Final Report of Thalassemia/Sickle Cell Prevention Programme In

INDIAN RED CROSS SOCIETY Gujarat State Branch

Supported by GAIL (India) Limited

Final Report of Thalassemia/Sickle Cell Prevention Programme in

Vadodara District

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In order to scale up the Thalassemia and Sickle Cell Screening Programme of Red Cross Gujarat State Branch in the Southern part of Gujarat, a project proposal was submitted to GAIL ( India) Limited, Baroda for funding under CSR –Programme. Subsequently the Project got sanctioned for screening school going students of Baroda district with a total approved funding of Rs.39,00,000/-. The work is to be completed in the financial year 2012-13.

Accordingly a planning was made to complete the approved project in the given time period and a detailed survey of the tribal Taluka schools of Sankheda, Waghodia, Kawant and Baroda Nagar Prathmik Schools of Baroda District was done by the Programme Team of Red Cross Thalassemia and Research Centre under the guidance of Mr. Prakash Parmar- General Secretary, IRCS-GSB. As per list attached schools are covered under the project. The First Screening camp was organized at MDI Vidhyalaya High School – Sankheda (Bodeli) on 20-12-2012 A total of 266 students at the age group of 5 to 15 years were tested for Thalassemia and sickle Cell on the same day.

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With the Financial aid from GAIL India Vadodara, Indian Red Cross Society Guajarat State Branch has organized Thalassemia-Sickle cell Screening programme at Sankheda, Kawat, Vaghodiya and Vadodara’s Municipal School going Children. Under this, screening programme was organized at Ladod Primary school. During this programme the Principal of Dharoli primary school came in contact. He has shown his interest and wish to organize such programme of Thalassemia-Sickle Cell screening because he was aware of the fact that there is Sickle Cell disease as well anemic students are studying in school. After going to Dharoli primary school, Principal called the parents, Sarpach, villagers and organized the meeting. As a representative of Indian Red Cross Society Mr. Nilesh Bhartiya and Mr. Jayesh Solanki has provided the information regarding Thalassemia-Sickle Cell. During the meeting we came

to know that there is a student namely Nilesh Sanjaybhai Talapada who is suffering from Sickle Cell disease since long time. His parents told that, it is heredity disease. They have spent Fifteen to Twenty Thousand rupees for his treatment in private hospital and the family suffered physically and financially. By knowing this, other people also agreed with and put emphasis on screening for Thalassemia- Sickle cell. So that the next generation can be free from Thalassemia-Sickle cell and be healthy.

They feel very thankful to GAIL India,

Vadodara for financial support as well as IRCs, GSB for organizing such a camp.

5 INDIAN RED CROSS SOCIETY GUJARAT STATE BRANCH

Supported by : GAIL (India) Vadodara

List of Thalassemia Screening Camp

Date School Name Taluka Starting ID End ID Total

M.D.I. PRATHMIM & MADHYAMIK 20/12/2012 SHALA,ALIPURA, Sankheda 1672501 1672766 266

21/12/2012 SHRI SHARNESHWAR VIDHYALAY,LADHOD Sankheda 1672767 1672845 79

21/12/2012 LADHOD PRATHMIK SHALA Sankheda 1672846 1672985 140

22/12/2012 SHRI NAVJIVAN HIGHSCHOOL. ALIPURA Sankheda 1671567 1672016 450

SHRI B.R.PATEL NAVJIVAN SCHOOL 22/12/2012 PRATHMIK SHALA, BODELI Sankheda 1672986 1673000 15

SHRI B.R.PATEL NAVJIVAN SCHOOL 22/12/2012 PRATHMIK SHALA, BODELI Sankheda 1671501 1671566 66

22/12/2012 DHAROLI PRATHMIK SHALA, BODELI Sankheda 1672017 1672091 75

SHETH H.H.SIROWALA HIGH SCHOOL, 24/12/2012 BODELI Sankheda 1672092 1672500 409

SHETH H.H.SIROWALA HIGH SCHOOL, 24/12/2012 BODELI Sankheda 1673501 1673508 8

27/12/2012 VIDHYAMANDIR, ,MANKANI Sankheda 1674001 1674244 244

27/12/2012 MANKANI GROUP PRATHMIK SHALA Sankheda 1674245 1674398 154

27/12/2012 NASHUVADA PRATHMIK SHALA Sankheda 1674399 1674417 19 SHETH H.H,SIROLAWALA HIGHSCHOOL. 28/12/2012 BODELI Sankheda 1673001 1673195 195

