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Alfred Molina Interview with Regina Hall P AN /J EC D OLINA M LFRED Volume 2010-11Volume A $4.99 MAGAZINE VOLUME 2010-11 ALFRED MOLINA DEC/JAN THE VOICE OF OVER 50 MILLION AMERICANS 2 ABILITY MANAGING EDITOR Gillian Friedman, MD MANAGING HEALTH EDITOR E. Thomas Chappell, MD CONTRIBUTING SENATOR U.S. Sen. Tom Harkin (D-IA) HUMOR WRITERS Jeff Charlebois George Covington, JD Gene Feldman, JD EDITORS Dahvi Fischer Renne Gardner Regina Hall Stan Hoskins Alfred Molina interview with Regina Hall p. 42 Molly Mackin 6 SENATOR TOM HARKIN — IDEA 35 Years Josh Pate David Radcliff Denise Riccobon, RN 8 ASHLEY’S COLUMN — Girls Ride Jane Wollman Rusoff Maya Sabatello, PhD, JD Romney Snyder 10 ACUPUNCTURE — Ancient Chinese Secret, Revealed! HEALTH EDITORS Extremity Games Larry Goldstein, MD 12 APHASIA: THE MOVIE — A Film Beyond Words Natalia Ryndin, MD CONTRIBUTING WRITERS Ashley Fiolek LOVE SIMPLE — Lights! Camera!...Lupus? Love Simple p. 16 16 Paralympic Games Beijing Gale Kamen, PhD Laurance Johnston, PhD 18 TRAIL MIX — The Wilderness Made Accessible Andrea Kardonsky Deborah Max Myles Mellor - Crossword Puzzle 21 AMPUTEE RECOVERY — From the Middle East to Haiti Paula Pearlman, JD Allen Rucker Kristen McCarthy Thomas 24 LACHI — A Voice in the Darkness Betsy Valnes WEB EDITOR Malcolm Smith p. 50 26 LAURA HOGIKYAN — The Play’s the Thing Music Within Mary Shafizadeh GRAPHIC ART/ ILLUSTRATION 28 CREATIVE ARTS FESTIVAL — Veterans with Artistic Vision Scott Johnson Melissa Murphy - Medical Illustration 32 A TRIP TO GERMANY — Disability and Deutchland PHOTOGRAPHY Nancy Villere— CrushPhotoStudios.com 37 A DAY IN THE LIFE — Nursing with a Movement Disorder NBC Universal Media TRANSCRIPTIONIST 42 ALFRED MOLINA — Law & Order and the Injustice of AIDS Prosthetics p. 21 Sandy Grabowski ABILITY’s Crossword Puzzle ABILITY’s 50 MALCOLM SMITH — A Ride Down Memory Lane DIRECTOR OF BUSINESS AFFAIRS Ryan Brown, JD 54 SHAKES — Parkinson’s Disease MARKETING/PROMOTIONS Stan Hoskins 56 VICTORIA TAYLOR — Excerpt From Caitlin’s Wish Andrew Spielberg NEWSSTAND CIRCULATION 60 SALLY FRANZ — Excerpt From Scrambled Leggs Ashley Fiolek p. 8 John Cappello CONTENTS EDITORIAL 64 CROSSWORD PUZZLE, EVENTS & CONFERENCES ABILITYMAGAZINE.COM [email protected] NON-PROFITS ADVERTISING DISTRIBUTION CORPORATE SHIPPING ABILITY Awareness/Fuller Center For advertising Warner Publishing Services 8941 Atlanta Ave. information e mail A Time-Warner Company Huntington Beach, CA 92627 Habitat for Humanity [email protected] Faxon - RoweCom Library Tel 949.854.8700 or call Services TTY 949.548.5157 PUBLISHER 949.854-8700 ext 306 Ebsco - Library Services Fax 949.548.5966 Swets Blackwell Chet Cooper ABILITY Magazine is published bimonthly by C.R. Cooper, 8941 Atlanta Ave. HB, CA 92646 (ISSN 1062-5321) All Rights Reserved. Subscriptions: $29.70 per 1 year (6 issues). Periodicals postage rates at Irvine, CA and at additional mailing offices. The views expressed in this issue may POSTMASTER: Send address changes to ABILITY Magazine, Attention Subscriptions Manager, not be those of ABILITY Magazine PO Box 10878, Costa Mesa, CA 92627; Volume 2010/11 Alfred Molina Dec/Jan Library of Congress Washington D.C. ISSN 1062-5321 Printed in U.S.A. © Copyright 2010/11 ABILITY Magazine The ABILITY Build program outreaches to volunteers with disabilities to help build accessible homes for low income families. We are currently seeking corpora- tions, organizations and churches to sponsor more homes. This award-winning program builds homes and awareness, changing the lives of everyone involved. abilitybuild.org [email protected] abilityawareness.org While in school, Frank was told he could be one of three things: a cobbler, a print- er’s assistant, or a baker. He said he didn’t want to be any one of those things. His teacher said, “Okay, you’re going to be a baker.” But over time, the law we now know as IDEA has borne amazing fruit. Today, the majority of students with disabilities are in general education classrooms at least 80 percent of the day. And who made this possible? You did! Parents, families, teachers, therapists, advocates, and com- munities who refused to accept a medieval status quo for our children. I think of parents such as Elizabeth Boggs of Cleveland, OH, who founded advocacy groups that pushed local school districts, states, and the entire country to recognize the injustice of wasting the potential of young people with disabilities. I think of the Fialkowski family of Philadelphia, PA, and other families who joined togeth- 35 YEARS OF PROGRESS er to petition states to include their children in public THANKS TO IDEA schools. In 1972, a critical court case, PARC vs. the Common- Dear ABILITY readers, wealth of Pennsylvania, concluded that denying chil- dren with disabilities equal access to public education November 18 marked the 35th anniversary of Public was a violation of the 14th amendment guaranteeing Law 94-142, now known as the Individuals with Dis- equal protection