2019 ANNUAL REPORT
FOCUSED
CurtisCurtis KidneyKidney Recipient Recipient
ANNUAL REPORT FY 2019 1 TABLE OF CONTENTS
“I swim, bike ride, go to the beach, walk our dogs, all hand-in-hand with my husband, something that would not have been possible without THE BIG ASK: THE BIG GIVE and the entire group of local and National NKF staff.”
Cindy Stein, living donor kidney recipient of Cranberry Township, PA
2 ANNUAL REPORT FY 2019 01. OUR LEADERSHIP 4
02. OUR IMPACT AT A GLANCE 10
03. ADVANCING KIDNEY TRANSPLANTATION 14
04. FOCUS ON CHILDREN AND FAMILIES 18
05. KIDNEY HEALTH AWARENESS FOR ALL 22
06. MAKING LIVES BETTER RESEARCH 26
07. CHANGING LAWS AND INFLUENCING MINDS 30
08. AIDING THE PROFESSIONALS 34
09. PROFILE OF CORPORATE CHAMPION 38
10. OUR FINANCIAL OVERVIEW 40
11. NKF SERVING THE LOCAL COMMUNITY 48
12. WHAT’S TO COME IN FY20 52
ANNUAL REPORT FY 2019 3 01A MESSAGE FROM LEADERSHIP
Kidney disease is a worldwide health crisis. In the United States, an estimated The National Kidney Foundation (NKF) has been working diligently for patients 37 million people may have chronic kidney disease (CKD). The majority don’t know for nearly 70 years, and we are still at it. We are forever moving our goalpost they have the life-threatening illness. Symptoms often don’t appear until the end forward to the next steps in lessening the impact for the millions who suffer with stages, when it is most deadly, less treatable, and overwhelming. Furthermore, 1 in 3 kidney disease. We are constantly adding to our diverse catalog of initiatives — American adults are at risk for kidney disease. because when we see a problem, we want to find a solution. We know that we are not going at this crisis alone, but we are leaders in the effort to fight kidney disease. To make this urgent health crisis even more challenging, there is no one cause of kidney disease or kidney failure. The disease is as complex as the lives patients must Within these pages, you will get a snapshot of what was new in FY19, just some live after diagnosis. of what’s ongoing and what we could do if we had the resources. Too little time and public funds are spent on understanding CKD and improving We will never give up trying to find ways to prevent CKD, lessen the burden for lives of patients. And yet, too much public money is spent treating it. patients, increase transplantations, educate the public and healthcare professionals, and stop the progression of this powerful disease. We hope that you will join us in That’s where we come in. this effort. We are focused on: • eliminating all preventable CKD; Sincerely, • making transplants available to all patients who want one; • relentlessly advocating for a better quality of life and outcomes NKF Chair of the Board for all kidney patients. John Gerzema, Holly Kramer, MD, MPH, NKF President We raise funds so we can invest in research, patient programs, professional education, public awareness, and legislative and regulatory reform. Kevin Longino, NKF Chief Executive Officer
4 ANNUAL REPORT FY 2019 “We have a public health crisis that isn’t being addressed and millions of people need“ us to find the ways to eliminate all preventable chronic kidney disease.”
John Gerzema, NKF Chair of the Board
ANNUAL REPORT FY 2019 5 “NKF’s focus on patients is critical for those people carrying“ the burden of dialysis and late-stage CKD.” Holly Kramer, MD, MPH, NKF President
6 ANNUAL REPORT FY 2019 INTRODUCING THE NKF BOARD Year after year, each class of the NKF Board of Directors have served with a personal connection to kidney disease.
Manish Agarwal, President and COO Personal connection: Mr. Cosgrove’s Kevin Longino, CEO Michael J. Stevenson, Attain LLC, McLean, VA mother-in-law and his best friend have National Kidney Foundation, New York CPA, NKF Secretary Personal connection: Mr. Agarwal is a received a diagnosis of CKD. Personal connection: He is a kidney Partner, Clarus Partners, Columbus, OH transplant recipient and is passionate Jennifer DaSilva, President transplant recipient, and son and Personal connection: After his diag- about kidney health, and actively serves Berlin Cameron, New York grandson of kidney patients. nosis of glomerulonephritis, Mr. NKF Serving the National Capital Area as Stevenson received a kidney from his Ms. DaSilva Regional Vice Chair of the Board. Personal connection: Samuel J. Marchio, brother, Jim, in 1996, and has been a knows that awareness is just part of the President, Federal Affairs, champion of trying to raise awareness Vice President battle against the progression of kidney Head of Congressional Affairs Thomas P. Cassese, about CKD and ultimately trying to Hydroflow Barnes Division, Chapin, SC disease, so she is driven in her efforts to Anthem, Inc., Washington, D.C. find a cure. Personal connection: Mr. Cassese has help spread NKF’s messages. Personal connection: He is passionate Stephanie Stewart, LICSW, MBA, served on the local NKF Serving the NKF Chair about kidney health, public health, John T. Gerzema, Operations Administrator Carolinas—South Carolina Board since CEO, Harris Insights & and fundraising 1988, and on the National Board since Neurosciences and Post Acute Care, Analytics, New York Holly Kramer, MD, MPH 2014. More than 20 years ago, he was Mayo Clinic, Mankato, MN Personal connection: Mr. Gerzema NKF President approached by a close friend with CKD Personal connection: Ms. Stewart cares experienced kidney damage as a child. Loyola University, Chicago to help fund-raise for NKF. about improving the lives of people with Brennan Hart, Esq. Personal connection: She is a CKD. Many of the individuals, mostly Michael J. Choi, MD Pietragallo, Gordon, Alfano. Bosick, & second-generation kidney healthcare patients, with whom she has worked Chief of Nephrology, Georgetown Raspanti, LLP, Pittsburgh professional, dedicating her life to with have touched her life in very University School of Medicine, improving outcomes for people with Mr. Hart donated personal ways. Washington, D.C. Personal connection: this disease. a kidney to his child 20 years ago. Anthony Tuggle, Vice President Personal connection: Dr. Choi’s uncle is Art Pasquarella, CRE, EVP/COO Financial Consultant Mobility Sales and Service, AT&T, Atlanta on dialysis and his father-in-law has had Tom Hough, Equus Capital Partners, Ltd., Philadelphia a kidney transplant. Board Member Personal connection: A 20-year kidney Personal connection: He is a living transplant recipient, Mr. Tuggle is Matthew Cooper, MD Bain Capital Specialty Finance Plano, TX donor, and two of his immediate committed to working with NKF towards Director Kidney and Pancreas family members have received kidney His daughter kidney disease prevention efforts. Transplantation, Medstar Georgetown Personal connection: transplants. Transplant Institute (MGTI) received her first diagnosis of kidney Bradley A. Warady, MD Professor of Surgery, Georgetown stones at age 9. He joined the local Stephen Pastan, MD, Children’s Mercy Hospitals & Clinics, University School of Medicine, NKF board to learn more about kidney Associate Professor of Pediatric Nephrology, Kansas City, MO disease and to help others deal with Medicine, Emory Transplant Washington, D.C. Personal connection: Dr. Warady has kidney disease. Center, Atlanta Personal connection: Dr. Cooper’s work taken advantage of his opportunity with NKF is centered on improving the Kailesh Karavadra, Managing Principal Gregory W. Scott, President as an NKF Board Member to do what lives of people with CKD and supporting Ernst & Young LLP, San Jose, CA Winfield Management he has done throughout his career: the need for organ transplantation for Personal connection: His mother was a Point Pleasant, PA advocate for children affected by those with ESKD. living donor for her sister, who ultimately Personal connection: Mr. Scott donated kidney disease. Joseph Cosgrove Chairman, lost her life to kidney disease. a kidney to his son. President and CEO Pentec Health, Inc., Boothwyn, PA
ANNUAL REPORT FY 2019 7 “We dream of a future where there is no longer a need for a“ waitlist because everyone who wants a kidney will get one.”
Kevin Longino, NKF Chief Executive Officer and kidney recipient
8 ANNUAL REPORT FY 2019 NATIONAL STAFF
Kevin Longino Brenita Brooks Julie Kimbrough Chief Executive Officer Regional Vice President Vice President Mid-Atlantic Marketing, Communications, Petros A. Gregoriou, CPA and Public Affairs Chief Financial Officer Chad Iseman Regional Vice President Krystn Kuckelman Dolores Machuca-Ruiz Central and Pacific Northwest Vice President Chief Marketing Officer Event Development Susan Ketron, CFRE Joseph Vassalotti, MD Regional Vice President Jacob Lane Chief Medical Officer Organizational Vice President Kerry K. Willis, PhD Capacity Development Information Technology Chief Scientific Officer Jennifer Ching Katarina E. Madej Anthony S. Gucciardo Vice President of Vice President Senior Vice President Human Resources Digital Marketing Strategic Partnerships Stephanie Cogan Jennifer Martin Jessica Joseph, MBA Vice President Vice President Senior Vice President Corporate Relations Program Development Scientific Activities Kelli Collins, MSW Elizabeth Montgomery Jennifer St. Clair Russell, Vice President Vice President PhD, MSEd, MCHES Patient Engagement Learning Strategies and Primary Care Programs Senior Vice President James Echikson Education and Programs Vice President Troy Zimmerman Maureen Stone Corporate Development Vice President Government Relations Senior Vice President Andrew Gordon, CPA Development Vice President Denise Andersen Finance and Controller Regional Vice President Northeast
ANNUAL REPORT FY 2019 9 02KIDNEY DISEASE AT A GLANCE
37 million American adults have CKD
1 in 3 African Americans American adults are suffer from kidney failure 3 times more than at risk of CKD White Americans.
35% of all patients Hispanics are 1.3 times more likely treated with dialysis are to develop kidney failure than non-Hispanics. African American
Source: U.S. Renal Data System
Source: National Kidney Foundation’s Kidney Disease-The Basics Fact Sheet 10 ANNUAL REPORT FY 2019 KIDNEY DISEASE BY THE NUMBERS 6,442 21,167 people About people received a living-donor kidney in 2018 received a kidney transplant in 2018 Source: UNOS 100,000 Source: UNOS people on waitlist for a 12 58.9% people
kidney donation die each day while of all organ waiting for a transplants were kidneys in 2018 Source: UNOS kidney transplant Source: UNOS
Source: UNOS
In 2018, In 2019, HHS Secretary Alex Azar reported that only
16% drop $114 billion 12% of patients in mortality for dialysis patients in 2018 Medicare dollars spent on start dialysis treatment at home, while 88% start at centers.
