UPDATE IN NEUROMUSCULAR DISORDERS MEETING TUESDAY 5 -FRIDAY 8 MAY 2015 33 QUEEN SQUARE, LONDON WC1N 3BG
INFORMATION PACK
INCLUDES: • How to register and registration fees • Meeting location • Draft programme • Where to stay (including hotels with preferential rates for delegates) • Taxi numbers
About the update course
This clinical course concentrates on childhood and adult neuromuscular disorders with an emphasis on clinical cases, natural history and management. This 4 day course is designed for specialists with an interest in neuromuscular disease; the first two days concentrating on paediatric neuromuscular disorders and the latter two days on adult neuromuscular disorders. A copy of the 2015 programme can be found at the end of this information pack.
Registration
On-line registration is now open: http://onlinestore.ucl.ac.uk/browse/product.asp?compid=1&modid=2&catid=183
On-line registration will close one week before the event i.e. 1 May 2015.
Registration fees are listed below
Costs for 2015 Day rate Whole course Consultants rate £150 £500 Trainee rate (UK) £50 £150 Trainee rate non UK £100 £350 Allied professionals £100 £300 (physios, nurses)
• Trainees rates must be approved email [email protected]
CPD credits for this event (6 credits per day) has be sought from the Royal College of Physicians and the Royal College of Paediatrics and Child Health.
Please note that under the terms and conditions of booking a refund can only made at 80% if the cancellation is made 14 days before the booking – the link for the terms and conditions can be found at: http://onlinestore.ucl.ac.uk/help/?HelpID=1
How to get to 33 Queen Square
Location
Location map http://dementia.ion.ucl.ac.uk/images/Outpatients%20Map.pdf (map)
Lecture theatre
The lecture theatre is situated on the lower ground of 33 Queen Square. Go through the swing doors, through the outpatients department and down the stairs.
Please note the lecture theatre can be cold!
How to get to Queen Square
By Tube/Bus: The nearest station to Queen Square is Russell Square (Piccadilly Line), Holborn (Piccadilly and Central Lines) station is only a ten minute walk. Tube/Bus journey planners and times can be found here. A London Underground map can be found here:http://www.tfl.gov.uk/assets/downloads/standard-tube- map.gif
By Car: There is limited car-parking in Queen Square which requires 'Pay & Display' (Mon-Fri 08:30-18:30 & Sat 08:30-11:30). There is an NCP car park near the Brunswick Centre.
By Rail: Queen Square is approximately half a mile south of St. Pancras, Kings Cross and Euston Stations. From Kings Cross, Russell Square underground is one stop on the Piccadilly Line. Euston Station is is a short walk down Woburn Place. Times and fares are available from here.
By Air: London Heathrow is on the Piccadilly Line, journey time on the tube is just over one hour to Russell Square. Gatwick Airport has a fast link with London Victoria Station, journey time 30-35 mins and London Stansted has a fast connection to London Liverpool Street Station, journey time 45 mins.
Taxi number
Radio Cars 020 7383 3333 – you will be asked for your name and location – the location is 33 Queen Square, London WC1N 3BG
Wi-Fi
Wi-fi will be available - please see the course brochure for the access details. Copies of the ocurse brochure will be emailed to you before the event; hard copies will be available from the registration desk.
Where to stay
Hotel accommodation – preferred rates for UCL
If you are looking for somewhere to stay we have secured UCL academic rates for our participants at the following hotels located within a short distance from Queen Square:
Name Address Goodenough Club 23 Single rooms - £118.00 To book go to Mecklenburgh Double/twin - £175.00 http://club.goodenough.ac.uk and enter Square, Quad room £220 “goodclub” in the member code section Camden, Inclusive of VAT and buffet breakfast London, WC1N Credit/debit card are required at the time 2AD of booking however no payment will be processed onto the credit/debit cards until your arrival.
