annual 2011 report NATIONAL MPS SOCIETY MISSION

The National MPS Society exists to find cures for MPS and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases.

MPS CLASSIFICATIONS

Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases caused by the body’s inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Syndrome Enzyme Deficiency MPS I Hurler, Scheie, Hurler-Scheie a-L-Iduronidase MPS II Hunter Iduronate sulfatase MPS III A Sanfilippo A Heparan N-sulfatase MPS III B Sanfilippo B a-N-Acetylglucosaminidase MPS III C Sanfilippo C Acetyl CoA: a-glycosaminide acetyltransferase MPS III D Sanfilippo D N-Acetylglucosamine 6-sulfatase MPS IV A Morquio A Galactose 6-sulfatase MPS IV B Morquio B bGalactosidase MPS VI Maroteaux-Lamy N-Acetylgalactosamine 4-sulfatase (arylsulfatase B) MPS VII Sly b-Glucuronidase MPS IX Hyaluronidase ML II/III I-Cell, Pseudo-Hurler N-acetylglucosamine-1-polydystrophy phosphotransferase

National MPS Society PO Box 14686 / Durham, NC 27709-4686 t: 877.MPS.1001 / p: 919.806.0101 / f: 919.806.2055 e-mail: [email protected] / web: www.mpssociety.org collaboration 01

WHEN WE THINK ABOUT shows joint commitment to our updates, in addition to mentoring COLLABORATION, the focus goal to cure MPS and related new MPS organizations, provides of this year’s Annual Report, diseases. We are grateful to our equality of knowledge globally we visualize the National MPS research funding collaborations among individuals with MPS. Society as the hub of a large with the International Society We are grateful for these many wheel with the spokes our many for Mannosidosis and Related and varied collaborations, but are stakeholders. Over the years we Diseases, the Ryan Foundation, also mindful of the collaborations have developed and nurtured the Caterina Marcus Foundation, with our members and donors relationships with individuals, Insieme per Gabriel, Ben’s Dream through fundraisers, family support companies and organizations—our Foundation and the Children’s programs and our new Planned many stakeholders. Through the Medical Research Foundation. Giving program. The stories you support of this large community we The Society led the development will read in this Annual Report have grown and developed many of the Lysosomal Storage Disease about their interaction with the successful programs. Research Consortium, a research National MPS Society are uplifting initiative between lysosomal disease Our earliest collaborators were the and reinforce their commitment to advocacy groups and the National pharmaceutical companies that follow our mission. Institutes of Health (NIH), to developed treatments critical to fund translational research. In Thank you for your support and the long-term health of individuals recent years we have been an active collaboration with the Society. ! with MPS. Thanks to the generosity participant in the Lysosomal Disease of BioMarin, Genzyme and Shire Network, including providing HGT the Society added staff research support to complement which enabled the growth of PRESIDENT their NIH funding. our educational, awareness and family support programs. Our Additional collaborations developed collaboration with the companies by both our Legislative Committee EXECUTIVE DIRECTOR provide access to our members for and our individual members with patient surveys and advisory boards, legislative staffers have led to patient education materials, and our awareness about the National MPS ongoing Join the Search awareness Society among our elected officials Steve Holland program. in Washington, DC. The work of the Society in Washington has resulted Other collaborators include in increased funding to the NIH, Barbara Wedehase family foundations and other rare support of policies affecting our disease organizations that allow members, and recognition of our our research dollars to extend annual MPS Awareness Day. further through partnership grants. Recipients of a partnership The Society is a leader among grant appreciate that the Society is the International MPS Network, working together with foundations bringing together our sister MPS and organizations, because it organizations. Sharing research

PICTURED ON THE COVER Texas MPS Regional Gathering, Annabelle Bozarth (MPS IV) and Aidan Carter (MPS II) F AMILY S U PPOR T COMMITTEE 02 supporting courageous families

“ My son, Nick, received The Family Support Committee strives to meet the developing needs of scholarship funding from individuals and families affected by MPS and related diseases. In 2011 the Family Assistance Program expanded. Since the program’s inception the Family Assistance more than $485,000 has been awarded for funding such items as medical Program. This has helped goods, continuing education and conference scholarships. As the program lessen the burden of having continues to grow additional opportunities of support for our families to pay for college. The becomes available. scholarship is just another s3UPPORTEDTHEMEMBERSHIPTOATTENDTHETH!NNUAL&AMILY#ONFERENCE example of how the Society in St. Louis, MO. The Society provided 17 stipends for families to attend and offset the cost of travel and hotel. assists our children in all phases of their lives. s!WARDEDTWENTYlVE #ONTINUING%DUCATION3CHOLARSHIPS to members who are continuing their post high school education. We are grateful for the Scholarships were awarded to eight individuals with MPS and related family support programs diseases, 15 siblings, one parent and one child. and their overall mission to s&UNDED IN&AMILY!SSISTANCE0ROGRAMGRANTSTOHELPFAMILIES obtain durable medical goods. Grants included scooters, hearing aids, an improve the quality of life adaptive tricycle and an enclosed bed. for our children.” s4HE-EDICAL4RAVEL!SSISTANCE0ROGRAM INITSINAUGURALYEAR PROVIDED FUNDINGFORFAMILIES!WARDSINCLUDED FORMILEAGEANDAIRFARE reimbursement to families traveling more than 200 miles from home MOTHER OF NICK BOYCE (MPS I) for medical appointments. continued >>

Family Assistance Program Dollars Dawn Checrallah $90,000 $80,000

$70,000

$60,000

$50,000 Nicholas Boyce (MPS I) $40,000

$30,000

$20,000

$10,000

$0 2004 2005 2006 2007 2008 2009 2010 2011 >> s0ROMOTEDANDPROVIDED INlNANCIALSUPPORTFORTWOFAMILY organized, regional social gatherings. s0UBLISHEDTHETHANNUALAngels Among Us, Remembering Our Special Children memorial publication.  family support committee s#ONTINUEDTHE7HITE2OSE0ROGRAMANDGRIEFBOOKLETSERIESFORFAMILIES whose child passed away during the year. Families also received U.S. flags flown over the capitol in Washington, DC, in honor of their child. s0ROMOTEDALL&AMILY3UPPORT0ROGRAMSTHROUGHTHEWEBSITE Courage and direct communications with members. s0RESENTED3TANDING/VATIONAWARDSTOINDIVIDUALSWITH-03ANDRELATED diseases. One individual from each MPS subtype is honored each quarter in Courage magazine for their courage, resilience, tenacity and passion for life as they face the challenges of having MPS. The Hogan family at the St. Louis family conference s)SSUED/UTSTANDING3IBLINGS #HILDRENAND2ELATIVES/3#!2 AWARDS recognizing exceptional family members for support, dedication, “ We were incredibly grateful compassion and love provided as they battle MPS with their family to receive a scholarship member. These individuals are recognized in Courage. to attend the 2011 National MPS Society Family Conference. “ A regional event is a great way for local Trying to attend with families to meet and get to know other MPS families. We still remember the three children can be first event we attended when Karina extremely challenging, both was first diagnosed with MPS. The logistically and financially, Hodgkins’ family hosted a regional but the scholarship helped picnic at a park designed for special ease that burden so we needs kids in Katy, TX. As a newly could fully enjoy the diagnosed family, it was so nice to be conference. Our older boys able to spend time with other families that were going through similar things also were blessed by meeting with their kids. so many siblings and affected kids. They, as well The last two years, we’ve hosted Texas as us, came away with a MPS day at Morgan’s Wonderland in Angela and Karina (MPS III) Guajardo much greater appreciation San Antonio, TX. It is a great theme park created for people with disabilities. of our MPS community Both years, I applied for the Society’s grant, however, the second year as a family that we will I did not need to use it because of other sponsorships. Families had a embrace our entire lives.” wonderful time visiting with each other and enjoying the park. It is vital for families to connect with each other; we need the support

of other families going through similar issues. MPS is not an easy MPS II PARENTS disorder to live with, but what makes it bearable are the people we have supporting us. The National MPS Society is committed to assisting families. With their support we were able to host our regional family gathering and continue to build and maintain a strong Texas MPS community!” James and Melissa Hogan

The Guajardo family R ESEAR C H COMMITTEE 04 paving a road to a cure

4HANKSTOTHEGENEROSITYOFOURDONORS THE3OCIETYFUNDED FOR CRITICALRESEARCHIN7ERECEIVEDLETTERSOFINTENTFROMRESEARCHERS around the world and awarded five new, two-year grants for $70,000 each. The funding the Society provides has been and continues to be crucial as we move forward with our mission to find the cures.

The Society funded $25,000 to support the Lysosomal Disease Network’s National Institutes of Health grant research goals. The funding is designated for the Neuroimaging Core, which benefits the four MPS projects. An $8,000 MPS I Partnership Grant with the Ryan Foundation funded the University of MN project “Longitudinal Studies of Brain Structure and Function: The Effects of Genetic Mutations.” We are honored to again Vaughn and Nancy Bryson, Bryson Foundation collaborate with the Ryan Foundation on a Partnership Grant. “ We are long-term donors continued >> to the National MPS Society through our family $600,000 foundation. Although we are interested in helping $500,000 families, our recent focus is research. We’ve followed the growth of the Society’s $400,000 research program which

is now awarding many $300,000 grants each year, with a focus on young researchers. Our son benefits from this $200,000 research and the treatments developed, and we’re $100,000 pleased to see the Society building relationships with not just researchers, $0 but also pharmaceutical 2005 2006 2007 2008 2009 2010 2011 companies.” Money Raised (5K walk/run fundraisers) Money Raised Fundraisers

BRYSON FOUNDATION Money Granted

Vaughn and Nancy Bryson >> The Society also provided funding for post-doctoral fellows to attend scientific meetings, such as the American Society of Gene and Cell Therapy. In a letter to the Society from the American Society of Gene and Cell Therapy, Executive Director Mary Dean wrote, “The continued progress in 05

gene and cell therapy to cure MPS and related diseases depends on support research committee of students and trainees just beginning their own independent research. We are incredibly grateful for your support of these students.”

The Society is unique among rare disease support groups in that we support many diseases, each of which is defined by a specific enzyme deficiency.

Vito Ferro, PhD Alberto Auricchio, MD University of Queensland Fondazione Telethon Brisbane, Australia Naples, Italy “Small molecule chaperones for ERT “Gene therapy of MPS VI” for MPS II” Adriana Montano, PhD Patricia Dickson, MD St. Louis University Los Angeles Biomedical Research Institute St. Louis, MO at Harbor-UCLA “Role of inflammation in pathogenesis Torrance, CA of MPS IV A” “Choriod plexus-directed gene therapy as a source of intraventricular NAGLU-IGF2 Richard Steet, PhD for MPS III B” University of Georgia Athens, GA “Blockade of cathepsin activity and TGF- beta signaling as a therapeutic approach for LSDs”

2nd Annual Minnestoa MPS Cup LEG ISLATIV E COMMITTEE  influencing supporters on capitol hill

“ The Mad Hatter Tea Fundraiser The Committee on Federal Legislation expands their strong message each is an event our family hosts every year on Capitol Hill. The voice of the National MPS Society is recognized other year. We are thrilled that the and respected on the Hill, and it is the committee’s job to be aware and event continues to draw more new take full advantage of capturing important moments while attending their friends, raises more money and annual Washington, DC, visits. simply becomes more exciting! It Legislative Committee platforms include medical, research, health services, started with just an idea to have special education and disability policies. Regular correspondence and a fun family fundraiser to raise personal visits with policy makers at the National Institutes of Health, money for MPS research in honor Department of Education, Alliance for a Stronger FDA, National of Annabelle. Organization of Rare Diseases, Social Security Administration and other I was startled at the outpouring federal agencies occur year round. of time, commitment, donations continued >> and creativity that was generously shared from my community to make it a smashing success. At each event our friends, family and community have returned and many times brought new friends and family with them. Watching our event grow each year is my confirmation that we have tapped into something everyone enjoys. I also have learned that we are not alone in this struggle to find treatments and a cure for MPS. The bonuses from the hard work, time and money have multiple levels of payoff that I treasure. Through philanthropy for MPS, I have developed relationships in my community that give us a solid foundation and a sense of confidence to forge courageously ahead.”

