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Using Technology to Advance Global Health: Proceedings of a Workshop
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USING TECHNOLOGY TO ADVANCE GLOBAL HEALTH
PROCEEDINGS OF A WORKSHOP
Rachel M. Taylor and Joe Alper, Rapporteurs
Forum on Public—Private Partnerships for Global Health and Safety
Board on Global Health
Health and Medicine Division
Copyright National Academy of Sciences. All rights reserved. Using Technology to Advance Global Health: Proceedings of a Workshop
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This project was supported by Anheuser-Busch InBev; Becton, Dickinson and Company; Bill & Melinda Gates Foundation; Catholic Health Association of the United States; ExxonMobil; Fogarty International Center of the National Institutes of Health; General Electric; Global Health Innovative Technology Fund; Intel Corporation; Johnson & Johnson; Medtronic; Merck; Novartis Foundation; PATH; PepsiCo; Procter & Gamble Co.; The Rockefeller Foundation; Safaricom; United Nations Foundation; University of Notre Dame; UPS Foundation; U.S. Agency for International Development; U.S. Department of Health and Human Services Office of Global Affairs; U.S. Department of State; U.S. Food and Drug Admin- istration; Verizon Foundation; and The Vitality Group. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.
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Suggested citation: National Academies of Sciences, Engineering, and Medicine. 2018. Using technology to advance global health: Proceedings of a workshop. Washington, DC: The National Academies Press. doi: https://doi.org/10.17226/24882.
Copyright National Academy of Sciences. All rights reserved. Using Technology to Advance Global Health: Proceedings of a Workshop
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PLANNING COMMITTEE ON USING TECHNOLOGY TO ADVANCE GLOBAL HEALTH1
ANN AERTS (Co-Chair), Head, Novartis Foundation ELAINE GIBBONS (Co-Chair), Executive Director, Global Corporate Engagement, PATH ROBERT BOLLINGER, Professor of Infectious Diseases, Johns Hopkins University School of Medicine REZA JAFARI, Chairman and Chief Executive Officer, e-Development International ANNA THOMPSON-QUAYE, Senior Director Business Development & Strategic Partnerships, access.mobile International
1 The National Academies of Sciences, Engineering, and Medicine’s planning commit- tees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for this published Proceedings of a Workshop rests with the workshop rapporteurs and the institution.
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Copyright National Academy of Sciences. All rights reserved. Using Technology to Advance Global Health: Proceedings of a Workshop
FORUM ON PUBLIC–PRIVATE PARTNERSHIPS FOR GLOBAL HEALTH AND SAFETY1
JO IVEY BOUFFORD (Co-Chair), President, The New York Academy of Medicine CLARION JOHNSON (Co-Chair), Private consultant, ExxonMobil ANN AERTS, Head, Novartis Foundation SIR GEORGE ALLEYNE, Director Emeritus, Pan American Health Organization; Chancellor, University of the West Indies RAJESH ANANDAN, Senior Vice President, Strategic Partnerships and UNICEF Ventures, U.S. Fund for UNICEF NATASHA BILIMORIA, Director, U.S. Strategy, Gavi, the Vaccine Alliance DEBORAH L. BIRX, U.S. Global AIDS Coordinator and U.S. Special Representative for Global Health Diplomacy, U.S. Department of State, U.S. President’s Emergency Plan for AIDS Relief (PEPFAR) SIMON BLAND, Director, New York Liaison Office, UNAIDS ROBERT BOLLINGER, Professor of Infectious Diseases, Johns Hopkins University School of Medicine STEPHEN CHEGE, Director, Corporate Affairs, Safaricom GARY M. COHEN, Executive Vice President and President, Global Health and Development, Becton, Dickinson and Company (until February 2018) BRENDA D. COLATRELLA, Executive Director, Corporate Responsibility, Merck; President, Merck Foundation BRUCE COMPTON, Senior Director of International Outreach, Catholic Health Association of the United States PATRICIA DALY, Associate Vice President, Global Health, Save the Children KATE DODSON, Vice President for Global Health Strategy, United Nations Foundation JENNIFER ESPOSITO, Worldwide General Manager, Health and Life Sciences, Intel Corporation RENUKA GADDE, Vice President, Global Health, Becton, Dickinson and Company ELAINE GIBBONS, Executive Director, Global Corporate Engagement, PATH ROGER GLASS, Director, Fogarty International Center
1 The National Academies of Sciences, Engineering, and Medicine’s forums and round tables do not issue, review, or approve individual documents. The responsibility for this pub- lished Proceedings of a Workshop rests with the workshop rapporteurs and the institution.
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Copyright National Academy of Sciences. All rights reserved. Using Technology to Advance Global Health: Proceedings of a Workshop
DANIELLE GREENBERG, Senior Director, Global R&D; Senior Fellow, Nutrition Sciences, PepsiCo RICHARD GUERRANT, Thomas H. Hunter Professor of International Medicine, University of Virginia TREVOR GUNN, Vice President, International Relations, Medtronic JESSICA HERZSTEIN, Consultant, U.S. Preventive Services Task Force BEN HOFFMAN, Chief Medical Officer, GE Energy A. REZA JAFARI, Chairman and Chief Executive Officer, e-Development International JAMES JONES, Manager, Community Investment Programs, ExxonMobil ALLISON TUMMON KAMPHUIS, Leader, Children’s Safe Drinking Water Program, Social Sustainability, Procter & Gamble Co. ROSE STUCKEY KIRK, President, Verizon Foundation SEEMA KUMAR, Vice President, Innovation, Global Health & Science Policy Communication, Johnson & Johnson MARISSA LEFFLER, Center for Accelerating Innovation and Impact, U.S. Agency for International Development EDUARDO MARTINEZ, President, UPS Foundation JOHN MONAHAN, Senior Advisor to the President, Georgetown University MICHAEL MYERS, Managing Director, The Rockefeller Foundation ANDRIN OSWALD, Director, Life Sciences Partnerships, Bill & Melinda Gates Foundation REGINA RABINOVICH, ExxonMobil Malaria Scholar in Residence, Harvard T.H. Chan School of Public Health SCOTT C. RATZAN, President, Anheuser-Busch InBev Foundation B. T. SLINGSBY, Chief Executive Officer and Executive Director, Global Health Innovative Technology Fund KATHERINE TAYLOR, Associate Director and Director of Global Health Training, Eck Institute for Global Health, University of Notre Dame MARY LOU VALDEZ, Associate Commissioner for International Programs, Director, Office of International Programs, U.S. Food and Drug Administration DEREK YACH, Chief Health Officer, The Vitality Group (until September 2017) TADATAKA “TACHI” YAMADA, Venture Partner, Frazier Healthcare Partners
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Health and Medicine Division Staff RACHEL TAYLOR, Senior Program Officer and Forum Director PRIYANKA NALAMADA, Research Associate KATHERINE PEREZ, Senior Program Assistant DANIEL CESNALIS, Financial Associate JULIE PAVLIN, Director, Board on Global Health
Consultant JOE ALPER, Science Writer
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Reviewers
This Proceedings of a Workshop was reviewed in draft form by indi- viduals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the National Academies of Sciences, Engineer- ing, and Medicine in making each published proceedings as sound as possible and to ensure that it meets the institutional standards for quality, objectivity, evidence, and responsiveness to the charge. The review com- ments and draft manuscript remain confidential to protect the integrity of the process. We thank the following individuals for their review of this proceedings:
MAGNUS MORDU CONTEH, World Vision International ALAIN LABRIQUE, Johns Hopkins Bloomberg School of Public Health ALICE LIU, mPowering Frontline Health Workers
Although the reviewers listed above provided many constructive comments and suggestions, they were not asked to endorse the content of the proceedings nor did they see the final draft before its release. The review of this proceedings was overseen by GARRETT MEHL, World Health Organization. He was responsible for making certain that an independent examination of this proceedings was carried out in accor- dance with standards of the National Academies and that all review com- ments were carefully considered. Responsibility for the final content rests entirely with the rapporteurs and the National Academies.
