Dreaming Menopause Attorney Lauren Debruicker
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UNITED SPINAL ASSOCIATION’S Dreaming Menopause Attorney Lauren DeBruicker life beyond wheels The Future of Accessible Travel WITH AIRBNB’S SRIN MADIPALLI newmobility.com MAY 2019 $4 THE DIFFERENCE YOU HAVE BEEN WAITING FOR “ It becomes part of your body and ” not part of what you are pushing. - Alan Ludovici | Designer, Rider, Ethos Creator DISCOVER ETHOS AT www.kimobility.com With 100% No Touch Protection, whatever you touch won’t touch VaPro catheters. The protective tip and sleeve of VaPro catheters have been tested and have been shown to prevent the transmission of bacteria that may cause UTIs. Don’t settle for anything less than 100% No Touch Protection. Call to request a sample today! 1.888.808.7456 Prior to use, be sure to read the Instructions for Use for information regarding Intended Use, Contraindications, Warnings, Precautions, and Instructions. Rx Only The Hollister logo and VaPro are trademarks of Hollister Incorporated. ©2019 Hollister Incorporated. US-00717 CONTENTSIssue 308 - May 2019 life beyond wheels COVER STORY THE MAN BEHIND AIRBNB’S ACCESS PUSH As the head of Airbnb’s push for accessibility and inclusion, Srin Madipalli is 24 overseeing the $35 billion peer-to-peer rental giant’s efforts to make travel more accessible. With rentals in almost 200 countries and over 150 million users, the company could be a game changer. But is that what it wants? IAN RUDER profiles Madipalli and reports on his “once in a lifetime” opportunity to change the global conversations on disability and access. Cover and Contents Photos by Clara Rice FEATURES DEPARTMENTS 4 BULLY PULPIT 20 DREAMING AFTER SCI BROOK MCCALL talks with other wheelers about how they see 5 BEHIND THE STORIES their disabilities in their dreams to figure out what, if anything, 6 SHARE our nocturnal adventures are telling us. 8 POSTS 32 ZAPPOS’ FASHION REVOLUTION 10 ASK US For one night in March, the future of adaptive fashion strutted 12 EAT WELL down a runway in Vegas. BROOK MCCALL reports on the head- 13 REFRAMED turning collaboration between Zappos and Runway of Dreams. 14 MEDIA 16 GEAR HACKS 34 WHEELS OF JUSTICE KATE MATELAN profiles Assistant U.S. Attorney Lauren 18 HOW WE ROLL DeBruicker and finds out how she “packs a punch with an iron 42 EVERYDAY ETHICS fist in a velvet glove” to fight for the rights of all Americans. 47 CLASSIFIEDS 48 LAST WORD 39 THE M WORD There is no escaping menopause, so PAULA LARSON investi- gates how women living with SCI/D can mitigate its impact. life beyond wheels BULLYBy Ian PULPITRuder NEW MOBILITY IS THE MONTHLY MAGAZINE OF UNITED SPINAL ASSOCIATION U CAN TOUCH THIS PRESIDENT & CEO: JAMES WEISMAN VP OF PUBLICATIONS: JEAN DOBBS It seems like not a week goes by without ies have shown that hugs can help amelio- some story in the news about inappropriate rate cold symptoms and that as little as 15 touching. Thanks to the overeager hands of minutes of touch can have helpful effects. EDITORIAL politicians, entertainers, businessmen and After reading about some of these studies PUBLISHER: JEAN DOBBS other public figures, there is more discussion in a recent article in The Atlantic, I emailed Tif- about the boundaries of “proper” touching EXECUTIVE EDITOR: JOSIE BYZEK fany Field, the founder of the Touch Research and how we physically interact with each EDITOR: IAN RUDER Institute at the University of Miami’s Miller other than at any point I can remember. ASSOCIATE EDITOR: SETH MCBRIDE School of Medicine. Field, a developmental I bring this up not because I have some EDITOR EMERITUS: TIM GILMER psychologist, is known for her studies on the brilliant solution or “best practices” that SENIOR CORRESPONDENT: BOB VOGEL will change everyone’s perspectives, but “Should I extend a hand to because I can’t imagine a better time to ex- amine where those boundaries lie in regard shake? Is a hug even possible?” CUSTOMER SERVICE to us — people with disabilities. importance of touch. She studied the impact Toll-free 800/404-2898, ext. 7203 On the one hand, none of us want of touch deprivation on infants and found strangers accosting us and pushing our that simple, repeated touch could help them chairs when not asked; on the other hand, gain weight and avoid medical problems. ADVERTISING SALES ignoring the need for closeness and the I told her I was a quadriplegic with 718/803-3782 connections bred by human touch can be limited sensation, and how much more dif- MANAGER, CORPORATE RELATIONS: equally harmful, and even dangerous. ficult I found it to have meaningful physical MEGAN LEE, EXT. 7253 Whether I’m out for a roll, at a social interactions with others. It’s a reality that event, or even hanging out with friends, I AD MATERIALS: DEANNA FIKE, EXT. 7250 I’ve heard many other wheelers bemoan, am constantly