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TECHNOLOGY Table of CONTENTS BRAIN INJURY ASSOCIATION OF AMERICA | Volume 11, Issue 2 theChallenge! TECHNOLOGY Table of CONTENTS SPRING 2017 4› Assistive Tecnology Goes Mobile THE Challenge! is published by the Brain Injury Association of America. We welcome 8› 2017 Moody Prize Awarded to manuscripts on issues that are Joseph T. Giacino, Ph.D. important to the brain injury community. Please send submissions in a standard 10 Mobile Technologies Nag ® › Microsoft Word document to You Toward Independence 4 [email protected]. For more information regarding advertising in THE Challenge!, 14› A Family's Support Keeps please visit the sponsorship Hope Alive and advertising page at 8 www.biausa.org. 16› Honor Roll of Donors Association Staff & Volunteers: Marianna Abashian 18› Advocacy Update Greg Ayotte Stephanie Cohen 22› State Affiliate News Amy C. Colberg Susan H. Connors 27› Brain Injury Advisory Council William Dane Corner Member Spotlight: Sarah Drummond Sarah Lefferts Tiffany Epley Dianna Fahel 28› The BIAA Bookshelf Holly Kisly Jessica Lucas 29› News & Notes Jennifer Mandlebaum Carrie Mosher 30› Upcoming Webinars Mary S. Reitter In Memoriam Becky McCleskey 1960 - 2017 Postmaster: Send address changes to: 10 THE Challenge! 1608 Spring Hill Rd., Suite 110 Vienna, VA 22182 Copyright 2017 BIAA All rights reserved. No part of this publication may be reproduced in whole or in part without written permission from the Brain Injury Association of America. Email requests to [email protected]. Publication designed by Eye to Eye Design Studio, LLC [email protected] 25 27 Please recycle this issue. 2 From my DESK BREAKING NEWS Join us for the Capitol Hill Fly-in to protect rehabilitative and habilitative services and devices and other key provisions in the Senate effort to repeal and replace the Affordable Care Act. Tuesday, June 27, 10 a.m. - 5 p.m. Legislative visits, Luncheon, and Congressional Briefing United States Senate, Washington, D.C. Please RSVP to [email protected] n April, hundreds of thousands of people marched in the District of Columbia and 600 other cities Ito support science in all its forms – earth science, life science, social science, and even old standbys like chemistry, physics, and astronomy. While many marchers called for stronger environmental protections, plenty of people rallied for advances in technology. In fact, technology was a core message during the march because it brings people together and allows them to participate in ways that were not possible just a few years ago. As the event organizers I sincerely thank our corporate sponsors and put it, “Technology has opened up a new world individual donors for their generous support. We of ways everyone can be a researcher or part of a could not pursue our mission to increase brain injury research team.” awareness, research, treatment, or education without The Brain Injury Association of America is proud to their critical financial support. My hat also goes off dedicate this issue of THE Challenge! to technology. to our affiliates and chapters for the important work We’ve included articles on mobile apps for everyday they accomplish at the state and local level. It is our living after brain injury and assistive technology partnership with affiliates that helps us improve the solutions in acute rehabilitation settings. All of the quality of life for everyone affected by brain injury. articles focus on ways to personalize your brain Please enjoy a happy and safe summer. injury experience through the use of technology. We’ve also taken this opportunity to congratulate Joseph T. Giacino, Ph.D., winner of the prestigious Moody Prize, for his significant contributions in Susan H. Connors, President/CEO clinical research and rehabilitative medicine. Brain Injury Association of America www.biausa.org 3 ASSISTIVE TECHNNOLOGY Goes Mobile By Sarah Foley, M.S., CCC-SLP and Erin Muston-Firsch, M.S., OTR/L, Craig Hospital Craig Hospital is an inpatient rehabilitation hospital in Englewood, Colorado, specializing in treatment of individuals with traumatic brain injury (TBI) and spinal cord injury. echnology is more than just a luxury at Craig. As technology becomes a greater part of the Tworld at large, therapists at Craig are finding more and more ways to incorporate it into the acute rehabilitation process for those recovering from TBI. In the Assistive Technology Lab, for example, occupational and speech therapists consider technology a vital tool in the lives of those living with disabilities. Specifically, therapists have found that technology opens up opportunities post-injury for many patients, ranging from increasing engagement in therapeutic tasks to allowing the individual to return to a previous job. TECHNOLOGY AS A TREATMENT side, but it was also something that he really enjoyed MODALITY and found motivating. D’s family commented that it as a part of his rehabilitation. As D progressed and