2012 SAIL Annual Report

Celebrating 20 Years of Independent Living Dedicated to Nancy Andison 1963­ 2012

The Independent Living movement and the disability rights community lost a good friend and true advocate. During Andison’s 23 year battle with Multiple Sclerosis (MS) she never gave up hope and inspired all those around her. She used her diagnosis to make a difference for others for generations to come. Her legacy can be seen and felt in Juneau and beyond.

The wheelchair ramp at Auke Rec was conceived and built after Nancy went to a Forest Service employee party there and she (and her wheelchair) had to be carried down a long steep flight of stairs. The wheelchair ramp at the Gov‐ ernor’s mansion also happened just after the governor’s staff had to pick her up in her chair and carry her up the steps into the house. The Juneau airport now has a smooth transition on its wheelchair ramps after Nancy (returning from a disability conference in DC) was tossed out of her wheelchair into the street and broke her femur.

Nancy was a tireless SAIL board member from 1993 to 2001. Nancy loved the outdoors and didn’t let her disabil‐ ity stop her from getting outside and enjoying it. She skied regularly with the ORCA program at Eaglecrest. She is re‐ membered by staff for always having a smile on her face, pushing her self beyond her own comfort level and laugh‐ ing at herself when she found herself upside down on the ski slope. Nancy and Koa enjoying access to Auke Rec—access she was key in making a reality. Towards the end of her life, Nancy became passionate about donating her body to science to help others with MS. Nancy and her husband, Steve, were told that this could not be accomplished from Juneau. Nancy was very depressed about the news and asked her husband for permission to say goodbye. She asked to have her tube feeding stopped. Like Nancy, Steve does not give up easily. He went to work trying to arrange the impossible. After five days with no food or liquids, he was able to tell Nancy that some of her favorite research‐ ers were working with him, and a couple of medical uni‐ versities were interested in her documented case as well. She smiled at this prospect, and requested that her tube feeding resume until solid arrangements could be made. Fourteen hours after her passing, her final contribution arrived in LA. Her last wish was to continue to battle from beyond the grave and it came true.

Nancy always pushed the limits, even while skiing, but was able to laugh at where it got her. We will miss you Nancy. Thank you for all you have done for the disability community past, present and future.

Fall of 1992 With four staff serving 30 1993 Challenge Alaska opens a consumers, SAIL officially incorporates satellite office in Juneau’s SAIL as a non‐profit with offices in Sitka, office, offering therapeutic and Ketchikan and Juneau. adaptive recreation opportunities. 20 Years of Independent Living 1 Another successful year at SAIL and our 20th anniversary since incorporation here in the great state of Alaska! Twenty years! Hard to believe, but when I look back at all that has been accomplished since SAIL’s inception I am simply amazed. With your help SAIL has touched thousands of lives and lead or partnered on countless community initiatives directly affecting the people we serve in transportation, employment, housing and homelessness, accessibility, combating domestic violence of our most vulnerable popu‐ lations, and more. SAIL made possible ramp‐equipped taxis in Juneau and Ketchikan; provided the umbrella for Juneau’s Project Playground; advocated for curb cuts and ac‐ cessible programs and buildings; provided training for thousand of students on disabil‐ ity and inclusion; and cross‐trained with the Eaglecrest Ski Area to realize the dream of snow sport lessons for anyone of any ability anytime lessons are offered.

