Soy and soy free diet

What is soy allergy? It is rare (but possible) for these symptoms to occur alone without and/or vomiting. Delayed reactions Soy allergy is a reaction that happens soon after exposure to soy which are not due to IgE allergy antibodies can to soy or soy products. It is usually due to allergy (IgE) cause a flare of eczema and/or bowel symptoms in some antibodies against soy proteins. IgE antibodies can be children. detected using an allergy test such as a prick test or blood test. Are children with cow’s usually How common is soy allergy? allergic to soy as well? No. Only a small amount of children with cow’s milk allergy Soy allergy is uncommon compared with peanut, egg or (about 15%) will also have or will develop allergy to soy. milk allergy. Allergy to soy is most commonly seen in young children with atopic (eczema). Only 2- How is soy allergy diagnosed? 3% of young children will have positive allergy tests to The presence of allergy IgE antibodies to soy can be soy. However only a small amount of these (<10%) have confirmed by an allergy skin prick test or a blood test symptoms when they eat soy. (sometimes called a RAST test). It is important to realise that What are the symptoms of soy allergy? not every child with a positive allergy test will develop symptoms on exposure to soy products. Test results should Reactions can range from mild to severe. Mild to be discussed with your doctor. moderate reactions may be any one or more of the following: Can my child grow out of soy allergy?

 Hives or welts, swelling of the lips/face/eyes Children with soy allergy may outgrow their allergy.  Tingling of the mouth Children with a particular form of soy allergy called “food  Abdominal pain or vomiting. protein induced enterocolitis” (FPIES) usually grow out of the allergy by 2-3 years of age. Your doctor will discuss Severe reactions () include one or more of the what sort of soy allergy your child has and whether your following: child is likely to grow out of it. In cases of soy allergy due  Difficulty/noisy breathing to IgE allergy antibodies, your doctor may see if the  Swelling of the tongue allergy is still present by performing allergy tests every 12  Swelling or tightness in the throat months or so.  Difficulty talking and or hoarse voice  Wheeze or persistent cough  Persistent dizziness or collapse, pale and floppy (in young children).

This document was last reviewed on 1 May 2019 © The Children’s Hospital at Westmead, Sydney Children’s Hospital, Randwick and Kaleidoscope Children, Young People and Families. page 1 of 4

Does exposure to soy increase the risk of  Chocolates and sweets  Soups ? (check for HVP)  Taco shells  Crumbed meats,  Unlabelled processed No. There is no good evidence that eating soy products  Deli meats and salads foods eg. takeaway food increases the risk of developing peanut allergy even  Fish  Vegetable gum though both peanuts and soy are legumes.  Flavourings  Vegetable What is an Epipen?  Vegetable broth An Epipen is an emergency device called an adrenaline autoinjector. It injects a dose of adrenaline into the It is important to: muscle. Epipens are used to treat severe allergic reactions (anaphylaxis). The drug adrenaline reverses the  Learn to how to read food labels carefully. Always severe allergic reaction and can be lifesaving. check the food list for ‘soy’ on the label even if it says “soy-free”. The following is an example of a food label: Should my child carry an adrenaline autoinjector? Allergenic ingredients are named in bold each time they All allergists agree that children who have had a serious appear reaction with involvement of the breathing passages should have an adrenaline autoinjector. The need for other children to have an adrenalin autoinjector depends on a number of factors which should be discussed with Ingredients: Wheat flour, , sugar, cornflour your doctor. (wheat), Hazelnuts, salt, milk solids, sesame, raising agents (E330, E 341, E500), yeast, emulsifier (E322. If you have an adrenaline autoinjector it is very important Soy),egg. that you understand how and when to use it and that you have a written anaphylaxis action plan provided by your Contains wheat, hazelnuts, milk, sesame, soy and egg doctor. How do I avoid exposing my child to soy? Summary statement E322 soy doesn’t need Soya beans are used widely in the manufacture of listing all allergenic to be avoided in soy processed foods although they are not commonly eaten ingredients starting with allergy in Australia. e.g. , , , , the word ‘contains’ beans and need to be avoided. Avoid foods which contain:  Avoid foods that don’t have a food label or that you  Soya beans / Edamame haven’t made yourself, as there is no guarantee that  Soy flour the food doesn’t contain soy  Soy milk & soy milk products eg. soy yoghurts, soy cheeses, soy desserts, soy ice cream  Plan eating out and travelling and talk to staff serving you about your child’s allergy  Soy bean sprouts  Avoid food that is served using spoons/tongs that are  Tofu (soy bean curd) also used to serve food containing soy (e.g. some  Textured/Hydrolysed vegetable protein (TVP, HVP) takeaway meals)  Fermented products such as: miso (soy bean paste), , soy sauce, tamari, bean curd, teriyaki  Prepare safe meals at home for your child to take out  Teach your child about their allergy Foods that sometimes (but not always) contain soy include: Are all foods made from soy equally allergenic?  Bread (soy flour is used in  Many meat substitutes many commercial  Mayonnaise type No. High levels of some soy may be found in soy breads) dressings milk drinks or in soy powder, lesser amounts in textured  Breakfast cereals  Packaged sauces and , tofu and soy flakes and very low amounts of  Bread crumbs gravy mixes in fermented products such as soy sauce or miso  Cakes and biscuits  Sausages, sausage rolls, and in strongly heated products such as roasted  Chocolate flavourings frankfurts, pizza . There is no need to avoid soy No 322.