Grange White Hall 2-5 Montague Rooms £133 inc. continental breakfast Central reservations department – hotel Street, London, plus VAT [email protected] 020 WC1B 5BU 7233 7888 http://www.grangeho To book a room you have to quote – tels.com/hotels- University College of London – ID : “1379” london/grange-white- hall-hotel/grange- white-hall-hotel.aspx
Montague on the 15 Montague University rates from £180 single/£195 email [email protected] to reserve a Gardens Street, London double + VAT ( include free wi-fi and a room quoting UCL www.montaguehot WC1B 5B drinks voucher but not breakfast which is el.com a £10 additional cost)
139 GBP BB excl. VAT for single person To book send an e-mail to reservations- Holiday Inn 128 GBP BB excl. VAT for single person occupying a double room add £10 to cover To book send an e-mail to reservations- Bloomsbury, occupying a double room add £10 to [email protected] or go to Coram Street, breakfast for double occupancycover breakfast for double occupancy http://www.ihg.com/holidayinn/hotels/[email protected] or go to Bloomsbury /en/london/lonbl/hoteldetail?ratePrefere London WC1N 1HT £165 for executive double (includes free nce=ILUC1&_corpId=954288800 quoting http://www.ihg.com/holidayinn/hotels/us wi-fi – normally £16 per day plus a few UCL rate /en/london/lonbl/hoteldetail?ratePrefere £163 for executive room (includes free wiextras) -fi – normally £16 per day, larg er bedrooms nce=ILUC1&_corpId=954288800quoting and a few more extras) add £10 to cover breakfast for double occupancy Parking is @ £19 per 24 hours if you are a UCL rate guest at the hotel Parking is £20 per 24 hours.
Other hotels in the area are listed on the next page.
Hotel accommodation for visitors to Queen Square
All hotels listed below are within walking distance of Queen Square (in descending order of price). Approximate walking distances are listed next to each hotel. Please quote UCL when booking as the University has preferred rates for some of the hotels.
Montague on the Gardens (see above for special UCL rates) 15 Russell Hotel (recommended – very reasonable and close Montague Street and attracts tourists) London WC1B 5BJ Russell Square from within the UK - 020 7637 1001 London WC1B 5BE from outside the UK - +44 (0) 20 7958 7731 +44 (0)845 456 6399 www.londonrussellhotel.co.uk www.montaguehotel.com Rates from £120 single/£151 double Rates from £160 single/£190 double + VAT Walking distance: 3 minutes Walking distance: 7 minutes Holiday Inn, Bloomsbury Quote UCL rates Holiday Inn King’s Cross 1 King’s Cross Road Coram Street London WC1X 9HX London WC1N 1HT +44 (0)20 7833 3900 +44 (0)870 400 9093 www.ichotelsgroup.com www.ichotelsgroup.com Rates from £153 standard/double Walking distance: 6 minutes Walking distance: 11 minutes
Hotel Ibis, London Euston/St Pancras Travelodge, London Euston 3 Cardington Street 1-11 Grafton Place London NW1 2LW London NW1 1DJ +44 (0)20 7388 7777 +44 (0)871 984 6332 www.ibishotel.com www.travelodge.co.uk Rates from £95 double Rates from £92 double Walking distance: 17 minutes Walking distance: 12 minutes
Imperial Hotel Bedford Hotel 61-66 Russell Square 83 Southampton Row London WC1B 5BB London WC1B 4HD +44 (0)20 7837 3655 http://www.imperialhotels.co.uk/bedford http://www.imperialhotels.co.uk/imperial +44 (0)20 7636 7822 Rates from £80 single/£107 double including breakfast Rates from £78 single/£105 double including breakfast Walking distance: 3 minutes Walking distance: 2 minutes
The President Royal National Hotel 50-60 Guilford Street Bedford Way London WC1N 1DB London WC1H 0DG +44 (0)20 7837 8844 +44 (0)20 7637 2488 http://www.imperialhotels.co.uk/president http://www.imperialhotels.co.uk/royal-national Rates from £73 single/£93 double including breakfast Rates from £73 single/£94 double/£114 triple including Walking distance: 2 minutes breakfast Walking distance: 5 minutes
Tavistock Hotel County Hotel Tavistock Square Upper Woburn Place London WC1H 9EU London WC1H 0JW +44 (0)20 7636 8383 +44 (0)20 7387 5544 http://www.imperialhotels.co.uk/tavistock http://www.imperialhotels.co.uk/county Rates from £66 single/£91 double including breakfast Rates from £43 single/£57 double or twin including Walking distance: 7 minutes breakfast Walking distance: 10 minutes
Update in Neuromuscular Disorders Tuesday 5- Friday 8 May 2015 Clinical Neuroscience Lecture Theatre at 33 Queen Square, London WC1N 3BG PROGRAMME
Day 1 – Tuesday 5 May
10:00 – 10:30 Registration* and coffee
*For the CPC discussion on Wednesday 6 May at 15.45, please collect the CPC information sheet at the Registration desk. The deadline for responses is at 13.00 on Wednesday 8 May. There is a prize for the winner.
