Table of Contents Review of Disability Studies, Volume I, Issue 1, 2004 Preface............................................................................................................................ 5 Tribute to David Pfeiff er •5 A New Journal Is Born • 7 David Pfeiffer, Ph.D. University of Hawaii at Manoa Upcoming Forums.........................................................................................................9 Spring, 2004: “Research on Postsecondary Education and Individuals with Disabilities” Editor: Robert Stodden Summer, 2004: “On the Cutting Edge – Conference Papers” Editor: Steve Brown Fall, 2004: “Infusing Disability Culture into Education” Editor: Megan Conway Forum: Disability Culture – A Decade Of Change.....................................................10 Disability Culture: A Decade of Change • 10 Steven E. Brown, Ph.D., University of Hawaii at Manoa An Essay on the Beginnings of Disability Culture and Its Study • 14 David Pfeiffer, Ph.D., University of Hawaii at Manoa Disability, Identity, and Cultural Diversity • 16 Stephen French Gilson, Ph.D., and Elizabeth DePoy, Ph.D., University of Maine On Deaf Ears: Disabled in Hollywood • 24 Mark Medoff, Florida State University “I’ll Pick You Up By Your Back Brace and row You Like a Suitcase”: On Naming Discrimination Against Disability • 29 Jillian Weise, University of North Carolina at Greensboro e Diffi culty with Deafness Discourse and Disability Culture •4 3 Tanis Doe, Royal Roads University and University of Victoria, Canada From the Cripple-Power-Festival to Independence Days:Disability Culture in Germany • 42 Ottmar Miles-Paul, Kassel, Germany Personal Refl ections on Disability Culture • 45 Steven E. Brown, Ph.D., University of Hawaii at Manoa ������ �� ���������� ������� An International Journal ������ �� ����� �� ���� Research Articles...........................................................................................................51 Exploring Disability Hate Crimes • 51 Mark Sherry, Ph.D., Chicago Center for Disability Research Attitudes Toward Persons With Disabilities Among Japanese Social Work Students • 60 Reiko Hayashi, Ph.D. and Mariko Kimura, Ph.D., University of Utah and Department of Social Work, Women’s University, Japan On Behalf of the I.W.W.: Helen Keller’s Involvement in the Labor Movement • 70 Mary M. Fleming and William H. Ross, Ph.D., University of Wisconsin--La Crosse Disability in Chronic Fatigue Syndrome and Idiopathic Chronic Fatigue • 79 Adam W. Carrico, Leonard A. Jason, Ph.D., Susan R. Torres-Harding, Ph.D., and Elizabeth A. Witter, DePaul University, Chicago, IL Framing Nancy Mairs: A Documentary Project • 89 Janice L. Dewey, Ph.D., University of Arizona e Role of Occupational erapy in Rural Healthcare: A Case Study on Farmers with Disabilities • 95 Jennifer Coles and Megan O’Hare, Creighton University Infusing Disability Studies into “Mainstream” Educational ought: One Person’s Story • 100 David J. Connor, Columbia University Slipping the Surly Bonds of the Medical/Rehabilitation Model In Expert Witness Testimony • 120 Patricia A. Murphy, Ph.D., C.R.C., University of Toledo Researching the Social Construction of Blindness • 128 Beth Omansky Gordon, University of Queensland, Australia Tunes of Impairment: An Ethnomusicology of Disability • 133 Alex Lubet, Ph.D., University of Minnesota Essays and Creative Works.........................................................................................156 Will the Next Generation Please Step Forward? A Legacy for the Next Generation of Troublemakers • 156 Megan A. Conway, Ph.D., University of Hawaii at Manoa Bibliographies And Resources...................................................................................158 Still Celebrating Disability Culture: A Peek at the Annotated, Disability Culture Bibliography • 158 Steven E. Brown, Ph.D., University of Hawaii at Manoa Academic Programs in Disability Studies • 163 Steven J. Taylor and Rachael Zubal-Ruggieri, Syracuse University Book, Art And Film Reviews......................................................................................168 Book Review: Movie Stars and Sensuous Scars by Steven E. Brown Tanis Doe, University of Victoria, Canada Book Review: Disability and Culture: Universalism and Diversity edited by T. Bedirhan Ustun et al. Jean Johnson, University of Hawaii at Manoa Monograph Review: Celebrating Disability Arts published by Arts Council England Steven E. Brown, University of Hawaii at Manoa Music Review: Angryfish, Eight Men Called No, and Barbed Wire and Pot-Holes Steven E. Brown, University of Hawaii at Manoa Correspondence..........................................................................................................171 Letters to the Editor, Commentary Announcements..........................................................................................................171 Annual Pacific Rim Conference on Disabilities, Honolulu, March 29-30, 2004 RDS Information.......................................................................................................172 Information for Advertisers Subscription Form Information for Submissions (back cover) 5 VolumeRDS I Issue 1 Preface can Public Health Association DisAbility Special Interest Group awarded Pfeiffer the Alan Meyers Tribute to David Pfeiffer Award during its annual meeting in San Francisco in November 2003. 