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Acknowledgments
A number of individuals contributed to the development of this workshop and proceedings. These include a number of staff members from the Health and Medicine Division and the National Academies of Sciences, Engineering, and Medicine: Daniel Cesnalis, Faye Hillman, Sarah Kelley, Priyanka Nalamada, Julie Pavlin, Katherine Perez, Bettina Ritter, and Rachel Taylor. The planning committee contributed several hours of service to develop and execute the agenda. Reviewers also pro- vided thoughtful remarks in reading the draft manuscript. The overall successful functioning of the Forum on Public–Private Partnerships for Global Health and Safety (PPP Forum) and its activities depends on the generosity of its sponsors. Financial support for the PPP Forum is provided by Anheuser-Busch InBev; Becton, Dickinson and Company; Bill & Melinda Gates Foundation; Catholic Health Association of the United States; ExxonMobil; Fogarty International Center of the National Institutes of Health; General Electric; Global Health Innova- tive Technology Fund; Intel Corporation; Johnson & Johnson; Medtronic; Merck; Novartis Foundation; PATH; PepsiCo; Procter & Gamble Co.; The Rockefeller Foundation; Safaricom; United Nations Foundation; Univer- sity of Notre Dame; UPS Foundation; U.S. Agency for International Devel- opment; U.S. Department of Health and Human Services Office of Global Affairs; U.S. Department of State; U.S. Food and Drug Administration; Verizon Foundation; and The Vitality Group.
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Contents
ACRONYMS AND ABBREVIATIONS xv
1 INTRODUCTION 1 The Role of Digital Health, 2 Organization of the Proceedings, 5
2 DIGITAL HEALTH WITHIN THE CURRENT GLOBAL CONTEXT 7 Open Discussion, 12
3 ENABLING A MULTIDISCIPLINARY APPROACH TO HEALTH 17 Multidisciplinary Business Models for Digital Health, 18 World Café Discussions, 22
4 COUNTRY-LEVEL DIGITAL HEALTH STRATEGIES 25 Engaging Digital “Teenager” Companies in Global Health, 26 PATH’s Digital Health Initiative, 29 Implementing a National eHealth Strategy in Nigeria, 31 Asia eHealth Information Network, 32 Potential Opportunities to Achieve Scale, 34 Discussion, 35
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xvi CONTENTS
5 PUSH VERSUS PULL AT THE COMMUNITY LEVEL 39 Social Mobile Media to Connect, Train, Manage, and Empower Health Workers, 41 Value Proposition for Pulling Data from the Community, 43 Bottom-Up Innovation to Improve Patient Engagement, 48 Discussion, 49
6 TAPPING INTO GRASSROOTS INITIATIVES AND ENTREPRENEURS 53
7 FINAL THOUGHTS 57
APPENDIXES A References 59 B Workshop Agenda 61 C Speaker and Moderator Biographical Sketches 69
BOX AND FIGURES
BOX 1-1 Statement of Task, 4
FIGURES 2-1 The cascade of health interventions for any disease, 9 2-2 IT opportunities for health interventions for any disease, 9
4-1 Trends in malaria case reporting in southern Zambia over several rainy seasons, 28
5-1 Graphic illustration of recommendations to improve the use of digital information to advance global health, 47
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Acronyms and Abbreviations
AeHIN Asia eHealth Information Network
BMGF Bill & Melinda Gates Foundation
CDC U.S. Centers for Disease Control and Prevention
DALY disability-adjusted life year DHIS District Health Information Software
ECAP Ebola Community Action Platform EHR electronic health record
FDA U.S. Food and Drug Administration
ICT information and communication technology IT information technology ITU International Telecommunication Union
LMIC low- and middle-income country
mHealth mobile health
PAHO Pan American Health Organization PPP public–private partnership
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xviii ACRONYMS AND ABBREVIATIONS
SDG Sustainable Development Goal
UK United Kingdom UN United Nations USAID U.S. Agency for International Development
WHO World Health Organization
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1
Introduction1
Current global health priorities, such as the targets of the United Nations (UN) Sustainable Development Goals (SDGs), are ambitious. Setting an agenda for the next 15 years, targets have been established to drastically reduce maternal mortality and premature mortality from non- communicable diseases; end the epidemics of AIDS, tuberculosis, malaria, and neglected tropical diseases; achieve universal health coverage; and ensure universal access to sexual and reproductive health care services, among others. While vast improvements have been made in global health in the past decades, the health challenges that weigh disproportionately on low- and middle-income countries (LMICs) continue to stand as a barrier to achieving poverty reduction and economic prosperity. Meeting these ambitious targets calls for innovative approaches. In this regard the global health community has recognized the value of digital technol- ogy as a transformational tool to accelerate progress in improving global health outcomes. Digital solutions can increase progress toward better health outcomes in LMICs through speed and reach, while increasing access to goods and services in a more people-centric, affordable, and sustainable way, said
1 The planning committee’s role was limited to planning the workshop, and this Proceed- ings of a Workshop was prepared by the workshop rapporteurs as a factual summary of what occurred at the workshop. Statements, recommendations, and opinions expressed are those of individual presenters and participants, and are not necessarily endorsed or verified by the National Academies of Sciences, Engineering, and Medicine, and they should not be construed as reflecting any group consensus.
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2 USING TECHNOLOGY TO ADVANCE GLOBAL HEALTH
Ann Aerts of the Novartis Foundation in her introductory remarks. She noted that digital technologies can also increase the quality of care in LMICs by centralizing expertise and coaching less-skilled health workers by phone, for example. Additionally, digital technologies can reduce inef- ficiencies by reducing unnecessary referrals to hospitals. As an example of the latter, she explained how a physician or trained nurse could coach a community health worker on how to assist a mother in labor instead of sending her on a 9-hour journey over bumpy roads to the hospital to deliver her child. “I am passionate about digital health not only because it is expanding access,” said Aerts, “but you can put power in the hands of patients themselves. You can empower patients to take more responsibil- ity in the management of their own health.” She added that digital health can empower providers too by supporting them with clinical decision support and remote learning for continuous education. Digital solutions that contribute to the social, economic, and envi- ronmental dimensions of sustainable development can provide attrac- tive business opportunities. Companies in the health and technology sector have core competencies that can be leveraged and the prospect of the value creation for investing in digital health may create incentives for multisectoral involvement. Additionally, both the public and private sectors can find value in developing partnerships with a digital health focus. Public–private partnerships (PPPs) have the potential to promote a multidisciplinary approach to developing solutions, which is ultimately beneficial to all partners and the countries in which they operate. How- ever, as several workshop speakers emphasized, understanding the incen- tives, priorities, expectations, and core competencies of each stakeholder is essential for identifying effective solutions.
