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Cheshire and Merseyside Kidney Care Network Newsletter

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Cheshire and Merseyside Kidney Care Network Newsletter Cheshire and Merseyside Kidney Care Network Newsletter Summer 2012 Issue Inside this issue: Welcome to the Cheshire and Merseyside Network News 2 Kidney Care Network Newsletter News from the Units 3 Welcome to the first issue of the newly re‐launched Cheshire and Merseyside Kidney North West Updates 6 Care Network Newsletter. This newsletter aims to communicate developments and Update from British Renal facilitate joint working across kidney services in Cheshire and Merseyside. This Society Conference 7 newsletter is circulated widely to all local kidney units, local and patient groups, colleagues in primary and secondary care as well as nationally to NHS Kidney Care National Updates 9 and the National Clinical Director for Kidney Care. Forthcoming Events 11 We will update you on local and national news as well as highlighting examples of Network Details 12 best practice to show how we are all making a difference to improve the quality of life of kidney patients. Did you know? Are you a GP or Practice Nurse with an interest in Chronic Kidney Disease? The official NICE Guidance app is now available to download Cheshire and Merseyside Kidney Care Network has received a limited amount for users of Android of funding in order to provide GPs and Practice Nurses within the Network with and iPhone CPD accreditation via an online education tool, www.ckdonline.org. smartphones. This up‐to‐date, peer reviewed online tool will help you to improve the management of patients with CKD and maximise your QOF points. The content of the online tool will focus on providing detailed information on: Why this resource is needed: Looking at the NSF, eGFR, QOF World Kidney Day was held CKD – Why it has become an important issue: Epidemiology, th on Thursday 8 March 2012. NEOERICA, NHANES, increase in RRT population and the cost of RRT Causes of CKD: diabetes, hypertension, obstruction and infection World Kidney Day is Medicines management: pharmacology and modes of action celebrated in over 100 countries worldwide on the Each section is presented in an easy to use and engaging manner, populated second Thursday in March throughout with illustrations and videos, underpinned with cross referenced every year. It raises glossary. The resource is free to use as a reference tool. awareness of the importance of healthy kidneys and the CPD accreditation usually carries a cost of £10 per person; however, we are positive effects of pleased to inform you that the Kidney Care Network can provide this free of transplantation. charge to each Practice in Cheshire & Merseyside. However, due to the limited www.worldkidneyday.co.uk number of promotional codes we have been allocated, there is only one promotional code available for one individual per practice. To obtain your code, please email [email protected] 1 Network News Chronic Kidney Disease Algorithm The Network is pleased to launch the NICE Chronic Kidney Disease (CKD) Algorithm pocket card. This excellent resource was originally developed by the Cumbria and Lancashire Kidney Care Network. These cards provide handy reminders for the management of chronic kidney disease stages 1 ‐ 5. They have been circulated across the Network to colleagues working in primary care; if you have not received one, please contact [email protected] CyberREN The Region‐wide Renal Information Technology System is now live across the whole of the Network. This system, which is the first regional IT system specifically for kidney services in the UK, provides seamless patient care, improves patient safety, ensures clinicians have access to all patient information and to fulfil national reporting requirements has enabled safe clinical care in line with clinical governance and good medical practice; access to data for audit purposes at Trust, Regional and National levels and addresses Renal Association and National Service Framework standards. Implementing a Regional IT System: A Collaborative Approach Dr Alex Crowe (Clinical Network Lead), Jo Minogue‐Sharp (CyberREN Programme Lead) and Hannah Hague (Kidney Care Programme Lead), gave a presentation on the renal IT system CyberREN, at the recent iLinks Innovations Annual Conference and Exhibition. This session introduced the difficulties of managing patients with renal failure across a large geographical area and explained how renal services are managed through a Kidney Care Network. The presentation covered the procurement of CyberREN, the importance of collaborative working, the governance of the programme, lessons learnt and future plans for the programme. For further details on iLinks, click here. Telemedicine Remote Monitoring Project We are pleased to