Uwlaw, Summer 2011, Vol. 63

Total Page:16

File Type:pdf, Size:1020Kb

Uwlaw, Summer 2011, Vol. 63 University of Washington School of Law UW Law Digital Commons Alumni Magazines Law School History and Publications 7-2011 uwlaw, Summer 2011, Vol. 63 Follow this and additional works at: https://digitalcommons.law.uw.edu/alum Part of the Legal Education Commons Recommended Citation uwlaw, Summer 2011, Vol. 63, (2011). Available at: https://digitalcommons.law.uw.edu/alum/5 This Book is brought to you for free and open access by the Law School History and Publications at UW Law Digital Commons. It has been accepted for inclusion in Alumni Magazines by an authorized administrator of UW Law Digital Commons. For more information, please contact [email protected]. Leaders for the 63 Global Common Good SUMMER 2011 VOLUME 2011 SUMMER uwlaw Message from the Dean Dear alumni and friends, A year ago I wrote that “the UW School of Law is not just on track, it will lead the way,” and I am proud to say that we have stayed true to that promise. We began the 2010 – 2011 academic year with a new vision and mission statement. Guided by what is relevant in the 21st century, we built consensus among all of our internal and external constituents; our faculty then unanimously approved the ambitious mission that now guides us in our daily decisions and future plans. In this issue of UWLAW we illustrate how we live our on building increased financial stability for the vision and further our mission as Leaders for the school so that we can achieve our ambitious Global Common Good. goals. I look forward to and appreciate your On each page you will read how our alumni, fac- continued support and wise counsel. ulty, students and staff spread our school’s influ- As we end this academic year, we do so in mem- ence from Gates Hall in Seattle to refugee camps ory of the late Professor Paul Miller, a leader in Haiti, from the annual shareholder meeting of among our faculty and in the profession of law. Costco to the halls of the U.S. Supreme Court, We dedicated this academic year to Professor from the farthest reaches of Alaska and Pakistan Miller for his devotion to public service and to a downtown Seattle law firm. equal justice. This year’s graduates took that As our reputation builds, so does the number dedication one step further by creating the of outstanding applicants for admission. This Professor Paul Miller Diversity Scholarship year we were one of the few law schools who Fund as an opportunity to honor his memory experienced an increase in applications thanks to (see p. 48 for more information). our talented and collegial students, our faculty We hope you enjoy reading this issue of who demonstrate their abilities as leaders in UWLAW with its new look and focus. Our goal teaching and scholarship, and to the engagement is to provide our readers with information that and involvement of our alumni. is alive and dynamic, every page reflecting the Also in this issue, we recognize our financial con- intellectual vibrancy that makes UW Law one of tributors in the Report to Donors. Our alumni and the world’s great law schools. friends contributed significantly to everything from student scholarship support to discretionary funding. Thank you so much for your generous support. In the academic year ahead, I will focus Kellye Y. Testy Dean, UW School of Law James W. Mifflin University Professor UW Law: Leaders for the Global Common Good Vision The University of Washington School of Law community, our alumni, and other educational aspires to be the best public law school in the and community organizations. An integrated nation and one of the world’s most respected part of one of the world’s most distinguished centers for interdisciplinary legal studies. We research universities, our students and faculty strive to be Leaders for the Global Common enjoy significant opportunities for multi- and Good by shaping and defending just and sustain- inter-disciplinary study and research across the able laws and policies through our scholarly University’s 16 outstanding schools and colleges. discovery, our ethical advocacy, our inspired We also leverage our location in Seattle, a global teaching, and our generous public service. economic and cultural hub, to provide our students and faculty professional opportunities in Identity/Mission the Pacific Northwest and around the world. The University of Washington School of Law’s Our faculty members are the intellectual leaders mission is to be a Leader for the Global Common of our community; they are culturally and intel- Good and to educate our students to have both lectually diverse, distinguished in their respective the capacity and the commitment to promote that fields, and dedicated to furthering the high- mission. To serve our increasingly complex and est standards of academic excellence in their connected world, we prepare our graduates to be scholarly and teaching pursuits. As members of a its most capable and honorable