Thanks for picking up the SAIL FY12 annual report. We are pleased to share a glimpse Executive Director into the lives of a handful of the 1000+ people SAIL serves as well as recognition of the board, staff, volunteers, and donors that make our work Inspiring Personal Independence possible. We couldn’t do it without YOU….Thank you for your support! Board of Directors Robert Purvis, President, Sitka Joseph Tompkins, Juneau • Sitka Fisheries Advisory Commission • United Human Services, Board Member • Foundation Fighting Blindness • U.S. Paralympic Ski Team • National Conference Planning • Professional Motivational Speaker Committee • Founder of Extreme Edge

Paul Douglas, Vice President, Juneau Kate Burkhart, Juneau • Zach Gordon Teen Club, Board • Nome Receiving Home, 2002 Member • Clarksville DV Shelter, Board Member • United Human Services, Board Chair • Volunteer Fundraiser: AK Legal Services, United Way of SE, Glory Hole, Juneau Arts and Humani‐ • Douglas‐Dornan Foundation, Founder ties Council, KTOO/KRNN/KXLL Public Radio

Suzanne Williams, Secretary, Ketchikan Samuel Wright, Hoonah • Opportunity House, Board Member • Alaska Independent Board, Former Member • Community Connections, Former Board Member • Hoonah Indian Association • Ketchikan Youth Football League, Former Treas‐ • Tlingit and Haida Central Council urer • SAIL Consumer

Mary Gregg, Treasurer, Ketchikan Jeff Irwin, Gustavus • Disability Law Center, Board Member • AWARE Board Member • Tongass Federal Credit Union, Board Mem‐ • Gustavus and Auke Bay Fire Department, ber Volunteer • Opportunity House, Board Member • Former Employee, SAIL

Rose Marie Duran, Juneau Elena Rath, Ketchikan • Alaska Brain Injury Network, Executive Commit‐ • Kootznoowoo Permanent Fund Settle‐ Picture Not tee ment Trust Available • 20+ Years Serving Children, Adults and Seniors • Capital City Republican Women, Past with Disabilities Treasurer • ADA Partner’s Project, Past Member

1994 SAIL wrote and was awarded the 1995 Justice for all is organized by Justin grant that provided Juneau with its first Dart in Washington D.C., advocating for wheelchair lift equipped taxi in Juneau the rights of individuals with disabilities.

2 SAIL At A Glance Disabilities Served Ethnicity

Physical 49% Caucasian 61% Developmental 16% AK Native/American Indian 34% Mental Health 12% Asian 2% Multiple 4% African American 1% Other 5% Hawaiian/Pacific Islander 1% Hispanic 1% Communities Served Age Angoon, Craig, Gustavus, Haines, Hoonah, Juneau, Kake, Ketchikan, Klawock, Under 5 1% Klukwan, Metlakatla, Petersburg, Ages 5‐19 11% Prince of Wales, Sitka, Skagway, Age 20‐24 4% Tenakee Springs, Ward Cove, Age 25‐59 39% Wrangell, Yakutat Age 60 &Older 45%

1996 Challenge Alaska Southeast becomes ORCA, a program of SAIL

3 SAIL in FY 2012

SAIL provided INDEPENDENT LIVING SERVICES to

1,649 elders and individuals with disabilities

in 19 different Southeast Alaska communities.

SAIL responded to 104 requests for ADVOCACY services,

336 INFORMATION AND REFERRAL requests,

418 requests for ASSISTIVE TECHNOLOGY,

and 93 requests for PEER SUPPORT.

SAIL assisted 284 people with TRANSPORTATION NEEDS

and 153 individuals with VOCATIONAL SERVICES.

500 individuals received SKILLS TRAINING.

181 RECREATION opportunities were offered

and SIGN LANGUAGE INTERPRETERS were provided

on 104 different occasions!

Summer 1999 Lee Hagmeier, with the assistance of ORCA, becomes 1999 Supreme Court decides that first documented person who is individuals with disabilities must blind to hike the Chilkoot Trail. be offered services in the most integrated setting possible.