Source: U.S. Renal Data System CKD and ESKD Source: U.S. Health and Human Services Source: U.S. Renal Data System
ANNUAL REPORT FY 2019 11 NKF STATS AT A GLANCE
Seminars of the THE BIG ASK: THE BIG GIVE held in 14 states in FY19
forums Advocates online for kidney patients with representing 43 states attend 2019 4,326 members Kidney Patient Summit in Washington, D.C.
legislators –Review ed Journals co-sponsor Living Donor Peer published by NKF Protection Act of 2019
Source: National Kidney Foundation
12 ANNUAL REPORT FY 2019
1.9 16.7 32,000 142 5,200 billion million clinicians educated CME/CE activities professional Members by continuing in FY19 media impressions of Facebook impressions education activities NKF content in FY19 of NKF content in FY19
Top 3 pages on 222,000 Facebook 16.4 31.3 kidney.org: followers million million 1. 10 signs you many have 2.4 kidney disease unique visitors to page views on 27.3K Twitter 2. GFR Calculator tool million kidney.org in 2018 kidney.org in 2018 followers 3. What is GFR? Twitter impressions of NKF content in FY19 16.2K Instagram followers
4,897 Youtube Average 10,400 people subscribers received Kidney News Digest weekly in FY19
55,000 3,000 7,066 $57.7 walkers golfers active NKF Patient Advocates million at 75 Kidney Walks around the country in 30 tournaments around raised for NKF efforts the country
ANNUAL REPORT FY 2019 13 03ADVANCING KIDNEY TRANSPLANTATION
NKF is committed to the vision that everyone who wants a kidney transplant should have access to one. No cost impediments. No donor discrimination. No barriers whatsoever. Listed here are just some of the ways we are advancing that goal.
14 ANNUAL REPORT FY 2019 This past year, we held 27 in-person problem. The team came up with 14 trainings for THE BIG ASK: THE BIG recommendations that should be GIVE in 14 states, where we taught implemented to reduce the number hundreds of kidney patients how to of kidneys retrieved from deceased raise their hands and let their friends donors that are ultimately never and family know they need a kidney. So transplanted. far, we have early promising results and This past year, we again successfully high hopes. In one of the first trainings, advocated for state and national we saw a dramatic jump in potential legislation to protect living donors. living donors. (For more information, please go We set out to reach a previously to the section “Changing Laws and underserved segment of the kidney Influencing Minds.”) disease population when we launched NKF worked closely with the California THE BIG ASK: THE BIG GIVE PSA company CareDX to ensure paid leave series in Spanish. In FY19, the series for their employees who become received more than 154 million media living donors. They are one of the first impressions in broadcast, print, and U.S. corporations that implemented a online platforms. policy that will help those who want to We released the Report of the National donate an organ by making it easier Kidney Foundation Consensus financially and removing the fear of Conference to Decrease Kidney losing wages or their jobs. Discards, which was the result of a NKF reached almost 20,000 patients year-long effort with leading trans- through the NKF Cares patient plantation experts in the U.S. devoted help line and NKF Peers mentoring to solving the kidney utilization program in FY19.
“We have thousands of people on the transplantation waiting list. It can take up to five years to even move up that list. We need more people who are willing to be living donors. You only“ need one kidney to live and it only takes one to make someone else’s life much better.”
Rahmeka Cox, above, right, Miss New York, who is the daughter of a living donor transplant recipient
ANNUAL REPORT FY 2019 15 16 ANNUAL REPORT FY 2019 DREAMS FOR BETTER LIVES
NKF is always looking toward the future with simple, aspira- tional goals. We asked our team, “What could we do” if we had unlimited resources? • Create a virtual version of our THE BIG ASK: THE BIG GIVE in-person training; • Create a “Basics” workshop to teach patients who haven’t yet been added to the kidney waitlist and their families about living donation and transplantation because our current program only focuses on patients on a waitlist through transplant centers; • Test a program to connect trained social workers with patients who’ve joined a BABG training to support them until they get a kidney; • Implement the recommendations of the NKF Consensus Conference to Decrease Kidney Discards to reduce the number of unused donated kidneys, and increase transplants.
2018 NYC Kidney Walk ANNUAL REPORT FY 2019 17 04FOCUS ON CHILDREN AND FAMILIES
No child should suffer from chronic kidney disease (CKD) and no parent should have to watch their child struggle with the challenges CKD and end-stage kidney disease (ESKD) bring. In 2017, almost 5,700 children had ESKD, according to the U.S. Centers for Disease Control and Prevention.
18 ANNUAL REPORT FY 2019 We are devoted to families of chil- 2. survey the pediatric CKD commu- dren with CKD and kidney failure, and nity to determine the needs of those who are at risk, and lessening patients and their care partners/ the burdens they face every day. Here parents; and are some of our efforts over this past 3. create an NKF educational initi- year that give families hope: ative on pediatric CKD for patients, parents, and clinicians.
In FY19, we started the online forum Also, NKF created and now offers a Parents of Children with Kidney special version of “THE BIG ASK: Disease. Nearly 300 families have THE BIG GIVE” in-person trainings already joined and now help each just for parents trying to find a living other navigate through the chal- donor for their children. lenges of parenting a child with CKD. NKF is partnering with the American Academy of Pediatrics and the
In December, we did what we do American Society of Pediatric best, we gathered children with CKD, Nephrology to develop educational their parents, and the experts in content for CKD patients, their pediatric nephrology from around the parents, and caregivers, as well as world for the NKF Scientific Workshop those at risk. on Chronic Kidney Disease in Children This collaboration reflects NKF’s in Atlanta. This was a landmark effort to put a stake in the ground workshop on pediatric nephrology. against pediatric CKD. The materials Participants shared their knowledge will be posted on kidney.org. and unique experiences in smaller groups during the conference.
The NKF team will use the results of this workshop to:
1. publish recommendations for improving care of pediatric CKD patients;
Face painting at Kidney Walk
ANNUAL REPORT FY 2019 19 “Well-controlled clinical trials in children with CKD are scarce. The time is right to make every“ effort to enhance the care of children with CKD.”
Bradley A. Warady, MD, Director, Division of Nephrology, Children’s Mercy Kansas City, and Professor of Pediatrics University of Missouri – Kansas City School of Medicine
20 ANNUAL REPORT FY 2019 DREAMS FOR BETTER LIVES
There is so much that can be done for children • How to interact with doctors and advocate on with CKD. Here are just a few of our team’s behalf of the child; dreams for the future to better the lives of chil- • Handling insurance; dren with CKD: • How to prioritize all the information coming from Compile a comprehensive manual on kidney doctors; and disease for parents and patients: Understanding and Navigating Pediatric Chronic Kidney Disease: • Transitioning to adult care. • Deliver through: print, webinars, Facebook Live, videos, apps, and all other forms of media; Implement the recommendations of the NKF • Include unique coloring books, board games, Consensus Conference to Decrease Kidney educational kidney toys/models; Discards to reduce the number of unused donated kidneys, which would increase the • Develop medical information specifically on number transplanted. pediatric kidney diseases; • Address psycho-social aspects of the disease, such as: National and regional conferences for parents of kids with CKD. • How to tell friends and others about the disease National and regional conferences for kids with CKD. • What to expect: how life might change • Bullying Day and sleep-over camps for kids with CKD. • How to get help for social workers, psychologists; • How to deal with school administrations about: Health-checks for at-risk kids that include tests for kidney function, blood pressure, obesity, and • Medicines poor nutrition status. • Individualized Education Programs (IEP) Create educational programs about kidney health and extra help and disease to promote prevention. • Missed days Advocate for federal laws and policies to • Teachers; increase pediatric nephrology trials. • Dietary aspects of the disease;
Kidney Walk ANNUAL REPORT FY 2019 21 05KIDNEY HEALTH AWARENESS FOR ALL
NKF continues to be the authoritative voice raising awareness about CKD, a disease the vast majority of affected Americans don’t know they have.
22 ANNUAL REPORT FY 2019 In FY19, our informational pages, social related to her work with us. In FY19, In FY19, our Facebook fundraising For the first time in NKF’s history, posts, online guides, and expansive her special kid-to-kid PSA detailing her campaign generated an estimated we asked a dozen social media media coverage were seen nearly struggles with kidney disease was the $1.8 million. We are excited about influencers to amplify our message 1.9 billion times, and more than winner of the Sharecare Award for how much more we can use this by creating their own posts about 16.4 million unique visitors hit the Public and Community Health/Policy. media platform to increase funds kidney health. NKF website looking for information The Sharecare Award is presented in and awareness. Stay tuned for more and support. association with The National Academy developments. of Television Arts & Sciences, New Not only have we increased our York Chapter, which fosters creativity presence across all media with more and inspires artistic and technical relevant coverage and social posts excellence through the renowned than ever before, our engagement Emmy Award. is rising, too. More and more people are reaching out to us through social In March, Angelica joined advo- media. Transplant anniversaries and cates at the Kidney Patient Summit living donation stories continue to be in Washington, D.C., in March and an important content strategy that wowed members of U.S. Congress receives incredible engagement of 150 with her adult-like poise and exper- to 200 percent above average of all tise. Angelica appeared on television other NKF content. programs Good Day DC, ABC 7 Good Morning Washington, and NBC News During National Kidney Month, NKF Washington to promote the Kidney partnered again with Pro Football Patient Summit, and performed live Hall-of-Famer Jerry Rice for two PSAs at NKF’s “2019 World Kidney Day titled Kidney Stats and Invincible, which Congressional Reception,” which premiered in March and will continue was also shared with her millions of to air all year. So far, these PSAs followers on Facebook. Special media garnered 26.2 million impressions coverage of HHS Secretary Alex and added to our overall National Azar’s speech to advocates at the Kidney Month coverage of 622 Summit yielded an impressive 133 million impressions, up more than million impressions. 30 percent from 460 million in the previous year. NKF has forged a special relation- “I am so excited to be a host of the livestream ship with the social media giant In FY19, NKF named, for the second for NKF. I’m hoping everyone will make a Facebook. We were invited to the time, television personality and singing “Facebook Community Summit” in San powerhouse, 11-year-old Angelica contribution to a cause“ I truly believe in and Francisco for a national roundtable on Hale as NKF’s Kid Ambassador. She how Facebook can help nonprofits. can definitely relate to—helping people with promotes the importance of living We have also been asked to provide donation and kidney health for all— kidney disease.” feedback on their beta-mode tools and she has helped NKF achieve 439 for nonprofits. million impressions in coverage Angelica Hale, NKF’s Kid Ambassador and television star
ANNUAL REPORT FY 2019 23 24 ANNUAL REPORT FY 2019 “When my brother, Tom, was diagnosed with CKD, that was the heaviest hit of all. I want to make kidney stats as widely“ quoted as football stats.”