THE ROLE OF DIGITAL HEALTH Digital health, Aerts explained, encompasses all concepts and activi- ties at the intersection of health and information and communication technology (ICT), including mobile health (mHealth), health information technology (IT), health information systems, wearable devices, telehealth, and telemedicine. The three main areas of digital health include the deliv- ery of health information to health professionals and health consumers through the Internet and telecommunications; using ICTs to improve public health services, such as through education and training of health workers; and using health information systems to capture, store, manage, or transmit information on patient health or health facility activities. Applications of digital health are being used to reduce inefficiencies, improve access, reduce costs, increase quality, and personalize care (FDA, 2017). However, despite the growth of the digital health sector, communi-
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INTRODUCTION 3
ties in LMICs often miss out on the benefits of digital health’s potential (Lancet, 2012). LMICs continue to face a fragmented digital health land- scape in which multiple public and private actors and agencies with varied technologies and interests are working separately and with over- lap (Broadband Commission for Sustainable Development, 2017). Other factors that may lead to this fragmentation include a lack of common standards for digital health technologies and limited human resources in many LMICs to manage the technology infrastructure and use the data this infrastructure can generate (WHO, 2010a). In this fragmented landscape, scaling of promising digital health solutions is often impeded by a lack of coordinated funding aligned with government priorities; limited regional leadership and peer support; and a lack of low-cost, easily reused, and adapted technologies such as those built with open source software. As several speakers emphasized throughout the workshop, developing digital health-focused PPPs based on government- and community-identified priorities can help connect the dots among the many stakeholders within the digital health landscape, foster coordination and integration, engage both public and private sec- tor stakeholders in tackling existing challenges, and increase the potential for impact. To explore how the use of technology can facilitate progress toward globally recognized health priorities, including the SDGs, the Forum on Public–Private Partnerships for Global Health and Safety (PPP Forum) created an ad hoc committee to plan a workshop with the following objec- tives (see Box 1-1)2:
• Identify and explore the major challenges and opportunities for developing and implementing digital health strategies within the global, country, and local context. • Frame the case for cross-sector and cross-industry collaboration, engagement, and investment in digital health strategies. • Discuss how health and the health sector can drive other sectors to adopt digital technologies as a common platform. • Identify the ecosystem of actors necessary for successful digital health strategies, and country- and local-level solutions for mov- ing forward.
2 The PPP Forum was launched in late 2013 with the objective to foster a collaborative community of multisectoral health and safety leaders to leverage the strengths of multiple sectors and disciplines to yield benefits for global health and safety. PPP Forum workshops are an opportunity to share lessons learned and promising approaches, and to discuss how to improve future efforts in areas of global health and safety promotion that have been prioritized by forum members.
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4 USING TECHNOLOGY TO ADVANCE GLOBAL HEALTH
BOX 1-1 Statement of Task
An ad-hoc committee will be appointed to plan a public workshop to explore the use of technology to advance global health, particularly how technology can fa- cilitate progress toward globally recognized health priorities including the ambitious targets of the Sustainable Development Goals (SDGs). Focusing on opportunities for technologies—including products, systems, and services—to advance and accelerate global health priorities, the workshop will feature invited presentations and discussions to examine the following:
• Current efforts to increase investments in, development of, and access to global health technologies and technology-based interventions; • Decision making for when to use or develop technologies and what are appropriate technologies, including engaging governments and commu- nities in prioritizing, designing, and evaluating global health technologies and technology-based interventions; • Learning from other sectors to better understand how to incentivize higher levels of participation for development and scaling of global health tech- nologies and technology-based interventions, including how challenges have been managed; • Approaching cost-effectiveness assessments for global health technolo- gies and technology-based interventions; • Addressing privacy, ethics, and security concerns with data collection and data sharing; • Ensuring technologies are accessible to those who need them the most, meaning “the last mile” populations; and • How policy and regulatory frameworks can function as enablers in the development and deployment of technologies.
The committee will develop the workshop agenda, select and invite speakers and discussants, and moderate the discussions. Experts will be drawn from the public and private sectors as well as academic institutions to allow for multilateral, evidence-based discussions. A summary of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
To provide some additional context for the workshop, Aerts briefly described the findings of a study conducted by the Broadband Commis- sion for Sustainable Development’s digital health working group. The subsequent report (Broadband Commission for Sustainable Development, 2017), developed from case studies of eight countries at different stages of development or implementation of their digital health strategies, out- lined three key success factors. The first is the need for visionary and
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INTRODUCTION 5
committed government leadership to formulate a strategy and secure sustainable funding for implementation. The second factor is to have effective governance mechanisms that engage stakeholders with clearly defined roles and help ensure efficient decision making on a national digital health strategy. The third key to success is a national ICT frame- work that facilitates alignment between the health and ICT sectors. Such alignment can promote connectivity and interoperability, help establish common standards, and enable appropriate policies and regulations for digital health. The study also found that the eight countries applied one of three different governance mechanisms for digital health: a health ministry mechanism, a government-wide digital agency mechanism, or a dedicated digital health agency mechanism. Concluding her remarks, Aerts posed four questions for the work- shop participants to consider over the course of the day:
1. How can we make digital health into a transformative tool, one that improves health and increases equity and economic development? 2. How can we encourage innovation across the spectrum, with regard to systems, services, and partnerships? 3. How can digital technology be leveraged to address the most pressing global health challenges in a multidisciplinary manner? 4. What is needed to ensure we can proceed to scale?
ORGANIZATION OF THE PROCEEDINGS An independent planning committee organized this workshop in accordance with the procedures of the National Academies of Sciences, Engineering, and Medicine. (See Appendix B for the agenda.) This pub- lication summarizes the workshop’s presentations and discussions, and it highlights important lessons, practical strategies, and opportunities for using digital technologies and developing partnerships to advance global health. The content of the proceedings is limited to what was presented and discussed at the workshop and does not constitute a full or exhaus- tive overview of the field. In accordance with the policies of the National Academies, the work- shop did not attempt to establish any conclusions or recommendations, focusing instead on issues identified by the speakers and workshop par- ticipants. The workshop proceedings was prepared by designated rap- porteurs as a factual summary of what occurred at the workshop.