Theme: Advances in Duchenne muscular dystrophy
10:30 – 11:00 Updates from UK NorthStar clinical network: Outcomes of corticosteroid initiation in very young boys with Duchenne muscular dystrophy & effect of dystrophin genotype on disease course. Dr Valeria Ricotti, ICH Dubowitz Neuromuscular Centre
11:00- 11:15 Clinical outcomes in a large cohort of boys and adolescents with Duchenne muscular dystrophy Dr Adnan Manzur, ICH Dubowitz Neuromuscular Centre
11:15 – 12:00 Experimental therapies in Duchenne muscular dystrophy Prof Francesco Muntoni, ICH Dubowitz Neuromuscular Centre
12:00 – 12:15 COFFEE
Theme Early onset LGMDs
12.15 – 12.45 Limb girdle muscular dystrophies of early onset Dr Anna Sarkozy, ICH Dubowitz Neuromuscular Centre
12:45 – 13.15 Illustrative case presentations
13.15 – 14.00 LUNCH
Theme Spinal muscular atrophy type I (SMA1) workshop
14:00 – 14:10 SMA1 outcomes with contemporary care Dr Adnan Manzur, ICH Dubowitz Neuromuscular Centre
14:10 – 14:20 NIV in SMA1. Dr François Abel, Great Ormond Street Hospital
14:20 - 14:30 Gastrostomy in SMA 1- The surgeon’s perspective Mr Joe Curry, Great Ormond Street Hospital
14 30 – 14 40 SMA1. Palliative care approach Dr Finella Craig, Great Ormond Street Hospital
14 40 – 15 15 Panel discussion. Led by Dr Adnan Manzur, ICH Dubowitz Neuromuscular Centre
15:15 – 15:45 TEA
15:45– 16:30 Translational research in spinal muscular atrophy Prof Francesco Muntoni, ICH Dubowitz Neuromuscular Centre
16:30 – 17.30 Special Guest Speaker, Investigating the relationship between skeletal muscle mass and metabolism, Professor Ketan Patel, University of Reading
17.30 – 18.30 Drinks reception, lecture theatre foyer
Day 2 – Wednesday 6 May
Theme Congenital muscular dystrophy. Is brain phenotype a diagnostic handle?