6 Date School Name Taluka Starting ID End ID Total

SHETH H.H,SIROLAWALA HIGHSCHOOL. 28/12/2012 BODELI Sankheda 1673509 1673876 368

SHETH H.H,SIROLAWALA HIGHSCHOOL. 28/12/2012 BODELI Sankheda 1673877 1674000 124

SHETH H.H,SIROLAWALA HIGHSCHOOL. 28/12/2012 BODELI Sankheda 1674418 1674500 83

SHRI B.R.NAVJIVAN PRATHMIK SHALA, 29/12/2012 BODELI Sankheda 1674501 1674732 232

SHETH H.H,SIROLAWALA HIGHSCHOOL. 29/12/2012 BODELI Sankheda 1673196 1673393 198

SHETH H.H,SIROLAWALA HIGHSCHOOL. 29/12/2012 BODELI Sankheda 1674733 1674984 252

Dr. N.J,SHAH SARVAJANIK HIGHSCHOOL. 4/1/2013 VAGHODIYA Waghodia 1679001 1679414 414

BAKSHIPANCH SHARDA MANDIR ASHRAM 5/1/2013 SHALA, DOLA PURA Waghodia 1679415 1679617 203

SMT MANIBEN CHHOTALAL PACHA 5/1/2013 SARVAJANIK HIGHSCHOOL, GORAJ Waghodia 1679618 1679778 161

GORAJ PRATHMIK GROUP SHALA, 5/1/2013 GHELAPURA Waghodia 1679779 1680000 222

GORAJ PRATHMIK GROUP SHALA, 5/1/2013 GHELAPURA Waghodia 1681001 1681046 46

EKLAVYA MODEL RESIDENCY SCHOOL, 7/1/2013 VANKUVA Waghodia 1681228 1681323 96

VIVEKANAND UCHHASTAR UTAR BUNIYADI 7/1/2013 VIDHYALAY. VANKUVA Waghodia 1681047 1681227 181

VIVEKANAND UCHHASTAR UTAR BUNIYADI 7/1/2013 VIDHYALAY. VANKUVA Waghodia 1681324 1681401 78

30/01/2013 VAGHODIYA KUMAR SHALA, VAGHODIYA Waghodia 1678501 1678950 450 RUSHTAM PURA GRUP PRATH SHALA, 1/2/2013 RUSHTAMPURA VAGHODIYA 1658501 1658672 172