Jerry Rice, Pro Football Hall-of-Famer and kidney advocate
DREAMS FOR BETTER LIVES
Most people walking around today with CKD do not know they have this dangerous disease. We want to change that and make sure everyone with CKD is aware and knows what to do to have a quality life with this disease.
ANNUAL REPORT FY 2019 25 06MAKING LIVES BETTER RESEARCH
We wear many hats at the National Kidney Foundation and have played many important roles over the last seven decades. We are a patient advocacy organization, a society of kidney health professionals, and we support research and education in the field of nephrology. Without our work, many innovations would never have been developed. In FY19, some of the ways that NKF has worked to make lives better include the following highlights:
26 ANNUAL REPORT FY 2019 We are laying the groundwork to refine and study our web-based kidney to the FDA. It is an important step increase the rate of diagnosis of education tool that helps veterans and to advancing the development of CKD with The Laboratory Engagement others to understand kidney disease better therapeutic drugs with fewer Initiative, which promotes the wide- risk and what can be done about it. side effects. spread use of two biomarker tests For example, a teach-back video will be to evaluate kidney function, through produced to help foster patient-clini- the “Kidney Profile.” NKF first intro- cian discussions about kidney disease. MAKING LIVES duced the Kidney Profile in FY18. We Tools like this are designed to promote have focused our efforts this year to kidney disease awareness, diagnosis, make the Kidney Profile commonly and enhanced treatment. used nationwide. The Kidney Profile NKF, Geisinger, and Healthy.io was recently included in the influen- announced promising results after the BETTER RESEARCH tial Choosing Wisely® Initiative to be initial rollout of a study using a smart- the optimal test for kidney disease phone-enabled home urinalysis among Americans with diabetes and/or device, which helps improve diagnosis. hypertension. The second KDOQI Home Dialysis A report co-authored by NKF President Conference was held in December. Holly Kramer, MD, MPH, in the Journal A group of more than 70 clinicians, of the Academy of Nutrition and researchers, policy makers, patients, Dietetics – titled “Medical Nutrition care partners, and industry represent- Therapy for Patients with Non-Dialysis- atives gathered to launch the “Home Dependent Chronic Kidney Disease: Dialysis Quality Improvement Initiative,” Barriers and Solutions,” showed that 90 a major, multi-disciplinary effort that percent of these CKD patients never we hope will result in moving more meet with a dietitian, something that and more patients out of treatment needs to change. centers and into home dialysis. NKF is partnering with Tufts University In partnership with the Alport on a new three-year PCORI grant Syndrome Foundation, NKF hosted its “Promoting Autonomy and Improving second Externally Led Patient-Focused Shared Decision Making for Older Drug Development Meeting, this time “We are facilitating innovations in Adults with Advanced Kidney Disease,” on Alport syndrome. These meetings kidney healthcare every time we train to help older patients with advanced- bring together patients and their care stage kidney disease and their family partners, representatives from the a new kidney professional“ or spend a care partners make decisions that U.S. Food and Drug Administration, best reflect their goals and prefer- pharmaceutical companies, and other dollar on a new research investigation.” ences for care. stakeholders, all to hear patients’ expe- For the first time, NKF received a riences living with the disease. The Holly Kramer, MD, MPH, NKF President major grant from the U.S. Veterans Voice of the Patient Report, a summary Administration Center for Innovation to of the meeting, will be submitted
ANNUAL REPORT FY 2019 27 YOUNG INVESTIGATOR AWARDS
The 2018 Research Grant Recipients of the NKF Young Investigator Awards
Sometimes the best ideas come from • Syed Ali Husain, MD, MPH, was • Jennifer Scherer, MD, was awarded the youngest scientists, but they awarded a Young Investigator Award the Young Investigator Award for a don’t always have a leg up in securing for research to save more lives by pilot study testing whether palliative funding for their research. That is using more kidneys from deceased care integrated with nephrology why years ago we began the Young donors through improving the care improves quality of life. Dr. Investigator Awards to inspire young quality assessment of organs. Dr. Scherer is an Assistant Professor at scientists to not only study nephrology, Husain is an Assistant Professor the Department of Medicine, NYU but also to innovate within the field. of Medicine at the Columbia Langone Health. University Medical Center, and an We were honored to support five • Roderick Tan, MD, PhD, was Associate Director of the Renal young scientists in FY19 with one-year awarded the Edith H. Blattner Young Fellowship there. grants to dive into their unique clinical Investigator Grant for research that investigations. • Daphne H. Knicely, MD, received will utilize high-resolution ultrasound The recipients in FY19: the Young Investigator Award to to closely examine the kidney’s vital spearhead a vital program that seeks small blood vessels, which he hopes • Kevin Erickson, MD, MS, was to sharply increase health literacy will give doctors a better indicator awarded a Young Investigator Award among patients who have CKD. of kidney function and patients to further examine whether receiving She is Associate Director, The Johns a chance of recovery after injury. regular nephrology care prior to Hopkins Nephrology Fellowship Dr. Tan is an Assistant Professor developing end-stage kidney disease Training, and an Assistant Professor of Medicine, Division of Renal- Young Investigator helps patients remain employed. Dr. of Medicine at the University’s Electrolyte, Department of Medicine Award presentation Erickson is an Assistant Professor School of Medicine. at the University of Pittsburgh. of Medicine–Nephrology, Baylor College of Medicine in Houston.
28 ANNUAL REPORT FY 2019 DREAMS FOR BETTER LIVES
• We always dream of innovative ways to help patients and their family members live their best lives. We want to see more and more patients achieve this by moving toward home dialysis for those patients who qualify. • We would focus more support toward efforts to develop new or improved therapeutic drugs, with fewer side effects, that lead to better outcomes for patients.
ANNUAL REPORT FY 2019 29 07CHANGING LAWS AND INFLUENCING MINDS
Patients, healthcare professionals, legislators, and policy shapers have been coming together to serve patients with chronic kidney disease since the earliest days of NKF. Voices of the many continue to make the biggest impact on our nation’s policies that affect people with kidney disease. Here are some of FY19 highlights in changing laws and influencing minds.
30 ANNUAL REPORT FY 2019 We came out against California’s Prop transplant policies state by state. Years of work by NKF’s dedicated team patients are treated by shifting financial 8 in FY19 and it was defeated by Idaho, Maine, and New York became of advocates, volunteers and staff incentives to increase both deceased the electorate. It was bad for dialysis the first states to pass these protec- championing the need for reforms donor and living donor transplants; patients because it would have had the tions in 2018. They were followed in to CMS payments and in 2019, have incentivize home dialysis; and focus on unintended consequence of making 2019 by Arkansas, Kansas, Maryland, paid off with a sweeping aPresidential prevention. We will have more updates dialysis centers in rural and impover- Colorado, Arizona, Oregon, Illinois and Executive Order in July (which falls in in the FY20 Annual Report. ished communities unaffordable, and it Oklahoma. More states could pass NKF’s FY20) that will change the way would have reduced access to care. similar laws in the coming years. Getting the federal Living Donor In 2018, NKF helped pass legisla- Protection Act (S. 511 in the U.S. tion for paid leave for living donors Senate and H.R. 1224 in the House) in Colorado. signed into law is a top priority for For the first time, U.S. Health and NKF. In February, Sen. Kirsten Gillibrand Human Services Secretary Alex Azar, (D-NY), Sen. Tom Cotton (R-AR), who is the son of a kidney transplant Rep. Jerry Nadler (D-NY) and Rep. patient, spoke to more than 100 Jaime Herrera Beutler (R-WA) came patient advocates gathered together in together to introduce the legislation. Washington, D.C., at the Kidney Patient As of publication, there are dozens of Summit and explained his vision for bipartisan co-sponsors of the bills in transforming kidney care. both the House and the Senate. NKF advocates are working hard to build Former NKF Board Member Jeffrey S. support in Congress for this federal law Berns, MD, co-authored an editorial for that would protect living organ donors the Journal of the American Society of from various insurance discrimination. Nephrology titled “Addressing Financial The bill would also codify into law Disincentives to Improve CKD Care,” an August 2018 U.S. Department of which called for Medicare reform. Labor opinion letter that living dona- NKF, in conjunction with the “Million tion is covered under the Family and Hearts” initiative by the Centers for Medical Leave Act, which protects Disease Control and Prevention (CDC) “We have the technology to revolutionize the a donor’s employment during the and the Centers for Medicare and lives of American kidney patients. We’ve waited recovery from surgery (NKF worked Medicaid Services (CMS) released a closely with Rep. Beutler to obtain comprehensive report Chronic Kidney long enough. We just“ need renewed ambition clarification that resulted in the depart- Disease Change Package: Population ment’s letter). Health Strategies for Cardiovascular and new polices. We are committed. Together, Though we are working to get this and Kidney Disease Risk Reduction we can deliver much better care and longer federal legislation passed, NKF’s Kidney for clinicians and public health Patient Advocates, local volunteer practitioners. lives for Americans with kidney disease.” leaders, and the local staff areleading Alex Azar, HHS Secretary, told advocates at the NKF Kidney the charge to improve kidney and Patient Summit, March 4
ANNUAL REPORT FY 2019 31 32 ANNUAL REPORT FY 2019 DREAMS FOR BETTER LIVES
• We want to build a strong grassroots group of advocates in each of the 435 U.S. congressional districts to fight for kidney patient protections, reform, and build support for public policies. • We envision a world where there are no financial barriers to living organ donation. Living donation must be cost neutral, donors should not suffer economic loss for giving an organ, nor should they have financial gain. We want to end employment discrimination and lost wages. All non-medical expenses related to donation, such as travel, childcare, and dependent care, as well as follow-up medical care related to donation, should be covered on behalf of the living donor. • We will fight for better public policy that improves early detection and management of chronic kidney disease that helps to prolong kidney function. We will continue to work with Congress and the Administration to give patients choices in their kidney replacement therapy that best fits their lifestyles, including in-center dialysis, all forms of home dialysis, or kidney transplantation.
2019 Kidney Patient Summit in Washington, D.C.
ANNUAL REPORT FY 2019 33 08AIDING THE PROFESSIONALS
NKF has long championed kidney healthcare professional training and ongoing continuing medical education on kidney disease. For nearly seven decades, NKF has been bringing professionals together to share their experiences and latest research. Listed here are the highlights of these efforts in FY19.