4 Inspiring Stories of “I was so sad, everything was really bad and I didn’t know who could help me. Now I have a home with food and a chair and a bed. All I need now is a vacuum, but it’s good.” Meet Paul. When Paul’s aunt passed away this year, he was dev‐ astated and suddenly homeless. After a much needed hip sur‐ gery and no place to go, he moved to Haines to live with family. Things didn’t work out the way he planned and less than five days after surgery, Paul found himself on the street with no money. He was referred to SAIL. His cognitive disability made it hard for Paul to explain or even understand his own situation. Paul’s most immediate need was a safe place to rest. SAIL’s Last Resort Consumer Fund paid for the first night at a hotel and the local food bank set him up with a box of food. SAIL then turned to other agencies for help. Salvation Army, AWARE, Chilkoot In‐ dian Association, REACH, Haines Ministerial Association, Lynn Canal Counseling, and an individual donor all came together to ensure that Paul was safe and comfortable while the documentation for housing applications was gathered. Paul has now recovered from surgery and loves his new apartment.

“My quality of life used to be really bad. Just going to the gro­ cery store and post office was non existent for me because I didn't have a portable concen­ trator. Traveling to doctor ap­ pointments in Juneau or Anchor­ age terrified me because I was so worried about not having supplemental oxygen. But then I heard about the wonderful ser­ vices offered at SAIL. Wow, did SAIL ever come to my rescue! Within a few months they had not only found one for me, but got a grant to cover most of the cost! The burden has been lifted and I couldn't be more happy. Thank you!” ‐Rowena Jones

2000 Juneau office moves 2001 ORCA program starts to current location. in Ketchikan.

5 Personal Independence “Hi, it’s me. Um, I “After my mom passed just wanted to tell away, I was homeless… you that Thursday she had been my support for years. I could not find was really good. a job because of my read­ And I rode that ing and respiratory dis­ bike and that bike abilities. SAIL helped me was really good.” get Social Security and assistance from Alaska Annie’s phone Housing. It's so nice to message to ORCA the have someplace out of the rain, out of the day after she tried a weather, and I can sleep when I need to. I'm new tricycle for the finally able to rest and sleep, now I can look first time. for a stable job." ‐Charley Hagg

“Skiing with Mitchell has been a dream!”

Mitchell had tried skiing before, but it was not successful. Mitchell’s anxi- ety and fear were too much for an enjoyable experience on the mountain. Sliding on skis had been so unappealing to Mitchell that mom just thought skiing wasn’t Mitchell’s thing. This past winter, however, was different.

Mitchell was in sixth grade. He was trying new things, going on new ad- ventures. His first camping overnight, sans Mom, was with ORCA. So mom decided to give skiing another try. What began with hesitancy and a few tears quickly turned into astounding progress. By his second lesson, he was riding the chairlift and skiing down the beginner runs. At the end of the season, Mitchell was able to ski the beginner hill independent of any hands-on assistance. Skiing became so enjoy- able for Mitchell that his mom, Stacy, began skiing with him after each lesson. “Skiing with Mitchell has been a dream!” she exclaimed.

SAIL’s ORCA program was able to facilitate a newfound interest for Mitchell. Stacey and Mitchell now have one more activity they like to do together. Mitchell’s independ- ence on the snow has led to a greater sense of accomplish- ment and opened up new avenues for friendship with peers through recreation.