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2
Digital Health Within the Current Global Context
Highlights and Main Points Made by Individual Speakers and Participants • Preventing, diagnosing, reporting, and responding to disease are the standard approaches to reducing the costs of disease in terms of lives, disability-adjusted life years, and resources. Innovations in information and communication technologies (ICTs) can reduce those costs. (Bollinger) • While there are many pilot programs demonstrating that ICTs can lower costs and increase the effectiveness of disease responses, the challenge remains to integrate the many avail- able technologies to maximize those effects and do so at scale. (Bollinger) • National digital health strategies can improve public health planning, prevention, and service delivery capacity, as well as break down silos across government agencies. (Gaudry- Perkins, Herbosa, Novillo Ortiz) • National digital health strategies enable scaling and harmo- nizing digital health as they aid in setting frameworks for data interoperability, harmonization, and to build the appro- priate laws to govern digital health. (Gaudry-Perkins)
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8 USING TECHNOLOGY TO ADVANCE GLOBAL HEALTH
• Deploying digital technologies in the health care sector must include partnerships with those who can either comple- ment those solutions or provide valuable insights from their experiences. (Gaudry-Perkins) • In the early days of digital health technologies, there were many ingenious mobile health (mHealth) and telehealth strat- egies, but no framework for coordinating these approaches in a way that would stimulate development. (Herbosa) • It is important to involve all possible stakeholders when plan- ning to scale and to identify what will create value for each stakeholder. (Herbosa) • A lack of laws and a national framework for digital health will cause even the largest public–private partnerships to falter. (Gaudry-Perkins) • Generating evidence of effectiveness and return on invest- ment will be the keys to creating sustaining funding streams for ICT solutions. (Gaudry-Perkins)
The workshop’s opening session introduced multisectoral perspec- tives on key themes and considerations in digital health. Ted Herbosa of the University of the Philippines, Florence Gaudry-Perkins of Digital Health Partnerships, David Novillo Ortiz from the Pan American Health Organization (PAHO), and Robert Bollinger of the Johns Hopkins Uni- versity School of Medicine discussed challenges and opportunities in developing and implementing digital health strategies, the role of differ- ent stakeholders, incentives and drivers to adopt digital technologies, and solutions to move forward. Bollinger set the stage for the discussion by describing the value of digital technology through a public health approach. In public health, regardless of a specific disease or condition, over time, inaction will lead to an increase in costs in terms of lives, disability-adjusted life years (DALYs), and resources. Public health interventions, or actions, focus on preventing, diagnosing, reporting, and/or responding to the disease or condition with the goal of reducing those costs (see Figure 2-1). Innova- tions in digital technology, whether infrastructure improvements, mobile health, point-of-need diagnostics, big data analytics, and others, when applied to public health interventions, can accelerate or magnify shifts in any of the associated cost curves (see Figure 2-2). As an example, Bollinger noted that GPS-linked, just-in-time allocation of resources could produce an earlier and more effective response to disease outbreaks. Bollinger noted there are many pilot programs demonstrating that digital technology innovations can, in fact, drive cost and time curves
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DIGITAL HEALTH WITHIN THE CURRENT GLOBAL CONTEXT 9
FIGURE 2-1 The cascade of health interventions for any disease. NOTES: Graph illustrates general trends based on “representative data.” DALY = disability-adjusted life year. SOURCE: As presented by Robert Bollinger on May 11, 2017.
Figure 2-2
FIGURE 2-2 IT opportunities for health interventions for any disease. NOTES: Graph illustrates general trends based on “representative data.” DALY = disability-adjusted life year; GPS = global positioning system; JIT = just in time; mHealth = mobile health. SOURCE: As presented by Robert Bollinger on May 11, 2017.
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10 USING TECHNOLOGY TO ADVANCE GLOBAL HEALTH
down and increase the effectiveness of responding to disease. However, he suggested that the challenge is to align initiatives and stakeholders to maximize those effects and to do so at scale. “How do we create a value proposition for the public–private partnerships (PPPs) that are necessary to take these to scale?” Herbosa recounted how when he was deputy minister of health in the Philippines, there were many technology startups and digital health pilot programs in the country, but none were scaling and coordination was limited. In response, the country, with Herbosa in the lead, established an enterprise architecture for scaling and coordinating digital health initia- tives through the National eHealth Strategic Framework and Plan. Gaudry-Perkins became familiar with the concept of the mobile revo- lution 7 years ago and learned of the rising penetration rates of mobile phones in Africa and other less-developed regions. She observed that while the technology field was already seizing the opportunities that were arising from the increasing availability of mobile phones across the globe, the health sector as a whole was largely unaware of this phenomenon. She has seen the situation change since then, and the health sector has woken up to the many opportunities mobile technology affords for improving how health care can be delivered. Novillo Ortiz explained that PAHO, and, more broadly, the World Health Organization (WHO), is convinced that national digital health strategies, such as the one Herbosa implemented in the Philippines, can lead to improved public health planning, prevention, and service delivery capacity. PAHO/WHO is supporting the development of guidelines for different health components of information and communication technol- ogy (ICT), such as telehealth, mHealth, and electronic health records (EHRs). PAHO/WHO’s approach, he explained, focuses on guiding coun- tries in regard to the components of digital health strategies, and facili- tating information and knowledge exchange among countries that are developing and implementing their own approaches. Bollinger asked Gaudry-Perkins for her perspective on the current state of the private sector’s engagement in digital health. The first thing to consider, said Gaudry-Perkins, is that the different actors that have a role to play in digital health vary in their maturity. For example, from her perspective, pharmaceutical companies began incorporating digital health technologies into their corporate strategies within the past 2 to 3 years; whereas, the health insurance field got involved a little later. She observes insurers making the same mistakes that other sectors made ini- tially with digital health, which is to try to go forward without striking partnerships with others who can either complement their solutions or provide valuable insights from their experiences. Even within the technology sector, Gaudry-Perkins noted that most
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DIGITAL HEALTH WITHIN THE CURRENT GLOBAL CONTEXT 11
ICT partners would not be able to deliver a single, holistic solution for scale. “You need connectivity (networks), data centers, mobile devices, software, platforms, the cloud, and on and on,” she said, with each com- ponent, in some cases, provided by separate technology companies. Hav- ing to work with multiple partners in both the private and public sector highlights a key challenge, added Bollinger. “They are all going to have their own value proposition, their own incentives and drivers, and under- standing that ecosystem will be important,” he said. To illustrate that challenge, Herbosa noted that the private sector’s main driver is profit, while government’s objective is to provide a ser- vice, and marrying those two drivers is difficult. Furthermore, he added, while the private sector moves fast and embraces disruptive innovation, government is more resistant to change and often has to pass laws and develop infrastructure to implement new technology. He noted that in the early days of digital health technologies, there were plenty of ingenious mHealth and telehealth strategies, but no framework existed for coor- dinating these approaches in a way that would stimulate growth and a broader effect. In Herbosa’s experience, donors in middle-income countries, such as the Philippines, often support digital health initiatives that are prescrip- tive about how a new technology should be deployed. In many instances he has found that these requirements from donors do not meet what a country has determined are its needs or duplicate something a country is already developing on its own. He suggested that the development of national eHealth strategic frameworks is a means of informing the private sector and donors about each country’s specific needs. As an example, Herbosa recalled how a telecommunications company approached the Philippines about developing a technology-enabled approach to reduce the country’s high maternal mortality rate. The company offered the Phil- ippines a system that would connect primary care facilities with district hospitals and then funded a proof-of-concept study. However, the Uni- versity of the Philippines already had a project underway in partnership with the National Telehealth Center that connected universities with rural health units. The technology company has since taken its system and is marketing it in other countries where there is a need. As an example of how the Philippines is using ICT, Herbosa described an information technology (IT)-enabled syndromic surveillance system that it developed with WHO funding. This relatively simple system relies on texts sent to a central office describing the symptoms of people brought to an evacuation center. He explained that if the texts contained many cases of watery diarrhea, he would immediately order chlorine tablets and water filtration systems to the affected region to prevent an epidemic outbreak of cholera. Similarly, if the texts reported infection and fever, he
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would send out a measles vaccination team. Another example is the geo- graphical information system used to deploy international medical teams in the aftermath of Typhoon Haiyan in 2013. When the teams arrived, Herbosa said, they all wanted to go to Tacloban, which was the focus of reporting on CNN. However, he knew that there were seven islands heavily affected by Typhoon Haiyan and the geographic information system allowed him to distribute the teams where needed. The result was that major outbreaks of diseases such as cholera were prevented. These examples illuminate Bollinger’s point that digital technology can move the public health cost curves. Novillo Ortiz commented on the challenge of filling the gap between what a country needs and what the private sector has to offer. Chile and Brazil have taken the approach of issuing public, transparent solicitations for solutions that have engaged the private sector. Another solution has been to use the National eHealth Strategy Toolkit developed by WHO and the International Telecommunication Union (ITU) (WHO and ITU, 2012). He also commented on the importance of taking time to explain the concepts of digital health technologies to the various ministers and other senior government officials who may not know or understand the value of these technologies for improving the health of a nation’s citizens.
