Medical Home Work Group s1

Medical Home Work Group January 14, 2016 9:15 am – 10:15 am

On the call: Greg Prazar; MD, Chair; Amy Belisle, MD; Kathy Cahill, RN/MSN; Alex Geertsma, MD; Monica McClain, PhD; Judy Shaw, EdD/MPH/RN; Karen Smith, Tara Townsend

Save the date for our in-person work group meeting: April 7th, 2016, 8:30 am – 10:30 am, Portsmouth, NH.

Agenda  Follow-up from last call o GMCE o Webinar o Offering tools to PCPs to facilitate care of children with genetic conditions o Recruitment  Future projects

Greg opened the discussion.

Genetics Metabolic Center for Education (GMCE)

After speaking with Mark Korson and Kevin Robinson from Genetic Metabolic Center for Education (GMCE), the group consensus appears to be that it might work better with family practitioners than pediatricians.

 Dr. Ashley Lamb, sees adults as well as children; she practices internal medicine and pediatrics (“meds/peds”) in NH. Greg spoke with her and she is interested in accessing Mark’s group.

o Greg asked Karen or Monica to follow up.

 Greg would like to identify others in family medicine who might get involved with our work group and/or work with GMCE.

o Neither Dr. Lamb nor Ardis Olson knew of a listserv for family practitioners.

o Alex will ask Dr. Ben Doolittle, program director for meds / peds at Yale. They focus on transitioning kids with special health needs. Will put him in touch with Greg if possible o Judy suggested Dr. Scott Berns, pediatrician in MA who recently started as director of National Institute for Children’s Health Quality* (NICHQ). He worked at March of Dimes previously. Dr. Bern’s son, Sam Berns, has progeria and did a TED talk which was very well received. Scott doesn’t have time now but may at some point.

*NICHQ started 16 years ago, with Lucille Packard Foundation funding, as a pediatric-focused Quality Improvement group. They were more of a consultant group, very involved in engaging families regarding specialty condition work – obesity, epilepsy, sickle cell, etc. Charlie Homer was president, Judy was a past vice-president.

Webinar on strength- based communication with families

Greg emailed Jill Rinehart and she is interested in co-presenting. Per Judy, Paula Duncan will not be able to participate. Greg will contact Jill about finding another presenter.

Offering tools to PCPs

Greg looked at ACT.md website, which Judy introduced on the last call. Lots of good info about working with complex care patients.

 This blog entry about CMS Innovation Workshop was of interest to Greg, especially “research done by Elizabeth Bradley at Yale that shows that clinical care is responsible for only 20% of total health outcomes. Physical environment, health behaviors and social and economic factors together influence our health to a far greater magnitude than clinical care alone.”

Greg – Is this theme of changing how one looks at health care useful for our work group as we try to support practices?

 Judy – will try to find out more about the CMS Innovation Workshop

 Alex – CT has a State Innovation Model (SIM) grant from CMS about changing the reimbursement scheme. They look at it from financial motivation standpoint – how are PCPs dis- incentivized and how might the models be reworked. They are talking about how to incorporate this in CT. Alex will ask Mark Schaefer.

Recruitment

Re: a representative from MA, Greg reached to Katherine Flaherty but hasn’t heard back.

 Judy – Katherine also just went to work for NICHQ along with Scott Berns. She may be interested in joining us in the future. Greg will follow up with her (mention that Judy spoke with Scott Berns).

Future projects

The agenda for the NEGC annual meeting is still being finalized. What would people like to see for our work group agenda?  Judy –communication is vital and people are struggling. Could we get ACT.MD to come and talk about what their vision is and what they have to offer?

o Tara – from parent perspective it would be nice to know what they’d like to hear from us, how could parents be more efficient to get better care

 Kathy – does the VT project serve as an example of a model of communication and care coordination?

o Judy – learning collaborative is more about giving tools to care providers.

. They tried to get a grant to pay for act.md for the providers in the learning collaborative, but weren’t successful.

. Interesting discussion might be to have a family who used the portal, community group talking about mechanisms for communication – provocative but there are no answers.

 Alex – much of this was dealt with, not specifically around genetics but around CSHCN. Would it be reasonable for us to link to CSHNCN? Rick Antonelli, Children’s Boston, would be great but difficult to get. o Greg will reach out to Rich (Carl Cooley is retiring.) If needed, Alex knows Rich and could try to reach him as well.

 Kathy – focus on communication; 2 or 3 presentations; act.md; update on VT as a model. Also, the webinars we did were very good; has everyone seen them?

Wrap up

To dos:  Greg will contact Paula Duncan, Rich Antonelli, Jill Rinehart  Alex talk to Dr. Doolittle & Mark Schaefer  Judy  Karen and/or Monica will follow up with Ashley Lamb about GMCE

Next call: February 11th @ 9:15 am