under the law. The right of children abilities Education Act (IDEA). This is a tremendously with disabilities to an equal education is not a federal important and successful law, and it embodies a simple mandate concocted by Congress out of the blue and but radical idea: every child can benefit from an educa- imposed on states. It is a constitutional mandate. tion, and has a right to a free and appropriate public education. Thirty five years ago, states pleaded they lacked the financial resources necessary to implement the courts’ Many people today might say this right is self-evident. decisions in PARC and many similar cases. As a result, Three and a half decades ago, however, that was far Congress stepped in and passed IDEA as a method of from the case. Prior to 1975, children in the United offering financial assistance to states in the fulfillment States with intellectual disabilities, physical disabilities of their obligations under the Constitution, and to ensure and sensory disabilities were not guaranteed access to a that such principles as child find, zero reject, parent par- public education. In many cases, children with disabili- ticipation, and due process were integral parts of educat- ties had little choice but to remain at home with their ing students with disabilities. families. Many were shut out of their local schools, shunned by a society that could not see the benefit of The “zero reject” requirement was an extremely impor- educating children who had intellectual disabilities, tant component of this effort. IDEA insisted that all cerebral palsy, spina bifida, hearing impairments, visual children, no matter what their disabilities, had rights to impairments, or other disabilities. an education. And not second-rate, segregated educa- tion. The law demanded children be provided free, I understand this historical fact only too well. My older appropriate, and public education that would occur in brother, Frank, lost his hearing at an early age. He was the least restrictive environment possible. taken from our home, our family and our community, and sent clear across the state to the Iowa School for the We knew at the time of IDEA’s implementation that Deaf. Back then, people often referred to it as the education should be tailored to the individual student. school for the “deaf and dumb.’’ Yes, that was the insen- And we knew it is important for children to be in the sitive way in which people used to talk. I remember my school of their community, the school their siblings, brother telling me, “I may be deaf, but I am not dumb.’’ friends and neighbors also attend. So we made sure 6 ABILITY those principles were reflected in the law. Americans with Disabilities Act: equal opportunity, full participation, independent living, and economic self- Today, though we celebrate 35 years of progress under sufficiency. IDEA, our work is by no means complete. In the years ahead, we must redouble our focus on high expectations Sincerely, for students with disabilities. We must ensure that the post-high school reality for students with disabilities includes opportunities for higher education. Additionally, our focus on students with disabilities can- Senator Tom Harkin not end when they complete school. We must also build pathways into the workforce—real opportunities for Senator Tom Harkin (D-IA) is Chairman of the competitive, integrated employment, with decent wages Senate Health, Education, Labor and Pensions Committee and benefits—for all young people with disabilities. This effort is absolutely critical to helping our citizens harkin.senate.gov with disabilities realize the four great goals of the ABILITY 7 id you all have a great holiday? It’s still pretty hot Each year, during the week of Thanksgiving, The Winter down here in Florida. I get to wear shorts and no Olympics (or Mini Olympics) are held in Gainesville, Dcoats, so that’s been pretty nice. Even when I’m FL. This is a huge amateur national motocross event. I enjoying time off from racing there’s plenty going on! can’t race in it anymore, because I am a professional, but for many years my family and I camped nearby in a A couple of weeks ago, a crew from CBS’s Courage in motor home with all of my racing friends. Sports filmed my family and me for a television special. It was pretty fun! After a day of riding and interviewing, A lot of people attend this event, and races continue I went to a studio in Jacksonville, FL, for the video from Monday until the following Saturday. Awards are shoot. When I walked in, I was surprised to find TVs given out and, at night, there are games to play and the stacked up everywhere! They all had fuzzy lines on crowning of Ms. Winter Olympics! Everyone has a great their screens and my mom told me she heard “static”! time. Even though I can’t compete anymore, I usually The director of the special said he wanted to create go just to hang out with friends because the event is only “white noise” because I am deaf.
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