5/ANN Health Working Papers DELSA/HE A/WD/HW P (2009)

Total Page:16

File Type:pdf, Size:1020Kb

5/ANN Health Working Papers DELSA/HE A/WD/HW P (2009) Unclassified DELSA/HEA/WD/HWP(2009)5/ANN Organisation de Coopération et de Développement Économiques Organisation for Economic Co-operation and Development 23-Nov-2009 ___________________________________________________________________________________________ English text only DIRECTORATE FOR EMPLOYMENT, LABOUR AND SOCIAL AFFAIRS HEALTH COMMITTEE Unclassified DELSA/HEA/WD/HWP(2009)5/ANN Health Working Papers HEALTH CARE QUALITY INDICATORS PROJECT, PATIENT SAFETY INDICATORS REPORT 2009 ANNEX Saskia Drösler Technical Manual for Facilitaing Cross-National Comparisions for Patient Safety Indicators - This document represents a revised and updated version of OECD Technical Paper No. 19 for the set of patient safety indicators calculated for the 2008-2009 data collection of the OECD Health Care Quality Indicators project. English text only JT03274834 Document complet disponible sur OLIS dans son format d'origine Complete document available on OLIS in its original format DELSA/HEA/WD/HWP(2009)5/ANN DIRECTORATE FOR EMPLOYMENT, LABOUR AND SOCIAL AFFAIRS www.oecd.org/els OECD HEALTH WORKING PAPERS http://www.oecd.org/els/health/workingpapers This series is designed to make available to a wider readership health studies prepared for use within the OECD. Authorship is usually collective, but principal writers are named. The papers are generally available only in their original language – English or French – with a summary in the other. Comment on the series is welcome, and should be sent to the Directorate for Employment, Labour and Social Affairs, 2, rue André-Pascal, 75775 PARIS CEDEX 16, France. The opinions expressed and arguments employed here are the responsibility of the author(s) and do not necessarily reflect those of the OECD. Applications for permission to reproduce or translate all or part of this material should be made to: Head of Publications Service OECD 2, rue André-Pascal 75775 Paris, CEDEX 16 France Copyright OECD 2009 2 DELSA/HEA/WD/HWP(2009)5/ANN TABLE OF CONTENTS INTRODUCTION .......................................................................................................................................... 4 METHODOLOGICAL ISSUES ..................................................................................................................... 5 Introduction ................................................................................................................................................. 5 Cross walking from ICD-9 to ICD-10 ......................................................................................................... 6 Process of Calculation ................................................................................................................................. 7 QUICK STEP OVERVIEW OF ESSENTIAL TASKS FOR DATA PREPARATION ............................. 11 DETAILED DEFINITIONS OF INDICATORS .......................................................................................... 13 Catheter-related bloodstream infection, secondary diagnosis field per 100 discharges (PSI 7) ............... 13 Postoperative pulmonary embolism (PE) or deep vein thrombosis (DVT), secondary diagnosis field per 100 discharges (PSI 12) ............................................................................................................................. 15 Postoperative sepsis, secondary diagnosis field per 100 discharges (PSI 13) ........................................... 17 Accidental puncture or laceration, secondary diagnosis field per 100 discharges (PSI 15) ...................... 20 Foreign body left in during procedure, secondary diagnosis field per 100 discharges (PSI 5) ................. 23 Obstetric trauma – vaginal delivery with instrument, any diagnosis or procedure field per 100 vaginal deliveries (PSI 18) ..................................................................................................................................... 26 APPENDIX 1. DENOMINATOR CALCULATION CODE LISTS ........................................................... 32 APPENDIX 2. VIRTUAL MDC-ASSIGNMENT ....................................................................................... 91 SUMMARY OF REVISIONS .................................................................................................................... 102 REFERENCES ........................................................................................................................................... 103 3 DELSA/HEA/WD/HWP(2009)5/ANN INTRODUCTION 1. This technical manual was prepared to assist countries in calculating the Patient Safety Indicators included in the OECD Health Care Quality Indicator data collection for 2008-2009. 2. It provides detailed practical advice on calculating each indicator in a selected set of Patient Safety Indicators (PSI) utilising national hospital administrative databases. 