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Royal Free London NHS Foundation Trust Open Studies Royal Free London NHS Foundation Trust Open Studies R&D No Short Title Sponsor Organisation Principal Investigator EuroSIDA HIV/AIDS 10 year Eurpean cohort - European Virology co-ordinating 5162 Centre for Health and Infectious Disease Research Professor Clive Loveday centre (2000-2004) 5658 Fabry outcome survey [FOS] Shire Human Genetic Therapies UK Ltd Dr Derralynn Hughes 6339 Clinical pancreatic islet transplantation in patients with insulin dependent diabetes. The Royal Free Hospital Dr Martin Press Elucidating the pathogenesis of systemic sclerosis by studying skin, blood and 6398 Royal Free London NHS Foundation Trust Prof Carol M Black tissue samples from s Non-invasive prenatal diagnosis of haemophilia using free fetal DNA in maternal 6441 Royal Free London NHS Foundation Trust Miss Rezan A Abdul-Kadir plasma. British Regional Heart Study (BRHS). Strategies for the prevention of cardiovascular 6755 University College London Professor P Whincup disease in olde Database of patients with movement disorders and prospective collection and 6540 UCL Dr Anette Schrag storage of DNA samples. 6884 The Investigation of the cause and the mechanism of Immunodeficiency diseases. Royal Free London NHS Foundation Trust Prof Bodo Grimbacher Bilibaby- The Relationship Between Neonatal Scleral Tone and Serum Bilirubin 6899 UCL Dr Alastair. Sutcliffe Levels. 7190M Identification and molecular analyses of families with susceptibility to breast cancer. ICR Dr James Mackay The Gaucher Registry: an ongoing, observational database that tracks the natural 7266M Genzyme Corporation Professor Atul B Mehta history and outcome An observational study of HIV infected persons in the UK for whom the time of HIV 7324 MRC Regional Centre London Professor Margaret A Johnson seroconversion is Apples: A prospective paediatric longitudinal evaluation to assess the long term 7375 Astellas Pharma Europe Dr Mahreen Ameen; Dr Ian Pollock safety of tacrolimu 7379 PG-SNPS: The pharmacogenetics of early Breast Cancer chemotherapy Cambridge University Hospitals NHS Foundation Trus David Jones 7409 UK National Barrett's Oesophagus Registry UCL Dr Christine Caygill 7432 MRC SUPREMO Lothian Health Board Dr Sarah Needleman Prospective comparison of transient elastography (FibroScan) and transjugular liver 7435 Royal Free London NHS Foundation Trust Dr Emmanouil Tsochatzis biopsy ("gold st Fabry Registry; an ongoing, observational database that tracks the natural history 7437 Royal Free London NHS Foundation Trust Professor Atul B Mehta and outcomes of p Pompe Registry;an on going, observational database tracking the natural history 7438 Royal Free London NHS Foundation Trust Dr Derralynn Hughes and outcomes of pati BILCAP A randomised clinical trial evaluating adjuvant chemotherapy with 7488 University of Southampton Professor Tim Meyer capecitabine compared to ex National Registry of Babies, Infants and Children Under 5 Treated for Congenital 7534 UCL Paul David Griffiths Cytomegalovirus (CM Clinico-pathological correlation of liver histopathology, scoring systems and 7558 Royal Free London NHS Foundation Trust Professor A Paul Dhillon histochemistry, electr 7584 Carcinoid Heart Disease- Serotonin Receptor Analysis Royal Free London NHS Foundation Trust Dr Dimitiri P Mikhailidis 7592M TRANSBIL UCLH Research Governance Unit Dr James S Dooley TeloVac-A prospective, controlled, multicentre, randomised clinical trial comparing 7606M University of Liverpool Professor Tim Meyer combination Gemc An Open-Label extension trial of UT-15C SR in subjects with Pulmonary Arterial 7609M United Therapeutics Europe Ltd Dr Gerry J Coghlan Hypertension Surveillance for asymptomatic carriage of abnormal prions in primary 7615M University of Edinburgh Prof Bodo Grimbacher; Dr J Buckland immunodeficiency patients expos New EPOC: A prospective Randomised Open Label Trial of 7624M Southampton University Hospital NHS Trust Dr Astrid Mayer Oxaliplatin/Fluoropyrimidine versus Oxaliplat The Investigation of genetic disorders in families with immunodeficiencies across 7632 Royal Free London NHS Foundation Trust Prof Bodo Grimbacher clinical centres Predicting CD4 cell count slopes in HIV infected patients: the effects of virological 7639 Royal Free London NHS Foundation Trust Dr Anna Maria Geretti and immunologi Warfarin Anticoagulation for liver fibrosis in patients transplanted for Hepatitis C 7657M Imperial College London Professor Andrew K Burroughs virus infection Royal Free London NHS Foundation Trust Open Studies R&D No Short Title Sponsor Organisation Principal Investigator 7662 Peripheral Neuropathy in Alcohol Misusers: Prevalence, Nature and Natural History Royal Free London NHS Foundation Trust Dr Marsha Y Morgan 7664M AVAST-M Cambridge University