7 Date School Name Taluka Starting ID End ID Total

SIR B.A.HIGHSCHOOL DALALSARVAJANIK 1/2/2013 HIGHSCHOOL, RUSHTAMPURA VAGHODIYA 1658024 1658195 172

2/2/2013 VAGHODIYA KANYA SHALA--2, VAGHODIYA VAGHODIYA 1678475 1678500 26

2/2/2013 VAGHODIYA KANYA SHALA--2, VAGHODIYA VAGHODIYA 1658673 1658952 280

2/2/2013 VAGHODIYA KANYA SHALA-3 VAGHODIYA 1658953 1659000 48

2/2/2013 VAGHODIYA KANYA SHALA-3 VAGHODIYA 1675001 1675077 77

6/2/2013 SHRI M.P. HIGHSCHOOL JAROD. VAGHODIYA 1658196 1658500 305

6/2/2013 SHRI M.P. HIGHSCHOOL JAROD. VAGHODIYA 1675078 1675161 84

7/2/2013 SHRI SARASWATI VIDHYAMANDIR, ASHOJ VAGHODIYA 1682001 1682065 65

KABIR SAHEB VIDHYAMANDIR, KHEDA 7/2/2013 KARAMSHIYA VAGHODIYA 1675162 1675242 81

GANESHPURA VIBHAG HIGHSCHOOL, 8/2/2013 GANESHPURA VAGHODIYA 1675243 1675314 72

GANESHPURA PRATHMIK SHALA, 8/2/2013 GANESHPURA VAGHODIYA 1675315 1675432 118

SHRI SHANTI NIKETAN VIDHYAMANDIR 8/2/2013 RAJPURA VAGHODIYA 1682066 1682181 116

8/2/2013 RAJPURA PRATHMIK SHALA, RAJPURA VAGHODIYA 1682182 1682337 156

11/2/2013 GURUKURPA VIDHYALAY NAVGAMA VAGHODIYA 1675433 1675543 111

11/2/2013 SHRI M.P.HIGHSCHOOL. JAROD VAGHODIYA 1675544 1675748 205

11/2/2013 SHRI M.P.HIGHSCHOOL. JAROD VAGHODIYA 1675749 1676000 252

11/2/2013 SHRI M.P.HIGHSCHOOL. JAROD VAGHODIYA 1682338 1682433 96

THE KAWANT ENGLISH HIGHSCHOOL, 16/02/2013 KAWANT KAWANT 1702001 1702176 176

18/02/2013 BHEKHADIYA SHRESTHA PRATHMIK SHALA KAWANT 1703705 1704000 296

18/02/2013 VIDHYA VINAY PRIMARY SCHOOL, KAWANT KAWANT 1703226 1703375 150

8 Date School Name Taluka Starting ID End ID Total

18/02/2013 MODEL SCHOOL, KAWANT KAWANT 1703501 1703704 204

18/02/2013 SHRI HARISIDDHI VIDHYAMANDIR, JULVANIYA KAWANT 1703001 1703109 109

EKLAVYA MODEL RESIDENCY SCHOOL, 18/02/2013 KAWANT KAWANT 1703110 1703225 115

18/02/2013 BHEKHADIYA SHRESTHA PRATHMIK SHALA KAWANT 1703376 1703408 33

MAHARANA PRATAP PRATHMIK SHALA NO-16 5/3/2013 FATE GANJ VADODARA 1714001 1714075 75

MAHARANA PRATAP PRATHMIK KUMAR SHALA 5/3/2013 AFTER NOON FATEGANJ VADODARA 1714076 1714122 47

PARAM PUJAY MADHAVRAV GOVALKAR 5/3/2013 MARATHI PRATHMIK SHALA, VADODARA VADODARA 1715001 1715123 122

MAGANBHA SHANKAR BHAIO PATEL 5/3/2013 PRATHMIK SHALA VADODARA 1715124 1715217 94

VIR SAVARKAR PRATHMIK KANYA 6/3/2013 SHALA(MORNING), VADODARA VADODARA 1714123 1714221 99

VIR SAVARKAR HINDI PRATHMIK SHALA, 6/3/2013 MORNING) VADODARA VADODARA 1714501 1714628 128

VIR SAVARKAR PRATHMIK SHALA, AFTER 6/3/2013 NOON VADODARA VADODARA 1714629 1714676 48

6/3/2013 MIRA KANYA CHATRALAY, VADODARA VADODARA 1714677 1714773 97

MAHARANA PRATAP HINDI PRATHMIK SHALA, 6/3/2013 VADODARA VADODARA 1716001 1716188 187

7/3/2013 DR.RAJENDRAPRASAD PRATHMIK SHALA VADODARA 1714774 1714863 90

DR, HEDGEVAR MARATHI PRATHMIK SHALA, 7/3/2013 AFTER NOON VADODARA 1716189 1716224 36

DR, HEDGEVAR MARATHI PRATHMIK SHALA, 7/3/2013 MORNING VADODARA 1716225 1716328 104

DR, HEDGEVAR GUJARATI PRATHMIK SHALA, 7/3/2013 AKOTA VADODARA 1716329 1716420 92

DR. HEDGEVAR GUJARATI PRATHMIK SHALA, 7/3/2013 (AFTER NOON), AKOTA VADODARA 1716421 1716500 80