OPEN DISCUSSION As someone who has helped negotiate the United Nations’ Sustain- able Development Goals, Simon Bland from UNAIDS said he sees a huge opportunity for technology to extract more value from limited health care funds, but it will require there being enough trained health workers avail- able to use these technologies. He noted that WHO reported in 2013 that there was a 17 million health worker deficit, and on the present trajectory that deficit would still be 14 million by 2030. His question to the mem- bers of the panel was whether they have seen a correlation of successful digital health strategies with health workforce strategies, and in particu- lar, if they have seen digital health strategies used to enable community health workers. In his opinion, doing so would create more demand for these technologies, which would create more incentives for private-sector investment to their technologies. Gaudry-Perkins, addressing the shortage of health workers, noted that there is a successful program in India that has trained hundreds of thousands of community health workers, yet other countries are not fol- lowing suit because this program has not generated enough evidence of a return on investment or a reduction in disease. Similarly, she said, a tele- medicine program supported by the Novartis Foundation demonstrated that 38 percent of the medical problems in Ghana could be dealt with by
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DIGITAL HEALTH WITHIN THE CURRENT GLOBAL CONTEXT 13
a single phone call, but again, this program has not spread because there is a demand for more proof of a return on investment. Continuing with the theme of human resources, Bollinger asked the panelists about the other human resources needed to support ICT for health, particularly at the provider, clinic, and hospital levels. Herbosa replied by describing his tour of the rural health units that his office provided with computers and training for the local primary health care workers. “What did I see? I saw a computer with a cloth covering it.” What was happening, he said, is that only the young nurses and doctors were using the computer. “The more senior health professionals are the resistant ones, and the people in government are even more resistant,” said Herbosa. He predicted, though, that there will come a time when the younger generation of health care workers hits a critical mass and these systems will be more widely used. In the same way, he said, the younger generation of citizens in general is driving the use of mobile technology and social media for health promotion. “Suddenly, social media has a window in terms of health care,” he said. Novillo Ortiz added that over- coming the lack of human resources prepared to work on digital health involves working with various ministries to change the medical curricu- lum so health workers are prepared to use health informatics. Herbosa noted ICT infrastructure can be a challenge for scaling any pilots in low- and middle-income countries (LMICs). In his country, for example, a pilot might show promising results, but scaling it to all 7,107 islands may not be feasible because some of the islands do not have remote technology infrastructure in place. The challenge becomes larger when trying to bring in the private sector in a transparent manner, given that many of the players offering health IT for a country such as his do not have experience working in an LMIC. What is important is to involve all possible stakeholders when planning to scale and to identify what it is that will create value for each stakeholder. “When you do that, you will be able to collaborate,” said Herbosa. “You will have a common goal and will be able to deliver.” On this point, Gaudry-Perkins commented that one issue she has come to appreciate over the past few years is that a lack of laws and a national framework for digital health will cause even the largest pub- lic–private partnerships to falter. A lack of the appropriate regulation for digital health can deter large digital health companies from investing in that country, as they may deem it too risky. She emphasized that getting the right government digital health systems or frameworks in place is an essential step to scaling digital health. A national digital health strategy that has a governance system which has broken the silo between the ministries of health and ICT can enable the private sector to have a one- stop shop in order to get involved. “Once you start getting all of your
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cross-sectoral working groups in place within a national digital health strategy, that is when it can be very effective for private sector,” said Gaudry-Perkins. George Alleyne of the University of the West Indies asked the pan- elists who would pay for the development of technologies to support digital health. Gaudry-Perkins responded that answering that question is one of the challenges for sustainability and therefore scaling. For many years, philanthropy drove the adoption of digital health in LMICs and this has undoubtedly contributed to the great fragmentation today. As an example, she cited the situation in Mali, where there are 10 mobile maternal health projects, each financed by a different funder and none of which can communicate with one another or with the country’s health agency. In her opinion, the WHO-ITU National eHealth Strategy Toolkit will help avoid this type of fragmentation, though the cost of developing a national health strategy may be beyond the resources available to many LMICs. Rwanda, for example, committed $32 million over 5 years to developing its digital health strategy. The World Bank is financing a proj- ect in Gabon right now to implement a national digital health framework and the budget is more than $50 million over 5 years. Costs can include investments in ICT infrastructure development, hospital health manage- ment information systems (standards and interoperability), surveillance, Internet-enabled eHealth services, workforce development, policy and regulation, and community-level systems (Broadband Commission for Sustainable Development, 2017; World Bank, 2016). Gaudry-Perkins suggested what will help countries allocate the nec- essary funds will be studies such as the one Canada conducted that showed the country has realized a return on investment of $16 billion since 2007 (Broadband Commission for Sustainable Development, 2017). She believes that the “who pays” question will be in part resolved, at least from a government perspective, as these technologies and programs mature and generate evidence. The private sector is already developing business models for digital health technologies, and in her opinion, the insurance industry will eventually have a very important role to play in this respect once it realizes the benefits of digital health tools in disease prevention and better disease management. Consumers may also become a driving force, she added, because of the potential for time saved. Novillo Ortiz noted that in the Americas, private health care is a powerful force in terms of technology adoption and innovation and that private health care is starting to share the lessons of its experiences with the public sector. In Panama and Costa Rica, for example, the public and private health care sectors are working together. In the private sec- tor, added Gaudry-Perkins, the shift to outcomes-based health care will drive the adoption of digital health technologies. In France, she noted, the
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DIGITAL HEALTH WITHIN THE CURRENT GLOBAL CONTEXT 15
