practice Meet VOLUME 15 In Honor of the Advocates, Teachers, Clients, and Scholars from Whom We Have Come by This Knowledge Editorial Sam Foist Swart .........................................................................….......….................................................................3 Articles Mindfulness-Based Psychotherapy with HIV Patients Zoya Abdikulov …............................................................................................................................……..................4 Meeting the Torture Survivor and Asylum Seeker: Directions for Clinical Treatment and Political Advocacy Margaret J. Hunter, Brittany Austin, and Garrett Gundlach, SJ.…….……………………....................................11 Treating Borderline Personality in Adolescence Using CAT: Adapting HYPE into an Interprofessional Model Alyssa Jesberger, Kathy Moriarty, Nicole Weinstein, and Rebecca Witheridge ………..............………................ 21 Clinical Implications for Working with Couples Experiencing Infidelity Kristen Okrzesik………………………………………………………………………..........……......................................30 A Theological Reclamation of Feminine Icons in Latin@ Culture: An Empowerment Model Lorena Ornelas …...……………............................…........…….…………………...…………………… ………...36 Cognitive Behavioral Therapy for Insomnia Bobbi Marie Pollard ............................................................................…….......….................................................44 Polyamory: The Clinical Importance