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PREGNANCY LOSS: WOMEN'S EXPERIENCES COPING WITH MISCARRIAGE by ETTEL LEAH ZISSEL SHURACK BSW, The University of Victoria, 2010 A THESIS SUBMITTED IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF MASTER OF SOCIAL WORK in THE FACULTY OF GRADUATE AND POSTDOCTORAL STUDIES THE UNIVERSITY OF BRITISH COLUMBIA (Vancouver) July 2015 © Ettel Leah Zissel Shurack, 2015 ABSTRACT This research documents the personal stories of women who have gone through pregnancy loss and seeks to better understand their experiences coping with miscarriage. Through in-depth one to one interviews, I examine the positive and negative aspects of the participants’ experiences, what impacted and influenced their coping, and how they were able to deal with and overcome their loss. This qualitative study uses a narrative approach to analyze seven in-depth interviews. A combination of holistic and categorical analysis is used in analyzing the study's themes and findings. My findings show that women benefit from having support during and after their miscarriage, particularly from their spouse, family, friends, and health care providers. Participants noted that they experienced silence and stigma surrounding miscarriage, and that a considerable aspect of their coping involved talking openly about their experiences. Given the widespread nature of miscarriage, this study is important to the field of social work because of the significance of better understanding the emotional effects, responses, and coping strategies that women find to be of comfort. ii PREFACE This thesis is original, unpublished, independent work by the author, Ettel Shurack. The University of British Columbia Research Ethics Board issued Certificate of Approval H11-03112 to undergo this study. iii TABLE OF CONTENTS Abstract ................................................................................................................................... ii Preface .................................................................................................................................... iii Table of Contents ................................................................................................................... iv List of Tables .......................................................................................................................... vi Acknowledgements ............................................................................................................... vii Chapter 1: Introduction ........................................................................................................... 1 Background ................................................................................................................. 1 Purpose of Research .................................................................................................... 2 Thesis Overview........................................................................................................... 3 Chapter 2: Literature Review .................................................................................................. 5 Chapter 3: Methodology ....................................................................................................... 14 Methodological Approach ......................................................................................... 14 Recruitment, Sampling, and Participants .................................................................. 16 Data Collection .......................................................................................................... 19 Data Analysis ............................................................................................................ 21 Researcher's Location & Reflexivity ........................................................................ 22 Chapter 4: Restorying: Holistic Analysis of Emerging Themes ........................................... 26 Participant 1: Eva's Story .......................................................................................... 26 Participant 2: Becky's Story ...................................................................................... 32 Participant 3: Rachel's Story ..................................................................................... 38 Participant 4: Anne's Story ........................................................................................ 44 Participant 5: Marsha's Story .................................................................................... 49 Participant 6: Jen's Story ........................................................................................... 52 Participant 7: Susan's Story ....................................................................................... 55 Interview Process Similarities ................................................................................... 57 Chapter 5: Findings: Categorical Analysis of Themes ......................................................... 58 Theme 1: Self-Discovery through the Journey .......................................................... 58 Theme 2: Intense Emotional Response During & Following Miscarriage ............... 59 Theme 3: The Loss of an Envisioned Future ............................................................ 61 Theme 4: Developing One's Own Unique Personal Coping Responses ................... 63 Theme 5: The Benefit of Spirituality, Religion, and Rituals .................................... 65 Theme 6: Gratitude for One's Children and an Awe of Fertility .............................. 68 Theme 7: Silence and Stigma Surround Pregnancy Loss ......................................... 69 Theme 8: The Importance of Support: Partner, Family, and Friends ....................... 72 Theme 9: Rapport and Relationship with Health Care Providers ............................. 74 iv Chapter 6: Discussion ........................................................................................................... 77 Implications for Social Work Practice ...................................................................... 77 Limitations of the Study ........................................................................................... 81 Future Research ........................................................................................................ 82 Conclusions ............................................................................................................... 84 Bibliography ......................................................................................................................... 85 Appendix A: Overarching Research Questions and Sub-Questions .................................... 93 v LIST OF TABLES Table 1. The Participants ....................................................................................................... 18 vi ACKNOWLEDGEMENTS I tremendously appreciate the assistance of my committee members. The guidance and support from my supervisors, Pilar Riaño-Alcalá, PhD and Margaret Wright, PhD, was invaluable. I am forever grateful for them sharing their knowledge and experience as social workers and researchers with me. The practical applications to social work from my external, Kamla Olson, MSW, RSW, was especially insightful. vii CHAPTER 1: INTRODUCTION Background For most women, pregnancy is an emotionally charged experience representing the realization of dreams, hopes, and aspirations (Gerber-Epstein, Leichtentritt, & Benyamini, 2009). Unfortunately, not all pregnancies result in the birth of a child. Research shows that approximately one in four women will experience pregnancy loss at least once in her lifetime (Hamama-Raz, Hemmendinger, & Buchbinder, 2010). Studies estimate that miscarriages occur from 15-20% (Swanson, 1999) to 20-30% (Layne, 1990) of pregnancies, with the majority taking place during the first twelve weeks of a pregnancy (Geber-Epstein et al., 2009). It is during this first trimester when a woman learns of her pregnancy and is adapting to the emotional and physical adjustments that being pregnant involves (Gerber-Epstein et al., 2009). A miscarriage, however, derails a woman’s envisioned plans; the thought of motherhood and a woman’s changing role in her family and society (Brin, 2004). There are a wide range of coping strategies that can be used in a variety of situations. Regardless of the experience, coping is an integral part of day to day living and a necessary component in navigating successfully through life’s difficulties and hardships (Kalra, Kalra, Agrawal, Sahay, Unnikrishnan, & Chawla, 2010). Coping can be defined as the method in which a person handles stress and the way that a person deals with issues that are believed to be challenging or difficult (Kalra & et al., 2010). There are both positive and negative coping strategies. In this research project, ‘coping strategies’ refers to any method that women have used to successfully navigate through the difficult experience of miscarriage. There have been a variety of studies investigating women’s experiences throughout pregnancy loss. Some research has examined emotional responses and reactions following 1 pregnancy loss (Gerber-Epstein et al., 2009). Other studies looked at women’s satisfaction with the medical care they received (Paton, Wood, Bor, & Hitsun, 1999). There were also those that studied the relationship between the partners in coping with the miscarriage (Hamama-Raz, Hemmendinger, & Buchbinder, 2010). I found the literature review to be especially beneficial for laying