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Stroke News Summer 2013 03 Welcome… I Hope You’Re Enjoying the Charlotte Neve’S Incredible and on Page 21, Annabel Jones Summer So Far Volume 31.2 Volume Stroke News SUMMER 2013 A dramatic return Edward Petherbridge returns to the stage Life After Stroke Awards Read our winners’ inspiring stories Celebration funds Our wedding gift to our dads Charlotte’s victory Stroke News is free! stroke.org.uk Volume 31.2 Volume Contents SUMMER 2013 Action18 on Stroke Month A17 Most Curious Detour Editor Jane Butler Design Rick Nicholls Regulars Features To subscribe to Stroke News or change your contact details 03 Volunteer spotlight 08 On the cover call 01604 687 721 Meet Sophie Johnston Winner Charlotte shines [email protected] Stroke News is published by 04 Your views 11 Life After Stroke Awards the Stroke Association We share your letters A round-up of the winners Stroke Association House 240 City Road London EC1V 2PR 05 News 16 A dramatic return Tel 020 7566 0300 Catch up on the latest Edward Petherbridge returns stroke.org.uk news about stroke to the stage [email protected] Helpline 0303 3033 100 22 Money matters 17 ‘A Most Curious Detour’ To advertise in Stroke News Saving money on - a play inspired by Stuart Hepburn contact Redactive Media Group prescription charges Phone 020 7880 6200 18 Working wonders in May Volume 31.2 Summer 2013 24 What’s on A month to remember © Stroke Association 2013 Fancy a challenge? Every effort has been made to ensure 20 Research that the information provided in this magazine is accurate, but we cannot 25 Stroke stars What’s it like to be a part of guarantee accuracy and the information Fundraising together cutting-edge stroke research? provided does not constitute legal or other professional advice. Opinions expressed in this magazine are not always to be taken as expressing the To receive your free copy of Stroke News, call 01604 687 721 opinions of the Stroke Association. Advertisements, products or services or email [email protected] listed are not necessarily recommended by the Stroke Association. For an audio version, call the number above Stroke News is printed on paper or visit www.stroke.org.uk/strokenews from sustainable sources. The Stroke Association is a company limited by guarantee, registered in England and Wales (No 61274). Registered office: Stroke Association House, 240 City Road, London EC1V 2PR. Registered as a charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in Northern Ireland (XT33805) Isle of Man (No 945)and Jersey (NPO 369). Stroke News Summer 2013 03 Welcome… I hope you’re enjoying the Charlotte Neve’s incredible And on page 21, Annabel Jones summer so far. Fingers crossed experience, our cover feature. recalls how her stroke was for more sunny weather! initially dismissed as just a Like Charlotte, Stuart Hepburn If you’re gearing up for a trip migraine. Now she’s not only and Leah Batchelor have found away, you can get some top returned to work, but she’s also extraordinary strength to break travel advice from other a stroke ambassador. Annabel’s through the barriers of locked- readers on page 4. determined to spread the word in syndrome. You can read their that anyone can have a stroke In this issue we’re reflecting stories on pages 15 and 17. This at any time. In this issue, we on our annual Life After Stroke issue also takes on a thespian pay tribute to everyone who Awards – a star-studded feel with veteran actor Edward has overturned expectations event that celebrates the Petherbridge’s return to the to prove there’s light at the end achievements of stroke stage. Remembering every line of the tunnel. I hope you enjoy survivors and their carers. of King Lear following his stroke, reading this issue. For a snapshot of the winners, he returns with remarkable see pages 11-14 and turn to energy and charisma Jane Butler page 8 to read 8-year-old (see page 16). Editor, Stroke News Volunteer spotlight Sophie Johnston Sophie Johnston has been therapy programmes. As well Janice Kirkpatrick, Operations and helping stroke survivors since as developing her practical Projects Officer. “Her commitment her teens. 