3. The selected indicators are set out in Table 1. Table 1. Selected patient safety indicators for 2008-2009 HCQI data collection Area Indicator name Hospital-acquired infections Catheter-related bloodstream infection (PSI 7) Postoperative pulmonary embolism (PE) or deep vein thrombosis (DVT) (PSI 12) Operative and post-operative Postoperative sepsis (PSI 13) complications Accidential puncture or laceration (PSI 15) Sentinel events Foreign body left in during procedure (PSI 5) Obstetric trauma – vaginal delivery with instrument (PSI 18) Obstetrics Obstetric trauma – vaginal delivery without instrument (PSI 19) 4. These indicators are derived from the Quality Indicators developed by the US Agency for Healthcare Research and Quality. AHRQ’s Patient Safety Indicators (PSIs) are a set of indicators providing information on potential in hospital complications and adverse events following surgeries, procedures, and childbirth. The PSIs were developed after a comprehensive literature review, analysis of ICD-9-CM codes, clinician panel review, implementation of risk adjustment, and empirical analyses (AHRQ, 2006). 5. For each of these indicators, the manual provides: • Generic coding and calculation instructions related to national hospital administrative databases, • Cross walk from ICD 9 to ICD 10 codes for each indicator, • Detailed definitions for calculation of indicators, and • Flow charts for visualising the calculation process. 4 DELSA/HEA/WD/HWP(2009)5/ANN METHODOLOGICAL ISSUES Introduction 6. The methodology for facilitating internationally comparable Patient Safety Indicators set out in this manual contains two key elements: • Cross-walk between the key disease classifications • Detailed process of calculation 7. The Patient Safety Indicators dealt with in this manual are specified according to certain diagnosis and, in some instances, procedure codes. There are currently different medical classifications in use for coding diagnosis; the ICD-9 (International Classification of Diseases) classification which is no longer updated by the World Health Organisation (WHO) is the precursor of the present ICD-10 classification. OECD member countries use ICD-9 (e.g. Spain, USA) as well as ICD-10 (e.g. Australia, Canada, Germany). For that reason this manual contains both versions of the coding system. 8. Usually countries do not use the original version of a classification published by the WHO but modify it according to their needs. Country modifications are still consistent with the WHO version, keeping the structure of the classification tree. In some chapters of the ICD classification the country versions are more extensive than the WHO version while in others they are not. This manual does not cover all the different country versions of the ICD. 9. The technical specifications of diagnosis in this manual are based on the ICD-10-WHO, 2006 and on the ICD-9-CM1. Therefore countries seeking to utilise this manual must ensure that before applying the definitions the defined codes for inclusion or exclusion criteria are currently in use. Otherwise the definitions at hand must be extended to include the subgroups added in the country modifications. 10. For example, Table 2 shows that one three-digit WHO code for decubitus ulcer corresponds to 8 four-digit codes in Canada, 5 four-digit codes in Australia and 50 five-digit German codes. To calculate the numerator for the indicator decubitus ulcer, all country specific subgroups of the listed WHO code L89 must be taken into account. 1 Definitions in ICD-9-CM are adopted from AHRQ (2003). 5 DELSA/HEA/WD/HWP(2009)5/ANN Table 2. Examples of country versions ICD-10-GM ICD-10 ICD-10-CA ICD-10-AM (Germany, 2006), a 5th digit WHO (Canada, 2006) (Australia, 2006) has to be used to specify (2006) the location (10 subgroups) Decubitus ulcer limited to erythema Decubitus [pressure] L89.0 only [redness] without skin ulcer, stage I breakdown (Stage 1) Decubitus ulcer limited to breakdown Decubitus [pressure] Decubitus ulcer Stage 1 L89.1 of skin (Stage 2) ulcer, stage II Decubitus ulcer with fat layer Decubitus [pressure] Decubitus ulcer Stage 2 L89.2 exposed (Stage 3) ulcer, stage III L89 Decubitus ulcer with depth involving Decubitus [pressure] Decubitus ulcer Stage 3 L89.3 Decubitus muscle (Stage 4) ulcer, stage IV ulcer Decubitus ulcer with depth involving Decubitus ulcer Stage 4 L89.4 bone (Stage 5) Decubitus ulcer with joint space L89.5 involvement (Stage 5) Decubitus ulcer with necrosis L89.8 involving muscle or bone (Stage X) Decubitus ulcer without mention of Decubitus [pressure] Decubitus ulcer, unspecified L89.9 severity ulcer, unspecified 11. There are several criteria which are
Recommended publications
  • ICD-10-CM Expert for SNF, IRF, and LTCH the Complete Official Code Set Codes Valid from October 1, 2018 Through September 30, 2019