interdisciplinary professional school in a public research university, problem-solvers. In both our Juris Doctor and the faculty is equally devoted to imaginative, in- graduate programs, we develop our students’ fluential scholarship and to enthusiastic, effective intellectual sophistication, professional and teaching. Our staff members and librarians are leadership skills, and moral courage so that they valued and vital partners in our students’ learning not only do things right, they also do the right and professional development and in our faculty’s thing. To help our students and alumni achieve accomplishments in teaching, scholarship, and what is best for themselves, their families, their service. Proud of being Washington’s only public clients, and society, we assist them in identifying law school, we enroll more outstanding students their values and goals and in charting a life in the from Washington than from any other state, while law that is balanced and fulfilling. also welcoming talented and diverse students To accomplish our goals, we nurture a student- from every state in the nation and many other centered, culturally competent, and collegial countries. We honor our Washington roots by community united by our commitment to contributing to the welfare of our state while also sustainable excellence in achieving our vision expanding our global reach and influence. and mission. Our educational programs provide In Washington and around the world, UW Law our students a rigorous integration of theory, is recognized as a Leader for the Global doctrine, policy, and application to prepare Common Good — a vibrant community respected them to serve society as ethical and effective for our ideas and our actions, our aspirations 2011 SUMMER leaders. We enrich our educational programs and our operational discipline, our traditions and through strategic alliances within our university our innovations. and with our many external partners, including uw law business and industry, the equal justice Unanimously approved by the UW School of Law Faculty on October 7, 2010. 1 SUMMER 2011 Law School News 4 Features Ethical Advocacy 10 Scholarly Discovery 18 Brahmy Poologasingham ’04 advocates for Four professors discuss their latest research international human rights Generous Public Service 22 Inspired Teaching 14 Roberta Armstrong ’08 and UW Law students Joe Brotherton ’82 inspires students to brave snow, ice and 20 below temperatures do well while doing good 14 22 UW LAW Volume 63 Summer 2011 CONTRIBUTING WRITERS Diana Brement, Elizabeth Coplan, Dean Kellye Y. Testy Corbin Lewars, Harris Meyer, Cheryl Nyberg Editor Elizabeth Coplan CONTRIBUTING PHOTOGRAPHERS Elizabeth Coplan, Kerry Dahlen, Copyright 2011 University of Washington School of Law. Nick Felkey, Matt Hagen,Carl Murray, Tiffany Sevareid, Jack Storms All rights reserved. UWLAW is published twice a year by DESIGN Jo-Ann Sire and John Linse the University of Washington School of Law and is made 2 possible by a gift from the Washington Law School Foundation. uwlaw Departments FacultY & Firm 26 paul millER SCHolarsHip fund 48 Q&A 28 FacultY Publications REMEmbER WHEN… 32 & prESEntations 49 A Law DEgrEE in Action 36 class notES 57 in THE SpotligHT 40 in MEmoriam 60 BooKS & BEYond 46 REport to Donors 63 CALEndar back cover 36 46 EDITORIAL BOARD Helen Anderson ’84, Stephanie Cox, EDITORIAL OFFICE AND SUBSCRIPTION CHANGES Kimberly Ellwanger ’85, Penny Hazelton, Roland L. Hjorth, UW Law, William H. Gates Hall, Room 383 Eugene Lee ’66, LL.M. ’68, Jerry McNaul ’68, University of Washington School of Law Signe Naeve ’00 Box 353020, Seattle, WA 98195-3020 Email: [email protected] 3 LAW SCHOOL news Law School Inaugurates Shefelman Jurist-in-Residence With the generosity of the Harold S. Shefelman Endowment, the UW School of Law welcomed the first visiting Harold S. Shefelman Jurist-in- Residence, Judge A. Raymond Randolph, Circuit Judge, U.S. Court of Appeals for the D.C. Circuit. Judge Randolph visited the law school for two days of activities, including a classroom discussion with all first-year Constitutional Law students and a visit with the faculty, and a public forum. Members of the UW School of Law’s Moot Court Honor Board moderated the public forum, entitled “A Judge’s Perspective on Advocacy.” Judge Randolph shared his views on advocacy, which have been shaped by The Harold S. Shefelman Endowment was his two decades of service on the federal bench established in 1987 in honor of Harold S. Shefelman, as well as by his own experiences arguing 23 cases a named partner in the long-time Seattle firm of before the U.S. Supreme Court. Roberts & Shefelman. Mr. Shefelman was a noted Each year, as part of this new program, we will municipal bond lawyer with a career that spanned feature one prominent jurist who will share judicial almost six decades. He graduated from the UW perspectives and help us further integrate legal School of Law in 1925 and later served as an adjunct education and law practice.