2002 The Help America Vote Act (HAVA) became law in the U.S. It required voting "systems" to be accessible for all those with disabilities, including special assistance for 2002 ORCA program blind or otherwise visually impaired voters. starts in Sitka. 6 YOU, our donors and grantors, Donors Norman Douglas Laura Hosey Paul Douglas David House Susan Alexander Maria Dudzak Catherine Ivie Carol Anderson Janice Dugan Lucy and Ray Ivie Diane Andresen Ann Dummer Jeff Irwin Diane Antaya Rose Duran Debbie Jackson Leslie Antolick and Lori Hoover John Dunlap Mrs. and Mr. Jamie Jackson Art and Susan Arnold Ms. Cynthia Eckert Julie Jackson Sharli Arntzen George Edwards Sierra and Carlos Jimenez Melissa Aronson John and Nancy Eiler Jorden Nigro and Bret Connell Laura Attwood Linda Esther Dan and Betty Keck Lourdes Baraoidan Morgan and Anita Evans Charles and Lynda Kelly Hattie Baumgartner Myron Fribush Kim Kiefer Candy Behrends Cheryl Fultz Chere Klein Ms. Marsha Bennett Catherine Gitkov Jennifer Klein Bonnie Berg John Gitkov Ms. Sheila Kleinschmidt Randy and Janet Berlin Millicent Gjevik Jean Kline Al Bixby and Pamela Woolcott Maria Gladziszewski and Eric Matt Knutson Sarajustine Black Kueffner Tristan Knutson‐Lombardo Max Blust Jeff and Frances Grant Stacie Kraly Sara Boesser Hugh and Shari Grant Beth LaCrosse Kenyatta Bradley Samuel and Julia Grant Ward Lamb Carol Brady Mrs. Linda Graziano Sandro and Sharon Lane Ron and Cathy Bressette Mary Gregg Geoff and Marci Larson Grace Brooks Inga Gregovich Patrick and Edna Leamer Kristiana Brown Clark Gruening Evangeline Lee Judith Brownhall Phyllis and Mark Hackett Nancy Lennon Jason Burke Lee and Christy Hagmeier Joyce Levine Kate Burkhart Lindsay Hallvik Pat Littlefield Cate Burnstead Kathleen and Jeremy Hansen Sharron Lobaugh Nico and Susan Bus Susan Hargiss Jim and Suzi Lowell Rafael and Leticia Castanos Mark Harris Susan Macaulay Walt and Beth Chapman John Hartle and Clare Pavia Walter Majoros and Lorinda Eric Chase John and Grace Hawkins Brotherton Kevin Chase William Hayes Jacob Mallinger Mrs. Jean Clayton Bernie Hendricks Anthony and Amanda Mallott Miki Cole Magdaline and R.C. Herbage Richard Maloney Paul Columb Diana and Mike Higgs Christopher Marshall Ms. Collette Costa Anna Holland‐Levine Anita Maxwell Jai Crapella Herb Holmes Sheryl Mayo Christopher Cummins Steve Holton Scott and Denice McPherson Helen Dick Charles and Christine Horan Sarah McRae Ellen Doig Eileen Hosey (Continued on page 9)

2004 SAIL wrote and was awarded the 2005 Juneau’s Project Playground grant that provided Juneau with its first conceived. SAIL is integral in advocat‐ wheelchair accessible taxi in Juneau ing playground be accessible to all.

7 make it all possible...Thank you!