    EXPERT 2019 ICD-10-CM Expert for SNF, IRF, and LTCH The complete official code set Codes valid from October 1, 2018 through September 30, 2019 Power up your coding optum360coding.com ITSN_ITSN19_CVR.indd 1 12/4/17 2:54 PM Contents Preface ................................................................................ iii ICD-10-CM Index to Diseases and Injuries .......................... 1 ICD-10-CM Official Preface ........................................................................iii Characteristics of ICD-10-CM ....................................................................iii ICD-10-CM Neoplasm Table ............................................ 331 What’s New for 2019 .......................................................... iv ICD-10-CM Table of Drugs and Chemicals ...................... 349 Official Updates ............................................................................................iv Proprietary Updates ...................................................................................vii ICD-10-CM Index to External Causes ............................... 397 Introduction ....................................................................... ix ICD-10-CM Tabular List of Diseases and Injuries ............ 433 History of ICD-10-CM .................................................................................ix Chapter 1. Certain Infectious and Parasitic Diseases (A00-B99) .........................................................................433 How to Use ICD-10-CM Expert for Skilled Nursing Chapter
    [Show full text]
  • Multisectoral Academic Training Guide on Female Genital Mutilation/Cutting
    Multisectoral Academic Training Guide on Female Genital Mutilation/Cutting Directoras Adriana Kaplan y Laura Nuño Gómez Coordinadoras Magaly Thill y Nora Salas Seoane Multisectoral Academic Training Guide on Female Genital Mutilation/Cutting Multisectoral Academic Training Guide on Female Genital Mutilation/Cutting Directoras Adriana Kaplan y Laura Nuño Gómez Coordinadoras Magaly Thill y Nora Salas Seoane Neus Aliaga Sonia Núñez Puente Rut Bermejo Casado Laura Nuño Gómez Clara Carvalho Els Leye Giovanna Cavatorta Carla Moleiro Gily Coene Maya Pellicciari Ricardo Falcão Francesco Pompeo Lidia Fernández Montes Julia Ropero Carrasco Diana Fernández Romero Nora Salas Seoane Sabrina Flamini Cristina Santinho Michela Fusaschi Magaly Thill Cecilia Gallotti Valentina Vitale Adriana Kaplan Edición y revisión de la versión original en inglés Lucy Deegan Leirião This publication has been produced with the financial support of the Rights, Equality and Citizenship Programme 2014-2020 of the European Union. The contents of this publication are the sole responsibility of its authors and can in no way be taken to reflect the views of the European Commission. It is part of the Multisectoral Academic Programme to prevent and combat Female Genital Mutilation (FGM/C). © Los autores Editorial DYKINSON, S.L. Meléndez Valdés, 61 – 28015 Madrid Teléfono (+34) 91544 28 46 – (+34) 91544 28 69 e-mail: [email protected] http://www.dykinson.es http://www.dykinson.com ISBN: Preimpresión: Besing Servicios Gráfi cos, S.L. [email protected] Table of contents List of abbreviations ..................................................................................... 15 Institutions and authors ............................................................................... 17 Chapter I. Introduction to the Multisectoral Academic Training Guide on FGM/C .............................................................................. 25 Laura Nuño Gómez and Adriana Kaplan 1.
    [Show full text]
  • Female Genital Cosmetic Surgery Exceptional
    FEMALE GENITAL COSMETIC SURGERY EXCEPTIONAL FUNDING REQUIRED BaNES, Swindon and Wiltshire CCG (BSW) does not normally fund elective vaginal labial surgery, vaginoplasty or hymenorrhaphy. Clinicians must ensure there is a clear clinical rationale for any potential intervention, as all procedures that involve partial or total removal of the external female genitalia for non-clinical reasons are defined as Female Genital Mutilation and as such are against the law. (The Female Genital Mutilation Act of 2003) Clinicians must be alert to the possibility that some patients who seek revision surgery may do so as a result of previous interventions which are classed as unlawful under the Act. Background Labiaplasty A labiaplasty is a surgical procedure to reduce the size of the labia minora. Labiaplasty is generally a cosmetic procedure to change appearance alone and common consequence of childbirth is not sufficient reason to apply for funding. Labiaplasty is not normally supported or funded by the CCG. Vaginoplasty Non-reconstructive vaginoplasty or "vaginal rejuvenation" is used to restore vaginal tone and appearance. As this is generally considered a cosmetic procedure, vaginoplasty is not normally supported or funded by the CCG. Hymenorrhaphy Hymenorrhaphy, or hymen reconstruction surgery, is a cosmetic procedure and is not normally supported or funded by the CCG. This policy does not relate to reversal of female genital mutilation. This policy is informed by the NHS England (2013) Interim Clinical Commissioning Policy Labiaplasty, Vaginoplasty & Hymenorrhaphy. (Armed Forces Commissioning Policy Task and Finish Group) Reference: Policy Name Review Date Version BSW-CP046 Female Genital Cosmetic Surgery March 2023 4.1 .
