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THOSE WHO SUFFER MUCH-LDN BOOK-Wcover-Aug09 Those Who Suffer Much Know Much Why weren’t you told? an old drug a controversial treatment patient testimonies of success across a wide range of diseases linked by immune system dysfunction but YOU won’t hear of it and YOU won’t be offered it In keeping with the altruism of contributors to this book Case Health offers this book to you without charge or expectation. You can 'share it forward' with others under the same philosophy but it must remain free of charge & unchanged. You can also host it on a website to freely share it forward. In this book Health Success Case Studies attributing low dose naltrexone… LDN… in the beneficial treatment of immune system diseases Case Health advocates the value of patient testimony to health system frameworks worldwide Cris Kerr, Case Health 55 Webb Street, Brisbane, Queensland, Australia 4053 Advocating the value of patient testimony since May 2001 © Case Health 2006, revised July 2007, July 2008, July 2009 (Websites: casehealth.com.au casehealth.com May 2001 to May 2009) The 47 case studies in this book feature Low Dose Naltrexone (LDN) an old drug a controversial treatment patient testimonies of success across a wide range of diseases linked by immune system dysfunction but YOU won’t hear of it and YOU won’t be offered it Of those conditions LDN has benefited the following are featured in this book Multiple Sclerosis HIV Hepatitis B Primary Lateral Sclerosis Cancer Fibromyalgia Crohn’s Disease Arthritis and diseases of immune system dysfunction Supporting data for this book has been assembled from untested patient testimony of health success. Case Health Pty Ltd Revised – July 2007, July 2008, July 2009 Page 2/270 dedicated to all PATIENT CHAMPIONS who through their own suffering have grown to understand the value of sharing their stories in detail, as case studies in the hope it will benefit another. To all those whose generous contributions made this book possible … THANK YOU with my sincere apology for the English language limitation of this book To Linda A very special note of appreciation goes across the waves to Linda Elsegood of LDN Research Trust in the UK. Thank you Linda, for your valued friendship and assistance with the following patient testimonies: Out of wheelchair under a week - Scott MS & Me – Jackie LDN gave me Hope for the future - Annmarie LDN has given me hope - Audrey Crohn’s and Me - Peter B Most wonderful thing in my life - Jon Cancer, back from the brink - Eileen LDN kept me out of hospital - Zillah My 2 Little Pills are called LDN - Kristie Case Health Pty Ltd Revised – July 2007, July 2008, July 2009 Page 3/270 Content Page Dedications 3 Article ‘Those who suffer much know much’, article by Cris Kerr 7 Quotes: Dr David Gluck, Linda Elsegood, Mary Boyle Bradley 23 Multiple Sclerosis Case Studies 1 My pre & post LDN MS story – Jim, USA 24 2 Until there’s a cure there’s LDN – Carol, USA 32 3 Out of wheelchair under a week – Scott, USA 35 4 MS, but walking & driving my car again – Bill, USA 38 5 Improvement was gradual and subtle – Julia, UK 41 6 LDN allowed me to work with MS – Neil, Australia 45 7 Paul’s MS & LDN story began in 2004 – Aletha, USA 49 8 LDN 4 me – Maurey, USA 53 9 LDN, MS & Me – Jackie, UK 55 10 MS & LDN since May 2002 – Joyce F, USA 57 11 Thanks to LDN I can enjoy Life – Vickie, USA 60 12 LDN has been a miracle for me – Art, USA 63 13 My MS & TM Story – Crystal, USA 66 14 I have PPMS but doing well – Emily, USA 71 15 LDN giving me my best friend back – Nancy, USA 74 16 Linda Elsegood’s MS Story, UK 79 About the LDN Research Trust 84 17 My MS with LDN journey – Gigi, USA 85 18 LDN gave me Hope for the future – Annmarie, UK 89 19 LDN has given me hope – Audrey, UK 94 20 Mary finds proof of Santa for Noel – Mary, USA 97 21 LDN kept me out of hospital - Zillah, UK 103 22 Most wonderful thing in my life - Jon, UK 106 23 SPMS Improved, but with hiccups - Di, Australia 108 24 My Two Little Pills are called LDN - Kristie, USA 111 25 Incremental Improvement for MS - Ellen, USA 113 26 MS Symptom Improvement a Bonus - Silvia, UK 117 Case Health Pty Ltd Revised – July 2007, July 2008, July 2009 Page 4/270 27 LDN, Trust & Patience has worked for me - Sal, Australia 119 28 LDN-Back to my old self - Laura, Ireland 124 29 MS plus Crohn’s plus LDN equals JOY - Pat, USA 126 HIV Case Studies 30 HIV viral load down, T-cells up – Matt, USA 129 Graphs – Test Results – CD4, Viral Load 134 31 HIV-blood & liver enzymes now normal – Noreen, USA 135 Hepatitis B Case Study 32 LDN benefiting daughter’s HepB - Joyce C, USA 140 Graphs – Test Results – Liver Enzymes, Viral Load 147 Primary Lateral Sclerosis Case Study 33 Antioxidants & LDN stabilized