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Gilda's Club New York City Gilda’s Club New York City ANNUAL 2 016 REPORT No One Should Face Cancer Alone BOARD OF DIRECTORS ASSOCIATE BOARD STAFF Laura J. Bartlett, Chair Ashley Loesch, Chair Alex Modell Lily Safani The Bowery Presents North East Equity, LLC Chief Executive Officer Robert J. Easton, Immediate Past Chair Dara Adams Ellie Newman Nadine Bartholomew BIONEST Partners SAS Ewenstein and Roth Program Administration Asst. Mark J. Alles Andrew Altschuler Erin Nourijanian Christine Braunstein Celgene Corporation AmeriMerchant Webster Hall Grant Writer Donnovan Andrews Christopher Chambers Tiffany Robin Fran Castellanos–Ross Overture Global High Line Health Brooklyn, Queens, Long Island Program Manager, Membership Area Health Education Center and Community Partners Rob Bochicchio Mandy Cheuk Blackwood Seven Fortress Investment Group Emily Sanchez Michele Halusic Freelance Stylist Associate Director, Program Faith Charles Elsa Di Ruggiero Thompson Hine LLP Kohlberg Kravis Roberts & Co. L.P. Victoria Scarborough Nivia Heron Receptionist Robert C. Faulkner Tracey Doolin Ari Schnitzer Redmile Group, LLC Inez Weinstein Special Events, Inc. Cablevision Systems Corp. Eileen Jackson Assoc. Director of Special Events Carl S. Goldfischer, MD Meghan Finlayson Jessica Serre Bay City Capital, LLC American Express Pask Productions Ramona Maysonet Bookkeeper Jennifer Hill Michelle K. Fong Lauren Servideo Remedy Analytics, Inc. Coach, Inc. Wolters Kluwer Pontip Rasavong Marketing and Sofija Jovic, PhD Maria Franceschelli Whitnee Shulman Communications Manager ProPhase, LLC Buzzfeed Steven Smolyn Janine Perillo Mike Lee Katherine Griffith Handel Architects Development Assistant Redmile Group, LLC RED Distribution John Switzer Michelle Ramlochan Ellen A. Lubman Krista Gundersen KKS Investments, LLC Executive Asst. to the CEO Allergan Practising Law Institute James Trani Emily Riordan Matthew R. Patterson Blaike A. Hannay Momentum Worldwide Program Coordinator, Audentes Therapeutics JP Morgan Remi Tseng Outreach & Education Andrea F. Rabney Neil Heckman, Vice–Chair Brookfield Asset Management Jessilyn Torres Argot Partners LLC Allscope Direct Katherine Wynkoop Receptionist Jami Rubin Megan M. Knurr House of Kaizen Migdalia Torres The Goldman Sachs Group, Inc. Citibank Stefani Zien ED Program & Expansion Alexander Scott, Treasurer Rachel Krieger Noon by Noor Deborah K. Wilson Eisai Inc. Andrew Levison Director of Development William S. Slattery, Secretary The Dermot Company Deerfield Management Zachary R. Mattler Francis J. Russo, Bank of America Merrill Lynch Board Director Emeritus Homewood Advisors LLC 2 Leadership Message From the CEO and the Chairman of the Board of Directors Dear Friends of Gilda’s Club New York City, Now in our 21st year of providing free cancer trained O2O counselor to prepare for their support, we are proud to report that we next doctor’s appointment. Evidence–based have continued our double–digit growth research has shown that patients who report rate of over 30%. This growth rate has been a good communication with their healthcare fueled by our focus to reach providers have a beyond our Clubhouse to the better quality of underserved communities of life, lower distress New York City. In addition, and are more our ability to provide our free satisfied with their cancer support program in treatment. both Spanish and English, Of course, none has helped to increase of this could be our presence in the Latino done without Laura J. Bartlett community, one of the largest Lily Safani the extraordinary CEO Chairman of the Board of ethnic communities in New Directors support we receive York City. from you – our Over the years, we have learned that in order most generous donors. This year 99% of our to serve the population that needs us the funding was private – from corporations, most, we must bring our program to them foundations, and individual donors. We have – our Gilda Comes To You offsite program been fortunate to develop a community is thriving. The addition of bilingual Patient that truly believes in the importance of our Navigators at our hospital partners has been mission to support, educate and empower an integral part of our success. By providing cancer patients and their families. We believe information on our program that is available that no one should face cancer alone. It is at their hospital, in both Spanish and English, your support that has truly made a difference more cancer patients have been participating in the thousands of New Yorkers living in our workshops, support groups and with cancer. Thank you so much for your educational lectures. continued commitment to Gilda’s Club New York City. This year, through additional funding, we have launched a new support program at our Sincerely, hospital partners – Open to Options (O2O). Laura J. Bartlett This new program addresses the critical need Chairman of the Board of Directors for cancer patients to have more information Lily Safani and assistance in decision making from CEO the moment of diagnosis. Cancer patients now have the opportunity to meet with a Mission Statement: To Support, Educate, and Empower Cancer Patients and their Families Our FREE comprehensive cancer program includes support groups, educational lectures and healthy lifestyle workshops for everyone impacted by cancer – men, women, teens, and children. 