(Continued from page 8) Jasmine Shaw Alaska Community Foundation Margie Medeiros Beatrice Shepard Chilkat Valley Comm. Found Roy and Laureen Mielke Andrea Short Douglas Dornan Foundation Devra Milam Rosie Sims Filipino Community, Inc. Ms. Tressa Millam Bob Small Fraternal Order of Eagles 4200 Mark Millard Tom Smith Governor Parnell's Inaugural Anita and Mike Moffitt Carol and Roger Sperber Committee Sam and Janice Nelson Scott and Sandy Spickler Haines Chamber of Commerce Paul Norwood Jeanette St. George John and Deena Hale Foundation Kyra Nylen Charlotte Stanbery Juneau Community Foundation Joan and Larry O'Keefe Carol Stauffer Juneau Douglas Lions Club Fortuna ODell Barbara Stephens Ketchikan Moose Lodge Maura Odell Ms. Janna Swanson Legislative Skits Steven Olson Saralyn Tabachnick Rasmuson Foundation Wayne Owen Sherry Tamone Sitka Charitable Trust Ed Parish Terry Tavel Sitka Moose Lodge Heather Parker Jill and Simon Taylor Skaggs Foundation Dee Peterson Andrea Thomas Tlingit and Haida Indians of the Ardeth Piston Joe Tompkins City and Borough of Juneau Laura Plenert Quinn Tracy United Way of Southeast Thad and Sandy Poulson Holly Trucano White Elephant Shop Robert Purvis Dave and Rebecca Valentine Carrie and Joseph Pusich Wilson Valentine Business and Cheryl Putnam Janet Valentour Corporate Support Guy Ransom Gale Vandor Elena Rath Cheryl Walsh Acupressure Institute Suzanne Williams Kate Walters of Alaska Hazel Reynolds and Sue McGowan Misty Warren Adlersheim Wilderness Lodge Dirk Richardson Louis and Janet Wegryn AEL&P Buzz Ritter Robert Weinstein Air Excursions Ms. Lillian Roberts Ellen Wells Alaska Fly'n'Fish Charters Caren Robinson Karen Wells Alaska Fudge Company Phoebe Rohrbacher Katie White Alaska Glacier Seafoods, Inc Rikard Romerein Edward Williams, Sr. Alaska Grafix Mrs. Florence Rossiter Mr. Jonathan Williams Alaska Northern Lights Cherie Rudolph Sam Wright Alaska Raptor Center Schellie Saddoris Gregory Wong Alaska Seaplane Service Joanne Sam Katherine Wylie Alaska Stone Arts Trever Sanders Patricia Yearty Alaska USA FCU ‐ Juneau Mr. Sam Scalcucci Marcus Zimmerman Alaska USA Federal Credit Union‐ Rory Schneeberger Ketchikan Joan and John Scott Foundations and Alaska's Capital Inn Albert Shaw Community Support (Continued on page 10)

June 15th, 2007 Project Playground complete after SAIL served as umbrella non‐profit .

8 (Continued from page 9) First Bank Mary Kay Cosmetics Alaskan and Proud Markets First City Electric McDonald's of SE Alaska‐ Juneau Alaskan Heritage Gems & Arts First City Players McDowell Group Inc Allen Marine Tours Fisherman's Eye Gallery MJ Cadle Photography ALPS Federal Credit Union Fjord Flying Service Moose Lodge‐Ktn Anderes Oil Food Services of America Mt. Roberts Tramway Arctic Bar Foreign Automotive Mt. Verstovia Lodge #18 Arctic Circle Enterprises Forget‐Me‐Not Sweater Shoppe Murray Pacific Artifacts Glacier Bay Sea Kayaks Nana's Attic Aurora Projekt Glacier Pediatrics NAPA Glacier Auto Parts Backdoor Cafe Goldbelt Hotel NorthStar Trekking Balanced Practice Good River B&B Nugget Alaskan Outfitter Baranof Chiropractic, Inc. Greens Creek Mining Co Oceanview Restaurant Beading Fascinations Gross Alaska Theatres ODOM Corporation Bernard K Passman Gustavus Inn Old Harbor Books Bernie's Harmony House Parnassus Books Blossom Images Harris Aircraft Services, Inc. Pavitt Health and Fitness Calisu Leaves Heritage Coffee Company Perseverance Theatre Changemakers Home Made Pretty Pie in the Sky Chapel by the Lake Home Plus Plumbers & Pipefitters Local Un‐ Chilkat Guides, Ltd Homeshore Cafe ion 262 Chinook & Company Homestead Bed and Breakfast Poker Creek Gold Choco Boutique Hometown Furnishings Precision Boatworks Chocolate Moose Horan and Company LLC Printing Trade Company Christmas in Alaska IBEW Local 1547 KTN Raven's Nest Guest House Coastal Real Estate Group Integrity Automotive RE/MAX of Sitka Cornerstone Home Health Island Tile and Marble Refiner's Roast Costco Jack's Plumbing and Heating Co. Rie Munoz Ltd. Crab Cracker Jerry's Meats and Seafoods Robertson's Gallery & Custom Crazy Wolf Studio Gallery JRC ‐ the Alaska Club Framing CruiseMart Juneau Empire Russell's Curves for Women Juneau Information Service Tech‐ Sadhana Works Czar's Treasures nology Safeway Daily Sitka Sentinel Juneau Symphony Safeway Food and Drug Danger Island Studio Juneau Taxi and Tours Salon Park Avenue David Green Furriers K‐Town Video Scanlon Gallery Davis Realty K3 Broadcasting Seaside Yarns, LLC Diamonds International KATH TV Service Auto Parts DIPAC KetchiCandies Shaub Ellison Tire Douglas S. Weaver, D.D.S, A.P.C. Ketchikan Daily News Sheinberg Associates Eaglecrest Ski Area KFMJ Silly Munchkins Ed Vandor Construction Kingfisher Charters Sitka Fur Gallery El Sombrero KINY/KSUP Sitka Sound Ocean Adventures Ernie's Old Time Saloon Kodiak Coat Company Sitka Vision Clinic Fairweather Prints KTKN SitNews.com Family Practice Physicians, Inc. Life Size Fish Skeins Fine Yarns Faulkner Banfield, P.C. Linni Esther, CHTP Sourdough Bar Fireweed Chiropractic and Mas‐ IBEW Local 1547 Sourdough/ Ingersoll Cab Co., Inc. sage LLC Madison Lumber & Hardware (Continued on page 12)

