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Tidings Issue 41 Spring 2016

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Tidings Issue 41 Spring 2016 Spring 2016 | Issue 41 Hellpiing ostomates siince 1967 Special Feature: Holidays & Travel including • Hints & Tips for travellers • Holiday Insurance Also • Parastomal hernias • Two nurses with stomas FREE LAPEL PIN OFFER FREE LAPEL PIN OFFER Introducing... Platinum Convex experience freedom in your second skin • Foam backed contoured skin protector • Soft and breathable fabric • Advanced waterproof filter system • Suitable for flush or retracted stomas • Available in Closed, Drainable and Urostomy For complimentary samples call us now on 0800 318 282 It’s your choice All convex pouches should only be used after consulting your stoma care nurse. pelicanhealthcareltd @PelicanHealth pelicanhealthcare.co.uk FROM THE EDITORIAL TEAM EDITORIAL TEAM S e F Editor e R E Colostomate/Helpline Volunteer p E Rosemary Brierley a g la e p not actual size Assistant Editor, Trustee, 5 e Colostomate & Volunteer 9 l o Sarah Squire fo f r fe Colostomate d r & Helpline Volunteer e Jackie Dudley ta il Trustee, s. Colostomate & Helpline Volunteer Ian Jackson Stoma Care Nurse Advisor Julie Rust RGN, Dip, N MSc General Manager Susan Hale Products & Services Officer dear READERS Arvind Anand If you attended the Colostomy Association Holidays and travel are the special topic for Open Day last July you will remember the this spring issue of Tidings. Hopefully this excellent presentation on parastomal will persuade those of you that have not hernias by our president Ian Daniels stayed away from home since your stoma FRCS. surgery that travel with a stoma is not only possible but can be as enjoyable as Following on from this, we are delighted to holidays in the past. Even though it is now be able to include in this issue of Tidings an almost 25 years ago I can still remember article on this common complication of how apprehensive I felt before I went to stoma surgery. As well as highlighting the stay away for the first time after my stoma need for more research into the prevention surgery. The answer for me was to take a of parastomal hernias and the most short break close to home to begin with How to contact Tidings effective way to surgically repair them, Mr then venture further afield as my By letter write to: Daniels emphasises that the decision to confidence increased. surgically repair a hernia isn’t taken lightly. The Editorial Team For those with mild or minor symptoms Planning ahead is also important. Peter Colostomy Association Martin answers questions about travel Enterprise House, 95 London Street conservative management is often insurance that we frequently receive on the Reading RG1 4QA recommended. Therefore, in the next issue we plan to include an article from our helpline from ostomates preparing to travel By telephone: stoma care nurse advisor Julie Rust and her abroad. Sarah Squire passes on hints and 0118 939 1537 colleague Simekuhle Ndlovu explaining tips collected from Colostomy Association Via e-mail: volunteers, Tidings readers and Facebook [email protected] how a different appliance or support garment can often reduce the problems members. This includes tips for irrigators on Advertising Enquiries: associated with a hernia and improve her regular irrigation page as well advice on For a media pack and advertising rates. quality of life. going through airport security and Contact: Arvind Anand reassurance for those concerned about flying Telephone : Many years of training and experience for the first time after their stoma surgery. A 0118 918 0500 equip stoma care nurses with the reader writes about the plans she made E-mail: knowledge to advise and care for people before her first cruise and concludes that [email protected] with stomas. Many will, however, be the cruising is an ideal way for an ostomate to first to admit that they don’t know what it see the world. Maybe, however, you prefer to Tidings Magazine: feels like to live and cope every day with a The views expressed by the contributors are not stay in the UK; David Ford, one of Colostomy necessarily those of the Colostomy Association. Great stoma. In this issue we hear from two Association’s volunteers in Wales, describes care has been taken to ensure accuracy, but the nurses who do. You may remember three some of the interesting places in Britain he Colostomy Association cannot accept responsibility for errors or