Those Who Suffer Much Know Much about Low Dose Naltrexone (LDN) Why weren’t you told? aann oolldd ddrruugg aa ccoonnttrroovveerrssiiaall ttrreeaattmmeenntt bbeenneeffiittiinngg iimmmmuunnee ssyysstteemm ddiisseeaasseess tthhoouussaannddss aacchhiieevviinngg hheeaalltthh ssuucccceessss hhuunnddrreeddss ooff rreeccoorrddeedd ppaattiieenntt tteessttiimmoonniieess WWHHYY hhaavveenn’’tt yyoouu hheeaarrdd ooff iitt?? WWHHYY wwoonn’’tt yyoouu bbee ooffffeerreedd iitt?? In keeping with the altruism of contributors Case Health continues to offer this book to you FREE without charge or expectation You can 'share it forward' or host it on a website under the same philosophy without modification and free of charge in this fifth revision 51 Health Case Studies 19 health professional interviews & perspectives low dose naltrexone (LDN) in the beneficial treatment of immune system diseases Supporting evidence for the value of patient testimony to e-health systems worldwide Cris Kerr, Case Health 55 Webb Street, Brisbane, Queensland, Australia 4053 Advocating the value of patient testimony since May 2001 © Case Health 2006, revised July 2007, July 2008, July 2009, July 2010 (Original Websites: casehealth.com.au & casehealth.com May 2001 to May 2009) The case studies in this book feature Low Dose Naltrexone (LDN) an old drug a controversial treatment benefiting immune system diseases thousands achieving health success hundreds of recorded patient testimonies WHY haven’t you heard of it? WHY won’t you be offered it? of those conditions LDN has benefited the following are featured in this book Multiple Sclerosis HIV Hepatitis B & C Primary Lateral Sclerosis Cancer, Lymphoedema Fibromyalgia Crohn’s Disease Arthritis Parkinson’s Disease Relapsing Polychondritis (RPC) and diseases of immune system dysfunction Supporting data for this book has been assembled from untested patient testimony of health success. Case Health Pty Ltd Revised – July 2007, July 2008, July 2009, July 2010 Page 2/434 dedicated to Dr Bernard Bihari and all Patient Champions who through their own suffering have grown to understand not only the need to raise their voice but to record and share their health journeys in detail with altruistic intent, to benefit another. To all those whose generous contributions made this book possible … THANK YOU with my sincere apology for the English language limitation of this book Dr Bernard Bihari Sadly, Dr Bernard Bihari passed away on Sunday, 16 May 2010 after a prolonged period of illness. He was 78. The flow-on effect of Dr Bihari’s use of LDN in clinical practice did not just deliver hope to his own patients but to patients around the world, and his pioneering work resulted in real relief from real suffering, and real improvement in quality of life for tens of thousands, and we hope in the years to come... hundreds of thousands. Words cannot express how deeply his passing was felt by the thousands he has touched... whose quality of life was dramatically turned around due to his compassion for patients, and his pioneering work in their collective best interests, against all odds. We are forever in his debt. To Linda A very special note of appreciation goes across the waves to Linda Elsegood of LDN Research Trust in the UK. Thank you Linda, for your valued friendship and assistance with the following patient testimonies: Out of wheelchair under a week - Scott MS & Me – Jackie LDN gave me Hope for the future - Annmarie LDN has given me hope - Audrey Crohn’s and Me - Peter B Most wonderful thing in my life - Jonathan Cancer, back from the brink - Eileen LDN kept me out of hospital - Zillah My 2 Little Pills are called LDN - Kristie Case Health Pty Ltd Revised – July 2007, July 2008, July 2009, July 2010 Page 3/434 Content Page Dedications 3 Why You Weren’t Told About LDN ‘Those who suffer much, know much’ by Cris Kerr 9 Dr David Gluck USA, Linda Elsegood UK 33 CASE STUDIES grouped by condition Multiple Sclerosis 1 My pre & post LDN MS story - LDN since Dec 2003 – Jim, USA 35 2 Until there’s a cure there’s LDN - LDN since Sept 2002 – Carol, USA 44 3 Out of wheelchair under a week – LDN since July 2004 – Scott, USA 49 4 MS, but walking & driving my car again – LDN since July 2005 - Bill, USA 53 5 Improvement was gradual and subtle – LDN since August 2005 – Julia, UK 57 6 LDN allowed me to work with MS – LDN since May 2004 – Neil, Aust 61 7 Paul’s MS & LDN story began in 2004 – LDN since July 2005 – Aletha, USA 65 8 LDN 4 me – LDN since August 2007 – Maurey, USA 69 9 LDN, MS & Me – LDN since April 2004 – Jackie, UK 72 10 MS & LDN since May 2002 – LDN since May 2002 – Joyce, USA 76 11 Thanks to LDN I can enjoy Life – LDN since August 2007 – Vickie, USA 82 12 LDN has been a miracle for me – LDN since March 2005 – Art, USA 86 13 My