1934 – 2003 He also served as a mentor to many disability studies scholars and writers, as demonstrated in the many tributes that arrived after he passed on. At the time of Pfeiffer’s death, he was complet- ing a book about disability theories and leading the effort to develop the Review of Disability Studies (RDS). In recognition of his many contributions RDS will perpetually recognize him as Founding Editor. Professor David Pfeiffer passed away unexpect- e is survived by his wife arbara of awaii edly on December 17, 2003. An internationally son lifford of assachusetts and daughters ath recognized scholar in the field of disability studies, erine feiffer and arol essmore her husband Pfeiffer, who used a wheelchair as a result of child- eter and their son eter all residing in lorida hood polio, received a Ph.D. in Political Science Consistent with Dr. Pfeiffer’s wishes and with from the University of Rochester in 1975. Pfeiffer the support of his family, anyone wishing to ac- retired in 1997 from Suffolk University in Boston, knowledge his life-long accomplishments, may where he served as Chair of the Department of make a contribution to the Dr. David Pfeiffer Public Management. He also initiated Suffolk’s Memorial Fund being established with the Univer- Disability Studies concentration in the MPA pro- sity of Hawai‘i Foundation, Account #120-3263- gram. 4 (UAP) at the following address: University of In Hawai`i, Pfeiffer became Resident Scholar Hawai‘i Foundation, PO Box 11270, Honolulu, at the Center on Disability Studies, Visiting HI 96822-0270. Scholar in the Department of Political Science, and affiliated with the School of Medicine. Pfei- A Selection of Tributes to David Pfeiffer ffer published over 200 articles about disability studies, primarily in refereed journals. He also was “I and fellow Australians who knew David were a well-known advocate who spent the years from saddened to learn of his recent passing. He was a 1977 to 1980 as the Massachusetts State Director giant among us in terms of his wisdom, energy, ad- for the White House Conference on Handicapped vocacy and plain common sense. Like many great Individuals. He was instrumental in the creation people before him, his legacy will live on in our of the Massachusetts Office on Disability, organiz- hearts and minds.” Trevor Parmenter ing the Massachusetts Coalition of Citizens with Disabilities, and amending the state constitution “I first met David in 1982 when he and Irv Zola to prohibit discrimination based on disability. participated in an Office of Technology conference Among his numerous other accomplishments, on mental health adaptation to physical disability. awards, and activities, he was a Past-President of That year, I sat at the feet of these two plus Hugh the Society for Disability Studies and editor of Gallagher as they opened my eyes and heart with Disability Studies Quarterly. In recognition of their powerful stories to the world of physical dis- his combined excellence in the areas of research, ability that I, as a mental health clinician, had never teaching, and advocacy in disabilities, the Ameri- 5 VolumeRDS I Issue 1 known…Ten years ago, when David was Chair of “…[David] was kind and supportive. He encour- the Public Management Department oat Suffolk… aged me to join the field. He sent me articles on he was a leader in research, teaching and advocacy 5.25 floppy inch disks. We laughed at the time and developed a devoted group of students and as- that perhaps we were the last ones using these sociates…All of the above, though, misses the real disks and WordPerfect 5.0…I will miss him and David…He was such a warm, kind person. He was his leadership. I regret that there will be no more a lover of fine aged port and stimulating conversa- lunch discussions with him. I mourn his passing tion. He was a mentor, a father to many, and a role and I salute him as a brother. Hail and farewell.” model for us all. We missed him when he decided Jim Ferris to go surfing in Hawaii. I miss him now that he is gone.” Richard Beinecke “A smile and a hug and a raised fist for David, to all his friends, and to his wife Barbara. I’m