MOTHER OF ANNABELLE (MPS IV) Kaitlyn O’Donnell (MPS IV) at the Mad Hatter Tea Party

Stephanie Bozarth “ I am not a doctor, chemist or any other medical professional, simply a daddy who is fighting to save his two little boys. My two sons, Jason and Justin, 07

were diagnosed with MPS II. legislative committee The National MPS Society has been our source of strength, understanding and hope. A society we never wanted to be members of but are so grateful to have in our lives. The Society provides us the forum to meet with other MPS families. We learn about Ernie Dummann, Legislative Correspondent Dennis W. Sendros, Stephanie Bozarth, Jeff Bardsley different medical challenges, and Debbie Dummann progressive and innovative treatments to help our children, >> s0RESENTEDTHE.ATIONAL-030UBLIC0OLICY$OCUMENTGIVENTO and how to develop the Congressional members. emotional strength an MPS family needs. The Society also s#ONTINUEDPARTNERINGWITH2ARE$ISEASE,EGISLATIVE!DVOCATES A gives MPS and each of our clearing house for patient advocacy groups to promote common children a voice, a voice that legislative issues. deserves to be heard. s3UBMITTEDLANGUAGETOTHE3ENATE!PPROPRIATIONS3UBCOMMITTEEON Labor Health and Human Services included in the Significant Item Through our foundation, Let Report for 2011. Them Be Little, we are proud to partner with the National s#ONTINUEDTHE0OLICYWITH0ARTNERSPROGRAM MPS Society to raise money to s!DVOCATEDFORTHE533ENATETOONCEAGAINPASSTHERESOLUTIONTO provide funding for important recognize May 15, 2011, as National MPS Awareness Day and received Society programs. We shouldn’t special acknowledgement from the House of Representatives. have to struggle to educate the s)NTRODUCED-03ANDRELATEDDISEASESTOTHE2ARE$ISEASE#AUCUSDURING population of this unknown a visit to Washington, DC. disease if we work together as a community.” s0ROVIDEDEDUCATIONALWEBINARTRAININGTOCOMMITTEEMEMBERSON “How Advocacy Moves Government.”

s#ONTINUEDTOADVOCATEFORADDITIONALUPDATESWITHINTHE#OMPASSIONATE MPS II PARENT Allowances Program by the Social Security Administration to include all MPS and related diseases. s)NITIATEDINTERVIEWSWITHSEVERALCONSULTINGlRMSTOAIDTHE3OCIETYWITHITS legislative advocacy efforts. s3UPPORTEDTHEFOLLOWINGLEGISLATIVECHANGESINFUNDINGFORTHE New Division of Biochemical and Genetic Diseases with the Office of New Jeff Leider Drugs under the FDA; increased funding of the Lifespan Respite Care Act; legislation for the Creating Hope Act for Rare Pediatric Diseases; Medical Foods Equity Act; unlocking Lifesaving Treatments for Rare Diseases Act; reauthorization of the Prescription Drug User Fee Act. Jeff and Deena Leider with Terri Klein, National MPS Society development director EDUCATION AND PUBLICITY COMMITTEE 08 educating families and health-related communities

“ I did not realize when selected The mission of the Education and Publicity Committee is to provide an to intern with the National array of educational materials that will benefit our members and health- MPS Society how impactful related communities. Our commitment is to provide the most current this experience would be. I information about MPS and related diseases through multiple resource got off the plane in St. Louis channels. The National MPS Society embraces forward-moving technology for the family conference by maintaining a new website, funding video materials and utilizing social media, while not losing site of the essential one-on-one contact with barely able to pronounce individuals and families affected by MPS. ‘mucopolysaccharidosis,’ but eager to learn as much as possible. s0ROMOTEDTHElFTH)NTERNATIONAL-03!WARENESS$AYON-AY I have learned that, while MPS s#OMPLETEDWEBSITETRANSFERLAUNCH invades many facets of your s0UBLISHEDFACTSHEETSONSpecial Education, Hydrocephalus, G-Tube Feeding lives, it does not define you or and ML Feeding. your children. The conference provided me an opportunity s,AUNCHEDINAUGURAL&ACEBOOKCONTESTFOR-03!WARENESS$AY to preview presentations and s0UBLISHEDTHE3OCIETYSQUARTERLYMAGAZINE Courage, and supplemental special sessions. I was touched by newsletters. the three presentations given by siblings about fundraising, and realized it creates unbreakable family ties and allows one another to move forward. I listened to your questions during the clinical trial lectures and I, too, was desperately wishing there would be a promising trial for every one of your children. I cried with the MPS community as you remembered those who have lost their fight during the memorial ceremony. The National MPS Society was instrumental in a life-changing experience and because of this I have changed my Capstone Project to include MPS.” Through the National MPS Society, Julie Jesiolowski completed an internship while working on her master’s degree in genetic counseling from UNC Greensboro.

GENETIC COUNSELOR

Julie Jesiolowski, MS FUN R AISING COMMITTEE increasing awareness  in communities nationwide

The National MPS Society extends our gratitude and recognition to “ Our son, Christian, was walk/run and fundraising coordinators in 2011. Our fundraising program diagnosed with MPS II in is an essential resource for supporting Society programs. Road to a Cure 2011 at the age of 3. We was the theme at many of our events, and the fundraising coordinators decided to start small when were very creative designing their events. Whether large or small, it came to the amount of time fundraising was successful at raising awareness about MPS and related we had available to begin our diseases in communities nationwide. The Society embraces the fundraising evolution and provides our membership, donors and fundraisers the fundraising efforts for MPS. essential tools for success. Through online grant campaigns, social media By contacting the National outreach and superior website fundraising tools, the Society is driven to MPS Society we found out create and support fun and innovative fundraising initiatives. about Sponsor A Child For s2ECEIVEDAFOUR STARCHARITYRATINGFROM#HARITY.AVIGATOR REPRESENTING A Cure. What started out as excellent performance that exceeds industry standards and performs a small idea, to get involved better than most charities. in a support for a cure, soon s3UPPORTEDANACTIVEMEMBERSHIPROSTEROFMORETHANMEMBERS turned into a big event. In September we ran a 5K race s2AISEDAPPROXIMATELY FORRESEARCHANDFAMILYSUPPORTPROGRAMS for Christian. The response to

continued >> our outreach was amazing. Friends told friends, family told friends of family and coworkers spread the word. We raised $20,000 and have become addicted to the thought of continuing our efforts with future events. We have already planned our next fundraiser and have several community organizations that have offered to volunteer their support. Times are tough, but it is moments like these that we now cherish!”

The Yard family during a Sponsor A Child For A Cure walk/run event PARENTS OF CHRISTIAN YARD (MPS II)

Jim and Amy Yard 10 >> s3UPPORTEDWALKRUNEVENTSANDFAMILYFUNDRAISINGEVENTSACROSS the country.

s2AISEDMORETHAN INTHENINTH!NNUAL&UNDCAMPAIGN benefiting family support programs, legislative initiatives and general operating needs. The 2011 Annual Fund was the most successful to date.

s#ONTINUEDTHE3PONSOR!#HILDFOR!#URE3!#&!# PROGRAMWITHlVE

Luke Chambers (MPS I) walk/runs in 2011. In addition to raising more than $25,000, SACFAC increased awareness and provided an opportunity for families to help “ Our son, Luke, was diagnosed the Society. This program allows families to raise money for a walk/run with MPS I in June 2006. We regardless of location within the United States. immediately became members of the MPS Society, but all along s5PDATED%VENT'UIDESTOENABLEOURMEMBERSHIPSUCCESSINTHEIR we wanted to become more awareness and fundraising endeavors. fundraising committee involved. With the busy life s#ONTINUEDWORKINGWITHTHE#OMBINED&EDERAL#AMPAIGNAND5NITED that MPS brings, we felt that Way to raise funds. we didn’t have the time to make a difference. Then I read an s,AUNCHEDANEWWEBSITEWITHONLINEFUNDRAISINGTOOLS issue of Courage that included s)MPLEMENTEDANEW0LANNED'IVING0ROGRAMANDTHE2ISING3UN,EGACY information for the Friends and Circle for Society donors. Neighbors (FAN) fundraising program. THIS WE CAN DO! It was important for our family to do more for Luke, for all those affected by MPS, and the National MPS Society. We embraced this program Annual Fund Donations because it was easy and did not consume a lot of time or $100,000 planning. We shared our $90,000 personal story along with a letter of appeal and e-mailed $80,000

everyone in our e-mail address $70,000 book and asked to please forward it to everyone in their $60,000

address book. We also mailed $50,000 more than 100 copies and

addressed them to every friend, Dollars Raised $40,000

coworker, family member and $30,000 healthcare provider we have. We had terrific success with $20,000 the FAN program and, more $10,000 importantly, raised awareness among our community.” $0 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 Annual Fund Year

PARENTS OF LUKE CHAMBERS (MPS I)

Bethany and Chet Chambers PLANNED GIVING , SECURITY FO R OUR F U T URE

Planned Giving with the National MPS Society launched in 2011. Along “ I have been a member of the 11 with providing our first Guide to Planned Giving in our Inaugural year, five National MPS Society for 13 fundraising committee donors became part of the Rising Sun Legacy Circle with their planned gifts years, and made the decision to the Society. Planned Giving helps donors maximize the personal benefits to include the Society in my of charitable giving and allows the donor to make gifts they may not have estate planning to recognize thought possible. Individuals who make planned gifts to the National MPS its important efforts and Society, whether through their estates or other life-income arrangements, share a strong common bond of generosity that is promoting the Society’s contributions, and to honor mission and providing security for future generations. Building this my brother who had MPS II.” community of philanthropy helps our donors achieve their personal vision and desire to give. SISTER OF ULRICH (MPS II, 1919–1964)

Rising Sun Legacy Circle – 2011 “ I was so excited when my Mary Starr Adams first granddaughter was Christa Armstrong born. I was looking forward Christato having Armstronga little girl to play Becky Clarke with and take shopping Emil Kakkis and Jenny Soriano to buy pretty dresses and beautiful dolls. After having two sons and two grandsons, I could now buy something other than planes, trains and automobiles. At age 2, Mackenzie was diagnosed with MPS III. I have designated in my will that each of my grandchildren will receive a sum of money. Mackenzie’s share will go to the National MPS Society in support of research. Mackenzie has given me many gifts; this is my gift back to her.”

GRANDMOTHER OF MACKENZIE (MPS III)

Steven and Jennifer Clarke and family during the Mackenzie 5K Run Becky Clarke 12 financial summary

4HElNANCIALINFORMATIONBELOWHASBEENSUMMARIZEDFORTHEYEAR4HE3OCIETYISACNONPROlTPUBLIC CHARITY#OMPLETEAUDITEDlNANCIALSTATEMENTSAND)23&ORMAREAVAILABLEUPONREQUEST

Financial Position

Assets Liabilities Cash $ 247,077 !CCOUNTS0AYABLE    Investments 1,474,455 Prepaid Expenses 4,077 Net Assets 0ROPERTYAND%QUIPMENT   %NDOWMENT    )NVESTMENT2ESTRICTEDFOR%NDOWMENT   5NRESTRICTED.ET!SSETS    4EMPORARILY2ESTRICTED   Total Net Assets 2,755,027 Total Assets $ 2,766,723 Total Liabilities and Net Assets $ 2,766,723

Activities

Support and Revenue Expenses Donations – General $ 87,511 0ROGRAM    $ONATIONSn&AMILY!SSISTANCE  'ENERALAND!DMINISTRATIVE   $ONATIONSn2ESEARCH   &UNDRAISING   Operating Grant 25,000 Total Expenses 1,211,474 &UNDRAISING   -EMBERSHIP$UES   Conference Income 51,445 3PONSORED2EVENUE   )NVESTMENT)NCOME   Change in Net Assets $ (78,069) Total Support and Revenue $ 1,133,405

Other Administrative 4% Office and Equipment 3% Functional Expenses Education – Newsletters, %DUCATIONn.EWSLETTERS "OOKLETS 7EB    Booklets, Web 9% Personnel 20% #ONFERENCES -EETINGSAND4RAVEL  Conferences, Meetings Direct Family Assistance and Travel 16% Direct AND"EREAVEMENT   Fundraising 7% -EMBERSHIP$ATABASEAND$IRECTORY   ,EGISLATIVE   2ESEARCH'RANTS   Direct Fundraising 77,785 0ERSONNEL   Direct Family /FlCEAND%QUIPMENT   Assistance Other Administrative 51,280 and Bereavement Total Functional Expenses $ 1,211,474 5% Research Grants 35% Legislative <1% Membership Database and Directory 1% 2011 CONTRIBUTORS W ITH SINCER E T H ANK S TO O UR S U PPOR TER S 

In 2011, the National MPS Society was able to provide support to families and funding for research because of the generosity of the following individuals, families, foundations, companies, groups and fundraising events. The board of directors and the Fundraising Committee thank you for your dedication and efforts. The Society makes every effort to recognize our supporters through Courage and this Annual Report. If your name is not listed, we apologize and ask that you contact us. The following list represents all donations received in calendar year 2011. If we received your donation in 2012, you will be recognized in the next Annual Report.

