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Written Public Comments IACC Full Committee Meeting January 26, 2009

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Written Public Comments IACC Full Committee Meeting January 26, 2009 Written Public Comments IACC Full Committee Meeting January 26, 2009 – February 07, 2009 January 26, 2009 – February 07, 2009 Thomas R. Insel M.D. Director, National Institute of Mental Health, NIH Dear Thomas Insel: Dear Members of the IACC, Secretary Daschle, Senators and Representatives, I am concerned about the alarming increase in autism rates and the impact of autism on the person and families. I am writing to you to express my outrage at the actions of the IACC at their January meeting. I ask for immediate implementation of the Combating Autism Act in a way that reflects the needs and views of the autism community. I object to their manipulation of committee procedures to block research on the possible link between vaccines and autism. This research is desperately needed to understand why autism arises and to maintain the public trust in vaccination programs. I demand reinstatement by the IACC of the vaccine studies that were already approved for the IACC's Autism Research Strategic Plan, and I ask you to restore the funding already allocated to this critical research. The NIH, CDC and other HHS agencies have inherent conflicts of interest in conducting research on vaccine safety. Research initiatives must be coordinated by an independent committee that includes equal numbers of representatives from the autism-vaccine injured community and conducted by independent and non-biased entities. Sincerely, The following individuals submitted the above letter or sections of the letter: Lisa Hudkins Susan Fishbaine Alan Mayberry Marcy Mullins Mary Ann Markley Jill Klink John Kellogg Agatha Snyder Kim Stagliano (mother of Allison Miller Donna Bishop three girls with autism) Pat Kilpatrick Connie Warren Kim Turner Tony King Donna Pittard (parent of 2 Sonja Stone Horacio Correa Jr. autistic children) Hilary Downing Joshu Eisen Paul Colliton (father of 11 Alisa Mayberry Lori Schulte year old autistic boy) Herman Mohazzabfar Craig Grenfell (parent of 10 Jennifer Edelman William Stone year old autistic boy) Christine Andrews David Gonzales Joy Mccarthy Nora Middleton Petra Smit (mother of 1 child Kathy Spataro Joel Stein w/ ASD, and child w/ serious Lawrence Kaplan Rick Middleton vaccine adverse event) Mary Britt Amy Stoutjesdyk Tracy Freeman Kathy Miller Theodore Van Oosbree Jennifer Hudnall Catherine Labarre Murugan Pandian Stella Sellers 2 Christine Jackson Kim Kowanko Jennifer Hendrick Sarah Rogers James Kaidy Molly Hauck Linda McHale Charles Coram Leslie Phillips (parent of two Lauren Marshall Donna Krenc children with autism Robin Stanfield Rita Shreffler spectrum disorders) Jennifer Brusco Amy Greiner (parent of a 7 Diane Davis Lora Maurer year old with autism) Richard Buckley Jennifer Asmus Lynn Bardsley Traci Hagerman April Skotnicki Karen McDonough Carla DeMaci Stacey Antal Jennifer BonGiorno Richard Farretta Joseph Jenkins David Abere Cheryl Dearborn Mary Herrle Dawn Cortez McKee Debra Christensen Catherine Schleimer Patricia McLaren Donna Thompson Andrea Rosenthal Toni Ehrlich-Feldman Julie Rishel