2016 In Review 6 Serving more New Yorkers living with cancer every year Each year there are over 39,000 New Yorkers newly diagnosed with cancer – that’s over 100 New Yorkers every day. This number is growing every year and does not include those who are currently living with their cancer diagnosis. Gilda’s Club NYC strives to meet the growing needs of the many women, men, children and teens who are impacted by a cancer diagnosis. In 2016, we served over 12,000 New Yorkers and reached more than 20,000 people living with cancer. We believe that no one should face cancer alone. We are reaching more people who need our free cancer support program. This year our reach continued to grow at a Village as well as at our hospital partners, 8 double–digit rate of 30%. This was due to an where we have focused in reaching the increase in the number of people participating underserved and uninsured through our in our program at our Clubhouse in the West Gilda Comes to You program. We are delivering more services than ever before – Always 100% free of charge. This year we provided 1,200 support groups, vision of providing more New Yorkers access over 600 healthy lifestyle workshops, and to supportive care. more than 50 educational lectures. We are Our social events and activities at our proud to report that our Spanish–bilingual Clubhouse and at our hospital partners remain programming has expanded by 15%, and 20% as popular as ever. Noogiefest, our Halloween of our program is delivered at our hospital spooktacular, and Winter Wonderland partners throughout the city–continuing our attracted more than 250 friends and families. We know we are making an impact with cancer patients and their families. Both the 2007 and 2013 Institute of We know cancer is not going away. The Medicine (IOM) reports have supported IOM is reporting that by 2022, there will be a what we at Gilda’s Club have always known 45% increase in cancer incidence and a 30% – comprehensive medical care for cancer increase in cancer survivors. patients must include psychosocial support for Gilda’s Club will continue to play an important both the patient and family members. role in helping cancer patients and their The latest IOM report proposes a new model families with the support they need. Our of patient–centered care, when cancer is members understand the value of our program diagnosed, where the needs and concerns – 92% of our members report that we are of the patients are first and foremost to ”good to very good” at addressing their needs promote better outcomes. In addition, the and 95% would recommend us to others living patient’s team of professionals must always with cancer. include a social worker to provide support and education to the patient and family members. 9 Our Program Continues to Make an Impact… 10 On the Latina Community Living With Cancer Latina breast cancer cancer survivors & their caregivers 30 patients In collaboration with Georgetown University participated in and PCORI*, Gilda’s Club participated in a research project to evaluate the impact of the study an 8–week educational program for Latina breast cancer survivors and their caregivers. A total of 30 cancer patients and their caregivers participated in this study at our Clubhouse for Bilingual Support three consecutive years, ending in June 2016. New York State Department of Health has renewed our grant for Spanish–bilingual Although the final report is soon to be breast cancer support, and extended it published, we can report that the women from 3 to 5 years. This grant supports our diagnosed with cancer went from passive commitment to the Latina population and participants in their cancer care to advocates, our understanding that breast cancer is the and caregivers went from dismissing the leading cause of cancer deaths among Latinas. impact of caregiving to requesting additional Spanish is the second most popular language self–care resources. Our hope is to identify spoken at home in the USA and language additional funding so that we can continue this barriers are one of the contributing factors important educational finding. to health disparities. *PCORI (Patient–Centered Outcomes Research Institute) Research “Can Gilda’s Club be my happy space?” out Sessions Extended to 12 3of 4 Full Day On Children Living With Cancer Cancer affects the whole family and providing Sparkle’s program provides any family support for children who have cancer or impacted by cancer a place where their whose parent or loved one has been affected children (ages 5–12) can enjoy interactive by cancer, is what makes Gilda’s Club stand workshops, field trips, support, and apart from other support services.
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