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Goodbye Columbus, Hello National Harbor Winter 2015 | Volume 23, No. 1 Bringing CNS Members Together to Make Children’s Lives Better Goodbye Columbus, Hello National Harbor CNS sets its GPS for the Potomac October 7-10, 2015 CHILD NEUROLOGY SOCIETY From the President Jack (and Jill) Be Nimble… Like a Child Neurologist t seems those who deal with low In the coming year, we must make this truth incidence, high severity disorders, meaningful and operational, not just at the annual I whether as clinicians, researchers, CNS meeting, but throughout the days and weeks educators, legislators, or parents, must and months between meetings. We must bring develop the ability to roll with the the same passion and unity we brought to the punches. One never knows when a seizure proceedings in Columbus to our activities around the or an intercurrent illness or a medication U.S. and world on behalf of children and families and reaction will occur. You plan and plan and the workforce – present and future – charged with life always gets in the way. Perhaps it is caring for them. Our different approaches to a single, Nina F. Schor, MD, PhD this constant need to adapt and reprioritize focused agenda will magnify our impact and amplify that makes us, the child neurology our understanding. We must leave the divergence President, CNS community, so nimble. of our origins behind and dedicate ourselves to the convergence of our collective future. Only in this way Witness the success we all made of a CNS can we understand and conquer our common foes meeting in Columbus peppered with and ensure the developmental future of the children of potential obstructions, spur-of-the-moment our planet. imperatives, and co-temporal competing programming. Speaker unable to travel? When a cause hangs Wishing you and yours a happy, healthy, and The show must go on by SKYPE. Emerging productive New Year! in the balance, we clinical syndrome being studied by the are nimble and quick CDC starting a week before the meeting? Nina F. Schor, MD, PhD and together. How A session gets mobilized with three brief and why do we do it? e-mails. A challenge grant towards full Because we are a team endowment of the Philip R. Dodge Young CNS EXECUTIVE COMMITTEE... united by common Investigator Award is publicized one year mission, vision, and prior to the meeting? CNS members and partner organizations raise $100,000 purpose. We may call over that year to meet a challenge grant, ourselves CNS or CNF and the PRDYIA is endowed. Collectively, or ACNN or PCN or we rolled with the punches, rose to the SDBP, but when it challenges, and made it all happen. comes to bringing bio, psycho, and social all When a cause hangs in the balance, we are nimble and quick and act together. to bear on our patients How and why do we do it? Because we are and their families, a team united by common mission, vision, we are one. and purpose. We may call ourselves CNS or CNF or ACNN or PCN or SDBP, but when it comes to bringing bio, psycho, and social all to bear on our patients and Front Row (l-r): Drs. Kenneth Mack, Roger Packer, their families, we are one. Harvey Singer Back Row (l-r): Drs. Bruce Cohen, Nina Schor, Kara Lewis, Kevin Ess 2 Child Neurology Society | Winter 2015 CONTENTS WINTER 2015 Connecting with the Past Goodbye Columbus 6 WE MADE IT! FULLY ENDOWING THE DODGE AWARD 10 43RD CNS ANNUAL MEETING HIGHLIGHTS & PHOTO ALBUM Connecting with the Future Hello, National Harbor 20 Q&A: FUTURE OF THE NDC SYMPOSIUM 22 2015 PHILLIP R. DODGE YOUNG INVESTIGatOR AwaRD APPLICATION GUIDELINES 23 2015 CHILD NEUROLOGY FOUndatION departments RESEARCH GRANT GUIDELINES 2 from THE 24 ABSTRACT SUBMISSION GUIDELINES PRESIDENT 41 PERSONNEL Connecting with Colleagues REGISTRY 26 ReseaRCh – UNCOVERING THE MYSTERIES OF BRAIN MALFORMatIONS AND EPILEPSY THROUGH THE USE OF RESECTED HUMAN TISSUE CNS EXECUTIVE COMMITTEE... 28 2015 COMMITTEES AND CHARGES 34 CNS CONNECT WEBSITE Child Neurology Society Connecting with Partners 1000 West Cty Rd. E, Suite 290 St. Paul, MN 55126 36 PROFESSORS OF CHILD NEUROLOGY Tel: 651/486-9447 38 cHILD NEUROLOGY FOUndatION Fax: 651/486-9436 Email: nationaloffice@ 39 cHILD NEUROLOGY PROGRAM COORDInatORS childneurologysociety.org www.childneurologysociety.org 40 assOCIatION OF CHILD NEUROLOGY NURSES Editor: Daniel Bonthius, MD, PhD Managing Editor: Roger Larson, CAE Published Quarterly Child Neurology Society | Winter 2015 3 Columbus...Making History...and Having Fun Doing It Some people, looking ahead to CNS Annual Meetings For those who were there: enjoy yourself reliving overlooking the Potomac River outside Washington, DC (2015) a little of it by paging through this issue of CNS and the stunning harborside venue in Vancouver, BC (2016), Connections (or viewing an expanded slide show on may figure it will be hard to top those meetings for ambience the CNS website). For those who weren’t, take a and appeal. look at what you missed, then get ready to register on-line beginning in mid-June for this year’s 44th They may be right. CNS Annual Meeting outside Washington, DC. But for those who attended the 43rd Annual Meeting in Columbus last fall (966–the second highest attendance ever), it may be even harder to top Columbus as the consensus “best meeting ever.” We made history–meeting the PERF $100,000 challenge and making it to the $1 million funding milestone to fully endow the Philip R. Dodge Young Investigator Award. And we had fun doing it, doing what we do best: learning a lot from each other by day, and having a great time hanging out together at night. Post-meeting survey scores were the best ever turned in, with 60% of the more than 600 attendees responding giving the meeting an overall score of 5 (on a 1-5 scale; 5 being the top score). 