A patient’s guide

Interstitial Lung Disease Service A patient’s guide

1 A patient’s guide

The Interstitial Lung Disease Following referral to the Service (ILD) looks after people ILD service patients maybe with a variety of lung diseases invited to attend the Day including: Ward for investigations which may include a CT scan, lung • Idiopathic function tests, six-minute walk (IPF) test, echocardiogram, blood • Sarcoidosis tests and a bronchoscopy to • Hypersensitivity Pneumonitis assess their lung disease. In (e.g. Bird fancier’s lung, addition, some patients may Farmer’s lung) require a surgical lung biopsy. • Non Specific Interstitial Individual cases are discussed Pneumonitis (NSIP) at the ILD multi-disciplinary team (MDT) meeting, which • Lung fibrosis or includes the Respiratory inflammation caused by Physicians, Specialist Nurse, medications, chemotherapy Pathologists and Radiologists, or radiation to formulate an appropriate • Lung fibrosis or management plan. This will inflammation related to be discussed with the patient rheumatological diseases when they next attend the (including Systemic Sclerosis, outpatient clinic. Rheumatoid Arthritis, SLE, ILDs vary with respect to Sjögren’s Syndrome) the severity of symptoms • Smoking induced ILD and prognosis. A proportion of patients do not need • Eosinophilic Pneumonia immediate treatment; they require careful monitoring of disease activity with lung function and six-minute walk tests. However, patients with more severe or progressive disease may be treated with anti-fibrotic therapies or immunosuppressive medications.

1 A patient’s guide

These treatments require Team Members frequent monitoring with Consultants lung function and blood tests. Dr Muhunthan Thillai (lead) We are also involved with Dr Helen Parfrey a number of clinical trials Dr Nicky Simler for which patients may be Dr Christine Fiddler suitable. Dr Caroline Patterson The ILD service is supported by physiotherapists and the Specialist Nurse Palliative and Supportive Tel: 01223 638018,or Care team. Some people will Switchboard 01223 benefit from the Pulmonary 638000, Bleep 346 (for urgent Rehabilitation exercise enquiries only) programme and others from Secretaries oxygen therapy. Frankie Clark All treatment plans will Tel: 01223 639793 be carefully discussed with Karen Cowell patients and their carers at Tel: 01223 639556 the clinic. However a team Sally-Anne Mead member can be contacted at Tel: 01223 638294 other times by phone, bleep or email as detailed opposite. Further Information https://royalpapworth.nhs. uk/our-services/respiratory- services/ild www.brit-thoracic.org.uk www.pulmonaryfibrosis.org.uk www.actionpulmonaryfibrosis. org www.blf.org.uk

2 Royal Papworth Hospital NHSA patient’sFoundation guide Trust Papworth Road Biomedical Campus Cambridge CB2 0AY Tel: 01223 638000 www.royalpapworth.nhs.uk A member of Cambridge University Health Partners

Author ID: Nurse Specialist Interstitial Lung Large print copies and Disease Department: Interstitial Lung Disease Service alternative language Re-printed: July 2019 versions can be made Review due: July 2021 Version: 5.1 available on request. Leaflet number: PI 80

© 2019 Royal Papworth Hospital NHS Foundation Trust