34 ANNUAL REPORT FY 2019 NKF has offered more than 142 CME/ concepts “competing” in eight regions. The Council of Nephrology Social Commission to launch the CNNT CE accredited programs, locally, More than 1,000 physicians partici- Workers conducted a salary and Nurse Mobility Scholarship program, nationally, and online, to more than pated in 2018. caseload survey. The results were which offers up to three$3,000 published in the Journal of Nephrology scholarships to assist nurses in their 32,000 kidney professionals. We also launched a new national Social Work (Vol. 42, Issue 1). pursuit of higher education in neph- This past year, we added new, exciting program, Renal Roundtables, a rology nursing. features to our annual NKF Spring series of locally based educational The Council of Nephrology Nurses Clinical Meetings, the leading neph- events that allow for the sharing of and Technicians partnered with the rology conference in the country. It case studies, common experiences, Nephrology Nursing Certification drew nearly 3,000 healthcare profes- and best practices. The program is sionals, and hundreds of studies also aimed at building collaborative and trials were presented. We live- practice in local communities, and streamed 10 sessions for those provides a more participatory, coop- who couldn’t attend the popular erative, and coordinated approach event, and we included the offering to shared decision making around of interprofessional Continuing health issues. Education credits. The NKF Education Committee We launched a webinar training launched the Life as a Nephrologist program in partnership with TMF podcast series, which explores what Health Quality Institute titled Guide day-to-day life is like for nephrologists to Detecting and Delaying Progress of at different points in their careers. Chronic Kidney Disease, featuring NKF Fellows, residents, and medical Past President Michael Choi, MD. students learn why the field of neph- rology is exciting, why it’s challenging, This year, NKF launched a new and why we hope more physicians will medical, peer-reviewed, open-ac- pursue nephrology as a specialty. cess journal called Kidney Medicine. The mission of Kidney Medicine is to NKF launched Nephrology disseminate knowledge relevant to the Essentials—an online synopsis of care of people with or at risk of kidney peer-reviewed, guideline-driven disease. All published research is freely educational series developed by available to clinicians, researchers, the NKF Council of Advanced patients, and care partners. Practitioners to address management of kidney patients. “I love being a lifelong member of NKF partnered with the American Journal of Kidney Diseases to offer The Council on Renal Nutrition devel- NKF because it’s multidisciplinary CME credit for NephMadness, a free oped a database of dietitians who and patient“ inclusive.” educational initiative that is modeled treat pre-dialysis CKD patients, an after the annual college basketball underserved population. Katy Wilkens, MS, RD tournament, with 32 nephrology
ANNUAL REPORT FY 2019 35 36 ANNUAL REPORT FY 2019 DREAMS FOR BETTER LIVES
• We will never stop supporting those who have dedicated their lives to kidney disease. Their work is just too important in our quest to change the lives of patients. We know that more programs for professionals is the pathway to better outcomes. Look for more publications for professionals from NKF. • We dream of developing a mentor program for medical students and residents considering the field of nephrology. • We dream of creating a KDOQI smartphone app to make all of our clinical practice guidelines available to practitioners wherever they are, whenever they need help deciding on the best treatment for a patient. • We will continue to support the full spectrum of healthcare professionals to realize our dream that all people with kidney disease will live better and longer.
NKF Spring Clinical Meetings
ANNUAL REPORT FY 2019 37 09PROFILE OF CORPORATE CHAMPION
Otsuka Pharmaceutical Company, Ltd. was selected to receive the 2019 Corporate Innovator Award from the National Kidney Foundation at the 2019 Spring Clinical Meetings in Boston.
38 ANNUAL REPORT FY 2019 In April 2018, Otsuka’s JYNARQUE® which fluid-filled cysts develop in the (tolvaptan) was approved by the U.S. kidneys over time. These cysts enlarge Food and Drug Administration (FDA) as the kidneys and impair their ability to the first treatment to slow kidney func- function normally, leading to kidney tion decline in adults at risk of rapidly failure in most patients. progressing Autosomal Dominant “Otsuka is honored to be recognized Polycystic Kidney Disease (ADPKD). by the National Kidney Foundation as “ADPKD is the most commonly inher- a recipient of the Corporate Innovator ited kidney disorder, and it affects all Award,” said Louis Allesandrine, races and ethnic groups equally,” said VP Oncology and Renal Sales and Kevin Longino, CEO, National Kidney Marketing. “Since the FDA approval Foundation and a kidney transplant of JYNARQUE one year ago, many recipient. “The Corporate Innovator people living with ADPKD in the U.S. Award recognizes Otsuka’s significant have received this treatment. Otsuka contribution to improving the lives of continues to make significant invest- people with ADPKD and we congratu- ments in our nephrology research late them on this achievement.” and development, and is committed to meeting the long-term unmet ADPKD is diagnosed in about needs of people living with chronic 140,000 people in the U.S., and kidney disease.” impacts families across multiple gener- ations, since a parent with ADPKD has The Corporate Innovator Award was a 50 percent chance of passing the established to recognize companies disease to their children. ADPKD is a that advance the field of nephrology genetic disease with consequences by addressing an unmet medical need, that can lead to dialysis or kidney trans- or improving upon an existing prac- plantation. It is a progressively debil- tice, therapeutic, or technology. itating and often painful disorder in
“Otsuka continues to make significant investments in our nephrology research and development and is “ NKF CEO Kevin Longino, right, presents award to committed to meeting the long-term unmet needs of Otsuka’s Louis Allesandrine. people living with chronic kidney disease.”
Louis Allesandrine, VP, Oncology and Renal Sales and Marketing, Otsuka Pharmaceutical, Ltd.
ANNUAL REPORT FY 2019 39 10OUR FINANCIAL OVERVIEW
Thousands of people like you around the country have given their time, talent, and treasures all year to raise millions to fund important work led by NKF. People joined NKF Walks around the country, donated vehicles to Kidney Cars, attended galas, hit the links in tournaments, and gave generously through our Hero Circle or with one-time gifts to support NKF. We are thankful for the many thoughtful contributions.
40 ANNUAL REPORT FY 2019 Figures depict the combined financial activities of the National Kidney Foundation and its Affiliates for Fiscal Year 2019.
Public Support and Revenue (in thousands) Assets (in thousands) Cash and Cash Equivalents ...... $10,540 13% Other Income 26% Investments ...... $26,062 $ 7,593 Contributions Accounts Receivable ...... $5,185 1% $15,095 Membership Dues Inventories of Educational $760 and Campaign Material ...... $137 Prepaid Expenses ...... $1,542 8% 30% Government Grants Special Events (Net) Property, Plant and Equipment (net) ...... $5,239 $4,381 $17,461 22% Other Assets ...... $4,142 Program Service Fees Total Assets ...... $52,847 $12,426 100% Total Income $57,716
Expenses (in thousands) Liabilities and Net Assets (in thousands) 9% Fundraising 14% Liabilities $5,247 Patient Services Loans Payable ...... $501 $ 7,725 Accounts Payable and 8% Accrued Expenses ...... $6,404 Management and General 23% Deferred Income ...... $6,521 $4,388 Professional Education Other Liabilities ...... $477 $12,676 5% Research Total Liabilities ...... $13,903 $2,880 Net Assets 21% 19% Without donor restrictions ...... $25,690 Public Health Education Community $11,835 With donor restrictions ...... $13,253 Services $10,774 Total Net Assets ...... $38,943
Total Program Expenses $45,890 (83%) Total Support Expenses $9,635 (17%) Total Liabilities and Net Assets ...... $52,847
100% Total Expenses $55,525
