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Annual Report 2019 ANNUAL REPORT FOCUSED CurtisCurtis KidneyKidney Recipient Recipient ANNUAL REPORT FY 2019 1 TABLE OF CONTENTS “I swim, bike ride, go to the beach, walk our dogs, all hand-in-hand with my husband, something that would not have been possible without THE BIG ASK: THE BIG GIVE and the entire group of local and National NKF staff.” Cindy Stein, living donor kidney recipient of Cranberry Township, PA 2 ANNUAL REPORT FY 2019 01. OUR LEADERSHIP 4 02. OUR IMPACT AT A GLANCE 10 03. ADVANCING KIDNEY TRANSPLANTATION 14 04. FOCUS ON CHILDREN AND FAMILIES 18 05. KIDNEY HEALTH AWARENESS FOR ALL 22 06. MAKING LIVES BETTER RESEARCH 26 07. CHANGING LAWS AND INFLUENCING MINDS 30 08. AIDING THE PROFESSIONALS 34 09. PROFILE OF CORPORATE CHAMPION 38 10. OUR FINANCIAL OVERVIEW 40 11. NKF SERVING THE LOCAL COMMUNITY 48 12. WHAT’S TO COME IN FY20 52 ANNUAL REPORT FY 2019 3 01A MESSAGE FROM LEADERSHIP Kidney disease is a worldwide health crisis. In the United States, an estimated The National Kidney Foundation (NKF) has been working diligently for patients 37 million people may have chronic kidney disease (CKD). The majority don’t know for nearly 70 years, and we are still at it. We are forever moving our goalpost they have the life-threatening illness. Symptoms often don’t appear until the end forward to the next steps in lessening the impact for the millions who suffer with stages, when it is most deadly, less treatable, and overwhelming. Furthermore, 1 in 3 kidney disease. We are constantly adding to our diverse catalog of initiatives — American adults are at risk for kidney disease. because when we see a problem, we want to find a solution. We know that we are not going at this crisis alone, but we are leaders in the effort to fight kidney disease. To make this urgent health crisis even more challenging, there is no one cause of kidney disease or kidney failure. The disease is as complex as the lives patients must Within these pages, you will get a snapshot of what was new in FY19, just some live after diagnosis. of what’s ongoing and what we could do if we had the resources. Too little time and public funds are spent on understanding CKD and improving We will never give up trying to find ways to prevent CKD, lessen the burden for lives of patients. And yet, too much public money is spent treating it. patients, increase transplantations, educate the public and healthcare professionals, and stop the progression of this powerful disease. We hope that you will join us in That’s where we come in. this effort. We are focused on: • eliminating all preventable CKD; Sincerely, • making transplants available to all patients who want one; • relentlessly advocating for a better quality of life and outcomes NKF Chair of the Board for all kidney patients. John Gerzema, Holly Kramer, MD, MPH, NKF President We raise funds so we can invest in research, patient programs, professional education, public awareness, and legislative and regulatory reform. Kevin Longino, NKF Chief Executive Officer 4 ANNUAL REPORT FY 2019 “We have a public health crisis that isn’t being addressed and millions of people need“ us to find the ways to eliminate all preventable chronic kidney disease.” John Gerzema, NKF Chair of the Board ANNUAL REPORT FY 2019 5 “NKF’s focus on patients is critical for those people carrying“ the burden of dialysis and late-stage CKD.” Holly Kramer, MD, MPH, NKF President 6 ANNUAL REPORT FY 2019 INTRODUCING THE NKF BOARD Year after year, each class of the NKF Board of Directors have served with a personal connection to kidney disease. Manish Agarwal, President and COO Personal connection: Mr. Cosgrove’s Kevin Longino, CEO Michael J. Stevenson, Attain LLC, McLean, VA mother-in-law and his best friend have National Kidney Foundation, New York CPA, NKF Secretary Personal connection: Mr. Agarwal is a received a diagnosis of CKD. Personal connection: He is a kidney Partner, Clarus Partners, Columbus, OH transplant recipient and is passionate Jennifer DaSilva, President transplant recipient, and son and Personal connection: After his diag- about kidney health, and actively serves Berlin Cameron, New York grandson of kidney patients. nosis of glomerulonephritis, Mr. NKF Serving the National Capital Area as Stevenson received a kidney from his Ms. DaSilva Regional Vice Chair of the Board. Personal connection: Samuel J. Marchio, brother, Jim, in 1996, and has been a knows that awareness is just part of the President, Federal Affairs, champion of trying to raise awareness Vice President battle against the progression of kidney Head of Congressional Affairs Thomas P. Cassese, about CKD and ultimately trying to Hydroflow Barnes Division, Chapin, SC disease, so she is driven in her efforts to Anthem, Inc., Washington, D.C. find a cure. Personal