2009 Home Modifications for Aging in Place October 2008 SAIL opens (HomeMAP) is born, bringing accessibility to an office in Haines. private homes throughout SE Alaska. 9 SOUTHEAST ALASKA INDEPENDENT LIVING, INC. Financial Position June 30, 2012 FY12 ASSETS CURRENT ASSETS: Cash and cash equivalents: Operating $418,201 Project Playground Phase 2: ADA Upgrades $10,192 Receivables: Accounts receivable $30,439 Grants and Contracts receivable $195,311 Employee receivable $3,717 Prepaids and deposits $22,998 Total current assets $680,858

EQUIPMENT AND LEASEHOLD IMPROVEMENT, net $242,398

Total assets $923,256

LIABILITIES AND NET ASSETS CURRENT LIABILITIES: Accounts payable $31,121 Payable to Project Playground $35,192 Accrued compensation payable $78,888

Total current liabilities $145,201

NET ASSETS: Unrestricted net assets: Undesignated $530,035 Invested in equipment and leasehold improvement $242,398

Total unrestricted net assts $772,433

Temporarily restricted net assets $5,622

Total net assets $778,055

Total liabilities and net assets $923,256

See SAIL’s audited financial statements for the year ended June 30, 2012 for a complete presentation of SAIL’s financial condition and results of operations.

2011 SAIL wrote and was awarded 2011 Governor’s inaugural ball raises a grant to for Ketchikan’s first $46,000 for SAIL. wheelchair accessible taxi.

10 3225 Hospital Dr. Ste. 300 Juneau, AK 99801 CHANGE SERVICE REQUESTED

TO:

(Continued from page 10) Tall Tale Taxidermy Trinkets Southeast Alaska Cab Co., Inc. Tatsuda's IGA Twisted Tree Southeast Alaska Discovery Tenakee Hot Springs Lodge Tyler Rental Center Temsco Helicopters Valley Lumber Southeast Remodel LLC The Bear's Lair Venneberg Insurance Spiral Studio The Candy Corner Vintage Fare St. John's Episcopal Church The Canvas Wells Fargo Starboard Frames & Gifts The Island Pub Wells Fargo Bank Sitka Subway The Ivory Tusk White's Inc. & Harry Race Phar‐ Super Bear Supermarket The Pew Charitable Trusts macies Swan Lake Professional Building‐ The Salvation Army Wings Airways Sitka Dental Clinic The Silver Thimble Work & Rugged Gear Sweet Mermaid Coffee Shop Tiger Pilot & Mountain Miss Taco Time Tom's Treasures Taku Harley‐Davidson Treadwell Appraisal Associates THANK YOU!!!