    [Show full text]
  • Brian D Earp, Jennifer Hendry, Michael Thomson Medical Law Review, Volume 25, Issue 4, Autumn 2017, Pages 604–627
    This is a pre-copy-editing, author-produced PDF of an article accepted for publication in “Medical Law Review, following peer review. The definitive publisher-authenticated version: Reason and Paradox in Medical and Family Law: Shaping Children's Bodies Brian D Earp, Jennifer Hendry, Michael Thomson Medical Law Review, Volume 25, Issue 4, Autumn 2017, Pages 604–627, The article is available online at: https://academic.oup.com/medlaw/article- abstract/25/4/604/3852239?redirectedFrom=fulltext REASON AND PARADOX IN MEDICAL AND FAMILY LAW: SHAPING CHILDREN’S BODIES Brian D. Earp, Jennifer Hendry & Michael Thomson ABSTRACT Legal outcomes often depend on the adjudication of what may appear to be straightforward distinctions. In this article, we consider two such distinctions that appear in medical and family law deliberations: the distinction between religion and culture, and between therapeutic and non-therapeutic. These distinctions can impact what constitutes ‘reasonable parenting’ or a child’s ‘best interests’ and thus the limitations that may be placed on parental actions. Such distinctions are often imagined to be asocial facts, there for the judge to discover. We challenge this view, however, by examining the controversial case of B and G [2015]. In this case, Sir James Munby stated that the cutting of both male and female children’s genitals for non- therapeutic reasons constituted ‘significant harm’ for the purposes of the Children Act 1989. He went on to conclude, however, that while it can never be reasonable parenting to inflict any form of non-therapeutic genital cutting on a female child, such cutting on male children was currently tolerated.
    [Show full text]
  • Asymptotic Medicine by Karmen Lončarek [email protected]
    HeAltH of tHe HeAltH SySteM 83 doi: 10.3325/cmj.2009.50.83 Asymptotic Medicine By Karmen Lončarek [email protected] Medicine and “Big Pharma” (1), as its strongest ally, are rap- although extreme, example: suppose there was a medi- idly reorienting toward treating the healthy people, which cation that could make everybody’s skin color exactly the is well reflected in the Ray Moynihan’s term of disease same. If everyone took the medication, discrimination mongering (2) and Richard Smith’s list of non-diseases (3). based on skin color would certainly be eliminated. How- The most obvious and commonest reasons for this trend ever, having the “wrong” skin color is not a “lifestyle prob- are profit (healthy people are more numerous and wealth- lem,” nor are aging, menopause, or shyness (13). Obviously, ier than ill people), defensive medicine (fear from lawsuits medicine plays a role of strong social regulator, concealing for malpractice) (4), greater personal satisfaction, and bet- some aspects of social injustice and inequality. ter health outcomes (generally, healthy people have bet- ter outcomes than the sick ones). However, there are some TECHNOLOGY OF USELESSNESS other, less obvious, reasons why physicians choose to treat healthy people. Besides physician-healthy patient relation, there is also a second important element of modern medicine – medi- Let us take a look at the list of the most prevalent medical cal technology. procedures (Box 1) and the most common pharmaceuti- cal interventions (Box 2) aimed at healthy people (lifestyle There are two scenarios about the future of technology – pharmacology), which pervade almost all medical special- one is that totally useful technology would finally bring us to ties (5-9).