MS & TM Story – LDN since September 2005 - Crystal, USA 89 14 I have PPMS but doing well – LDN since April 2006 - Emily, USA 95 15 LDN giving me my best friend back – LDN since September 2006 - Nancy, USA 98 16 Linda Elsegood’s MS Story, UK – LDN since December 2003 – Linda E, UK 104 plus… About the LDN Research Trust 109 17 My MS with LDN journey – LDN since October 2005 - Gigi, USA 110 18 LDN gave me Hope for the future – LDN since October 2007 - Annmarie, UK 117 19 LDN has given me hope – LDN since March 2007 - Audrey, UK 122 20 Mary finds proof of Santa for Noel – LDN since Sept 2002 - Noel & Mary, USA 128 21 LDN kept me out of hospital – LDN since November 2006 - Zillah, UK 134 22 Most wonderful thing in my life – LDN since January 2007 - Jonathan, UK 138 23 SPMS Improved, but with hiccups – LDN since January 2008 - Dianne, Aust 141 24 My Two Little Pills are called LDN – LDN since March 2008 - Kristie, USA 145 25 Incremental Improvement for MS – LDN since January 2009 - Ellen, USA 148 26 MS Symptom Improvement a Bonus – LDN since January 2009 – Silvia, UK 153 Case Health Pty Ltd Revised – July 2007, July 2008, July 2009, July 2010 Page 4/434 27 LDN, Trust & Patience has worked for me – LDN since Dec 2007 – Sal, Aust 157 28 LDN-Back to my old self – LDN since January 2008 – Laura, Ireland 162 29 MS plus Crohn’s plus LDN equals JOY – LDN since March 2009 – Pat, USA 165 48 Specialists frown on it, but works for me – LDN since May 2007 – Kelli, Aust 168 49 LDN – I started in July 2003 – LDN since July 2003 – Brenda, USA 170 HIV 30 HIV viral load and T-cell Tracking – LDN since Dec 2004 - Matt, USA 174 Graphs – Test Results – CD4, Viral Load 180 31 HIV-blood & liver enzymes now normal – LDN since Jan 2006 - Noreen, USA 181 Hepatitis B Case Study 32 LDN benefiting daughter’s HepB – LDN since July 2007 – Joyce C, USA 187 Graphs – Test Results – Liver Enzymes, Viral Load 194 Hepatitis C Case Study 50 LDN and ALA Benefiting HepC – LDN since April 2009 - Chris, USA 195 Primary Lateral Sclerosis 33 Antioxidants & LDN stabilized my PLS - LDN since Feb 2004 - Gary, Aust 198 Cancer 34 LDN was working-Metastatic IVB Cancer - LDN since Feb 2007 202 Dee, Hong Kong – Sadly, Dee passed away on 22 April 2010 35 Every condition has improved – LDN since November 2007 - Celia, Scotland 211 36 Five years breast cancer free – LDN since April 2004 - Lola, USA 216 37 Cancer, back from the brink – LDN since December 2007 - Eileen, UK 218 Crohn’s Disease 38 Crohn’s and Me – LDN since October 2007 – Peter, UK 222 39 Crohn’s best it’s ever been – LDN since Feb07 or Nov08 – Claudia, USA 227 40 LDN benefited son’s Crohn’s – LDN since January 2008 - Paul B, PA-C, USA 232 41 The Story of My Current Life – LDN since July 2008 - Rachel, USA 236 Fibromyalgia 42 My LDN & Fibromyalgia story – LDN since January 2009 – Janis, Aust 238 43 LDN Dramatically reduced Fibro Pain – LDN since January 2009 - Judy, USA 242 44 ‘LDN benefiting arthritis & fibro – Edward, USA’, LDN since March 2005. 246 CASE STUDY Number 44 was featured on page 194 of the 2009 edition but has been removed due to data oversight, though of note is that Edward continued to report benefiting from LDN. Rheumatoid Arthritis 45 LDN & My Peculiar Circumstance – LDN since April 2009 - Margaret, France 247 Parkinson’s Disease 51 Bentley’s Parkinson’s benefited from LDN & HBO - LDN since Oct 2004 - Destiny on 256 behalf of Bentley, USA Case Health Pty Ltd Revised – July 2007, July 2008, July 2009, July 2010 Page 5/434 Multiple Conditions – Multiple Benefits Fibromyalgia, Lyme Disease, Crohn’s Disease, Multiple Sclerosis, Peripheral Neuropathy, Hashimoto’s Thyroiditis, Microscopic Colitis (MC), Relapsing Polychondritis Post Polio Syndrome, Psoriasis, Microscopic Colitis (MC), Goiter 46 Fibromyalgia and more – LDN since July 2007 - Bill W, USA 262 47 Autoimmune Disease vs LDN – LDN since July 2008 - Nettie, New Zealand 266 52 LDN helping Relapsing Polychondritis – LDN since July 2009 - Nancy, Australia 272 Interviews & Perspectives - Health Professionals Dr Bernard Bihari, USA 279 Dr David Gluck, USA 289 Dr Tom Gilhooly, Scotland 294 Dr Jaquelyn McCandless, USA 296 Dr Skip Lenz, Pharmacist, USA – Updated February 2010 303 Skip’s Pharmacy: Results of LDN Patient Survey 2008 308 Dr Bob Lawrence, United Kingdom 312 Dr Burton M Berkson, USA 318 Prof Jill Smith, USA 326 Dr Phil Boyle, Ireland 330 Antony Condina, Compounding Pharmacist, Australia 335 Larry Frieders, Compounding Pharmacist, USA 337 Dr Pat Crowley, Ireland 342 Dr Terry Grossman, USA 345 Dr Ian S Zagon, USA 348 Dr Edmond O’Flaherty, Ireland 353 Maira Gironi, MD, PhD, Italy 355 Dr Julian Whitaker, USA 359 Professor George Jelinek, Australia 365 Paul Battle, PA-C (Physician Assistant), USA 366 Related Health Articles USA MS Sufferer,