Recommended publications
  • The Definition of Disability in the Americans with Disabilities Act: Its
    College of William & Mary Law School William & Mary Law School Scholarship Repository Faculty Publications Faculty and Deans 2005 The efinitD ion of Disability in the Americans with Disabilities Act: Its Successes and Shortcomings: Proceedings of the 2005 Annual Meeting, Association of American Law Schools Sections on Employment Discrimination Law; Labor Relations and Employment Law; and Law, Medicine and Health Care Sharona Hoffman Paul Steven Miller Chai R. Feldblum Michael Ashley Stein Repository Citation Hoffman, Sharona; Miller, Paul Steven; Feldblum, Chai R.; and Stein, Michael Ashley, "The efinitD ion of Disability in the Americans with Disabilities Act: Its Successes and Shortcomings: Proceedings of the 2005 Annual Meeting, Association of American Law Schools Sections on Employment Discrimination Law; Labor Relations and Employment Law; and Law, Medicine and Health Care" (2005). Faculty Publications. 1575. https://scholarship.law.wm.edu/facpubs/1575 Copyright c 2005 by the authors. This article is brought to you by the William & Mary Law School Scholarship Repository. https://scholarship.law.wm.edu/facpubs THE DEFINITION OF DISABILITY IN THE AMERICANS WITH DISABILITIES ACT: ITS SUCCESSES AND SHORTCOMINGS: PROCEEDINGS OF THE 2005 ANNUAL MEETING, ASSOCIATION OF AMERICAN LAW SCHOOLS SECTIONS ON EMPLOYMENT DISCRIMINATION LAW; LABOR RELATIONS AND EMPLOYMENT LAW; AND LAW, MEDICINE AND HEALTH CARE Professor Sharona Hoffman*: Welcome to our program on the definition of disability. We have three terrific speakers today. This should be a very interesting program. This program is being recorded and will be published by the Employee Rights and Employment Policy Journal. I am Sharona Hoffman. I am going to be moderating this program. The format is going to be approximately twenty-five minutes for each speaker, and then we will take questions at the end.
    [Show full text]
  • Genetic Discrimination in the Workplace Paul Steven Miller
    Journal of Health Care Law and Policy Volume 3 | Issue 2 Article 2 Is There a Pink Slip in My Genes? Genetic Discrimination in the Workplace Paul Steven Miller Lawrence O. Gostin Follow this and additional works at: http://digitalcommons.law.umaryland.edu/jhclp Part of the Congenital, Hereditary, and Neonatal Diseases and Abnormalities Commons, Disability Law Commons, Health Law Commons, and the Labor and Employment Law Commons Recommended Citation Paul S. Miller, & Lawrence O. Gostin, Is There a Pink Slip in My Genes? Genetic Discrimination in the Workplace, 3 J. Health Care L. & Pol'y 225 (2000). Available at: http://digitalcommons.law.umaryland.edu/jhclp/vol3/iss2/2 This Article is brought to you for free and open access by DigitalCommons@UM Carey Law. It has been accepted for inclusion in Journal of Health Care Law and Policy by an authorized administrator of DigitalCommons@UM Carey Law. For more information, please contact [email protected]. JOURNAL OF HEALTH CARE LAw & POLICY VOLUME 3 2000 NUMBER 2 © Copyright University of Maryland School of Law 2000 Articles IS THERE A PINK SLIP IN MY GENES? GENETIC DISCRIMINATION IN THE WORKPLACE PAUL STEVEN MILLER, J.D.* "The challenge, and it is a formidable one, is to nurture scientific exploration, encourage the translation of these new discoveries into life saving medicines, and to put in place public policies reflective of our core American values that prevent the unjust, unfair, and dis- criminatory use of genetic information."' * Commissioner, United States Equal Employment Opportunity Commission; J.D., Harvard Law School; B.A., University of Pennsylvania.
