Maternal & Child Health Bureau CYSHCN Core Outcomes & Related SPAN Activities (2015)

Core 1. Families 2. CYSHCN 3. CYSHCN 4. Children are 5. Services are 6. YSHCN Outcome & are partners at access have adequate screened early organized in a experience Activity all levels & are ongoing public or and way that effective satisfied with coordinated, private continuously families of transition to services comprehensiv insurance to to identify CYSHCN can adult systems e care within a cover all special needs use them of care medical home needed care easily Individual PTI TA staff, FRS, FRS, F2F PTI TA staff, F2F & PTI TA staff, F2F, FRS housed at Transition TA Assistance to F2F coordinators, coordinators, FV FV provide FV & P2P, Act SCHS CMUs, Specialists provide Families FV coordinator, coordinator, P2P individual Early Ambassador, Autism CNNH, information (Youth P2P Support Support Parents, information& TA provide FQHCs (WRAP, CD, transition Parents, FSO FSO provide for families on information & TA PTI, Well Care): resources for provide families families with available public to families on help families health with information & information & health options screening needs access services; practitioners, support on support on how to including and connect them F2F & Family brochures, info partnering with access ongoing, Medicaid, SCHIP/ to screening WRAP help packets) & health, mental coordinated Family Care, resources; P2P families access telephone, email health, EI, comprehensive Family Care Newborn hearing services more & in person TA; education, human care across Advantage & screening easily; FQHC & target families of services systems; connect health coverage activities; Well early childhood YSHCN (IOLTA professionals & families to more issues including Care Quick Peek; screening project; grant) accessing services effective appeals; FQHC & child care/ PTI TA staff pediatricians & Enrollment Head Start specialty providers assistance under screening training ACA grants with UCEDD

Workshops for F2F workshops for F2F workshops for F2F workshops for PTI & F2F Policy advocacy County transition families families: Parent- families: Health families: Health teleconference for improving workshops Professional advocacy, advocacy, series, workshops; availability of (IOLTA); Regional Collaboration, resources for resources; NJ Inclusive Child services, Mini-Conferences Health Advocacy; families; teleconferences; Care Red Flags in especially to Youth Strand; PTI workshops & teleconferences; NJ Council on Child underserved Dare to Dream teleconferences; Regional mini- Developmental Development, families, & Student Regional mini conferences Disabilities Health Rights & maintaining case Leadership conferences; Advocacy Toolkit Resources management & conference Biannual Parent Workshops workshops service Leadership & (county & coordination; Advocacy regional), workshops on Conference webinars, read Resources for aloud on web Families, SPAN Awareness Professional Professional Professional County workshops Information on Sharing Professional development development on development for on health SCHS CMUs in information with development on partnering with providers on advocacy (F2F), Family WRAP providers so they transition families across resources for Health Advocacy brochure, widely are aware of including through systems (IFSP/IEP, families; sharing Toolkit (NJCDD), disseminated; services for medical home child care, medical of resources with Healthcare medical home families & learning home visits, providers Financing training on CYSHCN & can collaborative, immunization Resources, ACA screening share info – F2F, county workshops, forum, enrollment (UCEDD); child WRAP, NJICC, MFS teleconferences teleconferences, strategies care & Head Start 360, PTI etc.) (F2F, Well screening training Workshops on Care, Family (CDC/Act Early Resources for WRAP) Ambassador) Families, SPAN Awareness including for all Child Welfare Parent SPAN Resource SPAN Resource SPAN Resource SPAN Resource SPAN Resource SPAN Resource leadership Parent (SRP) Parent (SRP) Parent (SRP) Parent (SRP) Parent (SRP) Parent training; training training; PTI, F2F, training; PTI, F2F, training; PTI, F2F, training; PTI, F2F, training; PTI, F2F, regional mini- START project START project START project START project START project conferences for parent leadership parent leadership parent leadership parent leadership parent leadership parents & youth; training; Medical training; Medical training; training; training; Youth Leadership Home parent Home parent Coordinated Coordinated Coordinated Council – NJYELL partner intensive partner intensive School Health School Health School Health (PTI & F2F) training training intensive training intensive training intensive training Policy advocacy PTI, NJICC, Family Family WRAP & Family WRAP & PTI, NJICC, Family PTI, NJICC, Family PTI, Family WRAP, WRAP & F2F/FV F2F/FV staff F2F/FV staff WRAP & F2F/FV WRAP & F2F/FV F2F/FV, Transition staff participate participate on task participate on task staff participate staff participate staff participate on task forces, forces, etc., on forces, etc. on AAP ABCD on task forces on task forces representing the medical home, focused on Advisory aimed at helping around transition family voice, including AAP improving Committee, families access NJ YELL including State, Committee on coverage UCEDD early services more AAP, & HMO CSN, Medical including Medicaid autism ID team, easily & Advisory Home Leadership Advocates Group, Early Learning coordinating Committees & Group HMO advisories Council, Map to across systems work groups Inclusive CC Resources & Develop, Develop, Develop, Develop, Develop, Develop, Website translate, translate, translate, translate, translate, translate, disseminate disseminate disseminate disseminate disseminate disseminate resources in 7 resources in 7 resources in 7 resources in 7 resources in 7 resources in 7 languages (hard languages (hard languages (hard languages (hard languages (hard languages (hard copy, on web) copy, on web) copy, on web) copy, on web) copy, on web) copy, on web)

 FRS = Family Resource Specialists housed at SCHS Case Management Units with funding through Family WRAP (NJ DOH) and PTI (US DOE); CNNH contract; Well Care grant  FV = Family Voices. Lauren Agoratus is NJ Family Voices coordinator (funded through Family WRAP by NJ DOH)  F2F = Family to Family Health Information Center funded by US DHHS  P2P = Parent to Parent (funded through Family WRAP by NJ DOH)  PTI = Parent Training & Information Center (funded by US DOE)  NJICC = NJ Inclusive Child Care Project (funded by NJ DHS)  NJ YELL = Youth Engaged in Leading and Learning (statewide youth council)