Joseph Boulos Stephanie Mays William J. and Maryelene Dailey Westlake Hills Presbyterian platinum Stephanie and Austin Bozarth Howard W. Mays Jr., P.C. Church Ralph and Jane Daniels $10,000 to $1,000,000 Broadband Capital MediResource, Inc. WFB Ohio - Foundation Decorative Concrete BioMarin Management, LLC Chris Meyerpeter Amy and Klane White Resources,Inc. Bryson Foundation R.A. Bryan Foundation Microsoft Matching Gifts Program Crow White Deloitte Services, LP David and Kiersten Lowe Fund Joseph and Kelley Capone Miller Foundation Tom and Kim Whitecotton Nathan and Kami Dempsey Will Ferrell Brooke Carter Heath and Kimberly Monesmith Wilmington Blue Rocks, L.P. Ray Dettmer Genzyme Corporation Drs. William and Jennifer Carter Jim and June Murphy Gordon Wingate Dex Imaging, Inc. J.P. Morgan Chase & Company William P. and Judith Carter Kevin Newsom Jim and Amy Yard Thomas and Kimberly Dickson Kercheville Foundation CAS Associates Austin and Cheryl Noll Kevin and Margaret Yard Kathy and Paul Dobrowolski Val and Marlene Salcher Rob and Diane Cassil Michael O’Malley Israel Zilberman Julie Dopheide Shire Human Genetic Therapies Cynthia Cochran One Sky Community Services, Inc. Ernie and Debbie Dummann Wilbur M. Havens Charitable Fund Kathleen Coolidge Mary Jo Page Elm Street Cultural Arts Village leader Cooper Industries Foundation Deborah Pasculano $500 to $999 Tara and Jack Elston gold Crossfire Consulting Corporation Jo Anne Paterniti Mary Starr Adams Melissa Ethier $3,000 to $9,999 John Culver Mark and MaryEllen Pendleton ADL Associates Exeter New Car Dealers Angel’s Hands Foundation, Inc. Rosemary and David Deahl Pershing Alaska Mill and Feed Co. Association Baltimore Community Delmarva Power Thomas and Stacy Peters Frederick and Nancy Andrews Fidelity Bank and Trust Foundation Ron and Barbara Dengel PG&E Corporation Appledore Medical Group First Presbyterian Church of Barney & Barney, LLC Shawn Donnelly Charles and Judith Pitman Kathie Doliszny and Lynn Haven Marsha and Robert Bozarth Patrick Dunn Pool Tool Incorporated Stephen Archer John Robert Garder duAlaska, Inc. Dutch’s Daughter, Inc. Portland Community Charitable Robert and Marjorie Austin Jean Gardner Employees Community Fund Empire Merchants, LLC Corporation Keith and Debra Banks Tom and Anne Gniazdowski of Boeing California EZCorp Foundation Portsmith Regional Hospital Bay County Chapter of Akiva Goldsman Fidelity Charitable Gift Fund Fairview Health Services Suzanne Priebatsch Thrivent Financial Jennifer and Micheal Goodwin Fred and Joyce Koehler Jon and Joya Favreau Progress Energy Service Mr. and Mrs. Ronnie and Gordon Hospital KPMG, LLP Andy Fickman Company, LLC Jaye Beck Grace for a Cure, Inc. Let Them Be Little Fund Betsy and Steve Fowler Sam Raimi Maurizio and Elizabeth Bellassai Andrew and Jennifer Graser Howard and Jean Madsen Mr. and Mrs. Noelle and Sam and Nancy Ramsey Eric, Daryn and Melissa Berger Greenwood Building Company Joe and Jan Melnyk Jonathan Frye Paul Rector Maria Bermudez Marc Guggenheim Donald Myers Stephen and Kimberly Frye Karen Rosenfelt Ethel Bernard Timothy and Betty Hammer Pi Kappa Alpha Michael Hardin George and Athena Sarantinos Joel and LeeAnn Bernbaum Wallis and Monica Hampton Premier Source Harris and Associates, Inc. Katherine and George Ross and Hilary Berning Hampton Rotary Charitable Schneider Downs & Company, Inc. Coy Heldermon Schwander Bruce and Michelle Bjorkman Foundation Irene Streblow Scott and Lynn Hopkins Ira Schwartz Bill Block Dana Harris U.S. Raceworks, Inc. Jonathan and Marie Hunt Elliot and Jacquie Segal Lee Bloemendal Illya and Kirsten Haynes