government has recently passed a law that moves one particular health intervention to an outcome-based system and is paying doctors to adopt telemedicine so they can follow their patients at home and avoid unneces- sary hospitalizations. The reason this is happening, said Gaudry-Perkins, is that the government became convinced there was a positive return on investment. Based on her experiences in both government and industry, Gaudry- Perkins said a key is to get high-level executives from both the private and public sectors together at the beginning of such discussions and talk about shared value and how a PPP can be a win for both sides. Too often, she said, such discussions start with either a business division or only the corporate social responsibility unit who do not see the big picture of how such partnerships can benefit entire organizations, not just the units or divisions for which they are responsible. An unidentified participant added that too often, high-level officials have no knowledge about digital health, but when informed about it become quite interested in learning more. Elsy Dumit from PAHO asked the panelists if they had ideas on how to convince governments, particularly those in LMICs where investment funds are limited, to make needed investments in digital health when the payback may be 10 to 15 years in the future. Gaudry-Perkins responded that there are investments that have short-term returns, and even then it is important to keep reinforcing the political will of the champions for these projects. One approach for doing that, said Novillo Ortiz, is to keep reminding policy makers that digital health is about improving people’s lives. Gaudry-Perkins added that it is critical to break down the silos that currently exist between ministries of health, telecommunications, and whatever agency is in charge of digital initiatives. “A true national digital health strategy cannot happen unless you build governance and break the silos between these worlds,” she said. In her experience, accomplishing that task is the number one challenge to building sustainable support for digital health initiatives. Herbosa noted that there are many models for PPPs in physical infra- structure. What is needed, he said, are models for PPPs for social infra- structure, including health care. In that regard, the question should not be “Who pays for it, but who pays for what?” said Herbosa. “Everybody pays for it, but what is your share?” Benjamin Makai from Safaricom agreed that “who pays for what?” is the right question, and that often the answer is not a direct one. For example, his telecommunications company participates in health-related projects not necessarily for the money, but because it helps the people who are subscribers to the company’s services stay healthy, which ultimately contributes to the company’s bottom line. Herbosa added another example in which the Philippines’ Department
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of Science and Technology realized it could take advantage of the same unused portion of the television spectrum that the education department was using to reach schools in areas without Internet connectivity to con- nect to primary health care centers. In that case, nobody had to pay for the development of Internet infrastructure in geographically isolated and disadvantaged regions in the Philippines. Alain Labrique from the Johns Hopkins University Global mHealth Initiative said there is an important shift occurring in which governments are creating the ecosystems in which programs can succeed when they go from pilot phase to spread and scale. He then noted the results of a landscape analysis of projects for frontline health workers that had scaled successfully (Agarwal et al., 2015). The one common factor spanning these programs, he said, was their simplicity. “Simple projects manage to reach scale when they do one or two things really well—and then complexity can be added,” said Labrique. Labrique asked Herbosa how he has worked to shift the culture of the health care system in the Philippines to act on data in real time and to train health care providers on how to integrate data into their daily decision making. Herbosa shared that most people in the health ministry still wait to make decisions based on official data that is often years old. With a background in disaster and trauma response, Herbosa said he is accustomed to actively acquiring and using data, but he is a rarity in government and the policy-making arena in the Philippines with regard to data use. He also commented that too often, policy makers not only make decisions based on old data but do so without going into the field and seeing what is happening in hospitals and clinics. Labrique replied that perhaps data use should become part of medical training and that policy makers should be given permission to make mistakes and to take actions based on current data. The problem with giving permission to bureaucrats to make mistakes, said Herbosa, is that they lose their jobs when they are wrong. The way to address that issue, he said, is to make data available to policy makers earlier to take some of the uncertainty out of their decision making. As a final comment, Herbosa said digital health has three goals: increase access to care, prevention, screening, and health promotion; involve the public and private sectors in creating an infrastructure that promotes creativity and disruptive or constructive innovation; and estab- lish an ecosystem that is truthful and transparent. Realizing these three goals, he suggested, will help build support and sustainability for digital health among both high-level decision makers and among those who will use and benefit from digital health technologies.
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Enabling a Multidisciplinary Approach to Health
Highlights and Main Points Made by Individual Speakers and Participants • Having a sufficient digital infrastructure in a country is a key to the ultimate adoption and scalability of a specific solution. (Esposito, Johnson) • Physicians do not want more data, but rather data they can trust, that they can act on as part of their normal workflow, and that provides feedback to let them know the outcomes from acting on the data. (Esposito, Johnson) • It is important to encourage data use to create incentives for change. (Esposito, Johnson) • Addressing the current health realities, particularly in low- and middle-income countries, requires broad-based part- nerships that engage sectors beyond health and technology. (Aerts)
Ann Aerts emphasized that there is a unique opportunity for public– private sector collaboration for digital health. Stakeholders in the private sector are developing strategies to advance the concepts of connected living and digital lifestyles. Health has been recognized as a critical element in this space with significant potential for new investments. As noted by several
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workshop speakers within the private sector, both technology and health care companies are well positioned to bring their core competencies to bear in the development of digital health initiatives and broad strategies to apply digital technology to health. In the public sector, governments have a clear interest in improving population health and well-being. Despite the incen- tives for investments in digital health within the private and public sectors, a number of workshop speakers acknowledged that barriers to collabora- tion exist. Some of the barriers raised by workshop speakers include a lack of support and infrastructure that allows access and affordability to digital health technologies, as well as a lack of interoperability across systems to increase ease in usage and minimize inefficiency. The workshop’s second session, moderated by Aerts, focused on established multidisciplinary business models for digital health employed by technology and health care companies. The two panelists—Jennifer Esposito from Intel Corporation and Darrell Johnson from Medtronic— discussed multidisciplinary business models for digital health. This session also featured a World Café in which the workshop participants addressed a number of questions related to how digital technology can enable a multidisciplinary approach to health.
MULTIDISCIPLINARY BUSINESS MODELS FOR DIGITAL HEALTH Intel’s processors power many types of medical imaging equipment as well as the networks and clouds that process, transmit, and store elec- tronic health data. Jennifer Esposito explained that this application of its technology drives the company’s interest in health. The Health and Life Sciences group she leads at Intel works to apply lessons from other industries to solutions for health care and to inform Intel’s future product development road map. Darrell Johnson explained that Medtronic’s interest in digital technol- ogy has been driven by the company’s shift to value-based health care, which focuses on selling outcomes rather than products. Selling outcomes requires data, and the company’s 70 years of experience in the health care arena has produced a trove of data on patient care. “We spend a lot of money generating this evidence, and we have great relationships with regulatory bodies and payers with regard to this evidence,” said Johnson. “This is in our wheel house to be able to use these data scientifically to figure out what an outcome should be.” His group’s work focuses on tap- ping into real-world databases to solve three problems:
1. How to embed clinical research into clinical practice as a means of changing how Medtronic brings products to the market;
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ENABLING A MULTIDISCIPLINARY APPROACH TO HEALTH 19
2. How to use data to understand the performance of the company’s products in the clinic at any time; and 3. How to use data to create products with the largest possible effect on value-based health care.
