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Plan for Participation and Quality of Life of People with Disabilitiesin Bizkaia/Biscay 2016 -2019

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Plan for Participation and Quality of Life of People with Disabilitiesin Bizkaia/Biscay 2016 -2019 PLAN FOR PARTICIPATION AND QUALITY OF LIFE OF PEOPLE WITH DISABILITIES IN BIZKAIA/BISCAY 2016 -2019 PLAN FOR PARTICIPATION AND QUALITY OF LIFE OF PEOPLE WITH DISABILITIES IN BIZKAIA/BISCAY 2016 -2019 PROMOTER: PROVINCIAL COUNCIL OF BIZKAIA. DEPT. OF SOCIAL ACTION DRIVER TEAM: OLGA MAIZ, ELENA ITURRIZAGA, IMANOL MADARIAGA & SERGIO MURILLO (PROVINCIAL COUNCIL OF BIZKAIA) TECHNICAL SUPPORT: YOLANDA FILLAT (ALTER CIVITES) ACKNOWLEDGEMENTS: ADEMBI (MULTIPLE SCLEROSIS ASSOCIATION OF BIZKAIA) AFA (ASSOCIATION OF FAMILIES OF ALZHEIMER’S SUFFERERS IN BIZKAIA) APNABI (ASSOCIATION OF PARENTS OF CHILDREN WITH AUTISM AND OTHER AUTISM SPECTRUM DISORDERS IN BIZKAIA). ASPACE BIZKAIA (CEREBRAL PALSY ASSOCIATION OF BIZKAIA) ATECE (ACQUIRED BRAIN DAMAGE ASSOCIATION OF BIZKAIA) AVIFES (ASSOCIATION OF MENTAL ILLNESS SUFFERERS AND FAMILIES IN BIZKAIA) BIDAIDEAK. EUSKAL GORRAK (BASQUE FEDERATION OF ASSOCIATIONS FOR THE DEAF) FEKOOR (FEDERATION FOR THE COORDINATION OF PERSONS WITH PHYSICAL AND/OR ORGANIC DISABILITIES IN BIZKAIA) ARGIA FOUNDATION. ERAGINTZA FOUNDATION. BASQUE DOWNS SYNDROME FOUNDATION FUTUBIDE (LEGAL GUARDIANSHIP FOUNDATION) GORABIDE (ASSOCIATION FOR PERSONS WITH LEARNING DISABILITIES IN BIZKAIA) LANTEGI BATUAK. ONCE (SPANISH NATIONAL ASSOCIATION FOR THE BLIND) ULERTUZ (ASSOCIATION OF FAMILIES AND FRIENDS OF DEAF CHILDREN IN BIZKAIA) URIBE COSTA (URIBE COSTA DISTRICT ASSOCIATION FOR PERSONS WITH LEARNING DISABILITIES) IFAS (PROVINCIAL SOCIAL ASSISTANCE INSTITUTE) ITB (LEGAL GUARDIANSHIP INSTITUTE OF BIZKAIA) PUBLISHED BY: PROVINCIAL COUNCIL OF BIZKAIA. DEPT. OF SOCIAL ACTION. UGASKO 3, 2ª PLANTA. 48014 BILBAO GRAPHIC DESIGN BY: LOGORITMO. PLAN FOR PARTICIPATION AND QUALITY OF LIFE OF PEOPLE WITH DISABILITIES IN BIZKAIA/BISCAY 2016 -2019 PLAN FOR PARTICIPATION AND QUALITY OF LIFE OF PEOPLE WITH DISABILITIESIN BIZKAIA/BISCAY 2016 -2019 INTRODUCTION 7 CONTEXTUALISATION AND DIAGNOSIS 9 1. ELEMENTS OF CONTEXTUALISATION AND BACKGROUND 9 2. PEOPLE WITH DISABILITIES IN BIZKAIA 13 3. THE CURRENT RANGE OF SERVICES OFFERED BY THE REGIONAL SOCIAL 19 SERVICES SYSTEM FOR PEOPLE WITH DISABILITIES AND THEIR FAMILIES 4. MAIN ACHIEVEMENTS AND CHALLENGES IN THE MODEL FOR 21 PARTICIPATION AND QUALITY OF LIFE IN THE COMMUNITY VISION, OBJECTIVE, PREMISES AND STRATEGIC FRAMEWORK 25 AXES, STRATEGIC OBJECTIVES AND PRIORITY LINES OF ACTION 29 SYSTEM FOR THE APPLICATION AND EVALUATION OF THE PLAN 35 APPENDIX 1. METHODOLOGY 37 APPENDIX 2. STATISTICS ON PEOPLE WITH DISABILITIES BY SEX 39 APPENDIX 3. SOURCES AND REFERENCES 43 5 PLAN FOR PARTICIPATION AND QUALITY OF LIFE OF PEOPLE WITH DISABILITIESIN BIZKAIA/BISCAY 2016 -2019 INTRODUCTION The Model for Participation and Quality of Life in the Community is the reference model for the care and attention of people with disabilities and their families, and we are committed to advancing its full implementation and development in Bizkaia, with a shared commitment between the Department of Social Action and the region’s social institutions for disability. The Plan for Participation and Quality of Life of People with Disabilities in Bizkaia 2010-2013 has developed this model and its key points as a guide during its progressive implementation. With a focus on the long term, the aim is that its effective implementation will bring a cultural change in the agents and care mechanisms (services, procedures, tools and so on). It is a model that is aligned with scientific and legislative frameworks on the rights, quality of life, equal opportunities and participation of people with disabilities. In particular the United Nations Convention on the Rights of Persons with Disabilities, the International Classification of Functioning, Disability and Health, World Health Organisation (CIF 2001), and Person-centred Planning. It reflects amodern vision, both in understanding the social services system and in the interaction between the Third Sector and the Public Administration, as well as the role of those targeted, the primary causative agents in their own lives. This vision and model will be maintained and this new Plan aims to deepen its operational application for the time period 2016-2019. Indeed, in the coming years, it focuses on achieving a more practical application, operation and balance in the effective deployment of the five strategic axes of social transformation which were defined in the previous Plan and are ongoing in this new Plan. Historically, the Department of Social Action of the Regional Government of Bizkaia has, with the cooperation of social organisations, made a strong commitment to supporting and promoting the most vulnerable people of the area, including people with disabilities