sustained a severe TBI after a fall. Before his injury, beganwas one moving of the hisfirst arms, things big he button was really switches able wereto “do” thisD (first young initial man used enjoyed to protect playing the games person’s on bothprivacy) his used to play games, encouraging him to move and computer and video game system. When he initially reach while still challenging his vision. Eventually, came to Craig, D was not able to move most of his D began to gain more control of his hands and body, communicate basic needs, or remember things from day to day – let alone play traditional video game controllers to practice hand-eye coordination, games. His treatment team also noticed severe left reactionfingers, so time, he was and furtherproblem-solving challenged skills. with Dvideo used technology therapeutically, as a treatment, to work on to things on his left side. D’s initial treatment involved usingvisual aneglect, device thator difficulty tracked lookinghis eye movementsat and attending in were able to adjust the type of technology he could order to play video games; not only was this a great usedeficits and fromthe games his TBI. he As could he progressed, play to provide his therapists just the way to work on scanning and attention on his left right level of challenge for him. 4 While we traditionally think of using assistive to communicate “yes” or “no” through his head technology to make access easier, it can also be used movements, much less signal any other basic needs. to work on physical, cognitive, and even visual skills. Through the use of technology, M learned how to use There are a variety of options available, including his eyes to operate special software on a computer. use of eye tracking technology to work on vision and A camera attached to the computer could track his attention, big button switches to work on reach and coordination, mobile applications to provide visual of the screen, M was able to trigger the computer to and cognitive challenges, and computer and console- sayeye whatmovement he was – thinking.by holding When his gaze he was in a discharged,specific part based video game controllers to work on dexterity M was using his eyes to communicate anything and reaction/processing time. Virtual reality is an and everything he wanted to say. In addition, this emerging technology with the potential to work on technology allowed him to text his friends, engage balance, motor skills, dexterity, and cognitive skills on Facebook, and surf the web independently. in an immersive environment. D’s story shows us Speech-generating devices such as these are some that technology is a great treatment tool because of the ways that Craig therapists use technology to of its widespread commercial availability and assist people with communication. For those who its inherent ability to motivate and engage users can physically touch a screen, there are iPads and through interactive, competitive gameplay. communication apps that can say selected words and phrases for the speaker. For others who have some TECHNOLOGY TO ADDRESS gross motor movement, switches can be enabled to LANGUAGE DEFICITS select a word or phrase as the computer/tablet scans M was a young man who sustained a TBI through through various options. electrocution. Upon arrival at Craig, he was unable to move most of his body. He was barely able (continued on page 6) www.biausa.org 5 (continued from page 5) allows families to check on their loved ones when in onanother and off room using or a location. single voice Far-field command. recognition When (suchmotor movementsas the Amazon are Echo impaired, or Google TV may Home) be more can turn easily lights accessed using an app on the individual’s phone. TECHNOLOGY FOR RETURN TO WORK AND SCHOOL Consider these scenarios: N was a young man working at a fast-paced job 1 TBI, his language skills were impaired and his left armthat demandeddid not work efficient at all. computer skills. After his TECHNOLOGY TO ADDRESS T was in her junior year of high school when she sustained a TBI in a car accident. When it was COGNITIVE DEFICITS 2 J was a woman in her 50s, actively involved in her with multitasking (i.e., taking notes while family and community. Before her brain injury, time to return to school, she still had difficulty J did much of the organization and planning for the pace of the class. listening to the teacher) and keeping up with What are these individuals to do? How are they to successfully reintegrate into their work and school troubleher family. maintaining Her stroke attention caused difficulties and performing with her typical environments? lifelanguage management. skills – writing She was specifically determined – andto be she more had independent with these things as she returned home. As patients move toward the end of inpatient rehabilitation, they are often looking for tools to aid J’s phone became her lifeline.
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