The Inner Circle Stebbing & Stebbing Boening Bros., Inc. Hewlett-Packard silver ISI Alaska Section Marla Stevens Richard Bosse John and Bonnie Hoegl $1,000 to $2,999 It Works Marketing, Inc. Steve Sunenblick William Boynton Steve and Amy Holland Access Sports Medicine and Bradenton Tracy Szemanski CA Technologies Matching Cathryn Hollfelder Orthopaedics John N. Kelly Rangley The Burt Family Foundation Gifts Program Wayne and Lori Hummel AIG Matching Grants Program Kajima Foundation The Hubbard Broadcasting Mark and Stephanie Caldwell IBM Employee Services Center Airway Oxygen, Inc. Jennifer and Carl Kapes Foundation Patricia Canzoneri Idem Translations, Inc. Raymond and Barbara Alpert John Kelly Truist Altruism, Connected Capitis Solutions, Inc. It Works Marketing, Inc. Bill and Mary Andrews Kids Under Construction Ron Trujillo Peter and Lorna Carter Grand Rapids Dr. and Mrs. Mel and Kiwanis Club of Poquoson UBS Financial Services, Inc. Mary Lester Cavanagh JustGive, Inc. Millie Anhalt Margaret Kramer Unitarian Universalist Susan and Roger Chapin Gary and Paula Kacer Annie’s Angels Memorial Fund Dawn and Philip Laorenza Congregation of Atlanta Santo and Elizabeth Cimino Kathleen Kapes Apache Lawrence and Margaret Lessing US Bancorp Foundation Clare Rose, Inc. Beth Karas Automotive Booster Club B20 Lessing’s, Inc. Employee Matching Gift Maryellen and Julian Coles Mr. and Mrs. Wendell and Wayne and Catherine Bardsley Kevin and Tracey Litwin Program John and Patricia Constantine Karen Keith Joan and Howard Beaufait Chuck and Nancy Lukondi Valero Energy Joan Cook Bill and Kelly King Jon Berg Dave and Hope Madsen Johanna Vespe Valecia Crisafulli Bishop-McCann Allan and Sally Martin Wells Fargo Bank, N.A. Lynn Crumling continued >> >> Larry and Susan Kirch Dino and Barbara Giamatti Mitchell and Cherylynne Moore Kevin Kirkpatrick volunteer Gifted Nurses MSI Enterprises, Inc. friend $250 to $499 $100 to $249 Michael Schleter and Terri Klein Great Lakes Embroidery Sean and Stephanie Muth Abbott Laboratories Employee A-1 Delivery Services Elizabeth Kregel Luis and Angela Guajardo Carol Nareski Giving Campaign Amy and Scott Aaron John and Esther Kregel Lisa Hansen Elizabeth Neufeld Kristi and John Abel Robert and Patricia Aaserude Lakeview Hospital Paul Harmatz New Brace Co., Inc. Judith and Art Ackerman Pamela Abdy Andres Lambea Lynn Harris Austin and Dorothy Noll Stuart and Karin Adams Accu Sort Systems, Inc. Lori Caldwell LeDoux Charles and Maren Harrison Maryanne O’Brien Peter and Maria Allen Richard and Claudia Ackerman Judith Leger Harvey Cadillac Company S.M. and K.P. O’Connell 14 Allstate Giving Campaign AFSCME Local 2073 Wayne and Paige Lewis Stephen and Elaine Hathaway On the Vine Marketplace Alpha Gamma Delta Fraternity Dean and Kathy Aker Logan Brothers Printing, Inc. Phil Hay Effendi Ortiz Toro Timothy and Michelle Annis Ken and Linda Alberts Logan County Bank Quentin and Sally Heimerman Our Country Home Asbury Memorial United Don Albertson Vincent and Alexandra Lovelle Robert and Kristi Heimerman Palm Pointe Educational Methodist Church Denise Albright Lucas Tree Experts Steven and Ann Heimerman Research School Monaghan Leahy, LLP Ada and Dave Alden Laura Lunardo Thomas Heimerman Partners in Marketing Attorneys at Law Alexandra Alden Paul and Marci Matvey K.H. and Kevin Hogan Victoria and Lee Jeffrey Pattridge Sandra Babel Ann Alden Joseph McCarthy Peggy Holland Alan and Diana Pendley Baird and Baird, PSC Peter Alegre Jill and Mike McDermott Hometown Family Care, PLLC Phi Sigma Tau Shawn Barkley Christine Alicandro John McElreath Mark Hopkinson Aimee Picard Margaret Barry Allcare Dental Clinic McGraw-Hill Companies Ice Cream Corner Mary Piciocchi contributors Ruth Bauerle Debbie Allen Employee Giving Campaign Icehouse Charles Pinkerton David Beatty Zeta Allen Brian and Julie Mollett Integrated Medical Tim Potter Michael Beebe Allenwood Parent-Teacher Jason and Colleen Moore Management Group, LLC Prodesco, Inc. Michael Berster Group, Inc. Theresa Morris J. Clifton Avery Agency, Inc. Patrick and Marlow Rahn Cheryl Bien Lisa Almeder Alice Mroczkowski W. Andrew and Lauran G. Jack Rahn Around Lorraine and Frank Bien Kent Alterman Thomas and Karen Nathan Herbert and Kathleen Janick Tom Ramirez Steve and LaVonne Blechinger Ameren Illinois Network for Good John Jashni John and Debby Ratto Nancy Bode America’s Charities Gianni Nunnari Jewish Communal Fund Rink Rat Hockey Clinics Marie Bonville American Blue Ribbon Holdings John and Jeanette O’Brien J.B. Joel Adam and Michelle Rogers Sara Boxer Ralph and Martha Anderson Fred and Ronda O’Donnell Jennifer Johnson Salesmaster Robert Bredeweg William and Margo Anderson Lewis Oliver Jose O’Shea’s Daniel and Heidi Schmidt Jane Brickner William J. Anderson Jr. Carlos Otero Junior Womans Club of Wayne and Lisa Schmidt Susan and Dennis Burke Jeff Winn and Tom and Barbara Palmer Hilton Village, Inc. Thomas Sedoric Leone Burrage Mary Anderson-Winn Thomas and Vickie Patterson Mr. and Mrs. James and Arthur and Marilyn Sheekey Michael and Melissa Busch Angelo Iafrate Construction Don Payne Mary Kalteux Margot Shriver Emily Byrnes Company Peak Medical Data David and Anna Kanarek Ted Sidel Fred and Jane Caldwell Cynthia and Randy Anhalt Suzanne Pease Mark and JoBeth Kaplan Timothy and Mary Bet Skunes Anne Campbell Rachel Arceci Rainscape Lawn Sprinkler Douglas Kelley Sleeping Lady Mountain Lions Glen Caplin Arcement-Matherne Systems, LLC Sherri Kelly Timothy and Amy Small Tom and Laura Catanzarite Chiropractic Clinic, LLC Agostino E. Rancatore Tom Kirch Jason Spitz Ling Chan Betty and Barney Arceneaux Red Creek Central School Knights of Columbus Council John and Diane Stabb City of Seattle N. and M. Armellino David and Julie Russo Carolyn Koch Julia Stogoski Ruth Clarke Sharon Armendariz Yvonne Sacks Todd Komarnicki Pauline Stukus Steven and Jennifer Clarke Patrick and Barbara Armknecht Stacy Sadler Jeffrey and Carissa Kramer Darlene Sweeney Clayton Ridge Community Christa Armstrong DBA Dunkin Donuts Salema Oliver Kramer Robert Maiden and School District Stephen Aselage Cart System, Inc. Doug Kreul Becky Tanamachi Concordville Ashland Center for Charles and Diane Schlecte Danielle Kuzminski TelAlaska Conestoga-Rovers & Associates Women’s Health Mark Simmons Annette Larson-Allen Leonard and Linda Terrien Janet and Leo Cook Rachel Askey Alex Sinaiko Darold and Suzanne Lewis Three Rivers FS Company Holly Currier Kelly Austin Sheila Slawson Todd and Amy Liberty Top Gun Custom and Ryan and Kelly Curry B.E. Warfield Contracting Tami Slawson Kathryn and Hai Lieu Collision Center D&S Warehousing, Inc. Babylon Village Womens Club Mike and Barbara Smith Samuel Solish and Jo Ellen Linder Lindel Toups Donald De Line Stella Bailey Erik Snyder Don and Helane Linzer Michelle Towell Gennaro and Joni Dibello John Baird Jack and Barbara Sorter Gene and Cynthia Logan Trend Printing/International Bonnie and William Doster Nathan and Marianne Baker Stage Long and Delosa Label, Inc. Heather McTavish Doucet and Heather Balizer Dr. and Mrs. Larry and Michael Longo Unitil Service Corp. Shane Doucet Sandy Ball Mary Sweeney Donald and Karen Louden University of Virginia Fund Jennifer Duncan Mark and Alberta Balliet Stuart Swiedler and Judy Weiss Lee and Sherri Louden Beth Valocchi Sarah Dunwody Joseph and Jacqueline Balukin Teamsters Local 959 Wes and Jill Lovell Kenneth and Barbara Velten Educational Enrichment Laird Barber Terry Hunt Contracting LTD Rita Luna Sent and Mary Visser Center, Inc. Jeffrey Bardsley The Iscovich Foundation Barbara Lyons Deborah Cronin-Waelde and Nancy Siegfried and Jane Barker, MD Sheila and Michael Thornton Robert Harvey and Richard Waelde David Edwards Amy Barkley Timothy’s of Wilmington Roxanne Maffitt Eric and Rose Wahlberg Charles and Josephine Ellard Dwight and Debbie Barkley David and An Tootill Mary Marcotte Shirley Wain Ellipse Barlow Pools, Inc. Tripp and Adriana Vinson J. Patrick Martin Steve and Martha Waters Erik Feig Stephen Barnett Sarah Aaserude and B.C. Masepohl Barbara Wedehase Bart and Sally Finzel Valerie and Steve Barnett Todd Waddell Dorothy Mask Tom and Theresa Weisenbach Donald and Romona Finzel Heather Wiesman-Barr and Dawn Watkins Cooky M. Mays Wells Fargo Community Janet Forde Nathaniel Barr Eric Watkins Bryan and Alma Mazur Support Campaign Lennie Forkas Joyce Rhodes Barrett Claude and Roselyn Wells Meconi’s Italian Subs Victoria Sheperd and David and Angela Frechette Sandra Barstow Don and Lisa Wells John and Marcia Mederos Ted Westmoreland Friends of Powertrain Gene Barton John and Brenda Winkler Mid-state Michael Williams Gerald and Luella Gabriel Reed Bartz Eric and Linda Wright Mike’s Septic Service, Inc. Mr. and Mrs. Hubert and Stephen Gaghan Diane Bates Mary Lou Wurdack Nancy and David Millard Elaine Willman Jean Gala Peter and Jackie Bates Richard Miller Zeller Commercial Roslynn and Timothy Garvin James and Tirzah Becnel Stacey and Lew Montgomery continued >> >> Mr. and Mrs. Bell Charles Hagenah Architects, Inc. Terry Detillier Samantha Gioangrande James and Saundra Huff Brian and Dana Beltran Chattahoochee River Club Mr. and Mrs. Jerry and GlaxoSmithKline Foundation Karen Hughes John and Jane Benedict Homeowners Association Sue Deutser Thomas and Jean Gniazdowski Peter and Channing Huhn Stephanie Berenbaum William and Marsha Chayka Henry and Barbara DeVries Greg Gordon Jeff Hunter Elliot and Lindsey Berke Steve and Karole Chesser Dewey and LeBoeue, LLP Dan Gotel Sloane Hurst Steven and Kim Berkman Kathleen Christopher Diamondhead Bridge Club, LLC Lee and Tammy Gottschall Mark and Karen Hutchins Joseph and Ellen Bernard Church Street Services Matthew and Liz Dickerson Louis P. Gouaux II Amy Hyett Lloyd and Janet Berning Limited Partnership Michael Dickerson Blake and Ashley Graeber I Sold Their House Berry Plastics Corporation Michelle and Don Churchill Timothy and Rosemary Dickerson Greg and Toni Graham John and Yvette Iannelli 15 Karen Bettius Michael, Margaret and George Diehl Grand Rapids Christian School Linda and Allan Iezzi Dr. and Mrs. B.L. Bickham Grace Ciacciarelli Thomas Diggins Grand Rapids Gravel Company ING, Inc. contributors Kay Birkes Cinetel Films, Inc. Janice Dittmar Marc Grasso Intercontinental Hotels Group John, Jenny, T.J. and Deanna Cisneros Douglas and Julie Doane James Grayson Ghadir Issa Molly Birmingham John and Melinda Clark Jean Donatello Juliana Grayson Mark Jacobs Biros Septic and Drain Thomas and Tanya Clark JoAnne, Rick and William and Shirley Grayson Aleck and Stacey Johnson Cleaning, Inc. Col. John and Susan Clarke Kaitlin Dougherty Rose Marie Greco Becky Johnson William Bittman Rebecca Clarke Jeffrey and Mary Dozbaba Richard Greene Julie and William Johnson Elster and Glenda Blackburn Robert Clarke M. Shawn Dreffein Alison Greenspan Saren Johnson David Blum Stephen and Denise Clayton Bryan and Jennifer Duncan Michael and Rondi Grey Christopher Jones Mike and Grace Bodura Sherri Clerk Robert Dunn Jack and Lynn Griffin Dennis and Debbie Jones Adella Boeding Rebecca Cobb Dorothy Farrell and Michael Dwyer Cliff and Linda Griffith Mark Jones Terry Atas and James Bohnen Ross and Belia Coddington Pamela Eddy Harry and Judith Griffith Russell and Kaydi Kacer Thomas and Diana Boland Kevin and Kristina Coen Karen, Lindsey and Hannah Efird Growing Years Child Care Center John and Janet Kappel and family Elliot and Susan Cohen Carla Ellard Julianne Grundfest Clifton and Kelly Karnei Marc Bolduc Jerrold and Marilyn Cohen Toni Ellard Philip and Kelly Guza Cece and Mike Karz Lourdes Bond Rocco Colicchia Carl Ellis John Guzzardo Raimund and Inge Kasner Katherine and Joe Bonville Mary Jo and Larry Collet Empty Pocket Farm Mick and Shirley Hagermann Anaheed Kasparian Jennifer Boque John and Lynn Conley Michael Epstein Sheryl and Gerald Hall Joel and Dawn Kaul Robert Borders Mark Conley EQT Foundation John J. Halleron III Paul and Nga Keith Michael and Jacqueline Bornak Jeff and Julia Conner Liana Escott Jennifer Halstead Colin and Michelle Kelly Christina Bourne Esther Conrad Jeanette Espinola Polly Ann Halsted Hugh and Diane Kelly Nancy Bowling Arthur Conroy Delma and Edward Ethier Lois Halvorsen Mark Kelly John and Kimberley Brady Michael and Claire Constantine Bradley and Lorraine Etter Tim and Kay Hannon James and Geraldine Kempton Roy Mason Brand Construction Machinery Paula Eubanks Thomas Hanzlick Anita Kennelly Dale and Myriam Brandt Industrial Judith and David Eva Rodney and Donna Hardy Sammy and Carolyn Kent George and Jean Brandt Mary Ann Conzett Ilse Evans Jo Ann Harper Dale and Dianne Kessler Lynette Brim Matthe Cooper Kenneth and Jane Ewan Christopher Harris Ardis and Henry Ketterer Daniel Brink Brooke and Stephen Cornwell Robert and Amy Farrell Mark and Keely Harris Jean and Francis Kiddish Daniel and Debra Brockman Robert and Katherine Coughlin Tasha and B.J. Farrell Terry and Patricia Harris Eric and Mary Kielich Robert Barry Jr. and Karl and Anna Coulson Pamela Farthing K. and V. Hartz Brian Kilgen Nancy Bromall Bob and Laura Cowin Christine Faucette Harvey Lexus of Grand Rapids Joan and Addison Kilibarda John and Judie Brooks Christopher and Ann Crawford Phyllis Feibelman Joel and Kirsten Hasfjord Ryan and Christina Kilpatrick Rodney and Melanie Brown Billi and Jeremy Crockett Denise Fiandaca Shelby and Tim Haslett Jennifer Kimball Lindley Buchas Elizabeth Crook Randy and Veronica Fields Andrew Hass Kimberly Clark Foundation Donald and Amber Buckley Robert G. Croyle Gail Finney Carina Hastings Kevin and Mary Kimmet Mrs. Kathy Buckley Gary Cubas Rod and Kathy Finzel Andrea Haynes Alan and Kathleen Kimura Marina and Andrey Bulkhak Jasmine and Emmanuel Cuffee FayeRuth Fisher Larry and Barbara Hays Kyle Kindle J. Dennis and Barbara Burke Culver’s of Lincoln Joan Flynn Lyle and Jade Hays Deanna King Paul and Nancy Burke Carole and Conrad D’Esopo Laura Fogle Kevin and Michelle Healy Ian and Tracy King Jennifer Burnett Dale Commercial Services Neil and Ruthie Forman Shawn Healy Tom Kirch Chris and Carla Burns Jules Daly Maria and Steven Foshay William and Kelly Hedrick Korey and Rachael