ANNUAL REPORT FY 2019 41 INDIVIDUAL SUPPORTERS $450,000+ Joy Rohadfox* Dr. and Mrs. Ronald Mark Testoni Sheila Antrum Eddie Benton Joshua Brite Fred Cassle* Joseph Coughlin* Umberto DiVanna Arthur and Gail Drs. Sandeep and Hamburger Joseph Tremonte* Jason Antwine Robert and Marie William ten Broeke* Carol Castellaneta Rochelle Cowan* Mark Dobson Pasquarella* Janice Hamm Benz* Shaifali Sharma* Bill Valle Marsha Argo Steve Brogan Mickey Caswell Britney Cox Marsha Dodd Debbie and Ward Joseph Berardo Jerald Sigala Mike Verguldi Milton Armstrong Edwin Brooks Jeff Caudill Dr. Paul W. Crawford Donna Doherty* $100,000+ Harriman Judith Taylor Nancy Berg Kevin Longino and Philip Scott von Matthew Arnold Steven Brost William and Elaine Sumati Crawford Robert Dole Kristin Hefferon Fischer David Berkery Cella Mary McDowell* Anthony Tuggle* Dr. Andrew J. Barry Brown Frieda Creer Jerrold Dolinger* Daniel Heidkamp Ed and Carole David Berlin Paul Cervino Michael and Aronson Edward Brown Dr. Deidra Crews* Tim and Susan $50,000–$99,999 Tiffanee Watts* Roberta Hensley* Walter Theresa Arvidson* Gretchen Berlin* Eugene Brown Robert Chaikin Courtnay Crivits Dompke Ron and Joy Paul Susan Hubicki Marc Warner Allen Weaver Evan Berman John Chambers* Dan Donnelly Frank Webber* Lauren Asghari* Todd Brown Richard Crom Charlotte Wright William and Ruth $25,000–$49,999 Mike Atieh Demetra Ann Richard Brownfield Aziz Chami* Scott Cunniff Eileen Donoghue Isenberg Matt and Rives Bernard Richard and Tong Xiao* Keith Chancey Tyler and Melanie Wedding Dr. Meredith Atkins, Karen Brownlow John Curtis Michael Doonan Rosann Noel Dr. Arnold Berns Johnston Jon Wilkins* MHS Adam Bruyere Dr. Deepa Chand Michael Cuvelier Virginia Doremus $5,000–$9,999 Elizabeth Berra Heather Pushinsky Melinda Austin Vikram Chandna* Robert Amabile Tracy and Joe Rich Willis* Scott Buchner Paul Cwalina* Kathryn J. Doty Paul and Joan Keogh David Berry Dr. Anthony Chang Jason and Robin Tommy Reed Autry Antonio Bucio Ariane Daguin* Stephen Dove Rubschlager Robert and Judith Ray Betler* Sheeran King* Yardi* Yaron Avitov Richard and Mark and Judy Aptekar Victoria Buck Jill Dahan* Andrea and David Kleinschmit Xiaofeng Zheng Richard K. Bible Charlotte Chapple Stephen Dover Schwartz Michael Asselta* Zeke Ayele Jeffrey Budin* Patrick Daniel Demetri Kouretas Kevin Billings Cynthia Charles Robert Dowdell* The Snyder Family Steven Bachouros $1,000–$4,999 Henry Ayiku Kelly Buedel Lois Dann David Krikorian* William Billings Lisa Charlesow Diana Downs Marini Sumeska Rick Barnett* Joseph Abruzzese Stuart Babendir Peter Buisman Gerald Darling Thavarajah* Natalia Kujdych* Maureen Bizila Keith Cheatham Noreen Doyle Jai Bhimani* Farda Abu-Yousef* John Bacchetta Scott Richard Burba Gene Casimir Beth Lewis Victoria Bjorklund Emily Chenevert* Helen Drexler* $10,000–$24,999 Megan Blohowiak* Becky Adamson Jonathan Bacchi Kate and Michael Darville William Litt* Esther Blanco Sunfa Cheng James Driscoll Matt Barr* Lori Bonderowitz Ugandhar Adari Grant Bagan Burke Pattie Dash Jodie Lockhart Kelly Blanks Phillip Childress Diane Dudley Elizabeth Bathke* Gary Bornstein Lisa Addeo Charles Bai Allison Burnham Frank and Susan Reid W. Loveless Terri Blasingame Brian Anthony Davies Robert Duffy John Beuerlein Chuck Columbus Randy Adkins Chuck Bainey Rachel Burns Chris and Rachel Christiano and Teresa Brannon Jeff Lutsky Craig and Marianne Larry Burris Joan Davies James Harold Duke Dave Boyer* Christine Bakalar Blevins Kelly Cimmino* Nathan Brown Frank Maddux Adoor* Luther Burse Anne Davis Thomas L. Dunbar Jay Brough Marvin Balding John Bloomhall* Dominick Cirelli Samuel Marchio* Johan Aerts Archie Davis John Duncan* Bill Carroll* Rosemary Brown* Frank Balestreri James Butler* Richard Affleck* Patricia Boag Ronald Cizzon Alan May John Butler Ashley Davis Dr. George Dunea Barbara P. Elias William Burke Sebastian Balint Miguel Boland Kim Clark William McCollum* Manish Agarwal Eddie Davis Scott Gabrielson Joseph Butler Nicole Buttino Fredrick Dunlap* Amy Aguilar Kristine Ball Mary Boldman Mac Clubb* Alan and Agnès Rita Cacciatore Susan Davis Andrea Dunlevy* Drs. Peter and James Carlson* Joel Bolstein Nancy Coddington Mendelson Ziauddin Ahmed* Katherine Bame Gary Dawes Bobbie Greenwalt* Rebecca Cebula* Nicole and Richard Peggy Dunn Sean Moran Dr. Satya P. Ahuja Peter Barbusin Greg Bombassei Dana and David Kathleen Headlee* Cady* Olga De Jesus Jacob and R.J. Matthew Bond Cohen* Sherry Duperier* Dr. Arthur M. Morris Matthew Thomas Caroline Barksdale Darryl Caldwell Maria V. De Vita, MD Gordon Heuser Cheafsky Gail Cola Quentin Duroy Joseph Mullen* Akery Valerie Barnes Steven Bondi Tom Hough* James Clenny* Richard Caldwell* Desiree de Waal* Edward Belandres Peter Borducci Dominic Colbert Eric James Dutton Laura Mulloy Kristen Barnhill* Joseph Calise Ryan Deegan Garry and Maryn Sandy Coplon* Albayalde Maggie Coleman Scott Duttry* Steven Mungo* Kimberly Barnish Maria Borja Hurlbut* Maurice Cummins Evynn Albert Zachary Cameron Claudia E. Degracia Natasha Bostedt Nicole Colletti Elizabeth Dye Kacy Hutchison David Mylet Greg and Camille Craig Campbell Anthony Del Negro Jon Dawson Steven Albert James Collier* James Earnest Thomas Neville Baroni Jeff and Kathy Tim Huval D. W. Deanovic Thomas Aldred Gavin Campbell Susan DelBene Anne Barr and Fred Botnen* James Collins Charlie East Michael Jacobson Roger Odenberg Tim Canning Marco Deleon Jeffrey Dickson Donald Alexander Matteson* Beau Boudreaux* Terra Collins Allyson Easterling Joe Parisi Dr. Stephen C. Marvin Allmond Sarah Carhart Mary Gladys Delfin Dan DiLella Debbie and Michael Ryan Bouley Josie Colon Robert Eckelberry Jensik Matt Payne Elliot Dinkin Scott Alloway Barsom Carolyn Carl Lilian Dellacroce Christopher Duncan Bourne Courtney Combe Jacquelyn Lou Petrocelli Daniel Carlton Jonathan W. Killackey Eliot Fishman* Allan D. Allweiss Carol Barton* Joy Bowling* Doug Comer Economou Arvind Rajan Yaser Alsolaiman* Fanchon DeLoach Robert Klett* Shelia FitzPatrick– Kathy Barton Karol Bowman Steve Comly Tina Eddy Robin Reitzes* Tressa Alspaugh Carmichael Salvatore Dematteo Donna Litt* FitzPatrick & Assoc. Stephen Bass Scott Boyd Susan Conkey* Matt Edmiston Oscar Robertson* Melody Alstodt Alan Carniol* Michael Dennis Paul Loeb Joanne Flanagan* Diana Battaglini Rahn Boyer Jackson and General Albert Matthew Ryan Jillian Amick Vic Caro Joan Des Lauriers Edmonds Edwin Lopez Nora Fowles Michelle Amy Baum Ryan Bradley Cooksey Jill Schaaf Akshay Amin* Alan Carr William Dessoffy* William Edmonds Andrea Mascher Danielle and Joseph Sheila Baxter Lester Branson* Linda Corley Frechette Seyfarth Shaw Matthew Andersen Thomas Carrera Timothy Detota Kristina Edwards Christopher Jefferson J. Bay Ida Braun* Elaine Cormier Haydel McClure Kathleen Freebird James Shull Edward Anderson Eric Carroll Joan Cormier Tom and Ann Josey Beckles* Leo Michael DiBenedetto John and Mary Bill and Judy Michelle Anderson Tina Carrow* Thomas P. Egan Eric Nelson* Robert Belkin Brausch Cindy Corpier* Gerzema Singleton Marc DiCapua Lor and John Robert Anderson Louise Breber* Jeffery Carter Mr. and Mrs. Francis Jack and Carol Cassandra Bell Matt and Meg John Snyder, Jr. Richard Dienel Ehlenbach O’Neil John Andrews William H. Breetz, Jr. Paul Caruso and Irene Corsaro* Gilbert Brian Soper LeRoy Bennett Vanessa Diggs Eric Eisenstein Warren Packard Paul Andrews Drs. Harold and Mike and Cheryl John Cosentino Gaetano Giordano* Diane Souza* Levi Jerome Bennett Casamento Ralph Dillon Harrell E. Elder Debra Rachleff Maria Ansari Judith Bregman Richard Cosenza, Steven Golubchik Sherri Benson Richard and Ellen Tim Statts* Salvador W. Patricia Edward B. Casper Sr.* James Dilts Evelyn Kay Elliott Richman* L. Barry Goss Mike Stevenson Antonetti Jeffrey Bentley Brennan-Trask Tom Cassese* Jackie Cossmon* Thomas Dionesotes Janice Ellis* 9 42 ANNUAL REPORT FY 2019 Lamar Ellis Cathy Foster Jane Goins Julie Hansen* Wardell S. Holt II Jimmy Jones Mark King Patrick Lavin Kathryn Mallon Richard Melone Mary Jo Ellis Richard Foster Marcia and John Greg Hanshaw Stacey Homuth Kelly Jones* Ellen Kiser Brenda Lawton Tricia Mangabat* Pamela Melton Rod Ellis Dr. George Francos* Goldman Mary Harbaugh Rocky and Jo Hone Ligon Jones Margaret Carol Bryan and Heather Richard Maniace Dayna Mendel Klahr* Laychak Michael Ellison Deborah Frank Michael Goldman Dr. Sundaram Rose Hoover* Michael Jones Ronald Manley Dr. Matthew Richard Kleinknecht Steven Lazzaro Menezes Scott Ellner Cass Franklin, MD Patricia Goldman Hariharan* Thomas Horn Stephanie Jordan Deanna Mann Brad Knepper Peter Leadstrom Brian Menkhausen Sara Elrefai Mark Fraser* Keith Goldston Lureatha Harmon Judith Horne Cornelius Joseph* John Mannino Paul Knight Dr. Eleanor Lederer* Thomas Merchant* Edwin Elton* Garry Fredericks Andrew Gordon* W. Harmon Robert Horton Henry Judd* Roy March Sandi Knight* Lawrence Phillip Lee Dorothy P. Merkel Damian and Taryn Gerald Freeman Erin Gordon and Dolores Harrell Alan Horwits* Patsy Judy Brian Marler* Eonta Craig Etlin Edward Harriman Caroline Knox Matthew Leff Pier Merone and Brian French Pat Hough* Mark Kaelin Tracie Marquez* Laurence Getzoff* Claudia Erdle Timothy Gorman James Harris Rhonda Koch Bruce Lefkowitz Dr. John Friedewald Anthony Howden Brenda Kage* Hazel Marsh Sue Merrill Christopher Erikson Carol Graham Kevin Harris Karl Koenig Jonathan Leiman Charles Friel Glen Hubbard* Michael Kahn* Carla Marshall* Dr. Jim and Mrs. Thomas Erikson Allen Graham Todd O. Harris Shelly Kohler Dr. Calvin and Mrs. Rebecca Fries McCreary Robert Hubbell Steve and Toby Abigail Martin* Veronica Mertz Laura Kohlhoff Ann Lentz Art Escobedo Julia Harrison Stephanie Hudnell Kahn John Messersmith James Fritts Melissa Gramstad Dr. Joseph R. Cecil Delnor Martin Matthew Esson Rosa Harrison Dr. Sejal Kalawadia Elizabeth Kok* Rick Froio Ben Gravely Joseph and Melissa Leventhal Nathan Martin* Ashley Mextorf Lisa Estrada Brennan and Hudzik* Beverly Kalman* Timothy Timothy Fuhr Alan Levin* James Martish Brad Meyer