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Go, Landon! Determined Athlete, Dedicated Donor ppotentialotenA publication of Kennedyt Kriegeri Institutea Fall | Winterl 2018 Go, Landon! Determined Athlete, Dedicated Donor Culinary Quest Recipe for Inspiration Lydia Smiles Again Teamwork + Imagination Center Stage Patient to Pageant We are all born with great potential. Shouldn’t we all have the chance to achieve it? A publication of Kennedy Krieger Institute Fall | Winter 2018 Volume 18, No. 2 INSPIRING POTENTIAL Ingredients for Inspiration Jeremiah, who has autism, trains with chefs around the country, and encourages others to follow their dreams. 3 FEATURES Greetings from our Smiling Again Specialists are working together to help Lydia recover—and get New CEO! her smile back—following a traumatic brain injury. 4 Taking Center Stage Kailyn, who experienced a brain injury at birth, uses her pageant Hello, all, platform to advocate for children with disabilities. 6 I’m so proud to have joined Kennedy Krieger as Pure Motivation its president and CEO. As a pediatric neurologist, Landon’s not only a decorated athlete—he’s also one of Kennedy Krieger’s most dedicated fundraisers. 8 physician and researcher, I’ve admired the Institute’s work and reputation for many years. As a parent, RESEARCH FRONTIERS I appreciate the interdisciplinary, patient-centered Measuring the Brain approach everyone here takes to ensuring patients A new study finds the brains of young children with attention deficit receive the very best care. hyperactivity disorder differ from those of their peers. 11 That’s why I’m so excited to share with you the stories in this issue of Potential! PROGRAM SPOTLIGHT Aquarium Day Buoys Spirits You’ll read about Landon, who competes in our Outings with Kennedy Krieger's therapeutic recreation program adaptive sports program, and about Kailyn, who first raise hospital patients' spirits. 12 came to Kennedy Krieger struggling to walk and talk. Kailyn’s now an ardent spokesperson for individuals IN MY OWN WORDS with disabilities. A New Perspective Jeremiah has autism and just graduated from our high When Sam returned to PACT’s medical child care program as an intern, he learned to see the world in a whole new way. 14 school. His story is near and dear to my heart, because my mom was a special educator for Chicago’s public NEWS & EVENTS schools. Jeremiah’s taking the culinary world by storm, A tribute to Judy Woodruff fuels brain injury research. 15 proving that individuals with neurodiverse traits can fulfill their dreams and inspire others. And how could you not be captivated by Lydia’s smile? POTENTIAL Lydia sustained a traumatic brain injury last fall, but EDITOR CREATIVE SERVICES MANAGER she’s working hard to regain mobility and never accepts Laura Thornton Sarah Mooney the word “can’t.” ART DIRECTOR PHOTOGRAPHY Amy Mallik Rebecca Drobis and Robin Sommer These kids and their families are the reason all of us DESIGNERS DIRECTOR OF MARKETING at Kennedy Krieger come to work each day. We’re Erin Parsons Lisa Nickerson honored to help them embrace life and defy limits, CONTRIBUTING WRITERS MEDIA INQUIRIES Christianna McCausland, Sam Noble Stacey Bollinger and we’re grateful for the role you play in making it all and Elise Welker PUBLICATION INQUIRIES possible. Enjoy the stories! PROOFREADER 443-923-7330 or TTY 443-923-2645 Nina K. Pettis For appointments and referrals, visit KennedyKrieger.org/PatientCare or call 888-554-2080. Potential is published by the External Relations Department of Kennedy Krieger Institute, 707 North Broadway, Baltimore, Maryland 21205. Kennedy Krieger Institute recognizes and respects the rights of patients and their families and treats them with Bradley L. Schlaggar, MD, PhD courtesy and dignity. Kennedy Krieger Institute provides care that preserves cultural, psychosocial, spiritual and personal values, beliefs and preferences. Care is free from discrimination based on age, race, ethnicity, religion, culture, language, physical or President and CEO mental disability, socioeconomic status, sex, sexual orientation, and gender identity or expression, including transgender. We encourage patients and families to become active partners in their care by asking questions, seeking resources and advocating for P.S. I welcome your comments, questions and the services and support they need. Email us at [email protected] to update your contact or mailing information. Send an email to suggestions—email me at: [email protected] [email protected] or visit KennedyKrieger.org/Unsubscribe to unsubscribe from future Kennedy Krieger Institute communications. © 2018, Kennedy Krieger Institute On the cover: Landon, 8, trains with Kennedy Krieger’s Visit PotentialMag.KennedyKrieger.org adaptive sports team, the Bennett Blazers. He also for more inspiring stories, news and updates. fundraises for the Institute. INSPIRING POTENTIAL Ingredients FOR Inspiration Jeremiah, who has autism, trains with chefs around the country, and encourages others to follow their dreams. By Christianna McCausland eremiah’s going