23-year-old Sophie, skills and knowledge of speech to supporting stroke survivors with from Belfast in Northern and language therapy, Sophie aphasia has been outstanding.” Ireland, began volunteering enjoys helping people with for us six years ago. It was aphasia. “I really look forward her interest in speech and to meeting the members each language therapy that led week and supporting them to her to work with the Stroke use different communication Association before taking up techniques to get their her studies at Manchester message across,” says Sophie. Metropolitan University. Sophie is also a keen fundraiser On her return to Northern and helps out at many of our Ireland as a speech and awareness-raising events. language therapy graduate, And if that’s not enough, she Sophie once again contacted also chairs the reference group the Stroke Association and of the Stroke Association’s now regularly helps stroke Northern Ireland committee. survivors communicate, as “Sophie has been a true part of speech and language asset to our services,” says 03 Stroke News Summer 2013 Your views Dear Stroke News Great service In March, my husband and I arrived at Gatwick for our Easy Jet flight to Montpellier. My husband is registered disabled and develops pain in his legs if he walks more than 20 metres. He has had a stroke and has an ongoing serious heart problem, but looks slim and well, so people don’t see that he needs help and he is too proud to ask. I can only manage one suitcase when we travel, so we had struggled from the drop-off point up the lift to the entrance, when I saw one of Gatwick’s assistants with Hot topics a wheelchair. I stopped and asked him if he could help us. Your experience of Not only did he do so, but he took my case and looked after us right TIA/mini stroke through all the queues in check-in and security. Then he took us to the departure pick up. Dave really cheered us up at the start of our holiday. Over the coming months, The men on security were also friendly and smiling, something we have not we’d like to find out more seen before. I really cannot praise everyone enough because this cheery about how mini strokes and helpful service continued right to the plane. Every kindness shown have affected everyday by airport staff and the airlines is very much appreciated by both of us. lives, how you first knew Carol Edgar you were having them, what action you took, Backpacking adventures the treatment and Doing something and going somewhere completely different relaxes support you received me. I had a stroke aged 21. It left me unable to do anything for myself, but I and whether it met have since recovered full independence. A few years later, an acquaintance your needs. told me of her backpacking travels. These experiences excited me. For over 10 years I have embraced this style of travelling, mainly through the developing countries of Latin America, Asia and Africa. I have seen amazing sights but it is the interactions with locals that I love. I met a man in Ghana and another in Indonesia who both had strokes and recovered well despite a lack of resources. For me, completely new experiences are exciting, satisfying and ultimately relaxing. I recognise my style of travelling is unlikely to suit many readers, but the idea of going somewhere different might. Elizabeth Heywood Please write to us with your name, address and Go for it! contact number at I had my stroke in 2000 (aged 68). In 2001, I decided that I still had Campaigns Team the urge to see more of the UK and many places worldwide. I have Stroke Association now reached the ripe old age of 81 (years young) and will continue Stroke House travelling as long as I’m physically able. My advice is ‘Go for it!’ – 240 City Road there’s a big, wide, interesting world out there. Plan your trips, London, EC1V 2PR accept the help and kindness of your fellow travellers and make or you can email us: sure you get wheelchair assistance at the airport if you need it. [email protected] Michael Duffin Stroke News Summer 2013 04 News Jess has constant pain in her hands, arms, legs, chronic fatigue and problems with balance when she is in a noisy or busy environment. When she wasn’t at work as a teacher or looking after her family, she used to make films and enjoyed painting and sculpting prior to her stroke. “I had to retire and my husband and mother had to look after me. My two daughters were scared and frustrated with me and we felt like we were being unpicked financially, socially and emotionally,” explains Jess. Gifted Jess finds “The art helps to exorcise it from my system and enables freedom in art me to start to move on.” 38-year-old mum of two, Jess this year. Organised by the Stroke Jess’s art is something that Thacker, from Exeter, is one of 50 Association, it showed how it’s broadens her world and helps her stroke survivors who showcased possible to overcome disabilities get in touch with other people her artistic talents in an exhibition caused by stroke and create again: “Art is one of the ways called Stroke of Genius earlier stunning pieces of art. forward I can see for my future.” Our wedding gift to our dads Sue’s story “When Steve and I were planning The money raised might even our wedding, the question of gifts prevent another bride walking came up in conversation.
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