Frederick Gray Maureen Hart* Kolschowsky Ann Estus* Marybeth Hughes John Kalohn* Timothy Meyers Alexander Funtelar Libby Greco John Korman* Jordan Levin Kristen Marx Roncs Ese Etame Tonya Hart Michael Hughes Arun Kamat Michael Gaffney J. Lampert Levy* Craig Mason Virginia Michaels* David Green* Deborah Harvey John Korn Chad Ethredge Sue Hughes* Adam Kamens* Krista Michalko Adam Gagne Donald Green* Deidre Kornegay Janet Lewis Elaine Mason* Robert Eybs Quenna Haskett Wendy Hughes* Jeffrey Kammerman Tracy Miley Kenneth Gaines Joanne Green* Menefield Louie Lewis Sallye Mason Joyce W. Fako Judith Hasko Nicole Human Tara Kamradt Gary Millen David Gaito Sarah Green Teresa Kosse* Steven J. Harvey Masonson* Shaun Falcone Wesley Hatch Gerald Hundert* John Kane Leyendecker Erin Miller Alberto Gallo* Richard Greenberg Jamie Kothapalli Elaine Matta Michael Falkenhain Frances Hayes Dave Hunt Prakash Kapadia Jeremy Liebhoff Greg Miller Patricia Sue Gambill Sheryl Greenberg* Ramney Koul* Patricia Matteson Sandy Falsis Marguerite Hayes* Dustin Hunter Ameet Lynne Lightfoote John Miller Jane Koven* Paul Matteucci Dan Gamble Tony Greene Will and Carolyn Karambelkar* Edward Fan Patrick Hurley Hamila Kownacki Huinomz Lim John Mills Scott J. Ganassin Henry Greenemeir Hayes* Kailesh and Heena Darlene Mauldin Antoinette Farley Eric Hutchinson Dr. Holly Kramer Kimberly Limpkin, Lauren Ming Nirav Gandhi* Danny Greenfield* J.C. Haynes Karavadra* MD Kevin May Gina Farley Amy Hynes Ronald Krasnow Shelly Minkowitz Mario Gangemi Mary Greenwold Heather Hays Tilde Karlsen Jake Linhart David Magnuson Edward Farrell Dr. Amna Ilahe Leslie Krasny and Martha Mayo David Minnix Scott Garland Linda Gregory Claude F. Heath Richard Karnath Melanie George Anthony Favia Cindy Ilgenfritz George Jessie Miranda Thomas Garmisa Ruth Griffin John Heenan Matthew Kasinecz Edward Kraus* Little Dean Featherston John Imbriale Mazariegos* Mirjana Mirjanic William Garrett Paul Grill* John Hegeman Cheryl Katz* Ashly Krebs Eulis Lively Terri and Mark Jim Fedders* Donald Wescott William Kremer Amy Mitchell Ann Gasper Arthur Grossman Ron and Julie Hein Irons, Jr. Sam Katzman Kimberly McBeth* Scott Feit* Robert Kreunen Livingston* Anna Mitchell Richard Gates Noella Guay* Natalie Heller* Lauren Kauffman G.M. McCarroll Jeff and Robin Robert Irwin Jeff Mitchell* Mark Kaufmann Vincent Krise Reynaldo Llana Felton Leah Gatling Keith Guller* Stephen Helmick Anand Iyer Joshua McCaslin Joseph Mitchell Mike Keenan Mike Kuczkowski* Sarah Lo David Ferguson Ora Gatling Debbie Gunter Robert Hemsing Lou Jablonski Kevin McClintock Terri-lynn Mitchell Elizabeth Kelly* Purnima Kumar Angela Loberg Jerry Fiddler Robert Gau Don and Jane Guy* Mary Henderson Peter Jablonski James McClinton Amitabha Mitra Margherita Leonard Lobo Sandi and Brent John and Dianne Timothy and Loretta Steven Filippazzo Prakash Gavri Katherine Jack Lamanno* Bobby McCloskey Estel Wayne Mize Haase Hergenrother Kelly* Chris Locatell* Patrick Finan Earl Gehr Curtis Jackson Craig Lamb* Mark McCullough Steve Moll Scott Haber Michael Hernan Joshua Kelner* Andrew Locher Mark Findlow* Patricia Gentry-Silas Donald Jacobs Charles Lambert Lauren McDonald Jodi Money Peter Hafiz* Bette Hershman* Steve Kendall Digby Lock Deirdre Finn Frank and Janet John Jaeger Scott Lambert Thomas Ronnie Mongan Germinaro Carol Hafley Allan and Nancy Antonio Kenion A.C. Lockyer McDonough Fran Finn Reichl* Darren Jamison David Monteiro Herzog Janeen Kennamore Gordon and Macy Lawrence Lohr Michael Gerrick Marge Hagman Lambourne* Kaestner Jerry Firestone Stacy Hewitt Kenneth Jarvis* Patricia L. Monts Gail Ghrist Brian Hahn Dr. April Kennedy David Johnston McDounnough Katherynn Fischer Thomas and Judith Thomas Lampe Long Matthew Moodie Daniel Hill Clayton Kennedy Randy McElroy Dan Giaimo William and Dawn Jennings Kathryn Lancaster Lesley Fischer Haigh Jo Ann Hill Adrienne Loray Henry Moore Steve Gianotti Walter Kennedy* Tom McGinnis* Damon Fishback Leonard Jessop Cecelia Lance* Sarah Moore Roderick Ervin Taryn Hill Michael Loreto Richerd McGough Andy Gilbert Velma Jim Meaghan Kent Fei Fisher* Haithcock Scott Lang Kevin Losch Robert E. Moran Thomas E. Hill Richard Kent Glenn McGregor Michael Gilchrist David John Jennifer Langfield David Morris Leslie Fisk Cory Hake Ed and Gar Hinkle Phillip Louie* Virgil A. Gillespie Thomas Kernan* Michele McKenzie Jennie Flanders Daniel Halem* Bianca Johnson Christina Lankhorst Nickolette Morris Melinda Keith Lowry Adrienne McKinney Richard Gilston Lee Johnson Kelly Kershner Jeanene Fogli Joseph Hall Hockensmith, MD* Ross Lanzafame Michael and Debbie Michael Morrissey Nick and Lynne Buck Keswani William Mckinney Jeffrey Fontaine Karl E. Hall Chandler Hodge* Marcia Johnson Elliot and Eveline Lubbert Scott Moser Giordano Susan Ketron Lapan Maddie Mcknight Judi and James Richard Hall Oswald Hodges* Richard Johnson Gabriel Luhowy Tyneshia Mosley James Giza Paul Kichler Sam Larner Clara McLeod Fonzi Laura and John Rodger Kelley Tracy Jonelis* Ciro Lupo Anindo Mukherjee* Kristina Glass George Kilbourne* Shauna Larsen Jeff McMahon* Gloria Forbes Hanby* Hodges Bill Jones* Luanne Lyons-Smith John Mulcahy* Lee Marvin Glaze Cheng Kim Lance Larson Patricia McMurray Peter and Lynn Rebecca Hancock Ryan Wilson Charles E. Jones John Madden Lori Mulichak Forgosh* Marty Glennon Hodges Jae Kim John McNab Brian Handley* Christopher Jones* William Lash John Mahoney* Cynthia L. Mull Philippe Forgues Shannon Glynn Jacqueline Kindall Brendan McTague* Jeff and Doris Hank Paul Hofmann Jessica Jones Don Lasseter Laquetta Mahoney Eddie Murphy* Emmett Forte Richard Godfrey* Kenneth King* Karen Medbury Kenneth and Pierce Hollan Jimmie Lenora Hugh Latimer Adrienna Maisonet- John and Kathryn Amy Foster* James Godwin Kathleen Hanni Jerome Holmes Jones Kevin Duane King James Laurie* Morales* Ashley Meekins Murphy*
10 ANNUAL REPORT FY 2019 43 LaTrice Murphy Walter Overcash Matt Pfeil* Daniel and Daphna Edward Ruggiero* Robert Schultz Jim Smith Diana Tabacopoulos Dr. Amanda Valliant* Jim Whelan Anthony Naccarato* Teresita Padilla- Bridget Phelan Raskas* Michelle Ruiz Stefan Schulze Joan Smith* Ross Taff* Dean Van Pelt H. David White* Cheuk* David Reader Dr. Vivek Nadkarni* Craig Phelps Mike Runge Kim Schumann* Julie Smith Mike Tambe Richard Van Syckle Mary White Dr. Aparna Padiyar* Patrick Reardon James Nagel* Herman Phillips* Katrina Russell Martha Schurman Patty Smith* Jeff Tan Billy Vanadia Jane Delores Whitt Telea Paettie* Dr. James Nimish Naik, MD* Anthony Philpott Helena Russo Israel Schwab* Robert Smith Somchay Tandara Cassandra Vance Dawn F. Wiley Dr. Paul Palevsky* Redington* Catherine Nance James Pickel Dennis and Marie Bill and Lindsey Steve Smith Darrel Tassara Jami Vance James Wilkerson Justin Paley Frances Reed* Ruth* Schwartz Vasant Narayan Robert Pieper Terry Smith* Peter Tattle* Jacquelyn Fletcher Jacqueline Willens Michael Reefe Anne Ryan Richard Schwartz Vandam Sawant Michael Palmer Greg Pierce William Smith Wylies Tavern Adam Williams Genie Panichi Marie and Lamar Kathleen Ryan Susan Schwartz Liz Vary Homer Nash Katherine Pierce Reese* Caroline Smyth David Taylor* Carol Williams Janice Vaughn Dr. Ramsey Nassar* Rebecca Papillion Martin Ryder Jill Scoggins Richard Snide Charles Williams Dr. Lisa Pillsbury Bruce Reeves Mary Leigh Thacker McKnight Sanil Nath* Dean Pappas Dr. Lebnan Saad* Joe Scrolla Eric Snyder Mary Williams Frank Pimpinella Sandy and Gene Thavan Thambi Lane Vaughn Jacqueline Frances Luenetta Seabrook Ramani and Carmel Debbie Paris Teho Shivkumar Pingali* Reid Jason Soffer I. Lorraine Thomas* Tom and Marla Sakelos John Vegter Williams* Nathan* Dominic Parisi Robert Relph Susan Sedmak* Kent Sokolow* William Piper Joann Thomas David Viera Christine Natter* Jennie Salas* Christopher Segal Willie Williams Martin Park* Dr. Beth Piraino* Phil Renaud Ashok Soni* John Bruce Gina Salaverria Nuala Vignoles Bryan Williamson Charles Neal Donna Marie Parker Amy Rennert J. Gregory Seibly Jewel Southerland* Thompson Joan Platt* Joe Vohs Kami Salopek David Selden Frank Williamson John Neal* Estrella Parker David Plummer Salah Reyad Marge Spear Katherine Thomson Pat Salt Sandhya Vollala Jason Willingham Mike Necci Oriana Parker Jeanne Rezuke* Dr. Andres Serrano Deborah Sperling Orlan Thorbeck* Randy Plummer Erika Sanchez Robert Voltaggio William B. Parker Francisca Serrano Judith Willoughby* Nicole Nelson Donovan Polack, MD Matthew and Kathleen Sprenger Randy Thrall Joe Sanchez* Sheila VonEuer William Wilmer Richard Nesbit Allen Parkerson Jessica Rhenish* Bayinnah Shabazz Tim Springer Audrey Threadgold* Neil Poland Stacy Sand Michael Vrchota Barbara and Walter David Rice Lisa Shaffstall* Lisa Wilson William Nguyen Sheila Kaye Polk Jesse E. Spurway Vinaya Thummala* Parkes David Sands Ngan Vu Max Wimbrow Dr. Susanne Jess Rice Christopher Sharp Jeff Square Lisa Thygeson Gary Pollack Natanya Wachtel Nicholas* Nicolia Parks Susan Rice Lucy Sanna David Shaul Dennis and Anthony Pollock Nithya Srinivas* Mark and Kim Matt Parr Joseph Sano Tibaldi* Irene Waitzman* Kathie Wingers James H. Nickles and Diane Cline Danny A. Richards Owen Shaw* Marty St. Clair F.C. and