DR. HEDGEVAR GUJARATI PRATHMIK SHALA, 7/3/2013 (AFTER NOON), AKOTA VADODARA 1715501 1715532 32

9 Date School Name Taluka Starting ID End ID Total

LOK MANYA TILAK HINDI PRATHMIK SHALA, 8/3/2013 VADODARA VADODARA 1715533 1715843 311

LOK MANYA TILAK HINDI PRATHMIK SHALA, 8/3/2013 NAVA YARD (AFTER NOON) VADODARA 1715844 1715924 81

SYAMJI KRUSHNA VARMA PRATHMIK SHALA, 8/3/2013 LAXMIPURA VADODARA 1715925 1715983 59

PANDIT DINDAYAL UPADHAYAY PRATHMIK 9/3/2013 SHALA, (MORNING & AFTERNOON) VADODARA 1716501 1716693 193

PARAM PUJAY RANG AVDHUT PRATHMIK 9/3/2013 SHALA NO - 31 VADODARA 1716694 1716785 92

MAHARSHI ARVIND PRATHMIK 9/3/2013 SHALA(MORNING) VADODARA 1714222 1714276 55

MAHARSHI ARVIND PRATHMIK 9/3/2013 SHALA(MORNING) VADODARA 1714356 1714361 6

MAHARSHI ARVIND PRATHMIK 9/3/2013 SHALA(MORNING) VADODARA 1714401 1714407 7

9/3/2013 PRATHMIK SHALA NO - 47 NIZAM PURA VADODARA 1714277 1714355 79

9/3/2013 PRATHMIK SHALA NO - 47 NIZAM PURA VADODARA 1714362 1714400 39

MAHARSHI ARVIND PRATHMIK SHALA 9/3/2013 NIZAMPURA, AFTER NOON VADODARA 1714408 1714483 76

9/3/2013 CHANAKYA PRATHMIK SHALA, SAMA ROAD VADODARA 1716786 1716860 75

9/3/2013 SAYAJI GANJ MISHRA SHALA -12, HARIPURA VADODARA 1717001 1717058 58

DR.VIKRAM BHAI SARA BHAI PRATHMIK SHALA 9/3/2013 (AFTER NOON) VADODARA 1715218 1715271 54

13/03/2013 MA VIRBAI PRATHMIK SHALA, MORNING, VADODARA 1715272 1715375 104

13/03/2013 MA VIRBAI PRATHMIK SHALA, AFTER NOON VADODARA 1715376 1715418 43

MAHATMA GANDHI PRATHMIK SHALA, AFTER 13/03/2013 NOON VADODARA 1716861 1716899 39

NETAJI SUBHASH CHANDRA BOZPRATHMIK 13/03/2013 SHALA, MORNING VADODARA 1717059 1717185 127

NETAJI SUBHASH CHANDRA BOZPRATHMIK 13/03/2013 SHALA, AFTER NOON VADODARA 1717186 1717307 122

10 Date School Name Taluka Starting ID End ID Total

NAGAR PALIKA CITY VIBHAG KANYA SHALA 14/03/2013 NO-3 CHIPVAD SAME VADODARA 1717735 1717833 99

SARDAR VALLABHBHAI PATEL PRATHMIK 14/03/2013 SHALA, MORNING VADODARA 1716900 1716991 92

SARDAR VALLABHBHAI PATEL PRATHMIK 14/03/2013 SHALA, AFTER NOON VADODARA 1716992 1717000 9

SARDAR VALLABHBHAI PATEL PRATHMIK 14/03/2013 SHALA, AFTER NOON VADODARA 1715419 1715449 31

CHHTRAPATI SHIVAJI MAHARAJ PRATHMIK 14/03/2013 SHALA MORNING VADODARA 1717308 1717391 84

NAGAR PALIKA CITY VIBHAG MISHRA SHALA 14/03/2013 NO-1 VADODARA 1717392 1717420 29

CHHTRAPATI SHIVAJI MAHARAJ PRATHMIK 14/03/2013 SHALA AFTER NOON VADODARA 1717421 1717497 77

NARMADABEN KHUSHALCHAND PRATHMIK 14/03/2013 SHALA MORNING VADODARA 1717601 1717734 134

15/03/2013 VIR BHAGAT SINH (MORNING) SHALA VADODARA 1717498 1717511 14

15/03/2013 VIR BHAGAT SINH (MORNING) SHALA VADODARA 1715450 1715500 51

15/03/2013 VIR BHAGAT SINH (MORNING) SHALA VADODARA 1714484 1714500 17

15/03/2013 VIR BHAGAT SINH (AFTER NOON) SHALA VADODARA 1717512 1717600 89

15/03/2013 VIR BHAGAT SINH (AFTER NOON) SHALA VADODARA 1730001 1730055 55

BEVASHISH VIDHYAMANDIR HIGH SCHOOL , 22/03/2013 TAVRA VADODARA 1730056 1730453 398

KAVI SUNDARAM PRATHMIK SHALA, AFTER 28/03/2013 NOON VADODARA 1730454 1730577 124 Total 13001

11 Post counselling in various schools