    [Show full text]
  • Hereditary Gingival Fibromatosiswith Hemophilia B
    Vol. 17, No ?. UDC 616.311.2:616.151.5 CODEN: ASCRBK 1983 YU ISSN: 0001—7019 Original paper Hereditary gingival fibromatosis with hemophilia B Ilija Škrinjarić, Miljenko Bačić and Zvonko Poje Department of Children’s and Preventive Dentistry, Department of Periodontology and Department of Orthodontics, Faculty of Dentistry, University of Zagreb Received, February 7, 1983 Summary This work presents a case report of a generalized form of hereditary gin­ gival fibromatosis with hemophilia B as an accompanying disease. In the family of proband, consisting of 28 members, fibromatosis was present in 9 (4 males and 5 females). The pedigree analysis confirmed that gingival fibro­ matosis was transmited through three generations as an autosomal dominant trait. Neither proband, nor any other family member, showed other abnorma­ lities. Blood coagulation tests reveald hemophilia B (Christmas disease) in the proband. The coagulogram showed prolonged kaolin cephalin time (50 se­ conds) and low concentration of factor IX (F IX 18%). The case report sug­ gests that hemophilia B should be included in the list of diseases associated with gingival fibromatosis. Key words: gingival fibromatosis, hemophilia B Hereditary gingival fibromatosis manifests as an isolated trait, accompanied by other abnormalities or disease, or as a symptom of a specific syndrome. The most common clinical abnormalities associated with gingival fibromatosis are hypertrichosis, epilepsy, mental retardation, and defects of the eye, ear, nose, skeleton and nails (Fletcher1, Gorlin et a I.2, Jorgenson and Cocker3). Isolated gingival fibromatosis without other abnormalities is considered a special entity which differs from the fibromatosis accompanied by hypertrichosis, epilepsy or mental retardation (Cohen4).
    [Show full text]
  • Prioritization of Health Services
    PRIORITIZATION OF HEALTH SERVICES A Report to the Governor and the 74th Oregon Legislative Assembly Oregon Health Services Commission Office for Oregon Health Policy and Research Department of Administrative Services 2007 TABLE OF CONTENTS List of Figures . iii Health Services Commission and Staff . .v Acknowledgments . .vii Executive Summary . ix CHAPTER ONE: A HISTORY OF HEALTH SERVICES PRIORITIZATION UNDER THE OREGON HEALTH PLAN Enabling Legislatiion . 3 Early Prioritization Efforts . 3 Gaining Waiver Approval . 5 Impact . 6 CHAPTER TWO: PRIORITIZATION OF HEALTH SERVICES FOR 2008-09 Charge to the Health Services Commission . .. 25 Biennial Review of the Prioritized List . 26 A New Prioritization Methodology . 26 Public Input . 36 Next Steps . 36 Interim Modifications to the Prioritized List . 37 Technical Changes . 38 Advancements in Medical Technology . .42 CHAPTER THREE: CLARIFICATIONS TO THE PRIORITIZED LIST OF HEALTH SERVICES Practice Guidelines . 47 Age-Related Macular Degeneration (AMD) . 47 Chronic Anal Fissure . 48 Comfort Care . 48 Complicated Hernias . 49 Diagnostic Services Not Appearing on the Prioritized List . 49 Non-Prenatal Genetic Testing . 49 Tuberculosis Blood Test . 51 Early Childhood Mental Health . 52 Adjustment Reactions In Early Childhood . 52 Attention Deficit and Hyperactivity Disorders in Early Childhood . 53 Disruptive Behavior Disorders In Early Childhood . 54 Mental Health Problems In Early Childhood Related To Neglect Or Abuse . 54 Mood Disorders in Early Childhood . 55 Erythropoietin . 55 Mastocytosis . 56 Obesity . 56 Bariatric Surgery . 56 Non-Surgical Management of Obesity . 58 PET Scans . 58 Prenatal Screening for Down Syndrome . 59 Prophylactic Breast Removal . 59 Psoriasis . 59 Reabilitative Therapies . 60 i TABLE OF CONTENTS (Cont’d) CHAPTER THREE: CLARIFICATIONS TO THE PRIORITIZED LIST OF HEALTH SERVICES (CONT’D) Practice Guidelines (Cont’d) Sinus Surgery .