reminded that most people and one that I don’t think many nondisabled simply don’t know how to interact with PRODUCTION people even consider. I asked her if she was people who use wheelchairs and other PRODUCTION MANAGER: DEANNA FIKE aware of anyone studying the effects of assistive devices. I see the confusion and touch deprivation on our community. uncertainty on strangers’ faces as they CIRCULATION Sadly, aside from one study on mas- take in my bulky power wheelchair — how CIRCULATION MANAGER: saging quadriplegics, she said she didn’t do I approach him? Should I extend a hand BEVERLY SMITH know of other such studies. But she did to shake? Is a hug even possible? CIRCULATION COORDINATOR: seem intrigued and promised to pass along I understand the confusion, and I’m the MARIA KURTZ the correspondence to the spinal cord first to admit I wasn’t totally comfortable research team at the hospital. Maybe that POSTMASTER: Send address changes to New with how to interact with people with Mobility, 120-34 Queens Blvd, #320, Kew Gardens disabilities before I became one, but I also will lead to something, maybe not. But in NY 11415. Subscription rates: $27.95/year; $35.95/ the meantime, now seems like a good time year in Canada; $67.95/year international via understand how important touch is. airmail. New Mobility (ISSN 1086-4741), Volume In addition to telling us how something to engage people from both inside and 30, Issue 308, is published monthly by United feels, touch carries emotion and shapes our outside the disability community and get Spinal Association, 120-34 Queens Blvd, #320, the conversation going. Kew Gardens NY 11415. Copyright 2019, all rights perception on a level much deeper than the reserved. Reproduction without permission of any physical. A warm embrace, a slimy palm or a If you have a disability, take the time to material contained herein is strictly prohibited. We firm handshake can tell you everything you educate people you care about regarding welcome comments; we reserve the right to edit submissions. need to know about a new acquaintance. A how you can physically connect. If you don’t have a disability, look for appropriate ways to Periodicals postage paid at Flushing, NY good massage can alleviate pain and stress, and additional mailing offices. and something as simple as a hug can im- ask questions and facilitate discussion. Lone- prove your mood and stave off depression. liness and depression are all too common in www.newmobility.com These correlations aren’t just anecdotal the disability community and to ignore such www.unitedspinal.org either. Among other positive results, stud- a simple remedy would be negligent. 4 NEW MOBILITY life beyond wheels BEHIND THEWith Ian Ruder STORIES CONTRIBUTING EDITORS MICHAEL COLLINS MIKE ERVIN ROXANNE FURLONG ALEX GHENIS life beyond wheels RICHARD HOLICKY KATE MATELAN So many of our best stories come out of personal ex- ALLEN RUCKER periences, and Paula Larson’s article on menopause ROBERT SAMUELS in this issue is a great example. “Just going through ERIC STAMPFLI menopause, I realized that I didn’t have anybody to ELLEN STOHL talk to about the experience of being a wheeler and BOB VOGEL what I should expect,” she says. “I figured if I had that LOREN WORTHINGTON experience maybe there were other people in the same boat.” When she started reaching out to discuss the topic, people were open and candid with their re- sponses. “Almost all the women I spoke to were look- COMMUNITY PARTNERS ing forward to our conversation,” she says. KIM ANDERSON CHRISTIAAN “OTTER” BAILEY MARTY BALL TIFFINY CARLSON LAWRENCE CARTER-LONG We first introduced readers to cartoonist Mat Barton RORY COOPER in a profile by Tim Gilmer almost five years ago, and JASON DASILVA these days we are fortunate to have him penning DEBORAH DAVIS Please Remain Seated as part of our exciting new back page. He’s had a passion for art for as long as he TOBIAS FORREST can remember but ramped up his efforts after he was JENNIFER FRENCH paralyzed in 2012, finding drawing to be “super thera- ALLISON CAMERON GRAY peutic.” When he’s not sketching, Barton works as a MINNA HONG graphic designer in Portland, Oregon. His work has MARK JOHNSON also been featured in The New Yorker, Ruminate and GARY KARP elsewhere. Make sure to check it out at matbarton. NANCY BECKER KENNEDY tumblr.com and matbarton.com. CORY LEE BRITTANY MARTIN LINDA MASTANDREA LYNN MURRAY When I think of Kate Matelan, I think of a fierce woman ASHLEY LYN OLSON who takes no guff and is ready to kick some ass. Some TEAL SHERER of that is because she wrote a great article on self de- TARI HARTMAN SQUIRE fense for the magazine I worked on before NM, which MITCH TEPPER featured an iconic image of her on the cover, but it’s REVECA TORRES also because I have had the privilege of getting to know ANTHONY TUSLER her over the years.