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Research studies show that most people with soy allergy Soy milk substitutes can safely eat soy lecithin and soyabean oil. Instead of: Use What about soy sauce? Soy milk infant formula for Breast milk, cow’s milk Soy sauce is prepared by fermentation which reduces the a child less than one year formula, hydrolysed ability of the food to cause an allergic reaction. Therefore of age. NB rice drink is NOT formula or amino acid some allergic children may not react to soy sauce, yet suitable for a child less formula. Speak with a react to other soy products. Also some soy sauces are than 1 year. medical professional to actually made from wheat products. choose the right one based

on your child’s diagnosis What about soy in processed foods? Soy drink for a child over Cow’s milk one year of age NB rice Rice drink – choose one Almost half of soy allergic patients have had an allergic drink is NOT suitable for a with more than 120 mg reaction due to ingestion of “hidden” soy. “Hidden” soy child less than one year. allergens are found in foods such as: calcium /100 ml rice drink

Speak with a medical  boiled ham, professional to choose the  sausages, right one based on your  cheese puffs, child’s diagnosis  cakes and sweets  breakfast cereals Soy yoghurt Cow’s milk yoghurt  taco shells Soy cheese, soy sour cream Cow’s milk cheese, and  precooked dishes, sour cream  desserts and  gravy & stock cubes

Soy ice cream Cow’s milk ice cream, What about foods that may contain traces of sorbet, gelato soy? In general the amount of the food needed to trigger an allergic reaction is much higher for soy than for other food . Therefore soy allergic patients are at less What if my child is allergic to cow’s milk & soy risk for allergic reactions to traces of soy in processed milk? foods. Cow’s milk and dairy products or soy drinks are the main source of calcium in our diet. When it isn’t possible to use cow’s milk or soy milk it is essential to make sure your Soy free bread alternatives child gets it from other sources. You need to discuss Most breads are made with a starter containing soy. This other options with your doctor and possibly a dietitian to can make avoiding soy very difficult. Options for soy free make sure your child meets their daily requirement for breads are: calcium that is so important for your child growing up.  Home-made using a breadmaker and allowed flours Calcium  Check your local baker, greengrocer, delicatessen or Daily calcium requirements are: supermarket for soy free breads  Crumpets CHILDREN  Many flat breads e.g. Lebanese or Indian bread, wraps, 1 – 3 years 500mg mountain breads 4 – 8 years 700mg

9 – 13 yrs 1000 – 1300mg

14 – 18 yrs 1300mg

Reference: Nutrient Reference Values for Australia and New Zealand, 2006

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An example of how to keep count of calcium consumption is as follows: Where can I find more information on the Internet? FOOD Calcium Quantity Calcium content consumed consumed  The Australian Society of Clinical and (mg) Allergy (ASCIA) website contains useful information on written by Australian Cow’s milk 120 mg specialists (www.allergy.org.au). Rice drink with 120mg  The patient support group Anaphylaxis Australia added calcium offers valuable updates and tips for dealing with food allergies (www.allergyfacts.org.au). Yoghurt * 200g (1 300 mg  FSANZ - Food Standards Australia and New large tub) Zealand for information on food labelling Cheese * 20g (1 180mg www.foodstandards.gov.au slice)

Ice cream * 2 scoops 120 mg Custard* -½ cup 150 mg Salmon with bones 400 mg ½ cup

Sardines 1 small tin 230 mg Breakfast cereal with Check added calcium* label Broccoli ½ cup 20mg Supplement Other TOTAL

Calcium supplements In some cases it may be necessary to give a calcium supplement. Examples:  Sandocal, (1000mg calcium/tablet) a pleasant fizzy drink which can be made up with water or juice.  Caltrate, (600mg/tablet) a tablet which can be crushed and added to food or drink.  Calcia (500mg) chewable lemon or orange flavoured tablet.  Calsup (500mg) mint flavoured chewable tablet.

There may be other supplements not listed here that are suitable for your child. Formulations change all the time and medications don't have the same labeling laws as foods. Please discuss with your pharmacist.

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