B.T. Parson Robert and Lori Troy Tillery Irving Walanka Jennifer Wintheiser* Silke Niederhaus* Fiona Portington Virginia Richardson Jonathan Shea* Andrea Stagnone Santella Andrew Walker Glenn Winton Robert Nobile Joseph Pasquarella* Renee Richardson Andrea C. Shebuski Jim Tillilie Howard Postal Nadine Santiago Leslie Stanley Valentino Gosline* Geoff Walker* Barry Wolf Jimmie Noble Ira Potter Imad and Jessica Kai Starkes Ceil Tilney Pasquarella* Debbie Riddle Ray and Gabrielle Shehab George R.P. Richard Wollack Angelo Nole Gregory Potts Santiago Eugene Steele* Ezra Timmons Judy Passamonte Walker, III Mary Wollgast Eleanor Ridley* Nabil Sheikh Derrick Tobias* Francis Noordover Diane Powell Kathy Santo Heather Steglich* Jane Holliday Walker Andy Pate* Mary Riggin* David Shelton Dr. Barry and Mrs. Kirk Nowlin Jill Powell Nick and J. Leigh Marcie Stein Tara Todd Angela Wallace Brenda Wood Anthony Pate Mark Rinker Kenneth Shirreffs Joanne Nuzzo* Melyatta Powers Satey Susan Steinke Sina Toussi Lorraine Wallace David Wood Dr. Chirag Patel Arichay Rithiphong Flora Siami Daniel Oakey Jeff Presson Jennifer Saxton Melissa Stenn Brenda Towery Anne Walsh Anjana Woolsey Hetel Patel Angel Rivera* John Scandling and John David Sibol Dr. Ejikeme Obasi Brad and Shannon Stuart Stern* Joseph Tranchina Mary Wands Mary Worth* Parth Patel Price Doug Roberts Martha Dorn Jerold Sider Leslie Trigg* Julie Obeid James and Alberta Dr. John Wang Robert Wright Ravi Patel Patricia Schaer Carole Price* Jim Roberts Steve Sider Stewart* Charles Trilivas Madeline O’Brien Kevin Wang Robin Wright John Patterson Thomas Schall Adam Siegel* Craig Price Sammy Robillos Robert Stice Donna Triplett William Wang Thomas Wyatt William O’Brien Kevin Patton Jr. Katherine Charles Pridham Jack Robins John Silkensen Jesse Still* Paul Trokhan* Brian O’Connor* Schaperjahn Jennifer Warren Lokesh Yamasani Pamela Paulk* Debbie and Joe Keenan Pridmore David Roemer William Stoeckeler* William Troxil Lawrence Carter Kim Yates* Jimmy O’Conor Rekha Pawar Margaret Schesny Silverberg* Scott Pritchard Joseph Rogers* Dennis Stogsdill Peter Tsimoyianis Warren Leslie Young Brian O’Dea Nicholas Payne Perry Scheweder Shelly Dutton Debra Professori Kenneth L. Rogers Simkin Brian Stokes William S. Tunner Deryn Wasserman Melvin Yudis Edward Ogden Kathy Pearson* Raymond Schleyer* Jonathan Prutzman Frederick Rohn Christopher Simon Alan Stone Timothy Turek Brian Waters Patricia Yufer* Hugh O’Kane Kimberly H. Joan Schmitt Henry Purcell, MD Jim Rolfe Timothy Storc Joyce Turley Patricia Watkinson Pemberton Karen Schmitt Dr. Kareen Simpson Asad Zaman Edward Oleksiak* Nicholas Brian Pyles* Ricardo Rollins Manpreet Singh* Glen D. Strang John Devin Watson Joshua Zaritsky, MD Jack Olender Paul Pennino Marie Schmitt Matt Qualls* Catherine Romano Vincent Striano Daren Turner Mary Weatherford* Erin Penrose and Lisa Schmitz Matt Singletary Ronald and Judith Mark Olsen* Kimberly Turner Mitchel Watson* Michael Rabhan Antonio Romanucci Augustus Singleton Sy Strudler Betty Weaver* Zauner* John O’Meara Dana Schneider Mitchell Rachlis Alain Romero James Sullivan Tiffany Turner Connie Webb Greg Zavoyna* Lori Perkins Stacey B. Mike and Andera Vincent O’Neill Peter Turza Mike and Jodi Rich Radnay Gabe Romero Schneider* Skehan Jim Sullivan Judy Weber* James Zeigler Marjorie Opalski Perkins* Dr. Rupesh Raina* Dr. Dennis and Mrs. J. Schoderbek Michelle Skinner Susan Sullivan Michele Tyler Dr. Lisa Weber* Robyn Zeller* Angel Orara Ann Ross* Christopher Perl* Sabrina Rainey Leigh Schofield Charles Slocum Jerry Sustala* Todd Ungard Bob Weekes* Brenda Ziegler Karen Ordelheide* Howard Ross* Jason Perry Elondria Ramsey* Marilyn Schrader David Smalstig Alan Swartz* Travis Unser Adelaide Weeks Debbie Zimmerman John Orwin John Ross* Sarah Personette Troy Randall* Kraftin Schreyer Edith Smidl Rex Swauger* Kathryn Untiedt Bob Wehner Virginia Zimmerman Julie Osborne* Chris Rossi Penelope Peskowitz Karen Ransohoff Ray Schrock Rickey Smiley Cynthia Sweeney* Gregory Usdan Ben Wells Jonathan Zombeck Debra Ossmann Bob Peterson Harlan F. Rant Donna Roy Scott MacDougal Amanda Smith Matt Swett Steven Utt John West Catherine Zuris Fernando Otero* Marcella Peterson* Dr. Vijaykumar M. Lon Rubackin and Jody Schuhart Chris Smith* Louis Szegedy Tony Vaccaro Emily Wey* Russell Zusi* Mary Otto Page Petry* Rao Ramon Rubio Richard Schulman* Doug Smith Andrew Szymanko Andrew Vakos Amy Wheaton Kaycee Zusman*
* Hero Circle supporters: Hero Circle Members are individuals who invest in the National Kidney Foundation with an annual gift of S1,000+. These gifts exclusively support our annual fund which provides important, unrestricted resources that help us advance our mission and values.
11 44 ANNUAL REPORT FY 2019 CORPORATE SUPPORTERS $500,000–$999,999 Bristol-Myers Squibb Mar Cor Purification Dallas Renal Group O’Donnell & Naccarato, Inc. Columbia Nephrology Associates AstraZeneca DaVita Medimmune, LLC Diablo Nephrology Medical Outset Medical Inc. Group, Inc. Cozen O’Connor Janssen Pharmaceuticals, Donnelly Mechanical Corp. Meditech PhRMA Cushman & Wakefield Inc. Ernst & Young U.S. LLP MUFG Union Bank Dialysis Clinic, Inc. Polycom, Inc. Relypsa, Inc. Donor Alliance, Inc. Disney Worldwide Exelixis NxStage Medical Porter Adventist Hospital Services, Inc. Duke University GlaxoSmithKline OPKO Pharmaceuticals QueensCare Fox Networks Group $250,000–$499,999 Eisai Inc. HFF., Inc. Optum Health Care Sarris Candies, Inc. G & C Food Distributors & Amgen® Solutions, Inc. HM Life Insurance Company Emerson Electric Co. Snapchat Brokers, Inc. Boehringer Ingelheim, Inc. Pfizer Gray Construction Medeor Therapeutics Express Scripts SSM Health Fresenius Medical Care Polycom, Inc. Fox Rothschild, LLP SurgiCare of Manhattan Hahnemann University North America Merck Sharp & Dohme Corp. Hospital Sanford Health The George Washington Turner Broadcasting System Horizon Pharma Nephroceuticals ION Media Networks SAP NS2 University University Hospital Keryx Biopharmaceuticals, Nephrology Associates of Lane Office Kentuckiana Therma Inc. Global Health Products The University of Kansas Inc. LifeCenter Tricida Inc. Hartford HealthCare Health System Mallinckrodt Novo Nordisk UC Health University of Maryland McCormick & Company Inc. Pharmaceuticals John Muir Health The Patient-Centered Medical Center Mid-Atlantic Nephrology Outcomes Research UCSF Medical Center Otsuka America Jones Lang LaSalle Associates Institute (PCORI) Americas VCU Health System Pharmaceutical, Inc. University of Pittsburgh The Mount Sinai Hospital Reata Pharmaceuticals, Inc. Medical Center (UPMC) K&L Gates LLP WellCare Wells Fargo NBC Studios, Inc. $100,000–$249,999 Retrophin, Inc. Kaiser Permanente Financial New York-Presbyterian $10,001–$24,999 Services Wilbraham, Lawler & Buba Alexion Pharmaceuticals, U.S. Department of Hospital 2600 CR LLC Yale New Haven Hospital Inc. Veterans Affairs Kansas City Kidney NFL Ventures LP Aetna Consultants Zevia, LLC Anheuser-Busch, Inc. Veloxis Pharmaceuticals North Carolina Afiniti Kansas Nephrology Astellas Pharma US Viacom Media Networks Nephrology, PA Atlas-Acon Electric Physicians PA $10,000 Bayer Pearson Mazda Service Corp. Kidney & Hypertension A&E Networks $25,000–$49,999 Peninsula Continuum EMD Serono Center Amarin Pharma, Inc. AT&T Akebia Therapeutics Services LLC Insurance Auto Avera Health Liberty Insurance Ampco-Pittsburgh Quest Diagnostics Auctions, Inc. Anthem, Inc. Agency Inc. Baylor Scott & White Health Bayada Home Health Care Quinnipiac University Konica Minolta Business Ardelyx, Inc. Lucile Packard Children’s BB&T BGR Operations, LLC RAI Services Company Solutions U.S.A., Inc. Attain, LLC Hospital Brigham and Women’s Boston Scientific Sensiba San Filippo, LLP LogistiCare Solutions LLC Aurinia Pharmaceuticals Making a Difference Hospital Corporation Sentara Healthcare Merck & Co., Inc. Massachusetts General Beth Israel Deaconess Buckeye Health Plan Brandywine Operating Medical Center Hospital St. Louis Cardinals Pentec Health Catholic Health Initiatives Partnership LP Medical Technology and Stone Point Capital, LLC Sanofi Genzyme CareDx Broadridge Financial CBRE Inc. Practice and Patterns Dallas Nephrology Solutions Thomson Reuters Satellite Healthcare Chai Lifeline Institute, Inc. Associates PA Camp Construction UCHealth Takeda Pharmaceuticals, MediQuest Defender Direct ChemoCentryx Services University of Kansas U.S.A., Inc. MedStar Health Inc. Health System Dr. Schar USA, Inc. Christiana Care Health Carahsoft Technology UCSF Benioff System Metrolina Nephrology Corporation Venable LLP East River Medical Imaging Cigna Associates, Pa CMH Services, Inc. Virtus Investment $50,000–$99,999 Equus Capital Partners, Ltd. Cleveland Clinic Microsoft Colchis Capital Partners, Inc. American Renal Associates FibroGen, Inc. Clinical Research Nomura Holding Management, L.P. Watertree Health Azura Vascular Care InMed Consultants, LLC America, Inc. Wheels Up Partners LLC ANNUAL REPORT FY 2019 45 ESTATES AND TRUSTS $10,000+ Estate of Coletta A. Ammann Estate of Juanita M. Byrnes Anity Frey Estate George H. Langenfelder Memorial Estate of Lillian Pozefsky Estate of Virginia Argeropoulos The Charles G. Caldwell and Jo Ann Jane Frey Retirement Savings Plan Charitable Trust Beverly Ross Charitable Gift Annuity Eleanor Armstead Revocable Trust Caldwell Revocable Trust George Glass Trust Stanley C. Lipton IRA The Frances H. Rosser Trust Hermaine J. Brooks Trust David Downs IRA Jeanette Helms IRA Estate of Elizabeth Lee Louie Margaret Spanos Trust Brighthouse Life Insurance Estate of Opal Bod Fairley Estate of Linda Diane Hoover Estate of Daisy Lundsten Estate of Harry Wanderer Charles Buckner IRA Edmund Fink Austrian Roslyn Kaufman Revocable Judith Ann McCollough Trust Restitution Trust Living Trust Estate of Ray Medley