connection: Mr. Cassese has help spread NKF’s messages. Personal connection: He is passionate Stephanie Stewart, LICSW, MBA, served on the local NKF Serving the NKF Chair about kidney health, public health, John T. Gerzema, Operations Administrator Carolinas—South Carolina Board since CEO, Harris Insights & and fundraising 1988, and on the National Board since Neurosciences and Post Acute Care, Analytics, New York Holly Kramer, MD, MPH 2014. More than 20 years ago, he was Mayo Clinic, Mankato, MN Personal connection: Mr. Gerzema NKF President approached by a close friend with CKD Personal connection: Ms. Stewart cares experienced kidney damage as a child. Loyola University, Chicago to help fund-raise for NKF. about improving the lives of people with Brennan Hart, Esq. Personal connection: She is a CKD. Many of the individuals, mostly Michael J. Choi, MD Pietragallo, Gordon, Alfano. Bosick, & second-generation kidney healthcare patients, with whom she has worked Chief of Nephrology, Georgetown Raspanti, LLP, Pittsburgh professional, dedicating her life to with have touched her life in very University School of Medicine, improving outcomes for people with Mr. Hart donated personal ways. Washington, D.C. Personal connection: this disease. a kidney to his child 20 years ago. Anthony Tuggle, Vice President Personal connection: Dr. Choi’s uncle is Art Pasquarella, CRE, EVP/COO Financial Consultant Mobility Sales and Service, AT&T, Atlanta on dialysis and his father-in-law has had Tom Hough, Equus Capital Partners, Ltd., Philadelphia a kidney transplant. Board Member Personal connection: A 20-year kidney Personal connection: He is a living transplant recipient, Mr. Tuggle is Matthew Cooper, MD Bain Capital Specialty Finance Plano, TX donor, and two of his immediate committed to working with NKF towards Director Kidney and Pancreas family members have received kidney His daughter kidney disease prevention efforts. Transplantation, Medstar Georgetown Personal connection: transplants. Transplant Institute (MGTI) received her first diagnosis of kidney Bradley A. Warady, MD Professor of Surgery, Georgetown stones at age 9. He joined the local Stephen Pastan, MD, Children’s Mercy Hospitals & Clinics, University School of Medicine, NKF board to learn more about kidney Associate Professor of Pediatric Nephrology, Kansas City, MO disease and to help others deal with Medicine, Emory Transplant Washington, D.C. Personal connection: Dr. Warady has kidney disease. Center, Atlanta Personal connection: Dr. Cooper’s work taken advantage of his opportunity with NKF is centered on improving the Kailesh Karavadra, Managing Principal Gregory W. Scott, President as an NKF Board Member to do what lives of people with CKD and supporting Ernst & Young LLP, San Jose, CA Winfield Management he has done throughout his career: the need for organ transplantation for Personal connection: His mother was a Point Pleasant, PA advocate for children affected by those with ESKD. living donor for her sister, who ultimately Personal connection: Mr. Scott donated kidney disease. Joseph Cosgrove Chairman, lost her life to kidney disease. a kidney to his son. President and CEO Pentec Health, Inc., Boothwyn, PA ANNUAL REPORT FY 2019 7 “We dream of a future where there is no longer a need for a“ waitlist because everyone who wants a kidney will get one.” Kevin Longino, NKF Chief Executive Officer and kidney recipient 8 ANNUAL REPORT FY 2019 NATIONAL STAFF Kevin Longino Brenita Brooks Julie Kimbrough Chief Executive Officer Regional Vice President Vice President Mid-Atlantic Marketing, Communications, Petros A. Gregoriou, CPA and Public Affairs Chief Financial Officer Chad Iseman Regional Vice President Krystn Kuckelman Dolores Machuca-Ruiz Central and Pacific Northwest Vice President Chief Marketing Officer Event Development Susan Ketron, CFRE Joseph Vassalotti, MD Regional Vice President Jacob Lane Chief Medical Officer Organizational Vice President Kerry K. Willis, PhD Capacity Development Information Technology Chief Scientific Officer Jennifer Ching Katarina E. Madej Anthony S. Gucciardo Vice President of Vice President Senior Vice President Human Resources Digital Marketing Strategic Partnerships Stephanie Cogan Jennifer Martin Jessica Joseph, MBA Vice President Vice President Senior Vice President Corporate Relations Program Development Scientific Activities Kelli Collins, MSW Elizabeth Montgomery Jennifer St. Clair Russell, Vice President Vice President PhD, MSEd, MCHES Patient Engagement Learning Strategies and Primary Care Programs Senior Vice President James Echikson Education and Programs Vice President Troy Zimmerman Maureen Stone Corporate Development Vice President Government Relations Senior Vice President Andrew Gordon, CPA Development Vice President Denise
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