places—literally. An aspiring pastry chef from the start. He was creative and recent graduate of Kennedy Krieger High School, and caring, but a little insecure and afraid Jeremiah, 19, has traveled to New York, New Orleans and to make mistakes, remembers Deidre Rabuck, the Fairmount Washington, D.C., to cook with some of the best chefs in school campus’s assistant principal. J the country. “It was clear he hadn’t had an academic experience where he felt He’s also modeled for Tommy Hilfiger’s adaptive clothing line, good about himself,” Rabuck says. “But once he knew it was and authored—with his mom, Simone—“Here’s What I Want okay to be himself, he blossomed.” You To Know,” a book about autism. Last year, Jeremiah was Jeremiah started learning to cook from his maternal a youth ambassador for Kennedy Krieger Institute’s Festival of grandmother when he was 13. In middle school, he made books Trees. Dedicated to both cooking and disability awareness and in which he’d group activities and words around foods, as a chef advocacy, Jeremiah is living a life full of promise and exciting might organize a kitchen around ingredients and recipes. At opportunities. But it wasn’t always this way. Kennedy Krieger High School, Jeremiah worked at the school’s Jeremiah, who lives in Maryland, was diagnosed with autism student-staffed, teacher-led Cafe James. at Kennedy Krieger when he was in third grade. His local To encourage her son’s interest in cooking, Simone started the school system, Simone says, wasn’t equipped to follow his YouTube channel “Jeremiah’s Cooking Adventures,” where she individualized education program, and he was often bullied. and Jeremiah post videos of Jeremiah learning In middle school, Jeremiah enrolled in Kennedy Krieger’s to cook. He also has a website with the same Fairmount school campus in downtown Baltimore. name. Jeremiah and his mom reach out to “At Kennedy Krieger, I saw diversity and a structured famous chefs like “Top Chef” contenders education,” Simone says. “I knew my son would have a team Kwame Onwuachi and Chris Scott, who’ve of people solely responsible for charting his academic progress. invited Jeremiah to cook with them. More He was more than capable apprenticeships are in the planning stages. of doing his school work. This past spring, Jeremiah returned to He just needed the right Kennedy Krieger’s Fairmount Campus to environment.” give a speech at the school’s graduation. Jeremiah’s engaging He encouraged the students not to let personality impressed his their disabilities hold them back. Kennedy Krieger teachers For everyone listening to his speech, “Jeremiah represented hope, because he’s determined to not let having autism get in the way of his dream of becoming a pastry chef,” Rabuck says. “He wanted to learn—he just needed the opportunity.” Visit KennedyKrieger.org/Schools to learn more about Kennedy Krieger’s school programs. Visit KennedyKrieger.org/Jeremiah for Jeremiah’s cheesecake recipe. Far left: Jeremiah was a Festival of Trees 2017 youth ambassador (pictured with Lainy LeBow-Sachs). Left: Jeremiah prepares a cheesecake at Cafe James. Above: Jeremiah co-wrote a children’s book about autism. PotentialMag.KennedyKrieger.org 3 Smiling Again Specialists from across Kennedy Krieger’s continuum of care are working together to help Lydia recover—and get her smile back—following a traumatic brain injury. ale will never forget the day he saw his daughter Lydia walk again. It was back in January, and Lydia, now 11, had been at Kennedy Krieger Institute’s inpatient rehabilitation hospital for about two months. She’d experienced a traumatic brain injury the previous fall, when a truck hit her family’s minivan on their way home from church, and Dshe was relearning how to do just about everything. “One of her therapists said, ‘Show your dad what you can do!’” Giddy with excitement, Lydia walked part-way across the room, all by herself. “It was a big Above: Lydia and her moment,” Dale says. parents, Dale and Amy. That’s because when Lydia arrived at Kennedy Krieger, she couldn’t sit up, or even hold her head up on her own. Her injury had disrupted the signaling process her brain uses to get her body to move. She could give a thumbs-up for “yes” and a thumbs-down for “no,” and she could say “mommy.” But her parents had no idea if she’d ever talk in complete sentences again, let alone laugh, tell a joke or even smile. Nevertheless, Lydia started right away on the road to recovery with a combined three to four hours of intensive physical, occupational and speech-language therapies a day, much of it disguised as games or other fun activities. She also began working with specialists in neuropsychology, behavioral psychology, child life, therapeutic recreation and education. 4 PotentialMag.KennedyKrieger.org As Lydia’s injury was to the right side of her brain, which Left: Making cookies with speech-language controls left-side vision and movement, she didn’t initially pathologist Laura Hyde, respond to any stimuli on the left side of her body.
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