announce that funding has been secured from NHS North West, to undertake a pilot project at Royal Liverpool University Hospital. The project will enable patients who dialyse at home to link into the regional CyberREN system. Further updates on the project will be provided in future newsletters. For more information contact the CyberREN Programme Manager, [email protected] End of Life Care Project Update The Kidney Care Network and the Palliative and End of Life Care Network are implementing the recommendations in the End of Life Care in Advanced Kidney Disease: A Joint project report between Cheshire and Merseyside Kidney Care Network and Merseyside and Cheshire Cancer Network, which was published in July 2010. In January 2012, the Kidney Care Network Board: • Approved the framework of a Renal & Supportive & End of Life Strategy Group to monitor the work of the task/finish group, and produce quarterly progress reports to the Board and the Palliative and End of Life Care Clinical Network Group 2 • Approved the forming of a task/finish group which will maximise the potential of CyberREN by producing: o an end of life pathway o a register of patients on end of life pathway o template letters to communicate end of life issues with GPs as well as other primary and palliative care services o an advance care plan for each patient which is regularly reviewed and updated Work is currently underway in this process, with engagement from primary and secondary care. If you would like to receive more information or get involved please contact Elaine Owen, End of Life Care Service Improvement Lead for Acute & Specialist Services, [email protected] National Kidney Federation Thanks to generous funding from the British Kidney Patient Association, the National Kidney Federation (NKF) has appointed five additional Advocacy Officers, with effect from April 2012. Dennis Crane, who has been the North Region Advocacy Officer for NKF since the post was established in 2004, will now only have responsibility for the North West of England, and Linda Pickering will take over the North and Yorkshire & the Humber part of Dennis’ former region. This should enable him to spend more time dealing with issues in Cheshire & Merseyside, Cumbria & Lancashire and Greater Manchester, whilst retaining a lead role or involvement in some extra‐regional and national issues also. For further information on the NKF, please email [email protected] Network Website launching soon We will be launching our brand new Kidney Care Network website in the summer. The website will be a comprehensive resource of information, advice and education about kidney disease for patients, carers and healthcare professionals. Please watch out for further details of the website launch. News from the Units Care Plans & Renal PatientView Colleagues at Royal Liverpool University Hospital and Arrowe Park Hospital have been working together to produce care plans for their patients. The care plan is supported by the regional CyberREN system and Renal PatientView, with the addition of a hand held record for the patients. Work is on‐going for completion of the electronic pathways. For more information contact either, Mandie Balshaw‐Greer, CKD Nurse Practitioner, Royal Liverpool Hospital ([email protected]) or Marie Bosworth, CKD Nurse Practitioner, Arrowe Park Hospital ([email protected]) The teams launched Renal PatientView on World Kidney Day “Whilst the hand held element of our care and are using a systematic approach to recruit patients. plan is still in process we believe that the Recruitment of the haemodialysis population across Wirral launch of Renal Patient View is the and Liverpool is progressing, and the aim is to recruit the initiation of our care planning process for peritoneal dialysis population in May. Early summer will our renal population”. begin the enormous task of recruiting the Chronic Kidney Mandie Balshaw‐Greer & Marie Bosworth Disease population. Project Leads Timely Listing for Transplantation Projects: Aintree University Hospital A 6 month Timely Listing for Transplantation Project has been successfully completed at Aintree Hospital. Led by Dr Sharma, Consultant Nephrologist, and Melanie Griffin, Deputy Ward Manager, and funded by NHS Kidney Care, the aims of the project included: Identifying barriers to timely listing A clear transplant decision for all prevalent patients with eGFR < 20 (not yet on RRT) Designing and implementing sustainable service developments to improve rates of listing and transplantation 3 Following completion of the project, the results are being shared nationally; a presentation was given at the British Transplant Society Conference and a poster presented at the recent Renal Association Conference. For further details, contact [email protected] Royal Liverpool Hospital Following
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