my PLS – GaryC, Australia 148 Cancer Case Study 34 LDN is working-Metastatic IVB Cancer – Dee, Hong Kong 151 35 Every condition has improved – Celia, Scotland 157 36 Five years breast cancer free – Lola, USA 161 37 Cancer, back from the brink - Eileen, UK 163 Crohn’s Disease 38 Crohn’s and Me - Peter B, UK 167 39 Crohn’s best it’s ever been – Claudia, USA 171 40 LDN benefited son’s Crohn’s – Paul PA-C, USA 176 41 The Story of My Current Life – Rachel, USA 180 Fibromyalgia 42 My LDN & Fibromyalgia story-Janis, Australia 182 43 LDN Dramatically reduced Fibro Pain-Judy, USA 186 44 LDN benefiting arthritis & fibro – Edward, USA 190 Rheumatoid Arthritis 45 LDN & My Peculiar Circumstance-Margaret, France 193 MULTIPLE CONDITIONS – MULTIPLE BENEFITS Fibromyalgia, Lyme Disease, Crohn’s Disease, Multiple Sclerosis, Hashimoto’s Thyroiditis, Post Polio Syndrome, Psoriasis, Autoimmune Thyroid Disorder, Microscopic Colitis (MC), Goiter 46 Fibromyalgia and more-Bill W, USA 200 47 Autoimmune Disease vs LDN - Nettie, New Zealand 204 Interviews with Professionals – Doctors, Pharmacists Dr David Gluck, United States 209 Dr Tom Gilhooly, Scotland 212 Case Health Pty Ltd Revised – July 2007, July 2008, July 2009 Page 5/270 Dr Jaquelyn McCandless, United States 214 Dr Skip Lenz, Pharmacist, United States 220 Dr Bob Lawrence, United Kingdom 223 LDN Research Trust Fact Sheet 2009 229 Dr Burton M Berkson, New Mexico 231 Prof Jill Smith, United States 238 Dr Phil Boyle, Ireland 240 Antony Condina, Compounding Pharmacist, Australia 245 Related Articles ‘Shared Vision for Health’, article by Cris Kerr 247 ‘Bad things Happen When Good People do Nothing’, article by Cris Kerr 251 Prime Media – LDN in the News - Video & Online News 256 USA Conferences – Video Testimonies 257 European Conference – Video Presentations 261 European Conference – Video Testimonies 261 Documentaries 262 LDN Advocates – websites & discussion groups 262 LDN Advocate – Blog Talk Radio 263 LDN Advocates – books 264 References 265 Dear Journalists, Contributors who’ve consented to interviews by the media are colour-coded within this book. Please email details of interview requests to Cris Kerr [email protected] Case Health Pty Ltd Revised – July 2007, July 2008, July 2009 Page 6/270 Those Who Suffer Much Know Much Why weren’t you told? By Cris Kerr Case Health – Health Success Stories Advocate for the value of patient testimony to health frameworks & ehealth systems worldwide October 2005, rev July 2007, rev July 2008, rev July 2009 In 2001 Cris Kerr created the 'Case Health – Health Success Stories' website to collect and share health success case studies attributed to any successful health intervention, and hence; build evidence of the value of patient testimony to improving health outcomes. Though based in Brisbane, Australia, the website held stories from all over the world, accessible through a searchable database. The website was provided as a community service for 8 years, closing in May 2009, but the primary mission of achieving long overdue recognition of the value of patient testimony and its potential to improve health outcomes continues in this 2009 revision of the ‘proof of concept’ book, ‘Those Who Suffer Much, Know Much’ … Injustice on our doorstep I first became aware of an obscure treatment that can halt or slow progression of Multiple Sclerosis (MS), and enhance quality of life for sufferers after receiving a health success story submission six years ago, in 2003. The treatment employs low doses of an old, off-patent drug with a good safety profile. That drug is naltrexone, and a growing body of compelling patient testimony says this obscure treatment works, and works well - BUT, sufferers can’t get it and won’t be told about it. It isn’t a cure, and it doesn’t work for everyone, but it does work – and it should be a treatment option for anyone who might benefit. This low dose naltrexone story is compelling and should be freely shared forward Dr Bernard Bihari’s groundbreaking clinical work with low doses of naltrexone (LDN) commenced over twenty years ago in the late 1980s and has since resulted in a small, but growing number of physicians prescribing LDN to minimize both progression and symptoms of immune system diseases for their patients. Bihari first successfully treated HIV patients, then Multiple Sclerosis (MS) and cancer patients with low doses of between 3mg and 4.5mg of naltrexone. In the ensuing years LDN has been cited as beneficial across a broader spectrum of known or suspected immune system diseases, such as; Crohn’s Disease, Case Health Pty Ltd Revised – July 2007, July 2008, July 2009 Page 7/270 Fibromyalgia, Hepatitis B, Arthritis, and a growing list of others.
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