    [Show full text]
  • International Requisition Form
    PleasePlease place place collection collection kit kit INTERNATIONAL barcode here. REQUISITION FORM barcode here. REQUISITION FORM 123456-2-X PLEASE COMPLETE ALL FIELDS. REQUISITION FORMS SUBMITTED WITH MISSING INFORMATION MAY CAUSE A DELAY IN TURNAROUND TIME OF THE TEST. PLEASE COMPLETE ALL FIELDS. REQUISITION FORMS SUBMITTED WITH MISSING INFORMATION MAY CAUSE A DELAY IN TURNAROUND TIME OF THE TEST. PATIENT INFORMATION ORDERING CLINICIAN INFORMATION PATIENT NAME (LAST, FIRST) NAME OF ORGANIZATION 1 PatIENT INFORmatION (Must be completed in English) 2 ORDERING CLINICIAN (Must be completed in English) DATE OF BIRTH (MM/DD/YYYY) Organization (Clinic, Hospital, or Lab): Patient Name (Last, First): ADDRESS TELEPHONE CITYPatient DOB (DD/MM/YYYY): STATE ZIP CODE ORDERINGLIMS-ID: CLINICIAN TELEPHONE EMAIL Patient Street Address: Telephone: I would like to receive emails about my test from Natera Y N City: Country: Ordering Clinician: PATIENT MALE OR FEMALE? M-V26.34 F-V26.31 PATIENT PREGNANT? Y-V22.1 N DATE OF SAMPLE COLLECTION (MM/DD/YY):_____________________________ Telephone: Email: PAYMENT PLEASEPatient CHECK male orONE: female: M F BILL INSURANCE BILL CLINIC BILL CLINIC/CA Prenatal SELF-PAY Patient pregnant? Program YPDC N INSURANCE COMPANY (Please enclose a photocopy (front and CLINICIAN INFORMED CONSENT MEMBERDate of ID sample collectionSUBSCRIBER (DD/MM/YYYY): NAME (if different than patient) back) or all relevant insurance cards) If you would like the results of this case to be sent to an additional FAX fax number other than what is indicated on your setup form, please IF SELF-PAY, CHECK CARD TYPE: VISA MASTER CARD AMEX DISCOVER provide the fax number.
    [Show full text]
  • Practice Parameter for the Diagnosis and Management of Primary Immunodeficiency
    Practice parameter Practice parameter for the diagnosis and management of primary immunodeficiency Francisco A. Bonilla, MD, PhD, David A. Khan, MD, Zuhair K. Ballas, MD, Javier Chinen, MD, PhD, Michael M. Frank, MD, Joyce T. Hsu, MD, Michael Keller, MD, Lisa J. Kobrynski, MD, Hirsh D. Komarow, MD, Bruce Mazer, MD, Robert P. Nelson, Jr, MD, Jordan S. Orange, MD, PhD, John M. Routes, MD, William T. Shearer, MD, PhD, Ricardo U. Sorensen, MD, James W. Verbsky, MD, PhD, David I. Bernstein, MD, Joann Blessing-Moore, MD, David Lang, MD, Richard A. Nicklas, MD, John Oppenheimer, MD, Jay M. Portnoy, MD, Christopher R. Randolph, MD, Diane Schuller, MD, Sheldon L. Spector, MD, Stephen Tilles, MD, Dana Wallace, MD Chief Editor: Francisco A. Bonilla, MD, PhD Co-Editor: David A. Khan, MD Members of the Joint Task Force on Practice Parameters: David I. Bernstein, MD, Joann Blessing-Moore, MD, David Khan, MD, David Lang, MD, Richard A. Nicklas, MD, John Oppenheimer, MD, Jay M. Portnoy, MD, Christopher R. Randolph, MD, Diane Schuller, MD, Sheldon L. Spector, MD, Stephen Tilles, MD, Dana Wallace, MD Primary Immunodeficiency Workgroup: Chairman: Francisco A. Bonilla, MD, PhD Members: Zuhair K. Ballas, MD, Javier Chinen, MD, PhD, Michael M. Frank, MD, Joyce T. Hsu, MD, Michael Keller, MD, Lisa J. Kobrynski, MD, Hirsh D. Komarow, MD, Bruce Mazer, MD, Robert P. Nelson, Jr, MD, Jordan S. Orange, MD, PhD, John M. Routes, MD, William T. Shearer, MD, PhD, Ricardo U. Sorensen, MD, James W. Verbsky, MD, PhD GlaxoSmithKline, Merck, and Aerocrine; has received payment for lectures from Genentech/ These parameters were developed by the Joint Task Force on Practice Parameters, representing Novartis, GlaxoSmithKline, and Merck; and has received research support from Genentech/ the American Academy of Allergy, Asthma & Immunology; the American College of Novartis and Merck.
