(Bearh) Factors Affecting Timing of Admission to Hospital for Children with Serious Infectious Illness Project

Before Arrival at Hospital (BeArH) Factors affecting timing of admission to hospital for children with serious infectious illness project NIHR RfPB Final Report Principle Investigator: Professor Sarah Neill, University of Plymouth A collaboration between the University of Northampton, Meningitis Now, Mother’s Instinct Support Group, the University of Leicester, Edge Hill University, the University of Liverpool, the University of Plymouth, Kettering General Hospital NHS Foundation Trust, University of Leicester Hospitals NHS Trust and Northamptonshire Healthcare NHS Foundation Trust (NHFT) In partnership with Contents Before Arrival at Hospital (BeArH) Factors affecting timing of admission to hospital for children with serious infectious illness project ..................................................................... 1 NIHR RfPB Final Report ........................................................................................................... 1 Commissioning organisation ................................................................................................... 3 Research team ....................................................................................................................... 4 Scientific Summary .............................................................................................................. 7 Background and aim ........................................................................................................... 7 Methods .............................................................................................................................. 7 Key findings ........................................................................................................................ 7 Outputs, impact and dissemination ..................................................................................... 7 Conclusions ........................................................................................................................ 8 Future plans ........................................................................................................................ 8 Key words .............................................................................................................................. 8 Plain English Summary ........................................................................................................ 9 Aims and Objectives ...........................................................................................................10 Aim ....................................................................................................................................10 Research questions ...........................................................................................................10 Background .........................................................................................................................10 Method .................................................................................................................................11 Stage 1 ..............................................................................................................................11 Ethical considerations ........................................................................................................12 Stage 2 ..............................................................................................................................12 Data collection and analysis ...............................................................................................13 Findings ...............................................................................................................................13 Stage 1 findings ...............................................................................................................13 Stage 2 findings ...............................................................................................................14 Navigating uncertain illness trajectories for young children with serious infectious illness ..14 Antecedents or Conditions: social expectations and social hierarchies. .............................14 The illness trajectory ..........................................................................................................15 Influencing variables or Contingencies ...............................................................................16 Consequences ...................................................................................................................17 Conclusions .........................................................................................................................18 2 Intellectual Property, Commercialisation and Clinical Adoption ..............................................19 Actual and Anticipated Impact ...............................................................................................19 Dissemination ........................................................................................................................20 Publications ...........................................................................................................................21 Patient and Public Involvement .............................................................................................22 Aims ...................................................................................................................................22 Methods .............................................................................................................................22 Study results ......................................................................................................................23 Discussion and conclusions ...............................................................................................23 Reflective/critical perspectives ...........................................................................................23 Future research plans ............................................................................................................24 Data Sharing .........................................................................................................................25 Appendix 1 BeArH project Gantt chart ...................................................................................29 Appendix 2 BeArH Project approvals processes report .........................................................30 Appendix 3 Before Arrival at Hospital (BeArH) Stage 1 findings ............................................33 Appendix 4 BeArH project Publication and Dissemination Policy ...........................................40 Table 1 Parent interview participant characteristics (N=23~) .................................................51 Table 2 Health professional (HP) interview participant characteristics (N=14~) .....................52 Table 3 Parent focus group participant characteristics (N=18~) .............................................53 Table 4 Health professional (HP) focus group participant characteristics (N=16~) .................54 Table 5 Stage 2a parent/carer participant and child characteristics .......................................55 Table 6 Stage 2b parent demographic characteristics ...........................................................58 Table 7 Stage 2a Illness trajectories ......................................................................................61 Table 8 Stage 2b illness trajectories ......................................................................................63 Table 9 Stage 2a Children’s help seeking on their illness trajectory to hospital admission .....66 Table 10 Stage 2b Children’s help seeking on their illness trajectory to hospital admission ...67 Commissioning organisation Dr. Laura Tornatore Programme Manager (Research for Patient Benefit (RfPB)) Department of Health, National Institute for Health Research (DH NIHR) Grange House, 15 Church Street Twickenham, TW1 3NL Tel: 0208 843 8000 Email: [email protected] 3 Research team Chief Investigator Dr Sarah Neill, Professor of Nursing School of Nursing and Midwifery Faculty of Health University of Plymouth Room 206, 8-11 Kirkby Place Drake Circus Plymouth PL4 8AA Tel: 01752 586572 Email: [email protected] Lead of host NHS organisation, Interim Chief Investigator and primary care research advisor Mrs Sue Palmer-Hill, Senior NHS Research and Development Manager Northamptonshire Healthcare NHS Foundation Trust Berrywood Hospital Berrywood Drive Duston Northamptonshire NN5 6UD Email: [email protected] BeArH Programme Manager Miss Natasha Bayes, Research Assistant Faculty of Health and Society University of Northampton Waterside Campus University Drive Northampton NN1 5PH Email: [email protected] Nurse Researcher Dr Kim Woodbridge-Dodd Faculty of Health and Society University of Northampton Waterside Campus University Drive Northampton NN1 5PH Email: [email protected] 4 PI at NHS Trust and Advisor for emergency paediatric care Dr Damian Roland, Consultant in Paediatric Emergency Care and Honorary Senior Lecturer in Paediatric Emergency Medicine Children’s Emergency Department Leicester Royal Infirmary LE1 5WW Tel: 0116 258 6397 Email: [email protected] PI at NHS Trust and Advisor for acute paediatric care Dr Poornima Pandey, Consultant Paediatrician Kettering General Hospital NHS Foundation Trust Rothwell Road Kettering NN16 8UZ Email:

Load more