    [Show full text]
  • Discrimination in the 21St Century: Protecting the Privacy of Genetic Information in Employment and Insurance
    Tulsa Law Review Volume 36 Issue 3 Symposium: Labor and Employment Law Spring 2001 Discrimination in the 21st Century: Protecting the Privacy of Genetic Information in Employment and Insurance Natalie E. Zindorf Follow this and additional works at: https://digitalcommons.law.utulsa.edu/tlr Part of the Law Commons Recommended Citation Natalie E. Zindorf, Discrimination in the 21st Century: Protecting the Privacy of Genetic Information in Employment and Insurance , 36 Tulsa L. J. 703 (2013). Available at: https://digitalcommons.law.utulsa.edu/tlr/vol36/iss3/9 This Casenote/Comment is brought to you for free and open access by TU Law Digital Commons. It has been accepted for inclusion in Tulsa Law Review by an authorized editor of TU Law Digital Commons. For more information, please contact [email protected]. Zindorf: Discrimination in the 21st Century: Protecting the Privacy of Gen DISCRIMINATION IN THE 21ST CENTURY: PROTECTING THE PRIVACY OF GENETIC INFORMATION IN EMPLOYMENT AND INSURANCE INTRODUCTION Genetic science is gaining power every day. After ten years of research, geneticists are close to holding the key that unlocks the mysteries of the human body. As technology advances and revolutionary scientific endeavors like the Human Genome Project progress rapidly, the ability to predict a person's health destiny is no longer a mere guessing game. Upon completion of the Human Genome Project, scientists should be able to predict human susceptibility to disease with a high level of accuracy. While scientific developments in genomics will aid society in countless ways, many fear the possibility of discrimination at the hands of employers and insurers.
    [Show full text]
  • Secretary's Advisory Committee on Genetics, Health, and Society
    Secretary’s Advisory Committee on Genetics, Health, and Society Summary of Sixteenth Meeting July 7-8, 2008 Bethesda, Maryland Committee Members Present Steven Teutsch, M.D., M.P.H., Chair Mara Aspinall, M.B.A. Sylvia Mann Au, M.S., C.G.C. Paul Billings, M.D., Ph.D., FACP, FACMG (appointment pending) Rochelle Dreyfuss, M.A., J.D. James P. Evans, M.D., Ph.D. Kevin FitzGerald, S.J., Ph.D., Ph.D. Julio Licinio, M.D. Barbara Burns McGrath, R.N., Ph.D. Paul Steven Miller, J.D. (appointment pending) Joseph Telfair, Dr.P.H., M.S.W., M.P.H. Marc S. Williams, M.D., FAAP, FACMG Paul Wise, M.D., M.P.H. Ex Officios/Alternates Present Gurvaneet Randhawa, M.D., M.P.H. (HHS/Agency for Healthcare Research and Quality) Muin J. Khoury, M.D., Ph.D. (HHS/Centers for Disease Control and Prevention) Jeffrey Roche, M.D. (HHS/Centers for Medicare & Medicaid Services) Steven Gutman, M.D., M.B.A. (HHS/Food and Drug Administration) Denise Geolot, Ph.D., R.N., FAAN (HHS/Health Resources and Services Administration) Francis S. Collins, M.D., Ph.D. (HHS/National Institutes of Health) Alan E. Guttmacher, M.D. (HHS/National Institutes of Health) Robinsue Frohboese, J.D., Ph.D. (HHS/Office for Civil Rights) Michael Carome, M.D. (HHS/Office for Human Research Protections) John Cusey (Administration for Children and Families) Charles N.W. Keckler, M.A., J.D. (Administration for Children and Families) Michael Amos, Ph.D. (Department of Commerce) Col. Scott McLean, Medical Corps, U.S.
