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Corrected Transcript 53.11 Kb CORRECTED VERSION STANDING COMMITTEE ON LEGAL AND SOCIAL ISSUES REFERENCES COMMITTEE Inquiry into options and mechanisms to increase organ donation in Victoria Melbourne—25 August 2011 Members Mr M. Viney Ms J. Mikakos Ms G. Crozier Mr D. O’Brien Mr N. Elasmar Mr E. O'Donohue Ms C. Hartland Mrs D. Petrovich Chair: Mr M. Viney Deputy Chair: Mr E. O'Donohue Staff Committee Secretary: Mr R. Willis Research Officer: Ms L. Kazalac Witnesses Mr C. Thomas, Chief Executive Officer, Transplant Australia; and Mr K. Green, Chairman, Victorian committee, Transplant Australia. 25 August 2011 Standing Committee on Legal and Social Issues - Reference Committee 17 The CHAIR—We will resume. I have a brief introduction I am required to do. Welcome to this hearing. If I can advise you that all evidence taken at this hearing is protected by parliamentary privilege as provided by the Constitution Act 1975 and further subject to the provisions of the Legislative Council Standing Orders. Therefore you are protected against any action for what you say here today, however, if you were to repeat those comments outside they may not be protected by this privilege. All evidence is being recorded. You will be provided with proof versions of this transcript in the next couple of days. Transcripts will ultimately be made public and posted on the committee's website. We have allowed some time for your opening comments and then we will go to some questions. Mr THOMAS—Thank you, Mr Chair, and thank you to the committee. It is wonderful to be here today and we appreciate all legislative councils taking an interest in this important area. My name is Chris Thomas, I am the chief executive officer of Transplant Australia. I am pleased that Kevin Green, the state chairman of our Victorian committee has joined me today. I would like to open by saying that Kevin being here today summarises this whole area of organ and tissue donation. I would like him to tell his story, if you do not mind. Mr GREEN—I reiterate those words of Chris, it is great to be here today. My name is Kevin Green, I am 47. I was on dialysis for 8½ years, for four hours a day, three days a week. I also worked full-time. I was diagnosed with glomerulonephritis when I was 19. In 2007 I was lucky enough to get the phone call to have a transplant. My daughter was only six months old when I started dialysis and to spend time with my daughter was great for me. I took up coaching basketball, football, Auskick coordinator, social club organiser for my football club. I also had the chance to compete at the national games and the World Transplant Games in September. Probably the worst thing about being on dialysis is not having the freedom to get out and about and enjoy life. My downside was my daughter was only six months old when I started and I could not get to see her. By the time I arrived home it was 9.30, 10 o'clock at night. To do that for eight years was tough; a restricted diet, restricted fluids. After my transplant it was totally a new lease of life. I put on 20 kilos, I was able to work more, totally enjoy life more, and probably my biggest highlight was when I toured with the Australian cricket team with my baggy green in a Test match against the English transplant team in June, and I scored 152, not out, off 107 balls to win the Test match by eight wickets. Also at the World Games I won a gold and silver medal in golf. To be around so many people in 49 countries and be there at the opening ceremony with your blazer on and your akubra sums up organ and tissue donation, just that alone, to be around all those people was inspirational. The CHAIR—Thank you very much, Kevin. Thank you for sharing your story. Mr GREEN—Thank you. The CHAIR—Chris, do you want to say something. Mr THOMAS—Yes, I have a few things to say and I will try and go through them quickly for you. Slides shown. Mr THOMAS—Kevin is one of the 30,000 Australians who have benefited from organ and tissue donation and transplantation over the past 40 years. It is hard to quantify but we believe there are currently about 10,000 people alive in Australia today living with a transplant. Many of those have joined this Transplant Australia, making us the largest body of our type in the world. We started as a sports based health and fitness organisation, but have come to work closely with the Organ and Tissue Authority of the sector on promoting the benefits of donation. Our members are living proof that organ and tissue donation is an important issue and is worth the effort. We have a vision and that is to promote the lifesaving benefits, while supporting the most vulnerable back to the fullness of life. Our mission is to be a strong advocate to promote transplantation to governments and the public and provide support to people who are waiting. We are often the first group the media turns to when issues about organ and tissue donation and transplantation are in the headlines. There have been some stories recently about all the trafficking, about paying for kidneys and so on, and Transplant Australia has a brilliant name, and the media come to us for a 25 August 2011 Standing Committee on Legal and Social Issues - Reference Committee 18 comment about that. In terms of promotion, we promote the benefits of organ and tissue donation through the Transplant Games. They are held every two years and they were last held in Victoria, in Geelong, in 2006. We also take our message to the public through community events, speaking opportunities and the media. We are building important support tools to help those who are waiting. As at 4 August this year there were 1,590 Australians officially listed, and most of them do it extremely tough. Families often need to relocate to be near a children's hospital while their child waits. People lose jobs. They struggle psychologically to cope with the concept of transplantation. Knowing that someone needs to die to enable you to live is a very deep and philosophical ethical dilemma that many people face. Our Journey of Hope campaign addresses these issues and is designed to help people from the moment they are told they need a transplant through to their full recovery. However, we do acknowledge that the greatest challenge we face is to improve our rate of donation across Australia in a sustainable manner. I am sure the committee is familiar with this chart and agree that Australia's rate of donation really is unacceptable. It is about half that of the United States, and 2½ times worse than Spain which was not included in the 2010 statistics. I will put there where you can see the 2009 rates were at. Pleasingly, however, Transplant Australia acknowledges that the rate of donation is improving. If the trend to July continues towards the end of this year, we should achieve 344 donors for the year. In Victoria, rates are up 31 per cent on 2010 rates. We recognise that Victoria really is a stand-out performer in improving rates in Australia. I would like, if the committee does not mind, for me to make a short comment on the history to this. I joined Transplant Australia in 2007 and it would be fair to say that the organ and tissue donation sector was really a basket case back then. We had eight different organ donor agencies across Australia, all operating under different jurisdictions, each trying in their own way to achieve their goals. There was DonateWest, Queenslanders Donate, LifeGift in New South Wales, Victoria and the ACT, SAODA in South Australia. It really was quite dysfunctional. The former federal health Minister, the Hon. Tony Abbott, had recognised this and established a clinical task force to review our system of donation. Transplant Australia joined the rest of the sector in contributing to that review process, and a comprehensive report and some 50-odd recommendations were published. In 2008, the then Prime Minister, the Hon. Kevin Rudd, took this reform process much further than anyone had anticipated, and established the Organ and Tissue Authority and implemented a significant reform package. I am sure that the Organ and Tissue Authority earlier today has been able to detail to you the elements of that reform package. Transplant Australia, in understanding where this nation has been in organ and tissue donation, is extremely pleased and supportive of the reform process. It was not that long ago when we would traditionally say in the media that our rate of organ donation in Australia was only 200 organ donors a year. Now, we have reframed that conversation to say that there are about 300 organ donors a year. The real question that the committee is grappling with is how long will it take for us to be able to state that we are achieving world's best practice of between 400 and 450 organ donors a year. Certainly Transplant Australia believes those goals are achievable. My first message to the committee today is that, really, Australia should keep going the way it is going. The reform package is working, especially in states like Victoria. Now is not the time for wholesale change. That said, the job is not yet done, and there should be no room for complacency and we welcome this inquiry.
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