Jennifer Rhoten Chris Cordes Donna Grinolds Barbara Sachau Kathleen OConnell Kristin Aigner Kendra Scott Mark Kaplan Debra Christensen Sharon Dexter Kay Kobe Mike Haywood Stephen Adubato Diana Martin Jeannine Williams Tara Krigbaum Kyle Martin Pamela Szal Paula Ahlf Bob Moffitt Dana Belcher (occupational Abby Rush Dana Martin therapist in the school Maurine Meleck Arica Jordan systems) Thomas Rush Deborah Dockery Kathleen Heltsley Tonya White Patricia Jordan Nancy Chapman Joel Meltzer Renee Storm Dawn Edwards (parent of Julia Wilson Benjamin Jordan child with autism) Bea Kaye Mary Hirzel Victoria Ferrante Kim Munley Judith Dey Robert and Liza Greve Linda Moffitt Dieter Waeltermann Diane Frioni Keren Kalimian Kathleen Heltsley Audre Rasmusson Donna Alvado Jonathan Rose Manon Roberge Sharisa Kochmeister JoAnn Gray Valarie Rome-Jessup Carolyn Uren Matt Ryan Amy Beasley (desperately Robert Santos Kerry McCrea hoping for a safer vaccine Maxine Mesko Daphnia Cannon schedule) Sharon Dexter Leasha Coz Hailey Jacob Elizabeth Hendrix Frank Mitchell Meeta Khushal April Keck Mary Cutler (mother of 15 Cathy Lemmon Katherine Walker year old autistic son) Candice Eisenberger Sandra Goldsberry Robert Blackburn Albert Matlosz Michael Amico Lane Massey Staci Gomez Joan Taylor Elsie Russell Rebecca Ellis Roxanna Price Charles Sidran Suzanne Bauer Anita Kessler Grace Percival Pamela LeProhon Peggy Lech (mother of a child Keith and Lisa Reagan David Beck living with autism) Ruth Reddaway Lisa Sykes Rhonda Gatewood Jeff Fleishman Diana Swiderski 3 Jan Kochmeister Mary Schulle Lauren Payer Lisa Fioranelli Irene Olivant Connie Wardell Megan Gray Athena Nicholas Jean Perry Brian Fennelly James Walker Jr. Anissa Brasher Heather Waller Kathy Bass Robert Pfingsthorn Anne-Marie Liles (parent of a William Sullivan (please don’t Katherine Crouch vaccine injured child with let us down) Michelle Wearly autism) Joyce Paul Christy Harrill Cheryl Peeples Krista Vaughan Jeanmarie Ennis-Gaylor Barbara Mccarthy Catherine De Genova Caroline Ennis-Fedele Dawn Gildea Marianela Alvarez Cheryl Fields Pamela Mummery Jeanne Piccione Jack Gaylor Miriam Pohl Maureen York Richard Fedele Melissa Bezar Adriana Tulian Mark Ennis Camille Maher Gina Bateman Tracie Ennis Janet Daue Nicole Simon Monique Lane Diane Krogh Nathaniel Lane Lynn Adams Shelley Caron Richard Dunn Wendy Ennis Alicia Burns Tammy Wandling Sean Ennis David Delitta Jeanne DeLong Chuck Ennis Anita Pellerito Barry Flamm Sandrine Ennis Tiffany Larsen Jesika Smith Angie Huang Cheryl Richt Kristin Walsh Najebie Aymie Don DeSmedt Shannon Maffia Alina Correa Dana Johnson Bethany Ward Troy Larson Antonio Pousa Jennifer Bidlovski Stephanie Falls Maureen Costello Tracy Blaney Migheon Gottschall Jonathan Polcyn Laura Belcher Paul Boyd Jennifer Steelman Zurama L. Johnston Sueleda Aurant Jane Tallman Nicole Turner Maria Cardella Traci Rider Heather Frew Kelly Nelson Laurie Brekke John Kevin Beaver Daniela Popescu Eric Bahnsen Andrea Adimando Amy Yardley Angelique Alliman William Chester Debra McCann Christine Ruiz-Falkowski Nancy Kennedy Jean Keller (mother of a 13 year old son Kelly Vanicek Arthur Appell with autism) Andrea Keller Deborah Barker Laura Bolt Cellini Stephanie Housel Tammie Knight Linda Weinmaster Leslie Cox Laurie