    [Show full text]
  • After GINA, NINA? Neuroscience-Based Discrimination in the Workplace Stephanie A
    Vanderbilt Law Review Volume 65 | Issue 3 Article 5 4-2012 After GINA, NINA? Neuroscience-Based Discrimination in the Workplace Stephanie A. Kostiuk Follow this and additional works at: https://scholarship.law.vanderbilt.edu/vlr Part of the Science and Technology Law Commons Recommended Citation Stephanie A. Kostiuk, After GINA, NINA? Neuroscience-Based Discrimination in the Workplace, 65 Vanderbilt Law Review 933 (2019) Available at: https://scholarship.law.vanderbilt.edu/vlr/vol65/iss3/5 This Note is brought to you for free and open access by Scholarship@Vanderbilt Law. It has been accepted for inclusion in Vanderbilt Law Review by an authorized editor of Scholarship@Vanderbilt Law. For more information, please contact [email protected]. NOTES After GINA, NINA? Neuroscience-Based Discrimination in the Workplace INTRODU CTIO N .......................................................................................... 934 I. GENETIC INFORMATION NONDISCRIMINATION ACT OF 2008: LEGISLATIVE HISTORY, FINDINGS, AND M OTIVATIONS ................................................................................ 936 A. From the Human Genome Project to Genetic Testing: Uncovering the Human Blueprint ................ 937 B. Imperfect Predictionand Employer Misuse ............... 940 C. Inadequate Existing Federal Statutory Protections..................................................... 943 D. Text of G INA ..................................................................... 947 II. THE POTENTIAL FOR PREDICTIVE NEUROIMAGING-BASED D ISCRIM
    [Show full text]
  • The Genetic Information Nondiscrimination Act of 2008 (GINA)
    The Genetic Information Nondiscrimination Act of 2008 (GINA) Amanda K. Sarata Specialist in Health Policy Jody Feder Legislative Attorney August 6, 2015 Congressional Research Service 7-5700 www.crs.gov RL34584 The Genetic Information Nondiscrimination Act of 2008 (GINA) Summary On May 21, 2008, the Genetic Information Nondiscrimination Act of 2008 (GINA), referred to by its sponsors as the first civil rights act of the 21st century, was enacted. GINA, P.L. 110-233, prohibits discrimination based on genetic information by health insurers and employers. The sequencing of the human genome and subsequent advances raise hope for genetic therapies to cure disease, but this scientific accomplishment is not without potential problems. An employer or health insurer could decide to take adverse action based on a genetic predisposition to disease, and situations have arisen where discriminatory action based on genetic information did occur. In addition, there is evidence that the fear of genetic discrimination has an adverse effect on those seeking genetic testing, as well as on participation in genetic research. GINA was enacted to remedy this situation. GINA is divided into two main parts: Title I, which prohibits discrimination based on genetic information by health insurers; and Title II, which prohibits discrimination in employment based on genetic information. Title I of GINA amends the Employee Retirement Income Security Act of 1974 (ERISA), the Public Health Service Act (PHSA), and the Internal Revenue Code (IRC), through the Health Insurance Portability and Accountability Act of 1996 (HIPAA), as well as the Social Security Act, to prohibit health insurers from engaging in genetic discrimination.
    [Show full text]
  • Paul Steven Miller: a Life of Influence
    492 Paul Steven Miller 493 Legends of the Legal Academy Paul Steven Miller: A Life of Influence Michael Waterstone Introduction Though too brief, there is no doubt that Paul Miller’s was a life well lived. Before he entered the academy, Paul already had a distinguished career in private practice, public interest litigation, and government service. Paul started his career as a litigation associate with a law firm then known as Manatt, Phelps, Phillips & Kantor. He next became the director of litigation for the Western Law Center for Disability Rights (now the Disability Rights Legal Center). After working on President Clinton’s transition team, Paul was eventually appointed to be a commissioner of the Equal Employment Opportunity Commission, where he served for ten years. Paul then entered full time teaching at the University of Washington School of Law, where he became the Henry M. Jackson Professor of Law. In 2009, Paul again returned to public service, being appointed as a special assistant to President Barack Obama, with responsibility for managing political appointments at the U.S. Department of Justice and other positions in the new administration. But reciting Paul’s CV does not tell nearly half the story. Born with the genetic condition achondroplasia (a type of dwarfism), Paul’s entry into the legal profession was greeted with outright discrimination. As explained in No Pity, Joe Shapiro’s seminal text on the disability rights movement: [Paul Miller] graduated near the top of his Harvard Law School class in 1986. While his classmates quickly snared prestigious jobs, he was rejected by each of the more than forty law firms where he interviewed.
