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A Handbook for Parents Whose Children Have Emotional Disorders

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DOCUMENT RESUME ED 385 098 EC 304 132 AUTHOR Kelker, Katharin A. TITLE Taking Charge: A Handbook for ParentsWhose Children Have Emotional Disorders. 3rd Edition. INSTITUTION Portland State Univ., OR. Research and Training Center on Family Support and Children'sMental Health. SPONS AGENCY National Inst. on Disability and Rehabilitation Research (ED/OSERS), Washington, DC.;Substance Abuse and Mental Health Services Administration (DHHS/PHS), Rockville, MD. Center for Mental HealthServices. PUB DATE Sep 94 CONTRACT H133B90007-93 NOTE 119p.; For first edition,see ED 293 287; for second edition, see ED 304 801 AVAILABLE FROMResearch and Training Centeron Family Support and Children's Mental Health, RegionalResearch Inst. for ) Human Services,Portland State Univ., P.O. Box 751, Portland, OR 97207-0751 ($7.50). PUB TYPE Guides - Non-Classroom Use (055) EDRS PRICE MF01/PC05 Plus Postage. DESCRIPTORS Behavior Patterns; *Child Rearing;Clinical Diagnosis; Coping; Court Litigation;Decision Making; Definitions; Disability Identification;Educational Legislation; Elementary SecondaryEducation; *Emotional Adjustment; *EmotionalDisturbances; Emotional Response; Etiology; *Intervention;Models; Parent Attitudes; *Parent Rights; SocialServices; Specialists; *Symptoms (Individual Disorders); Therapy ABSTRACT This handbook was written to sharethe feelings, experiences, and knowledge of parents of childrenwith emotional disorders. The first chapter, "FeelingsCome First," considers recognition of unusual behaviorpatterns underlying emotional disturbances and the difficulty of determiningtheir causes, their impact on the family, and copingstrategies. The second chapter, "Finding Some Help," briefly explainscommon models used to explain emotional disorders and common conditions,including pervasive developmental disorders, attention deficitand disruptive behavior disorders, schizophrenia and other psychoticdisorders, mood disorders, anxiety disorders, and eatingdisorders. It also discusses specialists who provide diagnosis andtreatment and services suchas wraparound services, home intervention,school-based services, community-based outpatient and daytreatment, residential treatment, and respite services. The final chapter,"Understanding the Law," reviews the meaning ofsome common labels applied to children with emotional disorders; explores federalstatutory and case law relevant to special education services; andaddresses school and treatment problems (such as drug and alcoholproblems, eligibility for out-of-home care, how parentscan lose custody, and financial help and services). At the end of eachchapter, exercises review the information or share attitudes and ideaswith others. A glossary of acronyms, laws and regulations, and terms is provided.An appendix lists organizationalresources. (Individual chapters contain references.) (DB) U S DEPARTMENT OF EDUCATION Office of Educational Researchand improvement EO ATIONAL RESOURCES INFORMATION CENTER (ERIC) This document has beenreproduced as received from the person or organization originating it C Minor changes have been made toimprove reproduction quality Points of view or opinions slated in thisclOCu- ment do not necessarily represent official OERI position or policy 0 a 0 "PERMISSION TO REPRODUCE THIS MATERIAL HAS BEEN GRANTED BY TO THE EDUCATIONAL RESOURCES INFORMATION CENTER (ERIC)" TAKING CHARGE: A HANDBOOK FOR PARENTS WHOSE CHILDREN HAVE EMOTIONAL DISORDERS Katharin A. Kelker Parents-Let's Unite for Kids (PLUK) Billings, Montana Colleen Wagner, M.S.W., Editor Produced and Distributed by: Research and Training Center on Family Support and Children's Mental Health Regional Research Institute for Human Services Portland State University P.O. Box 751 Portland, Oregon 97207-0751 (503) 725-4040 September 1994 The recommended citation for this publication is: Kelker, K. & Wagner, C. (1994). Taking Charge: A Handbook for Parents Whose Children Have Emotional Disorders. 3rd Edition. Portland, OR: Portland State University, Research and Training Center on Family Support and Children's Mental Health. This publication was developed with funding from the National Institute on Disability and Rehabilitation Research, United States Department of Education, and the Center for Mental Health Services, Substance Abuse and Mental Health Services Administration (NIDRR grant number H133B90007-93). The content of this publication does not necessarily reflect the views or policies of the funding agencies. ACKNOWLEDGEMENTS The editor would like to acknowledge the work of many who helped with this document. Katharin A. Kelker is the author of the parents' handbook. Staff members of the Research and Training Center on Family Support.and Children's Mental