    [Show full text]
  • European Conference on Rare Diseases
    EUROPEAN CONFERENCE ON RARE DISEASES Luxembourg 21-22 June 2005 EUROPEAN CONFERENCE ON RARE DISEASES Copyright 2005 © Eurordis For more information: www.eurordis.org Webcast of the conference and abstracts: www.rare-luxembourg2005.org TABLE OF CONTENT_3 ------------------------------------------------- ACKNOWLEDGEMENTS AND CREDITS A specialised clinic for Rare Diseases : the RD TABLE OF CONTENTS Outpatient’s Clinic (RDOC) in Italy …………… 48 ------------------------------------------------- ------------------------------------------------- 4 / RARE, BUT EXISTING The organisers particularly wish to thank ACKNOWLEDGEMENTS AND CREDITS 4.1 No code, no name, no existence …………… 49 ------------------------------------------------- the following persons/organisations/companies 4.2 Why do we need to code rare diseases? … 50 PROGRAMME COMMITTEE for their role : ------------------------------------------------- Members of the Programme Committee ……… 6 5 / RESEARCH AND CARE Conference Programme …………………………… 7 …… HER ROYAL HIGHNESS THE GRAND DUCHESS OF LUXEMBOURG Key features of the conference …………………… 12 5.1 Research for Rare Diseases in the EU 54 • Participants ……………………………………… 12 5.2 Fighting the fragmentation of research …… 55 A multi-disciplinary approach ………………… 55 THE EUROPEAN COMMISSION Funding of the conference ……………………… 14 Transfer of academic research towards • ------------------------------------------------- industrial development ………………………… 60 THE GOVERNEMENT OF LUXEMBOURG Speakers ……………………………………………… 16 Strengthening cooperation between academia
    [Show full text]
  • NGS Sequencing May Be Wes Or Targeted
    Guidelines for diagnostic next generation sequencing 2 December 2014 LS, This is the final draft version of a document on the diagnostic use of NGS that we wish to publish on behalf of EuroGentest. The first version of this document was drafted by a small number of people. It was subjected to peer review by the participants to the Nijmegen meeting, November 21-22, 2013. The document is ready for circulation and public consultation. Hence, it will be posted on the EuroGentest website for a few weeks. The procedure is in line with the process that other policy documents, generated by the European Society of Human Genetics, have to follow: the background document is posted and an invitation to comment is sent to the membership of the Society. Thereafter, a final version of the guidelines will be published in the European Journal for Human Genetics. Of course, guidelines in a fast moving field can never be definitive, hence a system will be put in place to update them on a regular basis. I wish to thank all the colleagues who have contributed to the development of the guidelines and the generation of the document. The members of the working group will be co-authors on the paper, the contribution of the other participants to the Nijmegen meeting will be acknowledged. We believe that the document is timely, even though we have been slow in finalizing the editorial work. By posting it now, everybody who is interested in the guidelines or eagerly seeking advice will be able to consult the workgroup’s viewpoints and recommendations.
    [Show full text]
  • Environmental Nutrition: Redefining Healthy Food
    Environmental Nutrition Redefining Healthy Food in the Health Care Sector ABSTRACT Healthy food cannot be defined by nutritional quality alone. It is the end result of a food system that conserves and renews natural resources, advances social justice and animal welfare, builds community wealth, and fulfills the food and nutrition needs of all eaters now and into the future. This paper presents scientific data supporting this environmental nutrition approach, which expands the definition of healthy food beyond measurable food components such as calories, vitamins, and fats, to include the public health impacts of social, economic, and environmental factors related to the entire food system. Adopting this broader understanding of what is needed to make healthy food shifts our focus from personal responsibility for eating a healthy diet to our collective social responsibility for creating a healthy, sustainable food system. We examine two important nutrition issues, obesity and meat consumption, to illustrate why the production of food is equally as important to consider in conversations about nutrition as the consumption of food. The health care sector has the opportunity to harness its expertise and purchasing power to put an environmental nutrition approach into action and to make food a fundamental part of prevention-based health care. but that it must come from a food system that conserves and I. Using an Environmental renews natural resources, advances social justice and animal welfare, builds community wealth, and fulfills the food and Nutrition Approach to nutrition needs of all eaters now and into the future.i Define Healthy Food This definition of healthy food can be understood as an environmental nutrition approach.
    [Show full text]