    [Show full text]
  • The EEOC's Enforcement of the Americans with Disabilities Act in the Sixth Circuit
    Case Western Reserve Law Review Volume 48 Issue 2 Article 3 1998 The EEOC's Enforcement of the Americans with Disabilities Act in the Sixth Circuit Paul Steven Miller Follow this and additional works at: https://scholarlycommons.law.case.edu/caselrev Part of the Law Commons Recommended Citation Paul Steven Miller, The EEOC's Enforcement of the Americans with Disabilities Act in the Sixth Circuit, 48 Case W. Rsrv. L. Rev. 217 (1998) Available at: https://scholarlycommons.law.case.edu/caselrev/vol48/iss2/3 This Article is brought to you for free and open access by the Student Journals at Case Western Reserve University School of Law Scholarly Commons. It has been accepted for inclusion in Case Western Reserve Law Review by an authorized administrator of Case Western Reserve University School of Law Scholarly Commons. CASE WESTERN RESERVE LAW REVIEW VOLUME 48 WINTER 1998 NUMBER 2 ARTICLES THE EEOC's ENFORCEMENT OF THE AMERICANS WITH DISABILITIES ACT IN THE SIXTH CIRCUIT Paul Steven Millert INTRODUCTION This summer will mark the eighth anniversary of the enact- ment of the Americans with Disabilities Act ("ADA"), a law in- tended to remove barriers, both physical and attitudinal, that pre- vent people with disabilities from participating fully in many as- pects of community life. The ADA prohibits discrimination against people with disabilities in employment,2 state and local government services,3 public accommodations operated by private entities,' and telecommunications.5 t Commissioner, United States Equal Employment Opportunity Commission; BA., University of Pennsylvania, 1983; J.D., Harvard Law School, 1986. The author would like to thank Michelle Buescher, Robin R.
    [Show full text]
  • Federal Genetic Nondiscrimination Legislation: the New "Right" and the Race to Protect DNA at the Local, State, and Federal Level
    Catholic University Law Review Volume 52 Issue 1 Fall 2002 Article 5 2002 Federal Genetic Nondiscrimination Legislation: The New "Right" and the Race to Protect DNA at the Local, State, and Federal Level Katherine A. Hathaway Follow this and additional works at: https://scholarship.law.edu/lawreview Recommended Citation Katherine A. Hathaway, Federal Genetic Nondiscrimination Legislation: The New "Right" and the Race to Protect DNA at the Local, State, and Federal Level, 52 Cath. U. L. Rev. 133 (2003). Available at: https://scholarship.law.edu/lawreview/vol52/iss1/5 This Comments is brought to you for free and open access by CUA Law Scholarship Repository. It has been accepted for inclusion in Catholic University Law Review by an authorized editor of CUA Law Scholarship Repository. For more information, please contact [email protected]. COMMENTS FEDERAL GENETIC NONDISCRIMINATION LEGISLATION: THE NEW "RIGHT" AND THE RACE TO PROTECT DNA AT THE LOCAL, STATE, AND FEDERAL LEVEL KatherineA. Hathaway' When the Human Genome Project (HGP) officially began in 1990,' it was overshadowed by the Americans with Disabilities Act (ADA),2 the new federal legislation aimed at combating discrimination based on a person's disability. While the ADA was the result of a massive legislative effort to extend protection to people with physical or mental impairments,3 few were discussing the legal implications of the Human + J.D. Candidate, May 2003, The Catholic University of America, Columbus School of Law. The author would like to thank Professor Roger Hartley for his advice and support and her family for providing indispensable diversions and perspective during the writing process.