Aerts asked Esposito and Johnson for examples of where a multidisci- plinary business model has worked to develop and deploy a digital health solution. Esposito replied that her group’s work in low- and middle- income countries (LMICs) starts with assessing a country’s underlying digital technology infrastructure. Sufficient infrastructure, she said, is a key to the ultimate adoption and scalability of a specific solution. Johnson agreed that there needs to be a technology platform on which to build a digital health solution. In the case of data, that platform comprises the multiple databases that are likely to be present in a country, and solu- tions must be able to extract data from those multiple sources in a way that empowers quality decision making. One type of solution that will not work well, he noted, is one that generates more data for physicians. Physicians, he suggested, do not need more data, but rather they need data they can trust and act on as part of their normal workflow; they need data that provides feedback to let them know the outcomes from acting on the data. Aerts agreed that actionability and feedback are two essential features of data that will be useful to the clinician. Regarding how Intel decides to engage in a public–private partner- ship (PPP), Esposito said that a prime consideration is whether such a partnership might provide an opportunity to understand the unique challenges for a specific issue and how its technology can solve those problems, saying, “We are doing it from the perspective of learning more about how we can take those unique challenges in a specific industry and drive solutions across the ecosystem with a variety of different types of partners.” The other reason to get involved in such partnerships, she added, is when there are opportunities to harness untapped data in a way that brings new insights to health care and that can ultimately change the way health care practitioners do their jobs. Johnson said that Medtronic is involved in many PPPs and embraces them as a tool for transforming health care and facilitating the exchange of data between patients and providers. One of Medtronic’s priorities in digital health is figuring out how to standardize data formats so patients can access their clinical data and share them with other providers or entities of their choice. Esposito noted there are other sources of health-relevant data beyond clinical data, such as education level, wealth, and social services, that would be use- ful and shareable with policy makers. In particular, she noted the ease
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with which the current generation of young adults operates in a mobile, data-generating environment. “They are used to the idea of continuously collecting data about themselves on the devices they carry with them,” said Esposito. “How that data can contribute to an overall improvement in public health is interesting to think about in terms of government involvement for broader societal gain.” She noted that there has been more interest in LMICs about developing a universal data platform that would cut across all social programs, in part because there is often no legacy infrastructure that can get in the way of data sharing. In response to a question about how to use big data to help reduce waste in health care systems, Johnson said one key will be to use data to make costs and outcomes transparent, enabling policy makers to address problems in ways that are specific to the location and circumstances. It will also be important, though, to convince providers and patients to make better use of the data that are already available. As an example, Medtronic makes a remote monitoring system for implanted cardiovas- cular devices that has proven to produce better clinical and cost outcomes by means of getting data to physicians quickly. Nonetheless, utilization is less than 50 percent because there is no consequence for reimbursement for not using it. Esposito agreed with the idea that it is important to encourage data use to create incentives for change, and she added that the ability to access multiple forms of data and use them to address specific problems has the potential to change how care is delivered. “If you are able to have real- time clinical information and all of this other information that surrounds the patient, I think you may be delivering health care differently,” said Esposito. “Instead of a disease-based approach, you are tailoring your actions around everything that is going on with that patient.” Richard Guerrant from the University of Virginia said that one obsta- cle to using data to improve care is the need to conduct research to generate the guidelines that physicians would then use. Johnson agreed and credited a partnership with the U.S. Food and Drug Administration that provides access to real-time data networks and large data sets on outcomes to conduct the research needed to generate evidence-based guidelines at a small fraction of the cost of current clinical studies. Jessica Herzstein, a specialist in preventive medicine, commented that even when good guidelines are available, the medical community is often slow to fol- low them, and Johnson added that the comment he hears repeatedly from physicians is that they do not trust the data that goes into the guidelines. Alain Labrique added that the World Health Organization (WHO) has
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ENABLING A MULTIDISCIPLINARY APPROACH TO HEALTH 21
embarked on a digital health guidelines development process,1 a formal mechanism to develop guidelines for digital interventions, such as text message reminders for drug adherence. Florence Gaudry-Perkins asked the two panelists if they could pro- vide some examples of business models with payers that take advantage of digital health technologies. Esposito said Intel has a partner in Latin America for which it built a device that patients take home with them from the hospital. This device has multiple sensors that patients can use to capture important physiological data that are then transmitted to the pro- vider. The device also provides educational materials and allows patients to connect to a nurse call center if they need immediate help when a reading from one of the sensors is over a certain threshold. The payer provides the device as a means of controlling the ongoing cost of care, and the business model is that the service provider does not get paid unless there are cost savings. Initial results have shown there is a positive return on investment associated with this device, and Esposito’s hope is that the provider will deploy the device more broadly in multiple countries. George Alleyne asked if there are any private companies that would devote the resources needed to solving the data compatibility issue and if such an effort would be the focus of a PPP. Johnson replied that there are large companies working on this issue using blockchain technology to create an open market to exchange private health care information, some- thing that he predicts will revolutionize the medical information industry. With regard to data transparency, Labrique asked the panelists what they see as the path of “fighting back against decades of dysfunction and the status quo of hiding things in the obscurity of having no data?” Esposito replied that in her experience, visibility quickly causes the status quo to change. “We have seen that in many different projects where as soon as you make data visible to a decision maker, everybody suddenly mobilizes around it and changes their behavior much more quickly,” she said. As a final note, Esposito said that collecting electronic data does not have to be expensive and is not necessarily the province of the developed world, a statement with which Johnson agreed. “The technologies that work in today’s world are designed with simplicity, elegance, and simple usability,” said Johnson. As an example, Medtronic has a project in Ghana where mobile phones are used to monitor blood pressure and make pay- ments to physicians.
1 For more information on the WHO Guidelines for Digital Health Interventions, see http://www.who.int/reproductivehealth/topics/mhealth/digital-health-interventions/en (accessed November 7, 2017).
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WORLD CAFÉ DISCUSSIONS While the incentives for the technology and health sectors to invest in digital health were clearly defined by Esposito and Johnson, Aerts noted that the current health realities require broad-based approaches inclu- sive of additional sectors to address the underlying determinants. The health systems in LMICs in particular are not prepared to face the chal- lenges arising with rapid urbanization, the increase in health inequalities that comes with urbanization, the continuing threat of existing infectious diseases and from emerging diseases, and the rising burden of chronic disease. Noncommunicable diseases such as hypertension, the number one killer in the world, are ubiquitous, but they affect LMICs dispropor- tionately, with four out of five deaths from noncommunicable diseases occurring in those countries. The loss in economic development in LMICs from noncommunicable diseases is estimated at $47 trillion over the next 15 years. This situation, said Aerts, calls for innovation in the way health care and prevention are delivered and for bringing together multiple disci- plines to address the enormity of the challenges in global health. As an example, the underlying causes of cardiovascular disease include exercise level, smoking, food habits, alcohol consumption, and exposure to air pol- lution. These determinants, she said, cannot be addressed by the health system alone. “We have to work together with partners from other sec- tors,” said Aerts. “Only then can we think about how to improve health care.” Toward that end, she noted that among the workshop participants were public- and private-sector experts in information technologies, trans- portation, food production, consumer goods, finance and insurance, and energy, and she encouraged the participants to have robust discussions during the World Café2 segment of the workshop while discussing these two questions:
• Digital health is a tool that could enable intersectoral collabora- tion for better health. In which of three of these sectors—gov- ernment, food and beverage and consumer goods, research and education, financial and insurance, infrastructure and transport, and energy—should digital technology be leveraged to address the underlying determinants of health? For each of these three sectors, define the three most important lines of action.
2 During the World Café, workshop participants broke into small groups and were led through a collaborative dialogue process to share knowledge and ideas for action.
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ENABLING A MULTIDISCIPLINARY APPROACH TO HEALTH 23
• When considering translation into action, what can the health care sector drive and what can the digital sector drive for other sectors to adopt digital technology as a common platform?
