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Lungevity Support Leads to Clinical Trials to Study T-Cell Trials to Study T-Cell Immunotherapy Immunotherapy Page 1 Dr

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Lungevity Support Leads to Clinical Trials to Study T-Cell Trials to Study T-Cell Immunotherapy Immunotherapy Page 1 Dr UPDATES ON PROGRESS IN OUR DRIVE TO END LUNG CANCER Volume 4, Issue 1 SPRING 2015 IN THIS ISSUE LUNGevity Support Leads to Clinical LUNGevity Support Leads to Clinical Trials to Study T-cell Trials to Study T-cell Immunotherapy Immunotherapy page 1 Dr. Prasad Adusumilli, a chest sur- Dr. Adusumilli conducted a pioneer- Making Medical Research geon at Memorial Sloan Kettering ing study to determine whether a Advances Accessible to Cancer Center, is particularly focused patient’s own immune cells can be Patients page 1 on translating novel immunothera- genetically engineered and delivered May is Lung Cancer Hope Month pies to treat patients with aggressive, to the lung cancer patients to target page 2 therapy-resistant lung cancer. T-cell and kill cancer cells. The immune therapies have shown dramatic cells were engineered to recognize a LUNGevity Partners with results in lymphoma and leukemia protein on the tumor cells called Patient Power page 3 patients. With LUNGevity funding, mesothelin. continued on page 7 LUNGevity Receives Innovation Impact Award from Celgene page 4 Making Medical Research Advances Collaboration Creates Lung Cancer Experience Registry page 4 Accessible to Patients LUNGevity’s Fall 2014 Premier Resources on cutting-edge immunotherapy and much more Events page 5 LUNGevity is excited to release its Clinical Trial App Puts Information new education materials on immuno- at Patients’ Fingertips page 6 therapy, supported by an unrestricted WHY LUNGevity? page 6 education grant from Bristol-Myers Meet Two of LUNGevity’s Squibb. Immunotherapy is a promis- ing new area of investigation, with Passionate Volunteers page 7 the first immunotherapy drug, Spring/Summer 2015 Events nivolumab, approved for use in Listing back cover squamous cell lung cancer just this past March. Many more immuno- therapy drugs are currently in clinical trials for all other types and stages of LUNGEVITY’S MISSION lung cancer. LUNGevity Foundation is firmly “By providing resources on this and LUNGevity is committed to making committed to making an immediate many other medical areas relevant to the latest advances in research readily impact on increasing quality of life someone with a lung cancer diagno- available to people living with a lung and survivorship of people with lung sis, LUNGevity is focused on empow- cancer diagnosis. Comprehensive, up- cancer by accelerating research into ering patients and caregivers to to-date patient education materials early detection and more effective make the most informed decisions treatments, as well as by providing are available on the Lung Cancer 101 about their health care,” said Susan C. community, support, and education section of LUNGevity’s website: Mantel, LUNGevity’s Senior Vice for all those affected by the disease. www.LUNGevity.org/about-lung- President of Research and Education. cancer/lung-cancer-101 REFLECTIONS FROM THE PRESIDENT’S DESK May is Lung Cancer Hope Month At LUNGevity, we are LUNGevity celebrates May, Lung Cancer Hope driven every day to improve outcomes for Month, with activities focused on raising awareness people living with lung and highlighting the advances being made for cancer through people living with the disease. research, education, and support. LUNGevity will kick off lung cancer Hope Month 2015 with the fifth annual But we can’t go it alone. To have national HOPE Summit, a two-day conference in Arlington, Virginia, that brings the greatest impact, we actively together survivors and caregivers from across the nation to celebrate, learn, develop strategic partnerships to and unite with others connected to the disease. LUNGevity Foundation’s lung bring added value to our programs cancer community continues to grow, with a record-breaking number of lung and, ultimately, to people affected cancer survivors expected to attend the National HOPE Summit. by lung cancer. LUNGevity will also raise awareness during Lung Cancer Hope Month by We’re proud to be the go-to launching a new social media campaign: The Hope Challenge! Hayley Orrantia, organization for individuals, recording artist and actress on ABC’s “The Goldbergs,” will launch a video companies, and organizations work- campaign. Anyone can make a video revealing the things in their lives that ing within the lung cancer field. make them happy and/or they are passionate about. Fill in the blank with We’ve partnered with Patient Power whatever takes your breath away. Hayley says, “Music takes my breath away. to create HOPE Summit Live: So don’t let lung cancer take yours.” Join in by sharing a video of what takes Living Well with Lung Cancer Today. continued on page 3 The first of these patient education forums was held this past March in BOARD OF DIRECTORS Tampa, Florida. Andrea Ferris, Susan Bersh, Secretary Chris Olivier Chairman and President Peter Babej Alexander Stern We are also working with TrialReach Jerome Sorkin, Grace Bender