Linda Burtt Kathryn and Tim Davidson Larry and Marjorie Foster Glenn and Tammy Heise Kirschenmann Robert and Ruth Bush Robert Davidson Donald and Mary Jane Fowler Jennifer Hemingway Brian and Kristine Klenke Michelle and Lou Butts Hollene Davis Jeff Fowler Douglas and Kenyon Henderson Earl and Doris Klenke Caroline Butz Richard Dawson Joyce Fox Samuel and Keri Henderson Joel and Lisa Klessens Sandra Terry and Linda and Dan Day Marcia Francis Mark and Dianna Henrickson Lila and Deborah Kneschk Noma Ann Byrum Mike, Lisa, Maria, Molly, Sarah, Ronald and Sheila Francis Elaine Heron Mary Gabriel and Adam Knudson Alex and Susan Calvert Johnny and Gracie Day Jason Francoeur Lester and Travis Hewitt Margaret Koehler Charles Campbell Abel De La Rosa Kate Morse Frantz George and Cheryl Higgins David and Mary Beth Kolan Skip Campese Roderick and Liza De Leon Debra French Lanny, April and Beau Hill Richard and Terri Koprivnikar Thomas and Kristine Cantwell Jessie Wallingford Dean Lori Fresina Betsy Hitchcock Alex Kormos CarePro Health Services John and Amelia DeFilippis Edward Friel Russ and Kasey Hitt Ed Kozlowski Cheryl Sena and Peter Cario June DeFilippis Bruno Gagnon William and Catherine Hitter Eric Kranzler James and Jamie Carpenter Shelley DeFord Andrew and Darlene Garcia Christine Ho Geraldine Krebs Elizabeth Lloyd Carter Cynthia and Eugene DeFrank Daniel and Sarah Jane Garcia Brady and Emily Hoak Brian and Jana Kregel Lauren Carter Degnan-Green Insurance and F.H. Garfinkel Scott and Susan Hoffmann Steven and Lynn Kregel William Carter Realty Service Gary Blake Saab Chris and Melissa Hogan John and Sandra Kreger Richard and Amy Cashdollar Mona Delahooke Judith Gass Elishia Holmes Kimberly Krehely John and Barbara Casino Delaware Periodontics Kevin and Andrea Gates Tom and Jackie Holt James Kremers and Heidi and Keith Caswell Michele Delenick W.R. and Pamela Gates Lori Hops Sally Rullman Anthony and Donna Cataldi Carolyn DeLeon Annmarie Gauci Horizon Lines of Alaska, LLC Gordon Kreth Central Elementary PTSA Daniel and Catherine Delgado Robert and Florence Gauthier Mary Lee Hotchkiss Gloria Kroeze Edward and Sheila Chadroff Joseph Delosa Michael and Marcia Geller Paul and Laurie Howard Beth Anne Costello and Earl and Pat Chambers Elizabeth Demkin William Gensburg Todd and Jennifer Howard David Kuhl James and Barbara Chaney Cindy and Alfred Dennison Jeff Gentil Todd and Constance Hoza Mary Kuhn Kandy Channel V. Desai Shane and Jenifer Gibson Frank and Carolyn Hudak Bertram and Eleanor Kurtz Lewis Chapman Phil and Janette Desmond Norman Ginis Brent Hudson continued >> >> Jody Kussin Karen McCash Penni O’Donnell Jimmy and Willow Rice Virginia Smith Jeanne Hoke L-3 Security Team Frances McCauley Jack and Terri O’Malley Blair Rich Robert and Susan Sohl Marc Lachance James and Kimberly McClelland John and Loretta O’Malley Horace and Carolyn Richbourg James Crowley and John and Joyce Lane Stephen and Marie McClurg Thomas and Barbara O’Malley Mary Louise Richter Cristina Soria Steven and Cam Lanier Janet and James McColgan Eileen and Larry O’Steen Paul and Judith Ries Thomas and Elizabeth Sowden Lapp’s Landscape Products Mandy Mccrary Ann O’Malley James Risbon Larry and Janice Spadt Cheryl Larson Kathleen McCullers Thomas and Anne O’Reilly Gary and Bonita Ritondaro Melinda Spenner Renee Lassila McDevitt Trucks John and Kathleen Opitz Rixey Street Foundation, Inc. St. Croix Valley Lions Club  Mr. and Mrs. Paul and Stephen and Trish McGinnis Amy Ormond Robert R. McCormick Foundation Alberta and William Stanley Catherine Latella Kathleen McGuinness Edward Osander Carly Rockstroh Gregory and Susanne Stanley Kenneth and Julia Lawhorn Richard and Sandra McHugh Kenneth and Carol Osterlund Beth Howard and Bruce Rofsky Sergio and Angela Stasi V. Bryan and Patty Lawlis Laura McKeithen David and Alison Ottenbreit Allison and James Rogers Michael and Stacy Stavlund Robert and Katie Lawson Judy McKinstry Kathleen Owens James and Pamela Rogers Jerome and Margaret Steffen Stephanie Lazar Lily Lou McMurrey Dr. William and Beth Owens Kay Rogers Bob and Susan Steiner Chris and Anna Leatherow William and Stacy McNabb Norma and Lawrence Pacl Sherrie and Tony Roman Bonnie Stephens David Lebec Michael McNamara Jeanne and Bruce Palzer Tom Ronan Randall and Wendi Stern Deborah Ledbetter Raymond and Amanda McPartlin Carmella and Estelito Panghulan Carl and Donna Rose Alison Stewart Helen and Bruce Leddy Elizabeth McQuade David and Linda Parker Larry and Patricia Ross Elaine Stewart Bill and Cheryl Lehman George and Ann Mech Donnie and Deborah Parker Peter and Rosemary Rotelli Robert and Joanne Stewart Ken and Julie Leighton John and Susannah Mechem Jack and Doris Paster Becca Rotelli Mignanelli Peter and Sarah Storlie contributors Danny and Sally Leinen Richard and Tracy Meier Melvaree Pate Richard and Marcia Roush Ben Straley Lemon Drops Apparel and Gifts Ryan and Molly Mercer James Patrick Hickman and Carey Rowland Calvin and Connie Stroble Monica and Ron Leone Nicholas and Shari Ronda Paullin Aaron and Carri Rubinstein James Stultz Monique Leone Messerschmidt Paul Pelphrey Edward and Carol Ruhnke Victor and Tracy Suchodolski Kurt Leslie Richard and Dorothy Michaels David and Rose Pelton Holly Russo Richard Suckle Joan and Mark Lessing David and Christina Michelmore Jeffrey and Paula Pennock Katheryn Ruthruff Caroline and Bernie Sullivan Charles and Kendra Lesta Joe and Paige Migliozzi Perkasie Lions Club Douglas and Trang Tran Sabel Soren and Susan Suver Roy and Janine Levitch Cindy Miller Personal Assistance Services Sushil Sagarwala W.D. and K.A. Swartz Kevin and Cheryl Libby Donald and Joan Miller of Colorado Christina Salcher Adam Sztykiel Adam and Sally Lieberman Kenneth and Laura Miller John and Diane Pesarsick Dottie Sanders T.L.C. Marine Service, Inc. Lifewater Engineering Company Leslie Miller Kent and Nina Peter Dr. and Mrs. A.L. and Noel and Nancy Talcott Christine Lilienfeld Ray and Amy Miller J.N. and H.W. Peters Angela Sarantinos Ken Talentino Lincoln Chrysler Dodge Miltner’s Shoes, Inc. Jeff Peters Deborah Sasek Mark and Tracey Tanny Jeep Ram Dealer Cronan Minton Susan Peters John and Karen Saucier Bob and Barb Taylor Dawn Lingo Patricia Mioduch Daniel and Jacqueline Phillips Darrell and Patty Saylor Denise and Stephen Taylor June Little Thomas V. and Selma Mirante Leslie Phillips Jo Ann Scarpelli Ellis and Jeanette Taylor Gregory and Susan Lock Barry and Carol Mitchell Vernon and Patricia Phillips Tricia Scerba Susan Taylor Longhorn Health Solutions, Inc. Modlich Stoneworks, Inc. Philoptochos Society of Lorraine Schiavi Terra Properties, Inc. Joseph LoPorto Cameron Mojahed and St. Nicholas Greek Orthodox Christine Schilling Texas Child Neurology Lord’s Drywall Finishing Kim Wiegman Church Sharla Schipper Donald and Lynda Thaler Louisiana Alignment, LLC Nancy Mondry Donald and Sue Piefer Alan and Deborah Schmidt Richard and Kathleen Thomas Paul Lovejoy Elizabeth Montle Jolene and Tadd Piefer Jacob and Madeline Schmidt Daniel and Eleanor Tobin Maura Ludlow Russell and Jean Moore Dr. and Mrs. Anthony and John and Elisabeth Schmidt Alan Tolliver Mary Luetkemeyer Bernard and Evelyn Morgan Latona Pisa Rob Schmidt Toms River Intermediate E.A. and D.J. Lyman Richard and Eva Morgan Lynda Polgreen Ann Schnare School East Melinda Lynam Morgan Stanley, Inc. Keith and Barbara Powers Larry and June Schultz Tonia’s Thirty-One Gifts Rene and Patricia M’Sadoques Glenn and Debra Morris Michael and Kelly Prenn Philip and Mary Schulz Jon and Ellie Totz Chris and Cathy Maat Julie Morris Willard and Josepha Preston Maurice and Christina Thomas and Virginia Tourek Salvador and Adriana Maciel Tamara Morriss Prestonsburg Cycle Center Sciammas Carol Treutlein Andrew Madson Ron and Chris Morrissey Cindy Preuss Sue and John Scott Cathy Trinidad Richard and Jane Magni Frank Morse Barbara Pryor Roberta Scoville Elaine Troy Gale Magyar Gary Mortensen Flossie Pryor Nicole Shannon Ricky and Lynda Turman Beth Makela Jim and Paula Moskal Lawrence Pung Stephen and Elizabeth Shaw Eric and Laurie Turner Barbara and George Malina Sally Mudiamu Barbara and Keith Pushee Muhanad Jawad and Jonelle Turner Carolyn Managan Michael and Anita Muonio Tamela Putnam Jumana Shawkat Tim and Cindi Turner Don and Carol Manning Brian and Virginia Murphy Thomas and Erin Quinlan Debra R. Shearer United Bank of Michigan Gary, Lana, Tyler and Dan Murphy Amadeo Quiros Rozann Sheppard USA Couriers Jordan Marble James Murray David Radius K.H. and Elizabeth Sherwood USF Holland Eileen Marchica Andrew Musto Steve and Laurel Radius Linda and Mike Shine Michael and Veronica Vacca Andre and Melissa Marcotte Robert and Maryellen Muszynski Janet Rafferty Tom Cleaver and Mary Shine Vacherie-Gheens Volunteer John Margerum Alan and Ann Nager Polly Rafii Marie Shockley Fire Company Wendy and Peter Margolis Susan Narducci Andy Ramelmeier Martha and George Shur Parinaz Vahabzadeh Jerry Martin Steven and Kindsey Neeson Scott Ramsay Richard and Marjorie Sieb Thomas and Ruthann Van Orden Robert and Constance Amy Nelson Ben Ramsey Siemens Caring Hands Jeffrey and Renee Vandervorst Martineau Edward and Kirsten Nelson Jim and Krista Rapa Foundation Michael Vellard Michael and Kathleen Martinie Samantha Ness Calin and Ana Maria Raszga Harriet Silverman Kenneth and Susan Vesper William and Linda Martinie Jacqueline Newhof Margaret Rath Brent Simmons William and Kristina Viar Eugene and Joan Mask Marni Nicholas Brian and Marirose Rauch Burt and Leenie Skolnik Lt. Col. Joseph and Lois Vinci Caroline Masur Nick and Jennifer Nikols Bernard Ray Robert and Cheryl Slowey Charles Vite Mat-Su Regional Medical Center Nordin Eye Center Ronald and Linda Reed Harvey and Lorraine Smith VMware Foundation Matching Winford Matthew David and Stephanie Norquist Cory and Amanda Reeves Josephine Ryan-Smith and Gift Program Jeffrey Mays Anne Novak Mark and Joan Rehl Douglas Smith Karen Wagenbrenner Frederick and Sue Beth Mazer Timothy and Rebecca O’Brien Louise Reitan Lili Little and Mitchel Smith Wain Farms Joseph Mcaleese John and Sheralyn O’Connor Christopher and Marylou Reith Milena Pfeifer and Michael Smith Abigail Waite Ben and Elizabeth McAndrew Valerie O’Connor Bonnie and Ralph Rennaker Neil and Hanna Smith Scott and Heather Walton Pat McCann Daniel and Jodi O’Donnell Dianne Renzi Ryan and Mara Smith Jim and Kathy Ward Paul and Theresa McCarthy Erin and Michael O’Donnell Cynthia Reysbergen Terry and Suzanne Smith continued >> >> Kenneth and Victoria Warner Philip and Annette Archard Rose and Joseph Bourgeois Rowena Chesney Jessica DeHaan Christine Weal Meredith Arnold Bob Bowen Ryan and Tiffany Chisholm Delfina and Refugio Delgadillo Sheryl Weatherford Stephanie Ashmeade Brian and Ellen Bowman Susan Chon Linda Delp Elizabeth Weaver Adrian Askarieh Joan Boyce Preeti Choudhary Joe and Lisa Delvaux John and Kathryn Webber Martine Avello Justin and Stefanie Boyce Stephen Cieplik Laurence and Connie Delvaux Marie Wegener Bertha Avendano Kristen Boyle Leonard Cirignano Suzanna Denton Paul and Kristin Wehrle Amy Avery Kathleen Brady Jennifer Claffey Nancy DePeal Jeremy and Jill Wood Weishaar Henry and Karen Ayer Stephanie Brandenburg Saundra and Larry Clark Karen Theroux and Aaron and Theresa Wellman Jennifer Badolato Melanie Brannan Patricia Clarke Douglas Desantis 17 Gary and Tracy Wells Jenny Bagan Wenda Bransford William Clarke Tammy Desbrough Enlai and Yvonne Weng Kathleen Bailey Douglas Braunstein Kent and Karlene Classen Robert Desnick contributors Christopher Werner, DDS, FAGD Michael and Regina Bailey Marc and Beth Brdar Vicki Clayton Anthony and Cheryl Desomma Jana and David Wertzberger Rebecca and Robert Bailey Catherine Ann Breathnach Harold Clemens Eric and Sheila Devolder G. Westbrook Mildred Baird Lawrence and Connie Bright Randell and Jana Clift Daniel DeWald Wheeling Nailers Booster Club Tyler and Heather Baird Darlene and Jessica Brogdon Rose Co Kim and Geri Dickerman Lewis Whitaker Jr. Jeffrey Baker Amy Brown Dorothy and Tilford Cobb Monique Dickerson Julie Joseph White Keith Bakken Karl and Kathleen Brown Sharon Cochenour Thomas and Judith Diederich Darrell Whittle Gary and Debbie Ball Carolyn Browne Alyce Cochran Jaymie and Troy Dietrich Barbara and David Wiedman Jennifer Ball Sharon Browne Alan and Joan Cohen Dennis and Virginia Digello Ron and Kim Wiest Alisa Ballou Delbert and Jody Brownfield Jennifer Cohen Patricia DiLuzio Amy Wigdor Kevin Balog Don and Frances Bryant Larry and Margaret Cohen Dana Rinaldi and Dana Towle Wigton Thad Barker Bryant Properties, LLC Linda Cohen Matthew Dimartino Veronica Wilkie Kelli Barnes Vaughn and Nancy Bryson Tracie Cohen Ellen and Jerry Dimbat Dr. J.L. Wilkis Scott and Alexandra Barnes Dick Buchanan Don and Sue Colbath Robert and Deborah Director Charles and Tamara Williams Susie Barnes Nancy Bucher James and Martha Colby Steven and Paquita Ditzler John Williams Glenn and Julie Barnette Richard and Amy Buckley Randal and Mary Coldsmith Paula Dixon Richard and Kim Williams Lorraine Baron Kathryn Bullard William and Melissa Coleman Jennifer Dodd Christian and Ginger Wilson Rick Baron Jim and Robin Bunch Diana Coles Jonathan and Lisa Dols David S. Wilson Rob and Kathy Barr Matthew and Caytie Burgin Darren Collins John and Jessica Donald Ned Windmiller Pat and Janice Barrett Carrie Burke Lisa Comninellis Trent and Michelle Donley Shirley Wirkler Cristol Barrett O’Loughlin Kevin and Kim Burke James and Sherry Conrad Brian Donnelly Steven and Barbara Wiscomb John D. Barron Matthew Burke Thomas Conroy George and Sharon Donnelly Andrew and Kathryn Wise Justin and Christine Barta Martin Burnett Dr. and Mrs. William and Kristen Dono Ronald and Barbara Wisneski James and Maureen Basting L.W. Burney Peggy Cook Dan, Kathleen and Lynn Ann Witt Jody and Mark Batton Jennifer Burrell Diane McGuire Cooper Paul Donohoo Jeffrey and Mary Wlahofsky Brett and Lindsay Baumgart Roger and Linda Busch Meg Cooper Jim Donovan Lesley Woodburn Brian and Holly Bays Tony and Claudia Busse Monte and Judith Cooper Rebecca Dopheide Donna Woods Gary and Diane Beard Susan