D3.1 Survey of the State of the Art Research, Technologies and Architectures
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Ares(2016)4012444 - 30/07/2016 C3-Cloud “A Federated Collaborative Care Cure Cloud Architecture for Addressing the Needs of Multi-morbidity and Managing Poly-pharmacy” PRIORITY Objective H2020-PHC-25-2015 - Advanced ICT systems and services for integrated care D3.1 Survey of the State of the Art Research, Technologies and Architectures Work Package: WP3 Design of C3-Cloud System Architecture Due Date: 31 July 2016 Actual Submission Date: 30 July 2016 Project Dates: Project Start Date: 01 May 2016 Project End Date: 30 April 2020 Project Duration: 48 months Deliverable Leader: INSERM Project funded by the European Commission within the Horizon 2020 Programme (2014-2020) Dissemination Level PU Public X CO Confidential, only for members of the consortium (including the Commission Services) EU-RES Classified Information: RESTREINT UE (Commission Decision 2005/444/EC) EU-CON Classified Information: CONFIDENTIEL UE (Commission Decision 2005/444/EC) EU-SEC Classified Information: SECRET UE (Commission Decision 2005/444/EC) 689181 – C3-Cloud Document History: Version Date Changes From Review V0.1 2016-05-10 Initial Document INSERM All Consortium V0.2 2016-06-16 Contributions from SRDC, WARWICK, INSERM All Consortium MEDIXINE, RJH, INSERM. Initial SRDC Input. V0.3 2016-07-19 Consolidated version after inputs from INSERM All Consortium CAMBIO, empirica, INSERM, OSAKI, KG, MEDIXINE, ORU, RJH, SRDC, WARWICK. V1.0 2016-07-26 Additional contributions from INSERM, INSERM All Consortium KG, OSAKI, SRDC, WARWICK. V1.1 2016-07-29 WARWICK comments. Inputs form KG, INSERM All Consortium empirica, SRDC, INSERM. Finalization by INSERM. Final 2016-07-30 Additionnal comments from WARWICK. INSERM All Consortium Finalization by INSERM. Contributors Damien Leprovost, Marie-Christine Jaulent (INSERM) (Beneficiary) Sarah N. Lim Choi Keung, Lei Zhao, George Despotou, Theodoros N. Arvanitis (WARWICK) Gokce B. Laleci, Mustafa Yuksel (SRDC) Ane Fullaondo, Esteban de Manuel, Lola Verdoy (KG) Antonio de Blas, Arritzu Etxeberria, Mikel Ogueta, Nicolás González, Rafael Rotaeche (OSAKI) Jess Vogt (empirica) Liron Karni, Gunnar Klein (ORU) Goran Ekestubbe (CAMBIO) Mikael Lilja (RJH) Pontus Lindman (MEDIXINE) Responsible Author Damien Leprovost Email [email protected] Beneficiary INSERM Phone +33 144 279 193 D3.1 • Version final, dated 30 July 2016 Page 2 of 108 689181 – C3-Cloud EXECUTIVE SUMMARY Introduction The C3-Cloud project “A Federated Collaborative Care Cure Cloud Architecture for Addressing the Needs of Multi-morbidity and Managing Poly-pharmacy” will establish an ICT infrastructure enabling a collaborative care and cure cloud to enable continuous coordination of patient-centred care activities by a multidisciplinary care team and patients/informal care givers. A Personalised Care Plan Development Platform will allow, for the first time, collaborative creation and execution of personalised care plans for multimorbid patients through systematic and semi-automatic reconciliation of clinical guidelines, with the help of Decision Support Modules for risk prediction and stratification, recommendation reconciliation, poly-pharmacy management and goal setting. In the Work Package 3 “Design of C3-Cloud System Architecture”, the Task 3.1 “Survey of the State of the Art” addresses a survey of the technologies and architectures in the research areas of C3- Cloud. Within the scope of this task, a comprehensible survey will be performed in the related research areas addressed by C3-Cloud project at the beginning of the project in order to be able to decide on approaches, identify the research results and technologies that can be re-used, extended, or inspired in C3-Cloud. The available technology solutions and the results of the previous EC supported projects will also be explored. Objective of the deliverable The objective of D3.1 Survey of the State of the Art – Research, Technologies and Architectures is to provide a comprehensive survey of currently available standards, technologies and architectures in the field of advanced ICT systems and services for integrated care, that could support the design of the C3-Cloud architecture. The survey gathers partners’ experience and expertise, as well as broader sources of information, such as academic literature knowledge and results of the previous Commission supported projects. Existing solutions are also explored to better understand the benefits they bring and assess their limitations. In C3-Cloud, we aim to address some of those limitations while we work towards an integrated care solution for multiborbidity. Outline of the deliverable Chapter 1 describes the context, the purpose and the methodology of the deliverable and a list of definitions of key acronyms used is the deliverable. Chapter 2 introduces integrated care and standards in the care plan management domain, and describes relevant work in this area, reviewing related standards and existing approaches. Chapter 3 focus on clinical decision support topics and multimorbidity, reviewing related standards and existing approaches. Chapter 4 considers patient empowerment approaches, reviewing related standards and existing approaches. Chapter 5 presents 5 technical and semantic interoperability challenges, reviewing related standards and existing approaches. Chapter 6 covers the fields of security and privacy related to the project, , reviewing related standards and existing approaches. Chapter 7 provides the conclusive statements of the deliverable. Chapter 8 lists all references used in the deliverable. D3.1 • Version final, dated 30 July 2016 Page 3 of 108 689181 – C3-Cloud TABLE OF CONTENTS Executive Summary .............................................................................................................................. 3 Introduction ........................................................................................................................................ 3 Objective of the deliverable ................................................................................................................ 3 Outline of the deliverable ................................................................................................................... 3 Table of contents ................................................................................................................................... 4 1 Survey overview............................................................................................................................ 6 1.1 Context of the survey: The C3-Cloud Project ......................................................................... 6 1.1.1 Background and Challenges ............................................................................................ 6 1.1.2 Objectives ....................................................................................................................... 7 1.1.3 Overall C3-Cloud architecture and its Research Pillars .................................................. 7 1.2 Purpose .................................................................................................................................... 9 1.3 Methodology ........................................................................................................................... 9 1.4 Definitions and Acronyms .................................................................................................... 10 2 Personalised Care Plan Development and Execution ............................................................. 10 2.1 Introduction ........................................................................................................................... 10 2.2 Existing approaches on integrated care ................................................................................. 10 2.2.1 SmartCare ..................................................................................................................... 10 2.2.2 BeyondSilos .................................................................................................................. 11 2.2.3 CareWell ....................................................................................................................... 12 2.2.4 INTEGRATE ................................................................................................................ 13 2.2.5 ASSEHS ........................................................................................................................ 14 2.3 Related standards .................................................................................................................. 15 2.3.1 HL7 Care Plan Domain Analysis Model ...................................................................... 15 2.3.2 ONC S&I Framework Longitudinal Coordination of Care Workgroup ....................... 18 2.3.3 HL7 FHIR Care Plan Model ......................................................................................... 19 2.3.4 ISO 13940:2015 - A System of Concepts for the Continuity of Care (Contsys) Care Plan Model 21 2.3.5 IHE Patient Care Technical Committee Profiles .......................................................... 23 2.3.6 HL7 Coordination of Care Services Specification Project............................................ 25 3 Decision Support Modules for reconciliation of multiple treatment plans ........................... 26 3.1 Introduction ........................................................................................................................... 26 3.2