omissions. years ago we included Molly’s story in has visited in his campervan. Tidings about how she was diagnosed with Disclaimer: So don’t let having a stoma stop you getting The display, description or demonstration of products Crohn’s disease at the age of 13 and and services or the inclusion of advertisements, inserts subsequently had a colostomy; she now away to destinations either in this country and samples within Tidings Magazine does not or abroad. Just pack your bags and off you constitute an endorsement or recommendation of tells us how she recently qualified as these products and services by the Colostomy paediatric nurse. Alison Horner on the other go…and when you get back do write and Association. hand writes about her career in nursing at let other readers know how you got on. ©Copyright 2016 Colostomy Association. All rights St Mark’s and on colorectal wards in other Have a great time reserved. No part of this publication may be reproduced, stored in a retrieval system, or hospitals. She says: “Much of what I have transmitted, in any form or by any means, electronic, been through has allowed me to truly Rosemary Brierley mechanical, photocopying, recording or otherwise, empathise with my patients.” Her story ends on behalf of The Tidings Editorial Team except as permitted by the UK Copyright, Designs and Patents Act 1988, without the prior written permission as she flies off on holiday for the first time Email: of the publisher. All marks acknowledged. with a stoma. [email protected] | WEBSITE: WWW.COLOSTOMYASSOCIATION.ORG.UK TIDINGS | SPRING 2016 |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ow to get in touch with the inside this issue Colostomy all your regulars & special features 8 page Association ure Updates Focus on... feat The Association represents the interests of colostomates and other ostomates. We 8 Colostomy Day 2016 provide support, reassurance and practical Holidays & Travel information to anyone who has or is about 19 Fundraising 32 Kevin Young to have a Colostomy. A thank you for your generous Winner of this year’s CA donations and fundraisers How to become a member of the calendar photo competition Colostomy Association 28 New products Keep up to date with the 33 Cruising Simply contact us by post: latest products and services is so easy for ostomates Colostomy Association Enterprise House, 95 London Street 29/50 34 Wherever we park the Reading RG1 4QA 41 CA News van is our home David Ford By telephone: Sue Hale reports from General Enquires: 0118 939 1537 Head Office 35 Tips for travelling Stoma care queries only: when you have a Freephone Helpline: 0800 328 4257 From Healthcare stoma Sarah Squire By E-mail: Professionals [email protected] 36 Don’t forget your 9 Hernias, Hernias, travel certificate Find us on FACEBOOK: Hernias and Hernia Support 37 Living Life to the Full Ian Daniels FRCP, CA President Crisi Taylor 52 Dear Nurse 38 Your travel insurance Join our ‘closed’ group today simply Julie Rust answers your letters questions answered put Colostomy Association into your and e-mails Peter Martin FACEBOOK search bar, click on Group and click on ‘Ask to join’ you will be Support assured of a warm welcome! Living with a Stoma Visit us and register at: 27 Stoma Aid www.colostomyassociation.org.uk 23 Irrigation How the scheme is helping Sarah Squire passes on ostomates in Moldova Don’t delay travel tips 47 JOSH Donate Online today! Jennifer & Laura There are NOW two ways to donate 39 From a Carer’s online Perspective – 2 sisters, 0 colons Mack shares their holiday 1 experiences 49 The Facebook Group Helping each other 43 From One Ostomate to Another 51 The Breakaway Three CA volunteers answer Foundation readers’ questions about sport 54 Readers’ Writes Visit the Colostomy Association website Your letters and e-mails and simply click on the donate panel on the home page. Real Lives 61 A Local Group Coventry Stoma Support 2 7 From Patient to Nurse Molly qualifies as a paediatric Group nurse Visit the Just Giving home page you will see 64 List of local a search panel ‘Find a Charity’ type in 12 From Nurse to Patient support Colostomy Association. Alison Horner groups The Colostomy Association is a charitable company limited by guarantee (Registered Charity No: 1113471). | WEBSITE: WWW.COLOSTOMYASSOCIATION.ORG.UK TIDINGS | WINTER 2016 | 5 A Hollister Technology Start right. See it through. Integral AF300 filter • Reduces pouch ballooning and virtually
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