Hospitals NHS Foundation Trus Dr Amna Sheri 7676M FOxTROT University of Birmingham Dr Astrid Mayer 7697M PIVOT Study MRC Professor Margaret A Johnson 7699 Healthy Control Samples Royal Free London NHS Foundation Trust Dr Matthew Buckland 7701M National Study of Colorectal Cancer Genetics The Institute of Cancer Research Dr Astrid Mayer Tumour Angiogenesis in Breast Cancer: Correlation between FDG PET, Contrast 7702M UCL Mr Daren Frances Enhanced MRI, CT and His 7704M PBC Genetics Study Addenbrooke's Hospital Dr Steve Mann; Dr Douglas Thorburn 7727 Identification of genes involved in renal and electrolyte disorders Royal Free London NHS Foundation Trust Prof Robert Kleta 7728M Predictive utility of DASIMAR as prognostic Biomarker in ACLF and ALF University College London Hospital Professor Raj Mookerjee; Professor Rajiv Jalan 7750 Capsule endoscopy vs OGD for dyspepsia Royal Free London NHS Foundation Trust Professor Owen Epstein 7758 Pilot Study to explore the role of acceptance in cancer rehabilitation UCL Dr Adrian J Tookman 7759 ET-RAs in Bowel Cancer Royal Free London NHS Foundation Trust Mr O A Ogunbiyi 7760 Prevalence of Anderson-Fabry Disease in at risk populations UCL Dr Derralynn Hughes 7769M MPSI Registry Genzyme Europe BV Dr Derralynn Hughes 7786M SCOT NHS Greater Glasgow and Clyde Dr Astrid Mayer 7788M Studies of EBV-associated NK/T-cell diseases & formation of a registry University of Birmingham Dr Kate Cwynarski 7791 Epigenetic and genetic studies of Neuroendocrine Tumours v1.0 Royal Free London NHS Foundation Trust Professor Martyn Caplin 7803 Efficacy of Micropulse Trabeculoplasty Royal Free London NHS Foundation Trust Mr Vikas Sharma 7810M STAMPEDE (version 1.0) -PR08 MRC Clincal Trials Unit Cancer Group Dr Maria Vilarino-Varela 7814M POETIC Royal Marsden NHS Trust Dr Jacqueline Newby 7832M Immunology bacteriology laryngitis Royal Free London NHS Foundation Trust Mr Martin Birchall 7836 AL chemo therapy study Alchemy Royal Free London NHS Foundation Trust Dr Julian Gillmore 7845 HIV Renal Study Pharmacy Department, Royal free Hospital Miss Esther Nyanganyi-Gathogo 7849M Cardio Vascular Disease in adult haemophilia patients STH Research & Department, STH research Department Dr Pratima Chowdary 7851M UK-PSC Addenbrooke's Hospital Dr Douglas Thorburn; Dr Steve Mann 7866M BADBIR The University of Manchester Dr Mahreen Ameen 7867M UKGPCS Institute of Cancer ResearchRoyal Cancer Hospital Dr Maria Vilarino-Varela; Dr Ursula McGovern 7868M WT1 TCR Gene therapy University College London Dr Emma C Morris 7879M A40001067 POEM Study Pfizer Inc Professor Margaret A Johnson 7883M IMPORT HIGH Cambridge Cancer Research Fund Dr Sarah Needleman 7886M Molecular genetic studies of familial movement disorders UCLH Research Governance Unit Mr John S Rubin 7888M Genetic investigation of inherited kidney Disease UCL Dr H Maxwell 7895M Haemophilia gene transfer St. Jude Children's Research Hospital Prof Amit Nathwani 7896M Biomedical and quality of life assessment in Type 1 Diabetes Newcastle upon Tyne NHS Trust Miranda Rosenthal 7914 Strategic Timing of AntiRetroviral Treatment (START) Regents of the University of Minnesota Professor Margaret A Johnson 7912 Post-marketing observational registry of Humira in Psoriasis patients ESPRIT Study AbbVie Inc. Dr Sandra McBride 7931 Fresh Frozen Plasma in Liver Disease Royal Free London NHS Foundation Trust Dr Pratima Chowdary European Trial of Free Light Chain Removal by Extended Haemodialysis in Cast 7943 University Hospitals Birmingham NHS Foundation Tru Dr Julian Gillmore Nephropathy (EuLITE) 7947 European Study Group for Pancreatic Cancer (ESPAC) - Trial 4 University of Liverpool Professor Tim Meyer 7950 SMART Database University College London Professor Chris Denton 7965 ELUCIDATE Liver Cirrhosis Study University of Leeds Dr Douglas Thorburn 7969 SHIFT University of Leeds Turan Huseyin; Dr Ameet Bakhai Royal Free London NHS Foundation Trust Open Studies R&D No Short Title Sponsor Organisation Principal Investigator 7981 Immunogenetics of Vasculitis v2 Ipswich Hospital Dr Mark Little 7989 Joints manifestations in Anderson-Fabry disease Cardiff University Dr Derralynn Hughes 7991 Pulmonary Substudy: A Substudy of START Regents of University of Minnesota Professor Margaret A Johnson 7995 Study of the aetiology and prodrome of parkinson's disease University of Liverpool Professor Anthony HV Schapira 7992 The Research Tissue Bank, university of Bradford University of Bradford Mrs Sandra Martin 7317 ESID Online patient and research Database UK Primary Immunodeficiency Network (UKPIN) Dr Matthew Buckland 8013 Immune Monitoring Study Royal Free London NHS Foundation Trust Professor H J Stauss 8018 Studies of peripheral nerve function Royal Free London NHS Foundation Trust Dr R W Orrell 8020 Models of Medical
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