Andrew Stern to develop a mobile app that en- Vice Chairman Dennis Bookshester Paul G. Stern ables patients to more easily learn Treasurer Jason Swanson, Pierre P. Massion Marc Swerdlow about and join clinical trials, and we are expanding the reach of the SCIENTIFIC ADVISORY BOARD patient-focused experience registry Denise R. Aberle, MD Steven M. Dubinett, MD Pierre P. Massion, MD in partnership with Cancer Support David Geffen School of David Geffen School of Vanderbilt University Community. Medicine at UCLA Medicine at UCLA Medical Center This May, recording artist and Nasser K. Altorki, MB, BCh Edward W. Gabrielson, MD Charles M. Rudin, MD, PhD actress Hayley Orrantia is joining NewYork-Presbyterian Johns Hopkins University Memorial Sloan Kettering Hospital/Weill Cornell School of Medicine Cancer Center with LUNGevity during Lung Cancer Medical Center John V. Heymach, MD, PhD Lawrence H. Schwartz, MD Hope Month to bring a message Philip D. Bonomi, MD University of Texas NewYork-Presbyterian of hope to everyone affected by Rush University Medical MD Anderson Cancer Hospital/Columbia University lung cancer. We hope you’ll join Center Center Medical Center us in raising awareness about the Julie R. Brahmer, MD James R. Jett, MD Lecia V. Sequist, MD, MPH incredible advances coming to The Sidney Kimmel National Jewish Health Harvard Medical School fruition for people diagnosed Comprehensive Cancer Robert L. Keith, MD Massachusetts General Center at Johns Hopkins Hospital - Center for with the disease. Help us spread University of Colorado, University Denver Thoracic Surgery the word! David P. Carbone, MD, PhD Denver VAMC Steven J. Skates, PhD Thank you for your support, and The Ohio State University J. Jack Lee, PhD, DDS Harvard Medical School Massachusetts for giving hope to so many. Martin A. “Mac” Cheever, MD University of Texas Cancer Immunotherapy MD Anderson Cancer General Hospital Trials Network Center Avrum E. Spira, MD, MSci Fred Hutchinson Cancer Scott M. Lippman, MD Boston University Research Center University of California, Margaret R. Spitz, MD, MPH Andrea Ferris University of Washington San Diego Baylor College of Medicine LUNGevity Foundation is a 501(c)(3) nonprofit organization. 2 www.LUNGevity.org LUNGevity Partners with Patient Power Free patient education forums at Moffitt Cancer Center in Tampa, Florida Recording artist and actress Hayley Orrantia is kicking off the Hope Challenge this May. Hope Month continued from page 2 your breath away with the hashtag #ChangeLC to make a difference in the fight against lung cancer. Add 1 2 3 Hayley’s hashtag #HayleyOrrantia and the star may even repost your 4 5 video if it takes her breath away! GET INVOLVED! There are many ways to join LUNGevity for Lung Cancer Hope Month: 1) Dr. David Carbone, Director of the Thoracic Oncology Center, The Ohio State University, shared why his bout with cancer has fashioned him into an even better physician. 2) Dr. Scott for people affected ADVOCATE Antonia, Chair of the Department of Thoracic Oncology at Moffitt Cancer Center, encouraged all by lung cancer. Visit the LUNGevity patients to investigate and participate in clinical trials in order to take advantage of the latest website to download the Advocacy medical advancements. 3) Host Andrew Schorr (left) is a medical journalist, patient advocate, Toolkit to help you get started! and two-time cancer survivor. 4) Over 200 patients/survivors attended the town hall event to learn about emerging topics in lung cancer research and treatment. 5) Expert panelists ATTEND or VOLUNTEER at included health care professionals and patient advocates. an event near you! For an up-to-date listing of spring and summer events, In March 2015, LUNGevity teamed up with Patient Power and Patient Empow- please see the back cover of this erment Network (PEN), a nonprofit focused on delivering education to people newsletter. living with cancer. These programs feature top medical experts from some of the world’s leading medical institutions, dedicated advocates, and inspiring, SHARE news stories and press knowledgeable patients. Together we produced the first LUNGevity live lung releases about LUNGevity and cancer patient education forum in Tampa, Florida. This free event for lung the lung cancer community via cancer survivors was broadcast online so that people affected by lung cancer social media! could attend virtually. SUPPORT LUNGevity’s mission to During this interactive forum broadcast from Moffitt Cancer Center, patients, change outcomes for people living survivors, and caregivers heard from leading lung cancer experts about with lung cancer. By donating today, emerging therapies, current treatment options, and support resources. you can help create a world where Close to 200 people joined the meeting live and via internet. people live longer and live better Keynote speakers included internationally-renowned lung cancer oncologists with lung cancer. You may make a Scott J. Antonia, MD, PhD, and LUNGevity Scientific Advisory Board Member one-time donation, a recurring David Carbone, MD, PhD, who spoke about the latest breakthroughs in lung monthly donation, or a gift in honor cancer research and treatment options.
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