Byers Robert and Deborah Cope Jennifer Doucet Susan Woodward May and Don Beaudin Michael and Marie Byrnes Cathryn Cavanagh and Michael and Tricia Douglas Wooster Elks Lodge William and Lorrie Beaulieu Edgar and Michele Cale Peter Coppola Chris Douville Amy Waterhouse and Leonard and Irena Beck Pericles and Catherine Calias Molly Corco Dove Window Cleaning Company Julie Wynn Bedford High School Rick Call Denise Costello Susie Downing Joseph and Faith Yack Steven and Sally Behar Jerry Callahan County of Kankakee Mary Coldsmith and Heidi Yaskus Keith and Beth Belgard Carmen Camacho Jimmy and Hilda Courtney James Doyle Raymond Young Thomas and Joyce Beman Jerry and Charlotte Campbell Mary E. Couture James Drew Kathy Ann Younkins Paul Bennett Julie Cannistra Kenneth and Laura Coyle Jeanne and Maurice Drew Richard Zachariason Don and Christine Benware Beth Cannon Richard Coyner Rebecca Drury B.J. Zambrano and Berglin’s Appliance Repair Keith and Jennifer Cantin Denise Crandall Phillip and Donna Dudley A. Kontogouris Don and Nina Bergquist Michael and Stephanie Caracalas Kevin and Djuna Crawford Patrick V. Duffy Roy and Zezee Zeighami David Berkowitz Robert Caramanica Robert and Veronica Crawford Trent and Amy Dummann Chris Ziegler Lisa Berry Christopher and Tanya Carbone Michael and Christine Crist Col. Ronald and Karen Duncan David and Megan Zug Joseph and Maureen Berson Michael Carlson Bob and Denise Crompton Heidi Dunham Betty La Branche Real Estate, Inc. Karli Carmichael Carey and Mary Crumling Patricia Dunn donor Kevin Bille Carolyn Carniaux Celeste D. Crutchfield Timothy and Sheila Dunning $26 to $99 Jessica Billings Danielle Carroll Bart Barner and Adrian and Diana Duplantier A-Plus Auto Salvage, Inc. Robert Park and Patrick and Kelly Anne Carroll Patricia Cuddihee Jennifer Duprey Albert and Rita Abbott Elizabeth Binkley Pamela Caruthers Cuddle Bugs Boutique Chris and Annette Durcholz Abbott Laboratories Karen Black Kevin and Kathy Casey Estelle Culpepper Janice Durcholz Cody and Tammy Abel Todd and Nicole Blancheri Meredith Casoria Steve Cuomo Julie Durnen William and Catherine Abernathy Blanchett Farms, Inc. Nancy Casper Dan and Susan Curry Vance and Monica Duve Beckie Adams Thomas Blissenbach Jesus Castillo Eric and Sheryl Czekanski George and Sharon Eakin George and Mary Kay Adams Dr. Ned and Emelyn Blymire Kim Castle Caroline Dabney Sonya Earl Kenneth and Donna Ahles Edward and Joann Boddy Denise Caswell Gary and Kathleen Dahn Herman and Mary Earwood Donald and Adrienne Albrecht Michael Bodura Sr. Patricia Dodd-Catalano and Shari Daisy Howard and Susan Eisler Robert and Ann Aldrich Robert and Anne Boggiano Steven Catalano Jane Dale Kamran Elahi Karen Allen Cameron and Kelly Boland Tony and Shirley Catanzarite Diane Dalton Michele Smith and Major Elieser Nickolas Allen Monica Bolin Catholic Daughters of Richard and Francine Dalton Gary and Jill Ellens Alliant Energy Foundation, Inc. Robert and Alison Bollinger the Americas Mark and Jeanne Dant N. Matthew Ellinwood American Legion Post 263 Richard Bomba Ronnie and Heather Cato Pamela Daoust Matt and Cydnie Elliott Lawrence Anderson Gary and Theresa Bomely Timothy and Svetlana Caulfield Bobby and Kelly Daquara Sharon Elliott Richard and Carol Anderson Kelli Boni Kathy Cavanaugh Brent Davenport Carol A. Elwell Thomas Angiolino Misty Bonner Bethany and Chet Chambers J. Maston and Nancy Davis Grant and Mieke Embry Debra Appleman Kirby Booth Steve and Sandy Chapman Kristin Davis Rita Emfinger Pennye Arana William Borrenpohl Andrew Charest Michael and Teresa Davis Jef Emrich Barbara M. Arbo Paul and Susan Boscarino Kristen Charkow Pamela and Robert Dean Elizabeth Engel Arc of Greater Plymouth Thomas Boster Dawn Checrallah Dean Transportation Susan Ensz Isabelle Bouchard Amy Cherrstrom Kevin and Kelly DeFilippis continued >> >> Rev H. Wayne and Kendra Gottsleben David and Dianna Hines Robert and Jennifer Kearney Logan Correctional Center Joan Eppehimer Carolyn Gould Heather Hintlian Richard and Patricia Keaton Employee Benefit Fund Terry Epps Kristina Goumas Lisa Hiura Sean and Elizabeth Keely Logan County Paramedic Richard and Wendy Erler Ken Graham Loredana Jinga and Patricia Kehe Association, Inc. Rick and Francie Espino Vanessa Graham Gary Clyde Hobel Greg and Christy Kelley Beth Lombardo EST Group Robert and Viji Grant Jane and Fredrick Hoch Nancy Kelley Jill Tammen and David Long Jesus Estaba Joan Graue Nathanael Hoffman Robert Kelley Andrea Longston Hermilo and Danielle Estrada Randy Grauerholz Jeffrey and Carolyn Hoffmann Kelly’s Cut & Curl Mary Loomis 18 Beverly Evensen Anton Graves John and Marylee Hoge Brian and Jeanette Kember Mr. and Mrs. Pete Loomis Mary Evenson Laura Graves Robert Hohman Charles and Millicent Kennedy Penny Lopez Rare Diseases EveryLife Charles, Heather and Todd and Joann Holgan Susan Ketchum Patrick and Anita Lovell Foundation Savanna Grayson Kelly Hollingsworth Michael Kilgallen Eliza Lowe Eric and Jamie Fair Sara Greenbaum Jason and Abby Holsclaw Jeanette Killmer William Lowenberger Helen Fallon Kathleen Greenberg Trudie Homonai Gary and Janet Kirch D. and G.R. Lowry Family Medicine Associates, P.C. Forrest and Lorena Griffin Mark and Susan Hoogewind Herbert Kirch Klaus and Patricia Lubbe Salumeh Companieh and Helen Grimes Robert and Karen Horne Robert and Mary Kirch Kristin Lucas Soorena Farboodmanesh Mark and Evey Groothuis Steven and Gina Horowitz Dessinna Kirkpatrick Timothy and Joan Lucca Colleen Farrell Joseph and Donna Guarino Joan Cosper and Brenda Robertson and Rigo and Imelda Luna Frank and Barbara Farris Bob Guletz Matthew Houser Joe Kirwan Vernon and Shirley Lusk Geraldine Faucett Jackie Gull Rose Marie Houser Jerry and Katherine Klemm Barry Lyons contributors Ellen Faulds Stanton and Jean Gunnells Kathryn Howell Dalton Klesh Plumbing and Heating Judy and Donald Maas Pam and Ben Feldman Guttenberg Industries, Inc. Patricia Howlett Jim and Susan Kliewer M.F. Maassen Steven Ferguson Guttenberg Publishing Company Cynthia Hubert Allen and Mary Jane Koehler Agnes and Peter Macdonald Smokey and Donna Ferrell Guttenberg RV Park Jonathan Huddle Craig and Carolyn Koerner Anthony and Christine Machi Yvonne Fiebig Lauren Haag Patricia Hudson William and Jill Kology Alison MacKay Michael Fieri Dr. and Mrs. John and Mike and Joanne Huff Burton and Alice Kominick Patricia Madeux Deborah Finney Cheryl Hackett Gary and Joanne Hugaboom Candace Kopel Sharyn Madison Darwin and Carlotta Fischer Craig and Norma Hackler Nina Hulsey Abby Kovacs Brandon and Susan Magee Amy Fisher Heather Haemer Brian Madeux and Elizabeth and Jayson Kramer Jamie Magerl Mike and Cathy Fitzgerald Johnathan and Brenda Haggett Marcie Humphrey Clint and Nikki Kremer Andrea Maguire Greg and Sarah Fletcher Natalie Haggett Hunter Package Plus, LLC Robert and Barbara Krollage Ali Malinowski Kathryn Flynn Drew Hall Michael and Patricia Hydanus Grant and Mary Kuenstler Joseph and Jeanne Mallia Martha Fournier Jessie Hall Samuel and Carrie Hyun Carol Kuhn Stan and Jean Mancil Jamie and Jason Fowler Cindy and Steve Hamblen Joseph and Teresa Ilardi Jerry and Delores Kunz Rich and Julie Mancini Stephanie Frazee Jane Hancock Austin and Melinda Innis Rhonda Wollard and Matthew Mansi Tama Freund Holly and Scott Hanewacker Integris Grove Hospital Aux, Inc. Ora Lee Lafon Denise Marcotte Roy and Carrie Fronczyk Kelley Hanks Janice Jacks Robert and Janniece Lammel Alain and Claudina Marcus Amanda Fults Harry and Jewell Hardaway Nachaat and Patricia Jacob Landing 615, Inc. Rodney Marcus Barry and Gloria Fultz Jeffrey and Lynn Harder Charlene Jacobs Fred and Jennifer Landon Jimmy and Renea Marine Anna Funkhouser Mark and Jennifer Hardin Jean Jacobsen and Mike and Cami Lane Peter and Margaret Marino Micalla Gadawski Billy and Diane Hardison Richard Underwood Lanny Kuehl and Associates Paul Marion Marcia Galan Hardly Able Construction Katie Jacques Michael and Jenny LaPoint Marion County Max and Cathy Galaway Company Pamela Jadwin James and Kelly Larrow Jaime Marston Ann Gambardella Duane and Connie Harmon Bret and Jackie James Barbara and Larry Lascody Clayton and Iva Martin Jon and Dede Gardner Vann and Julie Harmon Glenn and Lisa Jardine Darren and Patty Latham Jennifer and John Martin Atul and Surabhi Garg Jeffrey and Barbara Harrell Marsha Jasper Nancy Lavin Deborah Martinez Cheryl and Patrick Garris Denise Harris Jacob Jeffers Charles and Mary Lawson Lupe Martinez Richard and Ronni Gates Donald and Lorene Harris Sharon and Richard Jeffress Benton and Dorothy Leach Nick and Lisa Jo Martino Barney and Linda Gatlin Shannon B. 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Dana George Candy Hausken Connie Johnson Norm Leferman Howard Mays Beverly Gerard Paul and Gayle Hayden Roger and Sandra Johnson Mike and Amy Legendre Ted and Susan McCannon Mary O’Brien and Todd Geraux Mary Hayden-Cook Stephanie Johnson Bobby and Martha Lehr Gemma Hanako Yamamoto and Rick and Debbie Germaine Michelle Hayes Arthur and Mildred Johnston Cole Leigh Grant McClellan Alan and Karen Gibson Steve and Lisa Heck Rick and Jeanne Joiner Megan Leighton Anne Mcclelland Christopher Gibson William Heitin Abe and Veronica Jones John and Linda LeJeune Mike and Ramona McClurg Eileen Gideon Judy Heitman Chris Jones Jeanette Lelong Neal McCluskey Patricia P. Giles William and Jill Helm Rebecca Jorgensen Jordann Lemasters Chester and Beth McCormick Dennis and Cynthia Gilfoyle Kristi Helzer Joel and Elizabeth Jorlett Richard and Carol Lenger Michael and Allison McCullough Sharon Gillham Elaine Hendricks Paul Joseph Jude and Sharon Lepri Mary Jane McFarland Melanie Gilmore Katie Herbst Stephen and Wendy Joseph James and Merle Lescowitch Kenny and Kathy McGinnis Janelle Girod Scott and Darcie Herkimer Joy James Elementary Heidi Lessing Harold and Charlene McKeithen Michelle Girvan Susan and John Herzig Anna Judd Amy Levy Richard McKenna Roy and Susan Glazier Mark and Darlene Hesprich Colin and Paulina Jump Kay and Joel Levy Carroll McLean Lauren Glud Robert and Michelle Hess Jimmy and Leslie Jurado Sydney Kay Levy Sue McMurrey GMH Employee Association Denis and Victoria Heyer Dr. Emil D. Kakkis Curtis and Michelle Lewis Andrew and Laurie Mcneil Dennis and Chris Goggins Larry Hickman Randall Kane Scott and Gabriella Lich Matthew and Shannon McNeil Mildred Goldstein John Higgins Heidi Kanealy Lincoln Automotive Supply, Inc. William and Karen McNeil Robert Gomberg Jason Paul and Melanie Hilgers Brian Kannady Lincoln Sportsman Club Devon McTavish Thomas and Lisa Gomez Josh Hilgers Diane Karis John and Millette Litzinger Patrick and Rebecca Matt and Sharon Goretti Brad Hill Safiyyah Karriem Livewire Fitness Ann McTavish David and Marsha Gorewitz Floyd and JoAnn Hill Martin and Hedi Kaufman Lloyd and Cheryl LoCascio continued >> >> Meader Painting Keith and Nancy Oelschlager Sue Rattman Donna and Thomas Schidlmeier Stephanie McNeill Legacy Jenny Mehling Constance Offenbacker Karen Ratto Mark Schlafer Foundation Lenard and Susie Merrell Trisha and Mike Offenbacker Tina Ratto Billie Jo Scholten Geraldine Stephens Mary Ann Messick William Ohlson Celeste Raydo Wayne and Laura Schooley Sterling String Quartet Jeremy and Margaret Meszaros Mary Anne Oliger James Raynak John and LaVon Schroeder Mary Stevens Alicia Meyers Rebecca Olson Debbie and Ron Reagan Drs. Calogera Simonaro and Sarah Stevenson Lori Mezyk Jason and Christi Ormeroid Paul and Carol Redmond Edward Schuchman Darla Stewart Mark and Kerri Michaels James Osterhaus Floyd, Sharon and Kerry Reed Rick and Catherine Schuett John Chipman and Alison and Christopher Miller Randi Osterhoudt Randy and Jean Ann Reed Darlene Schwab Holly Stewart  David and Lorraine Miller Gansheng Ou Stephen Reed John and Rebecca Scott Melisa Stewart Glenn and Kathleen Miller Kim Outten Stella Reeve David and Diane Scotting James Stieg contributors June Miller John and Sandy Owen Marianne Reid Matthew and Christine Seabrook Tom Stilley Mark Miller Rebecca Owen Andrew Reimer Thomas Sebald Isaac and Brooke Story Sandra Miller Sheila Owen Donald and Marie Reising Security State Bank Sharon Stothard Tina Miller Donald and Marybeth Owens Reginald and Catherine Renard Sellersville Family Smile Care, P.C. Jeannie Stover Danielle Miller Wagner Jacqueline Paixao Armando and Mary Nell Samuel and Margaret Seltz Jane Strickland Kenneth and DeLana and Veronica Pallaver Renteria-Special Bruce and Vicki Shanks Matthew Strickland Heather Millington Michael Palumbo Jim and Jennifer Restemayer Pat and Cindy Shannon Stuffed Aria Paul Miltgen Michael and Margaret Palushock George and Carol Rice Greg Sharrits Mike Stutz Dutch MacDonald and Florence Paolilli Julia Rice Thomas Shealy Sally Suchor Becky Mingo Paul Parker William Rice Debra Harris Shearer Sarah Sullivan Jeffery and Shaney Mitchell Michael and Margaret Pashen Carol Richardson Ron Shebik James and Patsy Surber Troy and Dianne Mitchell Jason and Mandy Pate Keith and Sherri Richbourg Benjamin and Jennifer Sheets Tod and Judy Swann Samantha Mo Joseph Patrick James and Linda Richey Nancy and Kent Shelton Jeff and Liesa Swanson Gary and Carol Moll Cathy Pattay Randy Rieck Wayne and Glenda Shelton Kim and Bill Swartz John and Roberta Monahan Dale and Linda Patterson Pete Rieg Kyle Shepard Robert and Johnna Sweers Karolynn Moore Chris and Beth Pattock Timothy Riga Kevin and Kathy Sheridan Peter and Patricia Sweet Richard and Bernadette Moore Irving and Sheryl Payne Jennifer Rike Robert and Ann Sheridan Robert and Janice Sweet Janice Moorley Zachary and Carolyn Peacock William and Deborah Riley David Shiao Donald and Rachel Swicker Kimberly, Wes, Jonah and Teresa Peecook John Rinard LeRoy and Marge Shipley Janet Swink Anna Morgan Mary Pennington Richard and Elizabeth Rinehardt Shirleybarr Public Relations, Inc. Roger and Laura Szotko Sheila and Tom Morley James and Darla Perry Gabrielle Rivas Pamela Shockley-Zabel John and Diane Szuchy Scott and Patricia Morris Linda Perry Paul and Lilianne Rivera Toby and Stephanie Short Christy Tadlock Carol Morrison Carole Persten Michaela Rivkowich Eleanor Shriver Magee Daniel and Sabryna Taggart