Cross-Party Group Annual Report 2016-2017
1 Cross-Party Group Annual Report 2016-2017 Cross Party Group on Haemophilia and Contaminated Blood Attendees Chair - Julie Morgan Vice Chair - Dr Dai Lloyd AM Rhun ap Iowerth AM Mark Isherwood AM Mick Antoniw AM Huw Irrancca Davies Jenny Rathbone Caroline Jones Hefin David Mike Hedges Vikki Howells Neil McEvoy David Rees John Griffiths Lynne Kelly – Haemophilia wales Patients and families CPG Meeting July 6th 2017 Julie Morgan AM, Dai Lloyd AM, Neil Mcevoy AM, Jane Hutt AM, Kathy Bevan- office of Huw Irrancca Davies AM, Lynne Kelly-Haemophilia Wales. Patients and families from all over Wales introduced themselves and described their experiences of contaminated blood ( HIV and Hepatitis C) which had been contracted via NHS blood and blood products in the 1970s and 80s. There was a discussion regarding the new system of support for Infected Blood, which was seen to be inadequate, did not reflect the true impact of the viruses and did include affected individuals. There was uncertainty on how payments would be made in the future. The Scottish scheme and Irish scheme were discussed as offering an alternative the English scheme. The new Hepatitis C drugs were also discussed as Wales was rolling out the treatment to all with Hepatitis C in order to eliminate the virus. People felt it was very unfair that the Department of Health were refusing to make payments in the future to people in Wales. Annual Report Cross Party Group on [include name of Group] [Date] 2 CPG Meeting 23rd November 2017 Attendees Julie Morgan AM Dr Dai Lloyd AM Rhun ap Iowerth Hefindavid AM Mark Isherwood AM Jenny Rathbone AM Jane Hutt AM Jillian Purvis office of Huw Irrancca Davies AM Vaughn Gething Cabinet Secretary Health Welsh Government Dr Chris Jones Deputy Chief Medical Officer Welsh Government Catherine Cody Quality and Control DHSS WG Lynne Kelly, Craig Sugar, David Thomas, Pat Summers, Tony Summers Trustees of Haemophilia Wales.
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