09:00 – 09:20 Congenital muscular dystrophy (CMD) update Dr Anna Sarkozy, ICH Dubowitz Neuromuscular Centre
09:20 – 09:45 Brain phenotypes in CMD Prof Francesco Muntoni, ICH Dubowitz Neuromuscular Centre
09:45– 10:30 Illustrative cases. Session chaired by Dr Kling Chong, Great Ormond Street Hospital
10:30 - 11:00 COFFEE
Theme: congenital myasthenic syndromes
11:00 – 11:30 Congenital myasthenic syndromes- genetic update Prof David Beeson, Weatherall Institute of Molecular Medicine, Oxford
11:30 – 12:00 Congenital myasthenic syndromes – presentations and management Dr Stephanie Robb, Institute of Child Health
12:00 – 12:30 Neurophysiology in myasthenia. A guide for clinicians. Dr Matthew Pitt, Great Ormond Street Hospital
12: 30 - 13.00 Illustrative cases
13:00 – 14:00 LUNCH
Theme: Management of frequent respiratory infections
14:00 – 14:10 Case presentation (recurrent respiratory infections in NMD)
14:10 – 14:30 Speech and language therapy evaluation. Juliet Taplin, Great Ormond Street Hospital
14:30 – 15:00 Respiratory management Dr Collin Wallis, Great Ormond Street Hospital
15:00- 15:20 Gastro-oesophageal reflux: fundoplication benefits and limitations Mr Joe Curry, Great Ormond Street Hospital
15:20 – 15.45 TEA
15.45 – 16:15 CPC discussion Dr Imelda Hughes, Manchester Children’s Hospital
16:15 – 16:45 CPC conclusion Professor Francesco Muntoni and Adnan Manzur
Day 3 - Thursday 7 May
AM: 9.00 – 10.30 Common management problems in adult neuromuscular disorders
09:00 – 09:45 Prevention and treatment of osteoporosis in adults with neuromuscular disorders Dr Richard Keen, UCL Hospitals NHS Trust and the Royal National Orthopaedic Hospital
09:45 – 10:30 Primary muscle disease and anaesthesia Dr Nick Hirsch, National Hospital for Neurology and Neurosurgery
10:30 – 11:10 Management of pain (neuropathic, muscular and musculoskeletal) in adults with neuromuscular disorders Dr Paul Nandi, UCL Hospitals NHS Trust
11:10 – 11:30 COFFEE
11:30 – 12:15 Genetics and pathogenesis of Motor Neurone Disease
12:15 – 13:00 Treatment and management of Motor Neurone Disease Dr Katie Sidle, National Hospital for Neurology and Neurosurgery
13:00 – 14:00 LUNCH
14:00 – 14:45 Charcot Marie Tooth disease – emerging therapies Prof Mary Reilly, MRC Centre for Neuromuscular Diseases
14:45 - 15:30 Current management strategies for Charcot Marie Tooth disease Dr Matilde Laurá
15:30 – 15:45 TEA
15:45 – 16:30 To be confirmed
Day 4 – Friday 8 May 2014
09:00 – 09:30 Inclusion body myositis update Dr Pedro Machado, MRC Centre for Neuromuscular Diseases
09:30 – 10:15 Mitochondrial Neuromuscular Diseases Dr Rob Pitceathly
10:15 – 11:00 Muscle channelopathies Professor Mike Hanna, Director, Institute of Neurology
COFFEE
11:30 – 12:15 Treatment of inflammatory neuropathies (CIDP, paraproteinaemic neuropathies) Dr James Miller, Newcastle University
12:15 -13.00 Illustrative cases inflammatory neuropathy – AIDP, CIDP, paraproteinaemic, vasculitis, infective) (Hadi Manji and Mary Reilly)
13:00- 13.45 LUNCH
13.45 – 14:30 The challenge of mononeuropathies Dr Aisling Carr, MRC Centre for Neuromuscular Diseases
14:30 – 15.15 Surgical options for improving hand function in neuropathy Dr Anthony McMullan, Royal National Orthopaedic Hospital
15:15 – 15:30 TEA
15:30 – 16.00 Rhabdomyolysis and Metabolic Disease in Adults Dr Mark Roberts, Salford
16.00 – 16:30 Myotonic Dystrophy Dr Chris Turner, MRC Centre for Neuromuscular Diseases
16.30 – 17.00 Drugs and Muscle Diseases Dr Matt Parton, MRC Centre for Neuromuscular Diseases
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