Taundra and Brian Mortensen Stanton and Mary Peterson Emma Ro Jeffrey and Theresa Sickeler Jackie Tanghe Deena and Mark Mosley Thomas Phelan William and Lisa Robinson Stuart and Jennifer Siedman Robert and Anita Taulton Teresa Mosley Charles and Stephanie Phillips James Roblin David and Rebecca Silkey Daniel and Valerie Teitsma Helen Moss Deborah Anderson-Phillips and Shawna and Brad Robson Martin and Mary Alice Silva Marvin and Nancy Teitsma Lynda Motiram John Phillips Rochon Kenneth and Toni Marie Lauren Teras Huebner Jacqueline Mount Jackie Phipps Rock County Silverman William and Deborah Testerman Mountain Pediatrics Andrew and Robin Piefer John and Isabella Rodrigues George Silvis The Jodi R. Keller David and Caroline Moyer Carl and Earnestine Shannon Rodriguez Kirstin Simpson Revocable Trust Stephen and Ruth Mueller Pietrykowski Rebecca Roemer Myles Simpson The Blind Factory Robb and Lisa Muller Piney Grove Middle School Dave and Janet Roessner Niki Simpson The C. Edward and Elizabeth Evans Mulvaney Beth A. Pletcher Gerald and Marlene Rogers Sam and Judy Sims Gloria Herder Foundation, Inc. David and Emily William Plock Leno and Deborah Rogers Preetee Singhal The Carle Collection Munowitch/Habib Cindy and Bill Plunkett Mike and Darla Rohrer Charles and Marie Sledge The GE Foundation Kevin and Christine Murray James and Jennifer Podesky Richard and Darlene Rome Leigh Sloss The Portsmouth Center Teresa and Jonathan David and Erika Pollack Ron’s Towing William S. Sly for Yoga and the Arts Music Musselman Robert and Carla Porche Harold and Irene Rose Helen and Richard Small Together Caroline Myler Tom and Carrie Porzel Kelly Rose Blake Smith Theatre on the Square, Inc. James and Margaret Myrick Richard and Linda Post Joseph and Barbara Rosell Francis Smith Mark Theuerkauf Jennifer and Ryan Nace Postville Veterinary Clinic, P.C. Joel and Kate Rosenthal Julia Smith Samuel and Krispen Thielepape John and Susan Nee Mike Potillo Grace Ross Lachlan Smith Eric Thier Earl Nellermoe Joseph and Laurie Potocnik Mary Ann Rowlings Patrick and Patricia Smith Charles and April Thomas Dawn Nelson Kelley Powell Littia Royal Raymond and Julia Smith Cody and Nicole Thomas New York Presbyterian Hospital Tiffany Powell Elizabeth Royer Sara Smith Mich and Brooke Thomas Jacinta Newsome Brit Powers Carol Rucker Harvey and Claudette Snitiker Todd and Vicki Thomas Emily and Shawn Nichols Paul Preece Arnold and Diane Rudman Ian Snyder Gary and Jayne Thompson Catherine Nicholson Dean and Karen Price Michael and Amy Ruff Allison Sollee William Thompson Tony Jenson and Billy and Sharon Prince Sandy Ruskiewicz Elisabeth Somerville Ron and Cathie Thorn Vickie Nicholson Pronto Market Theresa Russell Ryan Sorrentino Nancy and Tommy Thornton William and Linda Nickerson Catherine Provencal Thomas and Carolyn Russo Joshua and Sheri Sowden Michael Thorpe Lise Haar Nielsen Kimberly and Billy Pruett Barbara Rutledge David and Kristine Spadt Hal and Laura Thorsrud David and Tiffany Nish Carol Pudlow Jerri Ryan Elizabeth Spaulding Raymond and Kathleen Tierney Julie Norton Mark B. Pyper Jessica Ryder Edward and Patricia Sperling Timothy and Gretchen Tierney Sean and Jennifer Norton Quality Paint Hardware & Marine Christine Saladino Michelle Spooner Michael and Danielle Tigges Pamela O’Brien Supply, Inc. Michelle Samenfield Robert and Lynn Stahr Dave and Hiromi Tilsner Patrick and Madelyn O’Brien Brian and Kristyn Quist Daniel and Maryann Sammons Shana Stanberry Parker Fern Titus James O’Connor Donna Quist Doug and Lauren Sanford Robert and Barbara Stanziola David and Pam Tobey Kevin and Danielle O’Connor R A Mechanical, LLC Ruth Sanko Meghan and Billy Stark Nita Todd Daniel O’Malley Stephanie and Edmund Rabuse Evangelina and Sammy Santos State Bank of Lincoln Sara Todd Timothy and Mark and Karla Radius Suorchi and Thavy Sasry Joie Ann and Robert Steffen Todd and Gerry Toll Nancy Volkart O’Malley Tammy and Dan Ragonese Edward and Christen Sauer Robert D. Steiner Chris Santa Maria Torres Mabel O’Sullivan Marti and Shane Raines Christine Savage David and Kathy Stembridge Sergio Torres Ocean Properties Howard Ramshorn Bonnie Schappert Douglas and Janet Stephan Larry and Mary Beth Towles Andrea J. Schatz Kathleen O’Dell Joseph and Dianna Rathbun continued >> >> Robert and Janine Townsley Anthony and Milane White Kenneth and Dee Ann Barnes Karen Emmes Rev. John Johnston John Trainor Richard and Margaret White Mary Ellen Barringer Brian Engel Wayne and Anamarie Joosse Deborah Trala Aloma Whitley Nancy Barton Dror Engel Marjorie Juba Trimble County High School Heather Whitney Jane Batholomew Wilbur and Irene Erhardt Audrey Kader Samuel and Judith Trotzky Raymond and Samantha Philip and Marilyn Battjes John and Geraldine Euliano Geraldine Kahlig Tammy True Whittaker Ursula Bean Judy Fain Rick and Beth Kania Sylvia Truxillo Foster and Mary Ann Wick Karen Soplop Beckley Michell Farrar Paul and Leslie Karas Kevin and Annette Tschann Nancy Wickwire Don and Eloise Berg Joseph Farruggio Amber Karnath 20 Chan and Erin Tucker Thomas and Blanca Wier Theodore and Phyllis Bergeron Fidelity Investments IBM Retiree Gail Katz John and Margie Tucker Irene Wiersema Eric Bernstein Charitable Campaign Gloria and Irwin Katz James and Bonnie Tully Barbara Wiersma Niko Borrelli David and Sandra Filippi Maryellen Kayal Bob Turner Catherine Wilck Gretchen Boulos Gary and Carolyne Filsinger Courtney Keeling George Turner Tim and Fran Wilcox Timothy and Ellen Boyd Lois Finney Catherine Kelleher Amy Turpin Mr. and Mrs. Jerry and Alexa Brandt Barb Fisher Paula Kelleher Enright Judy Turschack Connie Wildberger John and Lori Brent Elizabeth Fleetwood Mary Kelley Lori Turturici Paula Wilgenbusch Lawrence and Soraya Brobst Robert and Josephine Fossity Mary Kelly Thomas Uebelacker Donald and Marla Williams Tina Brough Cathy Foutz Barbara Kidder Dave and Pam Umstead Kim and Jeff Williams John Brown Kimberly Fransen Pierre Kisting John, Jeanene, Jennifer and Jerry and Kaylene Willis Kelly Brown Mica Frantz Beverly Kleinjan Jill Underwood Searcy and Deane Willis Dawn Bullens Robert and Karen Freeman John and Dianne Klimchuk contributors Harry and Janice Van Horne Brad and Susan Wilson Jackie Burchfield Maurice and Diana Frey Nancy Kocurek Edward and Debra VanBeek David Wilson Robert and Sandra Burke Michael Fries Robert and Jennifer Koehler Daniel and Judy Vanderark Tionna Wilson Kathleen Byington Frank and Loretta Gagliardi Louise and Edward Kofron Nicky and Bo Vandergriff Winegar Works Marine Outfitters Cecille Cabacungan Martha Garwood Mary Kramer Rich and Debbie Vanderpool Teresa Wininger Matthew Cain Timothy Gaudet John Kuhn Franny Vangombos Russell and Ruth Witt James and Leona Cantrelle Alfred and Gay Geerlings Marci Larouech Nancy Vardaro Matt and Rachel Wojnarowski Peter and Lynne Cario Joan Giammarino Gail and Duane Laurila Veesart Financial, LLC Jeffrey and Carol Wolf Scott Carney James and Linda Gilboy Jolynn Leach Jay and Leone Vellenga Christine Wood Jimmy and Helen Carr Bill and Glenda Gillespie Paul and Alicia Leach William and Katrina Vespe Robert and Carol Wood David and Margaret Caruso Jennie Gladysz Steph Leavenworth Helen Viens Mary Wursthorn Joyce Cassin Julie Goforth Curtis and Sherri Lee Brian and Julie Vietri Robert and Christine Wynn Christie Castanino Michael and Frances Goldberg Lescowitch’s Garage Ramon Villalobos John Yacoub Jamal and Cheryl Challah Bridget Goldfarb Edward Levine William Vincent Colleen Yard Falisa Chew Theodore and Jean Goldman Nicole Levis Leonard and Frances Vinton Jason and Lauren Yard Chianis & Anderson Debra Grainger Deborah Lewis Bernie and Donna Vogler John Yard Architects, PLLC Kimberly Greco Lana and Jerry Lieberman Barbara Von Elm Ann Yeagle Jody Cipriano John and Marianne Greyer Wayne and Elaine Link Jeff and Mary Von Handorf Kitty Yelland Marlene Clancy Denise Grover Norine and Thomas Lippens VTR Consulting Edward Doy and Rebecca Young Buzz and Karen Cohen Jennifer Gurgovits Charles Litchfield W. Arden Ventures North, LLC Jill Young Harold and Joyce Cohen Joeli Gutfleisch Ryan and Meliza Lopez Lewis Waber Robyn and Paul Young Nicole Collins Erin Guyote Anne Lott Beverly Waddell Steve and Yolande Zahler Matthew Confer Kevin Habel Patrick and Linda Lottinville Ray and Kelly Waddell James and Carole Zdimal Jason Cooper Deb Hammer Kimberly Lovely Matina Waggoner Ray and Priscilla Zechender Michael and Adrienne Crace Heidi Hanson Karin Lucas Marty and Sandy Wagner Fran Zensen Robert and Joan Crace David Harris Kenneth and Carol Lucht Michelle Wagner Linda Ziemnik Ronald and Linda Crandall Robert and Linda Hatfield Freddy and Christine Luscher Tanya and Gordy Wahl Doris Zigler Steven and Joni Cullers Shirley Hayden Sheila MacDonald Michael and Johnette Wahlquist Bob and Kate Zimmerman Edward and Ann Cummiskey Robert and Lucille Heinrich Florence Macklin Ronald and Karen Wahls Leonard Zinck Joann Cunningham Brianne Hendricks Eileen Malle Terry and Nancy Wain L. John Zogg Ryan Daugherty Alfonso Hernandez Karla Markley Todd Walker Jonathan and Karen Zuckerman Cindy Dauphin Anthony and Connie Hernandez Charles and Dorothy Mattoon David Walsh Andrew and Louise Shawn Davis Marlys Herring Cynthia McCabe Michael and Margaret Walsh Zygmuntowicz Carrie DeForrest Glenn and Gwen Heys Joan and Joseph McCaffrey Robert and Suzanne Washburn Jean Delmonico Alva and Kay Hill James and Portia McDonnell Stephen and Christine patron Rose Delmonico Nancy Hinkel Charles and Joanne Wasylyszyn $5 to $25 M.J. Demita Susan Hoblit McDonough Mark Watkins ABJ Company Andrea Detamore Joann and David Holder Ralph and Ida McGarity Tressia Watkins Bob and Caryn Ahern Frank and Antoinette Dezort Orion Holtey Sharon McMorran Michael and Kristen Watral James and Maura Aiken Susan Diamond David and Linda Hooks Nic McPhee and Susan Gilbert Steven and Anna Webersen Jeff and Libby Aiken Laura Dickol Houghton Mifflin Matching Willie and Jackie Meadows Jonah Weiner Lise Aissen Barbara Diemer Gift Program Marvin and Michelle Meier Don and Dottie Weissman Ed and Elaine Ajamie Heather Dietz Wayne Howser Kimberlee Milbert Martin Weisz Allen Cook and Lisa Albitz Paul Diperna Kenneth and Carolyn Hoyt Susan Miller Brian and Jessica Wellman Joni Allen Jamie Dirk Anne Hughes White Beverly Mills Kelly Lynn Wellman David and Joan Antico Dog Gone Days Joe Hunter Jackie Minogue Mark and Cindy Wellman John and Janet Arendt Jani Domire Pam Iacono Robert and Janice Moisey Mia and Eric Wells Sally Armstrong Christina Dotchin Robert and Marguerite Robert and Linda Montanino David Wenger Stacey Aruch David and Donna Duchesne Iannacone Cassandra Morley Joan Werner Roy and Sandra Ashcraft Vidmantas and Cecilia Duda Kourosh and Leticia Iranpour Betty Moroney Scott Werner Gertrude Auberry Andrea Durie Laura Jachetti Maureen Morrow Westside Orthopaedics Danielle Austin Earl and Lois Dykstra Bill Jackson Madeline and Merritt Moseley Weymouth Elks Ladies Club Sherri and Scott Baggett Geri Lynn Edwards Delores Jakubek Judith and Kathleen Murray Wheeler Larry and Mary Baldwin Sheridan Egypt Mary Jean Janssen Neil and Kathleen Murvin Sharon Wheeler Pat and Michelle Baldwin Mary Louise Ellena-Wygonik Marisa Jarvis Bernadine Nardin David and Nannette Wheelis Danny and Patty Ballenger Marshall Ellens Lindsay Jeffs Robert and Marilyn Nehus Les Whicker Jim and Jennifer Barnabee Martin and Ann Elliott Gail Johnson Daniel Nenstiel Amy White Neil Elman Janet Johnson continued >> >> Matt Nethercutt Douglas and Mary Pica Lori Safford Victor and Joan Son Village Card & Gift Ann and Johnny Nguyen Griselda Pleitez Cammie Sagerdahl Denise Sonni-Birlin Edward and Carrie Vok Joseph Nigro Jr. Kyle Plunkett Michael and Nicole Saldamarco Sharon Specker Joel Volk Barbara Nolan Laura Pope Butch and Darlene Salenbien Lois Spencer Norma Wallace John and Marianne Nolde Cynthia Prediger Cathy Sanders Joan and Stephen Spitzberg Maribeth Watson David and Frances Notley Tracy Price John and Judy Sapos Kourtney Sproat David and L.I. Nancy Danielle O’Connor Anitra Prosser Stephanie Sarra Naomi Storey Weisenburger Steve and Jean O’Malley Erin Proulx Josephine Sawaia Gary and Linda Strain Marilyn Westbrook Deborah O’Neill Prudential Foundation Rita Schimsa James and Carolyn Strickland Maggie Westemeyer 21 Marcy Oberndorfer Matching Gifts John and Faye Schleter Jennifer Sullivan Arlene White Michael and Donna Ohler Sharon Purcell Donald and Janet Schmidt Robert Sullivan Martha White contributors Tom Ohlson Paul and Carol Purvis Peter and Catherine Schreiber Laurieann Tebben Helena Widis Ok Tavern Alexander and Barbara Puskus Will Schumascher Jackie and Allen Theriot Bessie Hannan and Patty Organ Crystal Quibell Andy and Joi Scott Sandra Thompson Mary Catherine Wilck-Pond Lanie Orgeron Kevin Radford Pamela Semlow Barbara Thurlow Rick and Rebecca Wildman Ron and Linda Orkney Caroline Rehberg Susan Serota Susan Trafton Daniel Wilkins Denise Owen Charles and Kathleen Reid Joel Bloom and Jody Shapiro Christine Trischitta Jack and Betty Willer Zachary Palmese Sharon and Seymour Reiter Edward and Patricia Shearon Norris and Robin Truxillo Gina Wirth Charles and Caren Pane Muriel and Thomas Richeal Baker and Martha Shelton Nancy Turigliatto Anne Witt Jennifer Panganiban Les and Theresa Richert Dorothy Shepherd Alvin Ungar Oakley Wojieck Lisa Parmelee Joseph and Catherine Rizzo Laura Shoar Unique Images James Woods Linda Parsons Marty Robinett Lisa Shurtz Elise Urhan Mary Christine Yamoah Lili Peck Timothy Robinson Richard and Ellen Sidman Sara Vajgrt Denise Youmans Shirley Pelletier Rockland Boulders Baseball Keith and Jean Siebarth Sabine van der Sluis Fanny Zambrano Melanie Perez Leonard and Jean Rockwell Earl and Mary Simot Doreen Van Dyke Elaine Zeighami Ambrose and Patricia Perreault Mrs. Danielle Rohme Delores Smith Barney and Alma Vande Weert David and Diana Zimmerman Michael and Heather Peters Craig Rondinone Katie Smith Roger and Winona VanderWest Ted and Kelly Pettko Karen Rosenberg Thomas and Elaine Smith Mary Vehrs Charles and Ellyn Phillips Mildred Ryan Michael and Penny Snow Byron and Tina Vi Sherman