After the screening Test, Indian Red Cross Society organized Post Counselling in each School for the cases of Thalassemia Minor, Sickel Cell Disease, Sickel cell Trait and Iron Deficiency.

Many students were identified as Sickel Cell Disease residing mainly in the Tribal population asset . Nutritional Deficiency leading to Iron Deficiency anemia was encountered in the poor socio-economic groups.

As a part of Indian Red Cross Society, we are so proud of about the activities of post counselling with Parents, Principals, School teachers and Students. Moreover, we are thankful to GAIL India, Vadodara for organizing such type of social activities.

List the Schools in which post Counseling has been done  Shri M.P.High School,Jarod  Shri Kabir Saheb Vidhyamandir,Kheda Karamsiya  Gurukrupa Vidhyalaya, Navagam  Rustampura Group Prathmik School, Rustampura  Shrimati M.C.Panchal Sarvajanik High School, Goraj  Waghodiya Taluka Kumar Shala, Waghodiya  Goraj Group Shala  Sharda mandir Ashram Shala, Goraj  Rajpura Primary School, Rajpura  Shri Waghodiya kanya Shala No-2  Vivekanand vidhyalaya, Vankuwa  Eklavya Model Residency School, Vankuwa  Maniben Chotabhai Patel Shantiniketan Vidhyamandir, Rajpura  Saraswati Vidhyamandir,Asoj

12 PHOTO GALLARY

15 Achievement of Success

With the help of Gail India Ltd., Indian Red Cross Society, Gujarat State Branch Ahmedabad carried the Thalassemia / Sickle cell screening in Vadodara District’s Schools of Waghodiya, Sankheda, Kawant, & Vadodara. After the Screening Programme, result was come out. We have find out that students who belongs to Tribal areas are suffering from Sickle cell disease. Main goal of Indian Red Cross Society is to eliminate Thalassemia / Sickle Cell Disease from our Society and spread awareness to the groups of various castes and class of people.

 After Screening, we have find out that some of students are suffering from Sickle cell Disease. Here we present the case study of the student. The Girl seen in photograph named Nehaben Mukeshbhai Vasava is suffering from Sickle cell Disease. Her Mother complained that she is frequently suffering from other disease like joint pain, fever. This family is so poor that they cannot afford higher cost of medicines for their child. They belongs to Tribal Population. After counseled by Indian Red Cross Society, her mother was agreed to report of their Sickle Cell Status. Staff of School had appreciated the activity of Screening Test and counseling for generating mass awareness. They are thankful to GAIL India Ltd and Indian Red Cross Society for their joint effort. They expected that this kind of screening Test must be done in all the school of Tribal area and Community.

INDIAN RED CROSS SOCIETY GUJARAT STATE BRANCH Supported By

GAIL (India) Limited - Baroda Summary of Thalassemia Screening Students for Sankheda and Vaghodia Taluka, Dist - Vadodara Period of Data 20th Dec'2012 to 30th March-2013

Diagnosis wise summary Total Trait Other Repeat Normal Disease ia Minor nopathy Reserved Sickle Cell Sickle Cell Sickle Cell Thalassam Hemoglobi IDA/Opinion IDA/Opinion Total 13001 81 1147 285 43 103 8 11034

Prakash Parmar General Secretary IRCS- GSB