Health provided assistance in the editing phase. James Mason provided additional material for the handbook directed toward the special concerns of culturally diverse families with children who have emotional disorders. Terry Butler wrote the section in Chapter Two on respite services. The glossary was compiled by staff members of the Research and Training Center on Family Support and Children's Mental Health. Katie Schultze and Kaye Exo proofread the material several times in its editing. Barbara Friesen provided editorial advice and encouragement. A number of other members of the Research and Training Center also reviewed the handbook, and their suggestions and comments were subsequently incorporated. The cover photograph was taken by Marilyn McManus. The Families as Allies staff is responsible for the selection of the handbook's title. Their choice reflects a belief that Taking Charge best describes the spirit of Katharin Kelker's book for parents whose children have emotional disorders. TABLE OF CONTENTS FOREWORD 1 CHAPTER ONE: FEELINGS COME FIRST 3 I. Feelings Come First 3 II. Impact on the Family 5 Coping with a Child with a Disorder 9 IV.Exercises 15 V. References 21 CHAPTER TWO: FINDING SOME HELP 23 I. What is Psychotherapy? 25 II. Common Conditions Exhibited by Children and Youth with Emotional and Behavioral Disorders 27 III. Specialists Who Provide Diagnosis and Treatment 35 IV.Services Available for Children and Parents 41 V. Exercises 49 VI. References 61 CHAPTER THREE: UNDERSTANDING THE LAW 65 I. Labels 67 II. Federal Statutory and Case Law 69 III. School and Treatment Problems 81 N.Exercises 89 V. References 99 CHAPTER FOUR: GLOSSARY 101 I. Acronyms 10.1 II.Laws and Regulations 107 III. Terms 108 APPENDIX: RESOURCES 119 FOREWORD For all parents, preparing for the birth or adoption of a child involves a great deal of planning, dreaming, and even fantasizing. The unfulfilled aspirations of the expectant parents become woven into their dreams for the new child. All parents fantasize in this way, but few children ever grow up to fulfill all the dreams of their parents. Gradually, paients adjust to their children as they are with their own strengths, weaknesses, and human frailties. Even though the child may not have the beauty, talent or winning personality that parents dreamed about, the child has real skills and strengths which are a source of pride. Most parents accept their children as they are and expect them to grow up reasonably normally. Some children, however, are different. They do not fit normal patterns of development. They may appear normal physically and may also have normal intelligence, but their behavior does not conform to accepted standards. These "different" children are the ones who may be labeled "seriously emotionally disabled," "seriously emotionally disordered" or as "having a serious emotional disorder." . We have written this handbook to share the feelings, experiences, and knowledge of other parents of children with emotional disorders with you. Our purpose is to let you know that you are not alone. There are other parents struggling with problems similar to yours who understand your feelings and frustrations. The chapters included in this handbook are "Feelings Come First," "Finding Some Help," "Understanding the Law," and the "Glossary." At the end of each chapter, there are exercises to help you review information or share attitudes and ideas with others. You may want to read the chapters by yourself or with your spouse. You can use all or parts of them as a basis for discussion in your local parent support group. You may want to share some of the information with professionals working with your child. When you have finished reading the chapters and doing the exercises, you should know more about the impact of emotional disorders on a family, the legal bases for help, and the types of mental health services that are or should be available. For further information, consult the references/bibliographies at the end of each chapter. Reading this handbook can be the beginning of your growing understanding of whatcan be done to help children with emotional disorders. We hope you will want to learnmore and that you will join with other parents to advocate for children and youth with emotional or behavioral disorders. 1 7 CHAPTER ONE Feelings Come First SECTION I: FEELINGS COME FIRST Unusual Behavior Parents assume that their child is developing normally until he or she behaves so differently that the unusual behavior cannot be ignored. As one father explained: We thought Molly was a normal kid because we just didn't know any better. She was our first one. When she didn't sleep at night, we tried one thing after anotherreading to her, rocking her to sleep, ignoring her, punishing her, even giving her cough medicine. Nothing worked Daytimes
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