2011 FAMILY AND F R IEND S F UNDRAISING E VENTS

1st Annual Concert for MPS VI, Caring Hands employee fundraiser, Johnson Halloween Bash, hosted by Post Office Café fundraising events, hosted by Marla Stevens hosted by Siemens Healthcare Chris and Mercedes Johnson hosted by the Lessing family 1st Annual Timmy’s Toss, hosted by Caswell MPS Awareness Day, hosted Kelly family wedding fundraiser, Rockland Boulders, hosted by Amy White by Heidi Caswell hosted by Ryan and Kelly Curry Janeen Eisler 2nd Minnesota MPS Cup, hosted by Celebration Day for Rare Diseases, Laff-a-thon, hosted by Stacey Roller Derby for MPS, hosted by Dave and Hope Madsen hosted by BioMarin Montgomery Shelly Maddox 3rd Annual Clara’s Courage Channel car wash, hosted by Lemon Drops grand opening, hosted Rylie’s Runners, hosted by Lyle and hotdog stand, hosted by Shane and Kandy Channel by Glenn and Kathleen Miller Jade Hays Jennifer Gibson Concert for a Cure, hosted by Lukondi gift basket auction, hosted Shots for Sean memorial golf 3rd Annual Mad Hatter Tea Party, Jeremy Mask by Elena Lukondi tournament, hosted by Ernie and hosted by Stephanie Bozarth Cook candle fundraiser, hosted by McDermott bake sale and birthday Debbie Dummann A Wish for Evan, hosted by John Angie Cook party fundraiser, hosted by friends of SF Giants fundraising event with and Kristi Abel Deer Creek Walk-a-thon, hosted Jill McDermott Keenan Cahill, hosted by BioMarin Allenwood School May carnival, by Lake Forest Middle School McCreary Dress Down Day, hosted by Silge lemonade stand, hosted by hosted by Judy Harms Dress Down Friday, Providence Laura McCreary Emily and Allie Silge Allison Kirch’s birthday event, hosted Schools, hosted Dianne Renzi Muller family fundraisers, hosted by Studebaker Middle School by Abigail Cohen FAN program, Chet and Bethany Robb and Lisa Muller fundraiser, hosted by the students of Bastrop School fundraiser, hosted by Chambers Olivia’s 9th birthday bash, hosted by Studebaker Middle School Ms. Pogue Fowler charity dinners, hosted by Wes and Jill Lovell Sowden Walk for a Cure, hosted by Breakfast with Santa, hosted by Kids Jamie Fowler Palm Pointe Student Council event, Josh and Sheri Sowden Under Construction Gillis half marathon walk, hosted hosted by Palm Pointe Schools Together in Harmony, hosted by CAbi clothing fundraiser, hosted by by Mary Gillis Piefer lemonade stand, hosted by G. Lora Grooms Lynn Hopkins Ice Cream Corner and Bridge Club, the Piefer family Vespe wedding donations, Cadyn’s Car Wash, hosted by Rita Luna hosted by Janelle Kunellis Play for Taylor, hosted by Matt and Anthony Aulisa and Johanna Vespe Cayden’s birthday fundraiser, hosted Jeans Day at USF-Holland, hosted by Rachel Wojnarowski Yard family Sponsor A Child For A by Cayden Duncan Mark and Tina Mulder Cure event, hosted by Jim and Amy Yard

2011 NATIONAL MPS SOCIETY WALK/R UN E VENTS

12th Annual Run for Erin, hosted by BioMarin MPS Run for Your Life, Laps for Lucas, hosted by Lew and Post Office Café 5K Walk/Run for Stacy Peters hosted by Kathie Ward Stacey Montgomery Mark and Casey Lessing, hosted 5 for fiVe, Race for a Cure, hosted by Cameron’s 5K Walk/Run for Cures, Miles for MPS, hosted by Steve and by Kerri Rose and Mark Lessing Michelle Storm-Butts hosted by Julie Mollett Laurel Radius River Run for Ryan, hosted by Action for Aidan, hosted by Brooke and Kenton’s Cause, hosted by MPS Run for Their Lives, hosted by Jonathon and Marie Hunt Jennifer Carter Amanda Fults Scott Hardin and Steve Holland Strides for Sara, hosted by Beat MPS 5K Walk/Run Delaware, It Works 1st Annual MPS 5K Run, MPS Society Walk/Run LA, hosted Monique Dickerson hosted by Carl and Jennifer Kapes hosted by Kate Martin by Tami Slawson NON-PROFIT ORG. National MPS Society U.S. POSTAGE 0/"OX PAID $URHAM .#  CHAPEL HILL, NC PERMIT #74

2011 BOARD O F DIRECTORS

PRESIDENT Kristine Klenke SCIENTIF I C Steve Holland MPS II parent MPS I parent A DVISOR Y B OARD Dave and Hope Madsen VICE PRESIDENT MPS I parents Steve Walkley, DVM, PhD, Kim Frye, PhD Committee Chair MPS II parent MaryEllen Pendleton MPS III aunt Alessandra d’Azzo, PhD TREASURER Gideon Bach, PhD Tom Gniazdowski Kim Whitecotton MPS II parent Lorne Clarke, MD MPS II parent Robert Desnick, MD, PhD Gordon Wingate SECRETARY Patricia Dickson, MD Austin Noll MPS III parent Matthew Ellinwood, DVM, PhD MPS III parent STAFF Mark Haskins, VMD, PhD John Hopwood, PhD Jeff Bardsley EXECUTIVE DIRECTOR Joseph Muenzer, MD, PhD MPS II adult Barbara Wedehase, MSW, CGC Elizabeth Neufeld, PhD Stephanie Bozarth [email protected] Beth Pletcher, MD MPS IV parent DEVELOPMENT DIRECTOR Kathy Ponder, MD Jennifer Clarke Terri Klein Mark Sands, PhD MPS III parent [email protected] Edward H. Schuchman, PhD Anne Gniazdowski PROGRAM DIRECTOR William S. Sly, MD MPS II parent Laurie Turner Lilla Simonaro, MD [email protected] Angela Guajardo David Wenger, PhD MPS III parent ADMINISTRATIVE ASSISTANT Chester Whitley, MD, PhD Amy Holland Kelly Rose John H. Wolfe, VMD, PhD [email protected] MPS I parent Ed Wraith, MD