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Casey House Annual Report 2007-2008 EVERY PERSON WHO DIES at CASEY HOUSE IS REMEMBERED with LOVE, REGARDLESS of HIS OR HER SOCIAL OR FAMILY CIRCUMSTANCES

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Casey House Annual Report 2007-2008 EVERY PERSON WHO DIES at CASEY HOUSE IS REMEMBERED with LOVE, REGARDLESS of HIS OR HER SOCIAL OR FAMILY CIRCUMSTANCES Casey House Annual Report 2007-2008 EVERY PERSON WHO DIES AT CASEY HOUSE IS REMEMBERED WITH LOVE, REGARDLESS OF HIS OR HER SOCIAL OR FAMILY CIRCUMSTANCES. THE MEMORIAL QUILTS DISPLAYED THROUGHOUT CASEY HOUSE RECORD EVERY LIFE LOST, THOUGH SOME NAMES MAY BE VEILED. THEY WILL NOT BE FORGOTTEN. 1988-2008 Mission Casey House provides exemplary treatment, support and palliative care for people affected by HIV/AIDS, in collaboration with our communities. 1988 CASEY HOUSE IS FOUNDED AS THE FIRST FREE-STANDING HIV/AIDS HOSPICE IN CANADA, AND ONE OF THE FIRST IN THE WORLD. Message from Jaime Watt 4 This is the third, and final time, I had the privilege of Directors an enormous debt of gratitude. Volunteer reporting to you on behalf of your Board of Directors. leaders all, they have–to a person–demonstrated In doing so, let me start by saying how enormously courage; appropriate, intellectual skepticism; proud I am of the House and the strong position and focused, principled leadership. They we are in. have given unstintingly of their time and considerable experience and Casey House Over the last few years, we have rebuilt the governance is the better for it. of our organization, aligning ourselves with best practices in the process. We have recruited and In closing, there are many to thank. Our installed a new senior management team with the CEO, Stephanie Karapita who quickly talent and resources to lead us forward. We have demonstrated an astonishing mastery of recruited and installed a new clinical team with the what Casey House is all about. Each and expertise to ensure we are at the forefront of caring every member of our staff for whom, I have for our clients. Our balance sheet is solid. All our often said, caring is both a calling and a commitments to our primary funders, the Ministry vocation. Those amazing volunteers who make of Health and Long Term Care and Toronto Central Casey House the special place that it is. And LHIN, are met. And, our Foundation raised more finally, our clients, who truly are the heart of Tcore revenue than ever before. We have worked our place and who give us more than we hard to ensure Casey House will be able to continue could ever hope to give them. to provide a new standard of care for those living with HIV/AIDS everyday. And while rewarding, it has not been easy work. For that, I owe my colleagues on the Board of Jaime Watt, Chair, Board of Directors CASEY HOUSE BOARD EX OFFICIO Jaime Watt Brenda Butters Mike R. McKeon Stephanie Karapita Dr. Ann Stewart Chair Chief Executive Officer Medical Director Dr. Abbas Ghavam-Rassoul E. Llana Nakonechny Sandra Cruickshanks SMH Representative Dr. Kevin Gough David Gilmer Tevya (Teddy) Rosenberg Vice-Chair Interim Medical Director Chief Development Officer Jason Grier Kenneth King Courtland Thomson Michael Griffiths Secretary Timothy Thompson Tish Belza Guy Knowles SMH Representative Message from Stephanie Karapita 5 This 20th anniversary edition of the Annual Report outstanding leadership, his sage advice and his highlights the Casey House memorial quilts. Like passionate commitment to our cause. He is a man Casey House itself, the quilts are a labour of love. with an enormous heart and has given generously Over the years, a group of volunteers has spent time of his time. stitching together a quilt each year to pay tribute to those who have passed away and to allow the Casey Thank you to our highly skilled Board of Directors for House community an occasion for reflection. These the time they volunteer and for their leadership. quilts tell our story. We are very fortunate this year to put in place a As we mark the 20th anniversary of Casey House, the talented new senior team to deliver on our new lasting tribute to the founders is the love that still plans and give leadership to our programs and permeates the house today–all made possible by the service delivery. exceptional care provided through the years by our wonderful staff and volunteers. I feel very proud to Casey House remains the warm, welcoming place our be part of the Casey House team. founders meant it to be. I very much enjoy opportunities to show people through the house and tell the touching This year, our team has been focused on delivering stories behind the quilts, each adorned with hearts. Ton our newly approved strategic plan. Tremendous progress is being made with respect to