and their families. Its role of leadership and momentum in policies in this field in Bizkaia, as an institutional agent with public responsibility for the care, support and promotion of this group, reflects itsrecord of commitment to disability as well as the deployment of its powers, within the current legal framework. This commitment, laid out clearly in its plans, is to contribute to progress in conditions and qualitative, quantitative support in Bizkaia for the quality of life and participation of people with disabilities and their families, in their diversity, with full equality of opportunities in the exercise of all their rights. Within this context, the objective of this Plan 2016-2019 is to contribute to improving the performance of individuals, institutions and organisations involved in the care and promotion of these people in Bizkaia, progressively orienting them towards the Model for Participation and Quality of Life in the Community: 7 PLAN FOR PARTICIPATION AND QUALITY OF LIFE OF PEOPLE WITH DISABILITIESIN BIZKAIA/BISCAY 2016 -2019 • Both to achieve the progressive participation of all the key actors in Basque society whose involvement is necessary in a process of cultural change and social transformation towards an inclusive, diverse society. • And also to achieve continuous improvement, fairness, universality, quality and adaptation of the Regional Social Services to the current and emerging needs of these people. Developed with the participation of social organisations for disability in Bizkaia, the recipients of this Plan are all people with disabilities in Bizkaia and their families, both who require specialised support from the system of social services with regional responsibility1 and those who do not require or request this type of support, but whose real personal autonomy, development and equality requires decisive action and the involvement of multiple agents, as part of a social transformation towards a culture of equal opportunities. Therefore, the document presented below shows the following structure: a) Contextualisation and diagnosis: this includes the elements of contextualisation and background, the approach to the situation of people with disabilities and their families in Bizkaia, through the preparation of their profile, the main initiatives carried out for their care and attention and the identification of the main achievements and challenges to advancing the Participation and Quality of Life in the Community Model. b) Vision, purpose, assumptions and strategic framework for implementing the Model for Participation and Quality of Life in the Community. c) Central axes, strategic objectives and priority lines of action to implement the Model for Participation and Quality of Life in the Community. d) Indicators and work system for monitoring and evaluating the implementation of this Plan. e) Appendices: details of the methodology developed for the preparation of this Plan and list of sources and references used. 1 By “system of social services with regional responsibility” we mean a combination of aid, benefits and social services, with regional responsibility, mutually interdependent and making up an articulated, flexible and personalised network of resources, integrated in the Basque Social Services System and oriented, in this area, to the attention of people with life-long disabilities. 8 PLAN FOR PARTICIPATION AND QUALITY OF LIFE OF PEOPLE WITH DISABILITIESIN BIZKAIA/BISCAY 2016 -2019 CONTEXTUALISATION AND DIAGNOSIS 1. ELEMENTS OF CONTEXTUALISATION AND BACKGROUND The context for the development of this Plan for the Participation and Quality of Life of People with Disabilities in Bizkaia 2016-2019 is that it is part of the following priority elements of the regulatory and applicable scientific framework, background and context: 1.1. THE FRAMEWORK OF RIGHTS FOR PEOPLE WITH DISABILITIES AND GUARANTEES FOR THEIR EFFECTIVENESS People with disabilities are citizens with full rights. They have the same rights as all people, and it is necessary to guarantee them all conditions, support and positive action necessary – across the board in all areas of community involvement - to ensure their enjoyment and exercise of these rights without discrimination, with opportunities equal to those of other people and conditions of universal accessibility in all areas. In particular, the Social Services System, seen as a generator of conditions for effective equality and positive measures for participation, personal autonomy and quality of life, constitutes one of the basic instruments for ensuring that people with disabilities in need of support in this area have the effective exercise of and access to all their rights. In this regard, the United Nations Convention on the Rights of Persons with Disabilities, the Charter of Fundamental Rights of the European Union and the Treaty on the Functioning of the European
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