Reporting back from the World Café discussions, Gillian Christie from The Vitality Institute shared that several participants at her table described three groups that were important to using digital technologies to enable a multidisciplinary approach to health: finance and insurance, consumer goods not including food and beverage, and research and edu- cation. The first group is needed to address the behavioral determinants of using this technology, the second group would be instrumental in deploying new technologies, and the third group would generate a better understanding of how technology and the data from technology could be used to change behaviors. Several participants at this table agreed that there is good alignment between finance and insurance and consumer goods, given the role of the private sector in each of those sectors, and that health care costs and outcomes were the primary drivers for these sectors to engage in partnerships. The research and education sector would focus on translation and commercialization and how to tap into social networks and cultural empowerment to produce change. Herzstein, reporting from her table, said that several participants sin- gled out the food and beverage sector and said that its role was to inform and communicate about nutrition and its link to noncommunicable dis- eases and to address myths and develop trust around new technologies and foods. The information technology (IT) sector would focus on under- standing nutritional content, developing a system for food labels, and helping the public understand what good science is and how to judge nutritional information. Another line of action this group decided on was how to involve the transport sector in helping rural and underserved areas access health care by developing mobile health units for deliver- ing emergent and nonemergent care. The IT sector would play a role with technologies for matching health needs with available transportation options. The transport sector could also work on developing a central- ized and integrated control function that would improve the efficiency of responding to disasters or a developing disruptive situation such as the emergence of disease. The IT sector would contribute by digitizing cities and translating complex data to simple data that could be used quickly for an urgent response to a disaster or developing disruptive situation. The transport and IT sectors could also work together to develop geographical information systems to match needs with resources and transport options to deliver those resources to where they are needed. A participant from an additional table shared that her group selected three important sectors: government, research and education, and insur-
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24 USING TECHNOLOGY TO ADVANCE GLOBAL HEALTH
ance and financial. This group decided that government’s most important actions were related to leadership, developing an effective governance mechanism, and creating a national information and communiation tech- nology network to eliminate fragmentation and silos. The research and education sector should explore approaches for increasing the usefulness of collected data for providers and should focus on digital literacy and best practices in digital health. For the financial and insurance sector, this group suggested that it needs to use big data to identify the risk fac- tors linked to the social determinants of health. This sector should also adopt a different perspective on return on investments and explore ways of using mobile money as an incentive for adopting and scaling digital health initiatives. With regard to how to translate these suggestions into action, this group decided that the health care sector should prioritize the key issues that it needs to address and work to harness big data to reduce ineffi- ciencies in care while the digital sector should work to standardize data collection systems and use those data to model health outcomes. For its proposal to develop a different perspective about return on invest- ment, this group proposed that the health care and financial and insur- ance sectors should adopt a transparent outcome-based purchasing and reimbursement mechanism that could be informed by the digital sector’s work on modeling health outcomes using big data. At the same time, the digital sector should improve the security of financial transactions in a way that would enable mobile money. The digital and financial sectors should also work toward standardizing regulations for mobile money among countries.
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Country-Level Digital Health Strategies
Highlights and Main Points Made by Individual Speakers and Participants • The notion of using data to fight disease is starting to spread and take root in many low- and middle-income countries (LMICs). (Myrick) • So-called “teenager” technology companies can become will- ing partners in projects that grow organically, when becoming a partner is easy, and when they are asked to deliver their core competencies. (Myrick) • Collaboration is hard to do, takes time, and has to involve in-person meetings that build relationships. (Long) • Educating the stakeholders in the health ecosystem in LMICs is an important early step when attempting to get input from potential users on a digital health solution. (Oyedepo) • Establishing governance structures, building technical and intellectual capacity, and empowering government to ask fundamental questions can lead to sustainability. (Marcelo, Oyedepo) • When putting together partnerships, it is essential to acknowledge the role, value, and relevance of every partner. (Oyedepo)
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26 USING TECHNOLOGY TO ADVANCE GLOBAL HEALTH
• Public–private partnerships can only be successful when government realizes that it must establish governance struc- tures, architecture, and program management capabilities. (Marcelo) • By being more open ended and flexible in its program require- ments, the donor community can help reduce the fragmenta- tion in the digital health landscape. (Myrick)
While digital technology can improve health outcomes, particularly in low-resource settings, a fragmented landscape of actors and interests working to implement digital health solutions can lead to a lack of coor- dination, waste, and unrealized benefits. There can be an opportunity to build health solutions around market needs in a coordinated and inte- grated way if digital health strategies are aligned with the health priorities established by countries and communities. Starting with country- and community-led priorities can aid the private sector in developing digital health strategies that are responsive to the needs of patients and commu- nities. Collaboration among the actors of the ecosystems for health and technology advances the opportunities for business and therefore impact. This workshop’s third session featured lessons learned from strate- gies based on country-level priorities, explored frequent barriers and challenges, and distilled critical success factors. The session began with a context-setting presentation by Neal Myrick from Tableau describing an organic partnership that developed to eliminate malaria in Zambia. Next, each of the other three panelists—Lesley-Anne Long from PATH,1 Olasupo Oyedepo from the Health Strategy and Delivery Foundation’s ICT4HEALTH project in Nigeria, and Alvin Marcelo of the Asia eHealth Information Network (AeHIN)—gave short presentations on the projects in which they are involved that aim to improve digital health coordina- tion to meet country and community needs. Elaine Gibbons from PATH then moderated an open discussion with the panelists and workshop participants.
ENGAGING DIGITAL “TEENAGE” COMPANIES IN GLOBAL HEALTH Tableau, explained Neal Myrick, is a partner in a project that PATH has organized to outfit more than 1,200 community health workers in southern Zambia with mobile technology they can use to record data on the incidence of malaria and track the progress being made in Zambia’s
1 Lesley-Anne Long from Digital Square (hosted at PATH) as of September 2017.
Copyright National Academy of Sciences. All rights reserved. Using Technology to Advance Global Health: Proceedings of a Workshop
COUNTRY-LEVEL DIGITAL HEALTH STRATEGIES 27
efforts to reduce the number of malaria cases in the country. Using con- ventional malaria control methods, the Zambian Ministry of Health, PATH, and other partners had achieved a marked reduction in malaria cases in southern Zambia, but getting to zero cases was proving to be a large challenge, in large part because 80 percent of individuals infected with the malaria parasite are asymptomatic. “When somebody does get sick, health officials see that person as a canary in a coal mine. If that person is sick, then in all likelihood there are a bunch of people back in the village who are carrying the parasite and do not even know it,” said Myrick. Today, when someone in Zambia’s Southern Province is diagnosed with malaria, community health workers go to the individual’s village and administer a test for the parasite to everyone in the village. They then treat everyone who tests positive for the parasite, even those who are asymptomatic, and help the villagers implement bed nets, one of the most effective methods for preventing mosquito-to-human transmission of the malaria parasite. Taking this approach and repeating it in neighbor- ing villages, the goal is to create malaria-free zones and to use the data the community health workers collect to help decision makers at all levels best direct resources. Myrick noted this approach has cut the number of malaria cases in the Southern Province and the number of malaria deaths significantly over several rainy seasons (see Figure 4-1). The notion of using data to fight infectious disease is starting to spread and take root in other countries, including Vietnam, where Tableau is part- nering with PATH, the Vietnam Ministry of Health, and the U.S. Centers for Disease Control and Prevention (CDC) to implement an emergency operations center for disease surveillance. Tableau’s role, he explained, has been to provide software and training that enable the government to col- lect data remotely, have it transmitted into a central system, and then push an analysis based on those data back to the field in the form of interactive visualizations. Those visualizations show when and where infectious dis- eases are being diagnosed and help the Ministry of Health predict where infectious diseases, such as Zika, malaria, and yellow fever, are going to be diagnosed so it can mobilize resources early and prevent an outbreak from becoming a pandemic. Myrick and his colleagues at Tableau are excited about using public–private partnerships (PPPs) and various philanthropic, corporate, and government funding mechanisms to spread the models they have applied in Vietnam and Zambia to other countries. Recounting the story of how these partnerships with PATH came about, Myrick said that when PATH first approached him, he expected to be asked for money or use of the company’s business intelligence soft- ware. Instead, the PATH representative asked him if he would like to help eliminate malaria in Zambia. What PATH wanted was actual engagement
Copyright National Academy of Sciences. All rights reserved. Using Technology to Advance Global Health: Proceedings of a Workshop
28 USING TECHNOLOGY TO ADVANCE GLOBAL HEALTH