Kowalski Kelly Valenta (mother of a 6 Helen Waldron Leeann Whiffen year old boy with autism) Ken Shanks Margarita Gallegos Laurie Mitchell Roberta Ennis Mandy Rogers Shari Lawlor Sandra Lane Linda Sniderman Tommy Blain Susan Graham Rita OGrady Alison MacNeil Wendy Fournier Rachele Knights Tracy Smoot (parent of a 5 Martha Gabriela DeVelbiss Patricia Parr year old boy with autism) Marjorie Nilsen Kelly Leach Deanne Vizurraga Louis Ennis Ginnie Taylor 4 David Ralston Garry Cooke Maria Hernandez Christina Gatz Susan Ford Keller Daniel Carvo Martha Nunez Gayle DeLong Danny Vincent Eleanor Souders Jenny Garcia Edwin Eustaquio Daniel Laus Karen Tooher Sharon Kask Judy McMullen Robert Mito Susan Goodine Cassandra Alls Cami Neiss Karen Steinberg Mary Cavagnero Lisa Fitton Terri Weinstein Sherri Laus Dorothy Tucker Brandon C. Vaughn Gary Egan Melanie Gentile Ken Cross Selma Friedman Barbara Jackins Kelly Gainor Ray & Charlotte Foreman Ellyn Wolfgram Zina Charlip-Evans B. Ely Michelle Ruckersfeldt Ann Hough Ken Siri Marry Ann Harrison Michele Rose Gelena Hinkley Steve Mesa Melinda Tabor Melanie Muns Hope Weinstein Angelina Grab Sean Brown Jean Bock Jennifer Meza Kelly Buettner Donna Schofield Robert Adams Erin E. Jones (registered Elizabeth Sagui Bill Hoffman school nurse working in the Terri Cooper Lisa Harris school system) Dennis Baker Nancy Mcgrath Catherine Varrica Elizabeth Chuan-Riley Lenore Wossidlo Trina Aurin (parent of a child on the Karen Sigler Nicole Nelson autism spectrum) John Kopsick Yvonne Hershey Timothy Cooper PJ Reitzler Christine Waldeck Lawrence Landherr Paymon Forootanshad Sherry Garnett Valery Jean-Phillippe (mother Kelly McGovern Lisa Rowe (mother of a child of 5 year old son with Lawrence Centore with autism) autism) Raquel Class Michael Kimsal Loretta Harrison Meghan Furukawa Vel Paul Jennifer Patterson Kathleen Stephens-Helinski David Hamilton Roger Morten Michael Furukawa Frank Fitzgerald Jennifer Schrand Daniel OGrady June Zeger Luci Evanston Kiran Chhaganlal Rosemary Spohn Susan Patel Rachel Taylor Sheri Lacey Carlos Veloso Kristin McIntyre Janet Sorell Nancy Duley Jeri Millard Catherine Pelham Francine Acosta Marie Spicuzza Jennifer Steinbachs Colleen Grierr Michele Crozier George E. Khoury Jacquie Mancini Lois Schroeder Vicki Stewart-Fowler Angie Lange Marilyn Swanson Terry Hochwarter Elizabeth Kury Becky Feke Cynthia Dalton Susan Diesing Raymond Benzing Jessica Lewis Margaret Graham Theresa Cedillo Nicole Kamego Alison Davis Jennifer Manning Gina Conrad Erin Haase Teresa Guidice Sandy Walker Kathryn Vincent Jodie Paouncic Virginia Vokoun Heather St. Clair Janeen Kraham 5 Evelyn Nadler Peter Barnett Van Arrington Wm Mitchell Marie L’Heureux Morris Davis Karen Stevens Rosemarie Buote Walter Bailor Loretta McMahon Mary Ostrow Sandra Marcus Kim Kalina Susan A. Cranmer Deborah Delp Garry Cooke Marla Walker Malia Dawson Peggy Tillman-Young Cathryn Rice Madelaine Motallebi Joyce Watts Eileen Landies Lori Whalen Sarah Wolfe Kimberly Davis Luz Davis Charles Weber Jim Stroda Marsha Dulz Nancy Hokkanen Myra Lowrie Melanie Cohn (parent of an Dana Tucker Dyan De Brino 11 year old autistic child) Nancy Levinson Janet Drew Claudnita Crawford Grace Stephens Susan McNiff Tanya Hunter
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