Behc?et's - Spring 13 12pp.qxd:Behçet's 19/6/13 11:30 Page 1 Summer 2013 NEWSLETTER No 24 Summer 2013 The Behçet’s Syndrome Society – caring for those with a rare, complex, and lifelong disease The Society was founded in 1983 by Judith Buckle and is a Registered Charity No. 326679. The main aims and objectives of the Society are:- G provision of information G promotion of research G relief of distress/poverty The Society is a member of National Voices (formerly known as the Long- Term Conditions Alliance or LTCA), Rare Disease UK, EURODIS (European patients’ organisation for rare diseases), the Behçet’s Forum and the International Society for Behçet’s Disease (ISBD). Professor Robert Moots and Jan Mather at the Liverpool Centre CONTACT DETAILS Registered Office: 15 The Daedings, Deddington, Oxfordshire OX15 0RT Birmingham and Administration Office: 8 Abbey Gardens, Evesham, Liverpool Patients Centres Worcester WR11 4SP Tel: 0845 130 7328 E-Mail:
[email protected] declared open! Web Site: www.behcets.org.uk HELPLINE 0845 130 7329 TRUSTEES Chair Jan Mather Vice-Chair Kathryn Proudlock Hon. Secretary Alison Pemberton Hon. Treasurer Alan Lane Alan Booth John Henson Norah Martyn Aaron McPeake Kirsty Millard Cutting of the Birmingham ribbon: (from left) Lady Mayoress of Birmingham Mrs Kathleen Lines, Amanda Page Lord Mayor of Birmingham Councillor John Lines, Professor Carl Chinn MBE, Jan Mather, Chair of the Behçet’s Syndrome Society, and Dr Deva Situnayake, clinical lead Judi Scott – 1 Behçet’s Syndrome Society Newsletter Issue No 24 – Summer 2013 Behc?et's - Spring 13 12pp.qxd:Behçet's 19/6/13 11:31 Page 2 PATIENTS CENTRES Birmingham opening Local TV and radio personality Professor Carl Chinn MBE and the Lord Mayor of Birmingham were on hand on 16 May to officially open the new centre at the City Hospital Birmingham.