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Diabetes Voices DIABETES VOICES Issue 14 • September 2015 Diabetes Voices speak out Hello about rise in amputations In this edition of Sixteen Diabetes Voices travelled Diabetes Voices: to Westminster on Wednesday, 15 July to highlight the issue of • Read about how Diabetes diabetes-related amputations. Voices have been raising 135 shoes were displayed awareness of amputation rates. outside Parliament to represent the number of diabetes-related • Find out about Diabetes Voices amputations being carried out making contact with new MPs each week in England. after the election. The rising number of amputations • Get updates on Diabetes UK’s is a huge concern. Diabetes current campaigns. Voices who have had an amputation met with their MPs to • Read 60 seconds with… discuss how it has impacted their Janet Richards outside the Houses of Parliament Vivienne Ruddock from London. lives and what needs to be done. Following on from the event, several MPs have supported the Keep up to date campaign by asking questions in For up-to-date information Parliament and calling on Jeremy about current opportunities to Hunt, Secretary of State for get involved, check the Take Health, to take urgent action. Action noticeboard online at Janet Richards from Croydon had her right leg amputated below www.diabetes.org.uk/ the knee in January 2006. She came to help get the message get_involved/campaigning/ across to healthcare professionals about foot complications diabetes-voices related to diabetes: “I was so glad that I could articulate exactly what I have felt so passionately about over the last ten years. My heart feels a lot Get in touch lighter because I know that doctors and podiatrists will now have heard The Diabetes Voices team the message we were trying to get across.” is here to help you. There was also a lot of media Email diabetesvoices@ coverage about the shocking rise diabetes.org.uk or call in amputations in England. Stories 020 7424 1008 to speak from Diabetes Voices were featured to one of the team. on Channel 4 News, Good Morning Britain and Radio 5 Live. The story We are always keen to find even made the front page of The out what’s happening Daily Mirror, and featured in many where you live, so please other national and regional papers. keep in touch. The display of shoes and individual stories from Diabetes Voices helped The Diabetes Voices Team to send a powerful message about the scale of this issue. Many more Jane Knight with Chris Skidmore MP www.diabetes.org.uk/diabetesvoices 2 people with diabetes will now understand their risk of amputation, how to look after their feet and the urgency Diabetes Voices take of getting help if their foot deteriorates. More healthcare professionals will be aware of the risk of foot action with new MPs complications and ensure all people with diabetes All Party Parliamentary Group for Diabetes receive their annual checks. Request a copy of our new leaflet, What to expect at your annual foot check – which sets out what an annual foot check Just weeks before the 135 shoes event, Diabetes should involve. Email Voices were in Parliament to take part in the first diabetesvoices@ meeting of the All Party Parliamentary Group (APPG) for diabetes.org.uk or Diabetes since the election. call 0207 424 1008. At the meeting, Labour MP Keith Vaz replaced Adrian Sanders as Chairperson of the group, after Mr Sanders lost his seat at the general election. Update on Diabetes The meeting gave Diabetes Voices and group members the opportunity to work together to set the Voices activity group’s new priorities for the coming year. This builds on the work done in the last year to produce a highly Following on from the 135 shoes display, Diabetes influential report on diabetes education, and will Voices have been busy sharing copies of our continue to work to shape diabetes policy. footcare leaflets with contacts in their local area. Group members have reported that getting the direct Can you help support our campaign to reduce perspective of Diabetes Voices has been highly valuable amputations? To request leaflets, please email as they plan their work. Watch this space for more [email protected] opportunities to engage with the APPG later this year. Jenny Jennings, a Diabetes UK Service Champion Why not ask your MP to join the APPG for Diabetes from Worcester, has been working with her local and help work towards better diabetes care and Clinical Commisiong Group to develop a more prevention? To contact your MP, go to efficient method of paramedics reporting to www.theyworkforyou.com surgeries, leading to better communication and medication regulation during hypos. MPs learn about diabetes research with their constituents Thanks to the hard work and persistence of As part of a laboratory tour of London’s Guy’s Hospital Diabetes Voices, several