    [Show full text]
  • Achondroplasia, the Most Common Form of Dwarfism
    Little People by Dan Kennedy: Table of Contents Home Little People A Father Reflects on His Daughter's Dwarfism -- and What It Means to Be Different For my parents, the original Dan and Barbara Kennedy, who died much too young. View a Flickr They would have loved their grandchildren. slideshow of photos from the book And their grandchildren would have loved them. Table of Contents Little People: A Introduction to the Online Edition Father Reflects on His Daughter's Chapter One Dwarfism -- and An Unexpected Journey What It Means to Be Different is Chapter Two copyright © 2003 and 2007 by Dan Kennedy. Life Saving Chapter Three Just Like Tom Thumb's Blues Little People is licensed under a Chapter Four Creative Commons The Valley of the Shadow of Death Attribution- Noncommercial- Chapter Five Share Alike 3.0 Chaos Theory License. Some rights Chapter Six reserved. You must attribute this work to A Different Kind of Disability Little People (with Chapter Seven link). For more information, please On Her Own Two Feet contact the author. Chapter Eight Stereotypes, Stigma, and Identity Chapter Nine The Bone Machine Chapter Ten The Storm Before the Calm http://www.littlepeoplethebook.com/lp_contents.html (1 of 2) [8/18/2009 9:00:02 AM] Little People by Dan Kennedy: Table of Contents Chapter Eleven Of Drunks and Divas Chapter Twelve The New Eugenics Chapter Thirteen A Place of Her Own Acknowledgments Notes on Sources http://www.littlepeoplethebook.com/lp_contents.html (2 of 2) [8/18/2009 9:00:02 AM] Introduction to the Internet Edition Contents | Chapter One > Little People INTRODUCTION TO THE ONLINE EDITION in late 2000, when I wrote the proposal for what would eventually become this book, it never occurred to me that one day dwarfism would become a hot topic.
    [Show full text]
  • Genetic Information: Legal Issues Relating to Discrimination and Privacy
    Order Code RL30006 CRS Report for Congress Received through the CRS Web Genetic Information: Legal Issues Relating to Discrimination and Privacy Updated July 19, 2001 Nancy Lee Jones Legislative Attorney American Law Division Congressional Research Service The Library of Congress Genetic Information: Legal Issues Relating to Discrimination and Privacy Summary On June 26, 2000, in a special ceremony at the White House, the completion of the “rough draft” of the human genome was announced. This milestone, which has been compared to the discoveries of Galileo, and other advances in genetics have created novel legal issues relating to genetic information. The Human Genome Project, with its goal of producing detailed maps of the 23 pairs of human chromosomes and sequencing the three billion nucleotide bases that make up the human genome, has been instrumental in the identification of genes implicated in various diseases including glaucoma, colon cancer, and cystic fibrosis. With the identification of these genes comes the hope of genetic therapies to cure disease but this scientific accomplishment is not without potential problems. For instance the presence of a cancer causing gene may indicate a predisposition but does not guarantee that the person will contract the disease: How should an employer or insurer respond? The ethical, social and legal implications of these technological advances have been the subject of significant scrutiny and concern. The legal implications of such information have been mainly on the state level but there are some relevant Federal statutes. The Health Insurance Portability and Accountability Act of 1996, P.L. 104-191, is the first federal law to specifically address discrimination and insurance issues relating to genetic discrimination.
    [Show full text]
  • Joint Proclamation by the Heads of Government of Six Countries Regarding the Completion of the Human Genome Sequence
    Joint Proclamation by the Heads of Government of Six Countries Regarding the Completion of the Human Genome Sequence We, the Heads of Government of the United States of America, the United Kingdom, Japan, France, Germany, and China, are proud to announce that scientists from our six countries have completed the essential sequence of three billion base pairs of DNA of the human genome, the molecular instruction book of human life. Remarkable advances in genetic science and technology have been made in the five decades since the landmark discovery of the double-helix structure of DNA in April 1953. Now, in the very month and year of the 50th anniversary of that important discovery by Watson and Crick, the International Human Genome Sequencing Consortium has completed decoding all the chapters of the instruction book of human life. This information is now freely available to the world without constraints via public databases on the World Wide Web. This genetic sequence provides us with the fundamental platform for understanding ourselves, from which revolutionary progress will be made in biomedical sciences and in the health and welfare of humankind. Thus, we take today an important step toward establishing a healthier future for all the peoples of the globe, for whom the human genome serves as a common inheritance. We congratulate all the people who participated in this project on their creativity and dedication. Their outstanding work will be noted in the history of science and technology, and as well in the history of humankind, as a landmark achievement. We encourage the world to celebrate the scientific achievement of completing the Human Genome Project, and we exhort the scientific and medical communities to rededicate themselves to the utilization of these new discoveries to reduce human suffering.
    [Show full text]