The ALS Association Greater Chapter July 2012 Monthly Update Serving New York City, Long Island, Westchester County, , and Northern & Central New Jersey 42 Broadway, Suite 1724 • New York, NY 10004 • (212) 619-1400 • www.als-ny.org Follow us - Facebook (www.facebook.com/ALSofGNY) & Twitter (@ALSofGNY) July Support Groups SUFFOLK COUNTY, NY Gehrig Farewell Canceled for July - Will next meet Tuesday, August 7th NASSAU COUNTY, NY Sunday, July 1st - 2 pm to 4 pm North Shore LIJ - Plainview Hospital 888 Old Country Road, Plainview - Downstairs Topic: Open Discussion Contact: Theresa Imperato, RN, (516) 946-5467 and Jody Wiesel, PhD (917) 699-9751 HUDSON VALLEY, NY Tuesday, July 3rd - 6:30 pm to 8:30 pm Vassar Brothers Medical Mall Ambulatory Surgery Center - Bldg C - 3rd Floor On July 4th our nation celebrates 236 years of independence. But 200 Westage Business Center, Fishkill, NY also on July 4th, we in the ALS community recall one of the greatest Topic: Transferring, lifting, and safety speeches ever made in sports history. On that day in 1939, just a Speaker: Jeanne Woods, Physical Therapist from St. Francis couple weeks following his diagnosis with ALS, took to Hospital/Poughkeepsie the field one last time, with tears in his eyes, and told fans that he Massage Therapist Max Cohn will be donating massages. considered himself “the luckiest man on the face of the earth.” Contact: Helen Mayer, RN, (845) 520-0952 His example of grace under difficult circumstances and gratitude for SADDLE BROOK / NORTHERN NJ Thursday, July 5th - 7 pm to 8:30 pm friends and family are traits that still resonate today and touch the Kessler Institute for Rehabilitation lives of people with ALS across the globe. In closing that great 300 Market St., Saddle Brook, NJ speech, Gehrig stated, “I may have been given a bad break, but I've Topic: Overview of Assistive Technology for PALS got an awful lot to live for.” It is that sentiment that truly makes him Speaker: Ben Lieman, Assistive Technologist, GNY Chapter “The Iron Horse.” Contact: Debbie Schlossberg, LMSW (732) 710-8832 MANHATTAN, NY Tuesday, July 17th - 6 pm to 8 pm BATTER UP! Phillips Ambulatory Care Center (Beth Israel) 10 Union Square East (b/w 14th & 15th streets) Summer is here which means spending time with family and friends, Neurology Dept- 5th Floor Conference Room attending BBQs, and of course, ! This July the ALS Topic: Open Discussion Association is once again teaming up with Contact: Jody Wiesel, PhD, (917) 699-9751 teams nationwide for a month-long ALS awareness and fundraising NEW BRUNSWICK / CENTRAL NJ campaign. ALSA's Covering All the Bases campaign links with MLB's Please Note Temporary Topic and Date Change 4tALS initiative in a league-wide singular effort to raise awareness and Saturday, July 28th - 12 pm to 2 pm support for the fight against Lou Gehrig's Disease. Your generosity Robert Wood Johnson University Hospital will support compassionate, quality care for those living with ALS, Medical Education Building, Rm. 108A fund cutting-edge research, and advance public policy efforts as we 180 Somerset Street, follow signs to meeting continue to fight for treatment and a cure. AND, as an extra special Topic: New Patient Group (for newly diagnosed incentive, every dollar donated will be matched by PostNet patients/families only.) Regular group is welcome to attend the Saddle Brook meeting this month. International for up to $25,000. Turn that single into a double, that Contact: Debbie Schlossberg, LMSW and double into a homerun, or hit one all the way out of the park! Mary Ann Mertz, RN, (732) 710-8832 Go to the Chapter website between now and July 31st to make your TELEPHONE SUPPORT GROUPS donation. Look for the 4tALS and Covering All the Bases logos and Caregivers: Fridays - 11 am to 12 pm be sure to designate the Greater New York Chapter. Whether you're a Patients: Fridays - 3 pm to 4 pm Yankees fan or a Mets fan, we can all come together to strike out ALS! Contact: Sue Zimmerman at (212) 720-3050 Note: June through September, telephone support groups will occur For more information, contact Kristen Cocoman, Director of bi-weekly, with this month's meetings occurring on July 6th & 20th. Marketing & Special Events at (212) 720-3048 or [email protected]. Greater New York Chapter 42 Broadway, Suite 1724 New York, NY 10004 212-619-1400 f: 212-619-7409 www.als-ny.org

The 2012 Walk to Defeat ALS & MORE Summer Fun! Season... “A Walk in the Park!” As the summer heats up, America's pastime is in full swing in ballparks throughout the region. As part of the summer fun, We wrapped up a very successful Spring Walk season with June the ALS Association continues to be an official Charity Partner Walks in both New Jersey and New York. It was all sun and fun of Minor League Baseball and our local teams in the Greater on June 3rd where an estimated 1,500 participants joined Walk New York region are on board to help out! Join us for ALS Chair Kim Single of team Bea Happy for the 8th Annual Saddle Awareness Days with the , Hudson Valley Brook Walk to Defeat ALS. Renegades, and ! Thank you to Minor Additionally, the 10th Annual Westchester Walk to Defeat ALS League Baseball for their continued dedication and their shared on June 10th was a star-studded affair with former Major League vision of a world without ALS. pitching great Tommy John in the pre-Walk line-up along with Check out those and other fun summer happenings the Honorary Walk Chair, Westchester County Executive Rob Chapter is hosting here: Astorino. He was joined by a number of other state and local elected officials. The 10th Anniversary of the Walk caught the July 2: Brooklyn Cyclones Game: Military Appreciation Day & attention of News12 as well as Newsday who each provided ALS Awareness Day excellent coverage of the event! Congratulations to our Walk chairs, Fran & Bill Monti and Donna & Mark Rubin. July 8: Cullen’s Crusaders South Shore Long Island Boat Cruise (Walk benefit) July 24: Long Island Walk Kick-Off

July 26: Young Professionals Group Summer Networking Cocktail Reception July 28: Hudson Valley Walk Kick-Off

July 31: Brooklyn Cyclones Annual Golf Outing to Benefit The ALS Association Greater NY Chapter Aug. 1: Brooklyn Cyclones Game: Military Appreciation Day The start line at the 2012 Westchester Walk to Defeat ALS. & ALS Awareness Day We broke attendance records at nearly every Walk, raised Aug. 5: Staten Island Yankees Game: Military Appreciation Day money, and brought much-needed awareness to our cause. & ALS Awareness Day As we wrap up the Spring Walk Season we would like to extend heartfelt thanks to all of the PALS, families, friends, caregivers, Aug. 9: Fifth Annual Carl S. Levine Cocktail Reception donors, volunteers, and sponsors who participated and helped to make each Walk a tremendous success! Aug. 25: Hudson Valley Renegades Game: ALS Awareness Day For more details on all these events, visit our website at Next up - mark your calendars with the Fall Walk dates! www.als-ny.org and go to our calendar of events or call the Long Island - Saturday, September 29th & Hudson Valley - Chapter at (212) 619-1400. Hope to see you this summer! Sunday, October 21st. To register, visit www.alswalks.org.