Members of Parliament in July, a selection of MPs spent the day learning about have recently shown their support for people living the potentially life-changing research into diabetes with diabetes. MPs Nigel Evans and Suella currently being funded by Diabetes UK. Fernandes both asked questions about diabetes Several of the MPs even took the tour with Diabetes care in Parliament after speaking to their Voices from their constituency, who explained the constituents. Nine MPs have asked written specific challenges faced locally by people living with questions about diabetes. MP Alan Meale has diabetes. MPs who attended included Liz McInnes, discussed introducing an Early Day Motion linking Kate Osamor and Kevin Foster. Type 2 diabetes with the campaign to cut sugar, and MP Chris Skidmore arranged a meeting with Health Ongoing diabetes research projects range from the Secretary Jeremy Hunt to discuss diabetes issues. effects of particular diets to developing an artificial www.diabetes.org.uk/diabetesvoices 3 pancreas. Many of these projects could directly help up to 40 per cent of people developing kidney disease people living with diabetes in the near future. at some point in their lives. In the very early stages there are usually no symptoms, so the test is really important as it will pick up any problems before they develop. We’d heard anecdotally that some GP surgeries were not sending urine samples for laboratory testing, and wanted to make sure that the NICE guidelines were being followed. Lots of people took up the issue, raising the importance of the check with healthcare professionals in their area. People like Sue Briggs from Somerset, who discovered her surgery was not sending urine samples for testing unless there were other indicators of kidney problems. (left to right) Liz McInnis MP, Debbie Goldrick and Janet Lees Concerned people were missing out on the vital test, Sue spoke to the Practice Diabetes Nurse, who “The tour was so interesting. My MP said it opened followed it up with the GPs, and then with the Clinical his eyes and made him want to help with funding Commissioning Group (CCG). As a result, Somerset diabetes research.” Carol Greechan, a Diabetes CCG have now said Voice who took the tour with her MP, Kevin Foster. that all GP practices in Somerset should do the urine test annually for all You can find out more about the research funded by people with diabetes. Diabetes UK at www.diabetes.org.uk/research/ A real success. research-round-up 15 Healthcare Essentials update: If you’re concerned that people in your area may not be getting this vital check, and would like help or Kidney checks advice on how to raise the issue with your local surgery, call the Diabetes Voices team on success 020 7424 1008 or email In October last year, we [email protected] asked Diabetes Voices For further information on how you can support the involved with GP Patient 15 Healthcare Essentials campaign, visit Participation Groups www.diabetes.org.uk/15-essentials (PPGs) to help make sure that people with diabetes were getting an annual urine test to check their kidney Children’s function. Sue Briggs (left) and her local MP, The 15 Healthcare Rebecca Pow campaign update Essentials include two tests to check the kidneys: a Our 4 Ts campaign aims to raise awareness of the four blood test (to check kidney function) and a urine test (to key signs of Type 1 diabetes – Toilet, Tired, Thirsty and check for protein – a sign of kidney damage). Both tests Thinner. Far too many children with Type 1 diabetes only must be done yearly to identify kidney problems early. have their condition diagnosed when they are seriously The urine test is important because people with ill with Diabetic Ketoacidosis (DKA). Our 4 Ts campaign diabetes are at increased risk of kidney problems, with hopes to change this. www.diabetes.org.uk/diabetesvoices 4 diabetes: Make the grade Margaret campaign to help support Church from children with Type 1 Caerphilly in diabetes so that they Wales has are happy and healthy been involved at school. in supporting All UK primary, middle, the campaign secondary schools and in the last sixth form colleges who few years. deliver great diabetes Why did you join Diabetes Voices? care are eligible for the award. In 2012, my 7-year-old granddaughter Elin became We’re calling on parents and carers, school staff and seriously ill and was admitted to hospital in Cardiff, paediatric diabetes clinicians who know a school that where she was diagnosed with Type 1 diabetes. Elin’s deserves the award to register the school online at diagnosis came as a shock for us. We soon had a lot www.diabetes.org.uk/school-award. Once to learn about Type 1, such as carbohydrate counting, registered, the school will be sent a nomination pack insulin injections and hypos.
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