planning for a Giving compassion a home, Casey House. day health program, developing a harm reduction policy and establishing a quality program. We remain committed to excellence in HIV/AIDS health care to meet the changing needs of people with HIV/AIDS. At this year’s annual meeting Jaime Watt will step Stephanie Karapita, down as Chair of the Board of Directors. On behalf Chief Executive Officer of Casey House we want to thank him for his 6 CASEY HOUSE Reflection It wasn’t supposed to be this way. Casey House was never meant to still be helping people live and die with HIV/AIDS 20 years later. But we find ourselves here just the same. Marking a bittersweet occasion with a sense of great accomplishment and pride in all that we have done. 7 Although sometimes expressed as a cliché, we are so incredibly lucky to truly stand on the shoulders of giants. To have benefited from what they have In some ways, we’re in the same place we were 20 taught us and for the opportunity to share in the years ago, looking at a future that remains uncertain. profound experience of helping people to die, as We are just beginning to imagine what the long-term well as the magnificence of helping people to live. needs of people with HIV/AIDS will be. How aging and the long-term impact of years of pharmacological From our courageous and visionary founders, to our regimes will affect our clients. staff and volunteers who give their labour and their Ihearts, to those who generously provide us with When Casey House was founded, we eased dying. necessary financial resources, to our leaders who Today, the vast majority of our work is helping people 1988-2008 ensure that Casey House continues to evolve, we are to live. With that change has come our vision for IN 1988, CASEY HOUSE PROVIDED all unified in working, every day, to provide a new our future. ONLY END OF LIFE, PALLIATIVE CARE. standard of care for people living with HIV/AIDS. IN TWO DECADES OF SERVICE, MORE Our work will continue in a way that is utterly faithful THAN 900 CASEY HOUSE CLIENTS And so, 20 years on, we pause, reflect and to the values of our founders, but adapted so as HAVE DIED. CURRENTLY, 85 PERCENT give thanks for the strong foundation on which to be appropriate for today’s cultural context, for OF OUR CLIENTS ARE DISCHARGED Casey House rests today. today’s clinical context, and for the needs of our HOME, TO THE COMMUNITY OR TO clients as our future unfolds. In that way, our past LONG-TERM CARE. truly is our prologue. ANNUAL REPORT 2007-2008 If a bout of depression comes on, respite gives you a time out to reset and try to get back into gear so you can come back home and continue. That’s a lot of what I need it for, as well as all the medical conditions Being positive that come up that you can’t handle at home. Without Casey House, I’d be going through the hospital procedure, spending a week waiting in emergency. At Casey House the staff are friendly, they’re I was diagnosed in 1986. I was working with heavy compassionate, you can be yourself. Whether metal machinery at a plant near the airport. My you’re gay, straight, bi, transgendered, whatever… “friend told me when he found out, then I went there’s no judging. 8 and got tested. They give you as much independence as you can I couldn’t come out at work. We’d organized a deal with. Like when I broke my leg, I could get a union and we’d just succeeded in getting our first volunteer to help me get to the coffee shop, or go contract. That’s when I found out. To have AIDS, on my own if I could manage it physically. And I did with the stigma associated with it–it was all over that many times, even in the middle of winter in my the news, things were really bad. So it forced my wheelchair. I was just determined. In a hospital, they hand. I had to send a resignation letter and walk would have stopped me. For the type of person I away from long-term disability benefits, because if am, I need to have that freedom, and yet still feel I revealed to them, it would be all over. It set me safe and secure and know that I’m working on off into a major depression. what I need to work on. My friend and I, we’ve been together for 24 years – Todd ” now. We’re there for each other. When things get Ireally bad, that’s when we draw on our other supports and Casey House is a big part of that–like my recent stay, coming off morphine and doing two weeks of respite, to give him time to rest. 1992 CASEY HOUSE LAUNCHED COMMUNITY PROGRAMS IN RESPONSE TO GROWING NEED FOR CARE. CASEY HOUSE 9 INSPIRE ANNUAL REPORT 2007-2008 10 REMEMBER CASEY HOUSE 1998 CASEY HOUSE ENHANCES SUPPORTIVE HOME CARE PROGRAMS FOR PEOPLE LIVING WITH HIV/AIDS, THANKS IN PART TO THE SUCCESS OF ANTIRETROVIRAL DRUGS INTRODUCED IN 1995.
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