2014 Annual Meeting photos by Suzanne Shaff Photography 4 Child Neurology Society | Winter 2015 Columbus...Making History...and Having Fun Doing It Thank You... In addition to thanking all those who contributed money to the Philip COMMITTEE MEMBERS: R. Dodge Young Investigator Award Endowment Fund, (pp 6-9), and Drs. Maria Acosta, Nigel Bamford, Elizabeth Berry-Kravis, those who serve on CNS Committees (pp 28-33), we would remiss Josh Bonkowsky, Keith Coffman, Anne Comi, William in not recognizing those CNS members who presented pro bono at Gaillard, Ed Gilmore, Christopher Giza, Adam Hartman, the 2014 annual meeting, foregoing honoraria, per diems, and even Neel Kamal, Yasmin Khakoo, Sookyong Koh, Rebecca registration fee waivers to generously share with their colleagues Lehman, Daniel Licht, Warren Lo, Laura Ment, John the best they had to offer in the planning and presentation of an Mytinger, Marc Patterson, Steven Pavlakis, Mustafa Sahin, outstanding line-up of seminars and symposia. Those for whom Nina Schor, Renee Shellhaas, Elliott Sherr, Peter Tsai, great thanks are due include the 2014 Scientific Program Planning Andrew Zimmerman. Committee, chaired by Jonathan Mink, MD, PhD, and the CNS members/speakers listed below: BREAKFAST SEMINARS Breakfast Seminar 6: SYMPOSIA Breakfast Seminar 1: Collaboration, Technology & Symposium I: Epilepsy Therapy Update Innovation in the Age of Health NDC Symposium – Neurobiology of Organizer: Renee Shellhaas, MD, MS Care Reform: The Updated Child Disease in Children: Autism Speakers: Sudha Kessler, MD; Katherine Neurology Encounter Guides Organizer: Dr. Bernard Maria Nickels, MD; Renee Shellhaas, MD, MS Organizer: Julie Sprague-McGrae, MS, RN, Speakers: Sarah Spence, MD, PhD; Roberto PPCNP-BC Tuchman, MD; Mustafa Sahin, MD, PhD; Breakfast Seminar 2: Speakers: Julie Sprague-McGrae, MS, RN, Deborah Hirtz, MD; Michael Johnston, Update on Leukodystrophies PPCNP-BC; Leslie Morrison, MD; Ruth MD; Marshalyn Yeargin-Allsopp, MD; Organizer: Adeline Vanderver, MD Rosenblum, DNP, MS, RN, PPCNP-BC Nancy Minshew, MD; Omar Khwaja, MD, Speakers: Adeline Vanderver, MD; Keith PhD Van Haren, MD; Marc Patterson, MD; Breakfast Seminar 7: Florian Eichler, MD The Buzz on Medical Marijuana Symposium II: Organizer: Kristen Park, MD Presidential Symposium: Breakfast Seminar 3: Speakers: Kelly Knupp, MD; Francis Plasticity & Learning in Neurodevelopmental Filloux, MD; Kristen Park, MD Recovery & Rehabilitation Examination using Telemedicine. from Brain Injuries The Neuro Exam in the Era of Breakfast Seminar 8: Organizer: Jonathan Mink, MD, PhD Mobile Devices Neuroimaging Update in TBI: Speakers: Stephen Back, MD, PhD Organizer: Deepa Menon, MBBS Clinical Perspectives & Speakers: Paul Lipkin, MD; Deepa Menon, Research Advances Symposium III: Genetics & MBBS; Erika Augustine, MD Organizer: Carolyn Pizoli, MD, PhD Biology of Early Life Epilepsies Speakers: Stephen Ashwal, MD; Carolyn Organizer: Alexander Paciorkowski, MD Breakfast Seminar 4: Pizoli, MD, PhD Speakers: Alexander Paciorkowski, MD; A to ZZZZ’s: CNS Hypersomnia Annapurna Poduri, MD, MPH Conditions in Children Breakfast Seminar 9: Organizer: Kiran Maski, MD Neuro-Autoimmune Frontiers: Symposium IV: Speakers: Kiran Maski, MD; Anti NMDAR Encephalitis & Non-Progressive Cerebellar Ataxia: Shelly Weiss, MD, FRCPC; Suresh Kotagal, Related Conditions Practical Pearls MD Organizer: Jay Selman, MS, MD Organizer: Michael Salman, MRCP, PhD Speakers: Jay Selman, MS, MD; Mark Speakers: Michael Salman, MRCP, PhD; Breakfast Seminar 5: Gorman, MD Peter Tsai, MD, PhD; Andrea Poretti, MD; The Neurological Sciences Academic Grace Yoon, MD, FRCPC, FCCMG Developmental Award: The NINDS Physician-Scientist Career Symposium V: Development Award for Pediatric Meeting Podcasts Code Stroke Organizer: Catherine Neurology Thanks also to the following expert Amlie-Lefond, MD Moderator: Organizer: Bradley Schlaggar, MD, PhD analysts for providing on-the-spot Gabrielle deVeber, MD, MSC Speakers: podcast summaries of annual meeting Speakers: Timothy Bernard, MD; Michael Chris Elitt, MD, PhD; Zachary Grinspan, sessions: Drs. Barry Kosofsky, Kara Lewis, Rivkin, MD; Catherine Amlie-Lefond, MD; Tanjala Gipson, MD; Elizabeth Wells, Jayne Ness, Colette Parker, MD; Michael Dowling, MD, PhD MD; Jen McGuire, MD; Laurie Seltzer, DO; Elliot Sherr, and Mark Wainwright.
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