FOUNDATIONS $10,000+ The Louis and Sandra Berkman FirstEnergy Foundation Merck Foundation Donnini-Rudolph Family Foundation Walmart Foundation Foundation GlaxoSmithKline Foundation John Moffitt Foundation Schneider Electric North America Warburg Pincus Foundation The Boldt Family Fund Inc. Stephen A. and Diana L. Goldberg Harvey E. Najim Family Foundation Foundation Wasserman Foundation John and Margo Catsimatidis Foundation, Inc. OneLegacy Foundation Kenneth L. and Eva S. Smith The Wawa Foundation Inc. Foundation / Red Apple Group Foundation John & Marcia Goldman Foundation PA Department of Health, Bureau of Stanley Shalom Zielony Foundation John and Maurine Cox Foundation The Grainger Foundation Family Health Snyder Family Gary Dickinson Family Charitable The Humana Foundation, Inc. Prime Clerk Charitable Fund Ron Springs & Everson Walls Gift for Foundation Life Foundation The McCutchen Foundation The Rees-Jones Foundation Fair Oaks Foundation St. Louis Community Foundation
CORPORATE MEMBERSHIP PROGRAM PLATINUM Exelixis SILVER Eisai BRONZE Mallinckrodt Janssen Pharmaceuticals Akebia Opko Renal Ardelyx Tricida Merck Aurinia Reata DiaMedica Nephroceuticals Baxter Retrophin GOLD Otsuka Pharmaceuticals Bayer Healthcare Sanofi Aventis Amgen Pfizer Bristol-Myers Squibb and Pfizer AstraZeneca Relypsa ChemoCentryx Aurinia
Mission Statement The National Kidney Foundation, a major voluntary nonprofit health organization, is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease, and increasing the availability of all organs for transplantation.
46 ANNUAL REPORT FY 2019 Kidney Walk
ANNUAL REPORT FY 2019 47 11NKF SERVING THE LOCAL COMMUNITY
Fueled by passion and urgency, dozens local offices and Affiliates of the National Kidney Foundation work hard around the nation to help all people affected by kidney disease. In the following pages, please read just some of the highlights of their efforts in FY19.
48 ANNUAL REPORT FY 2019 In addition to the NKF’s National Office, The NKF Serving the National Capital guests who raised $500,000, and raising $70,000. Local Kidney Walks NKF’s 29 local offices and 9 affil- Area local office focused heavily on NKF Kid Ambassador Angelica Hale also did well, with 2,700 walkers raising iate offices around the country are patient education and empowerment, sent in a congratulations video to help a record $700,000 to support the working hard to raise awareness and piloting THE BIG ASK: THE BIG GIVE celebrate the milestone. In addition, kidney community. money, and serve professionals and in-person trainings and the “Kidney the Young Professional Board’s 3rd patients with kidney disease. Each Disease: What You Need to Know” Annual San Francisco Kidney Ball office has its own board, volunteers, presentation. They also partnered with reached new heights, with 300 guests and staff focused on their community’s NKF’s Government Relations team to unique needs and NKF’s mission. Here hold the Kidney Patient Summit on are just a few highlights from around Capitol Hill and NKF’s Congressional the country: Awards Reception, key events that NKF Serving Greater New York raised engage and educate Congress about a record $1.1 million dollars at the living donation and kidney disease. New York City Kidney Walk through The team of volunteers and staff at the dedication of kidney patients, NKF Serving Texas secured a Blue their families and the community. Cross Blue Shield grant that nearly GNY touched the lives of more than tripled KEEP® Healthy efforts in Texas 100 kidney patients by distributing and resulted in over 3,000 screenings care packages to dialysis centers and in the program’s first cycle. Recently educating 125 patients about living renewed for another cycle, the grant donation during THE BIG ASK: THE enables a partnership with the Caring BIG GIVE training. They worked for the Foundation of Texas and the use of a passage of the Living Donor Protection Care Van for screenings. Act in New York State. Now living The NKF Serving Columbus office donors are protected from insurance hosted the first THE BIG ASK: THE BIG discrimination. GIVE at Nationwide Children’s Hospital The NKF Serving Eastern PA & in addition to another workshop with NJ (Philadelphia) local office got Lifeline of Ohio during their Patient Philadelphia’s attention when the Summit. NKFCO ended the year by city’s skyline shined orange to raise successfully holding their annual awareness for kidney health during Kidney and Transplant Symposium National Kidney Month. Staff, local during National Kidney Month, board members, and volunteers featuring NKF President, Dr. Holly delivered 250 care packages to dialysis Kramer, as the Keynote speaker with patients on Giving Tuesday for the special guest Dr. William Fissell from Drive for Dialysis program. With 3,000 Vanderbilt University Medical Center. people involved, Philadelphia’s FY19 NKF Serving Northern California’s Kidney Walks raised nearly $700,000 crew hosted their 30th Annual and generated over 200,000 local NKF Serving South Carolina hosted over 300 dialysis patients at Authors Luncheon with nearly 1,000 media impressions for the Heart Your the The Patient Empowerment Workshop in Columbia, SC. Kidneys campaign. ANNUAL REPORT FY 2019 49 50 ANNUAL REPORT FY 2019 NKF AFFILIATES
NKF of Arizona NKF of Utah & Idaho NKF of Illinois NKF of Arizona screened more than NKFUI provided continuing medical On World Kidney Day, more than 40 1,400 Arizonans through Path to education to over 500 professionals in advocates assembled in the Illinois Wellness, a community health program partnership with the Ogden Surgical State Capitol to support legislation that tests for diabetes, heart and Medical Society in order to advance granting living donors tax credits and kidney disease. More than 1 in 5 partic- earlier diagnosis, prevention, and protection against discrimination. treatment of kidney disease. Through ipants were found to have evidence of NKF of Michigan kidney damage. its Kids and Kidneys program, NKFUI The NKF of Michigan proudly served reached an incredible 10,685 junior NKF of Florida more than 80,000 people this past high students through an interactive NKF of Florida completed its second year through direct programs and video program about kidney health and year of financial distributions from the services, including the Diabetes the importance of organ donation. Hawthorne Patient Assistance Fund to Prevention Program and Regie’s cover the cost of immunosuppressant NKF of Hawaii Rainbow Adventure®. NKFH celebrated National Kidney drugs for post-transplant patients. NKF of Wisconsin Over $40,000 was distributed to 41 Month with its 3rd annual Walk on the Healthy Shelves, a statewide food different transplant recipients last year. Wild Side fundraiser, a huge outdoor pantry community outreach program community event that spanned eight NKF of Louisiana of NKF of Wisconsin expanded its work blocks. Over 3,000 families attended This past year, NKFL participated in of promoting healthy food donations and received free kidney and vision over 25 health fairs, conducted 14 to improve the nutritional health of health-checks, and enjoyed a day of kidney health-checks, 20 HCA educa- food-insecure individuals living with food trucks, live music, and games tion programs, as well as their first diabetes, heart, or kidney disease. while learning about kidney health. THE BIG ASK: THE BIG GIVE in-person training. NKFL also continues its work NKF of Indiana on engaging medical students about This year, NKF of Indiana continued careers in nephrology and supporting its work of sending kids with kidney interprofessional education on renal disease to overnight summer camp health. Through their statewide free of charge. Kids ages 8 to 18 who public health education campaigns, have CKD or received a kidney trans- they reached over 100,000 resi- plant enjoyed five days of summer dents and coordinated several living fun at Camp Tecumseh in Brookston, donor seminars. Indiana in June.
NKF of Illinois Director of Programs Megan Craig and Evan Simms, 9, who received a kidney donation from Megan, testified before the Illinois Senate committee on World Kidney Day.
ANNUAL REPORT FY 2019 51 12WHAT’S TO COME IN FY20
In our quest to eliminate all preventable CKD, increase the number of kidney transplants, and ensure that all dialysis patients have the chance to lead full, productive and functional lives, we have some exciting initiatives coming soon. Here is a brief summary of what you can expect from NKF in FY20.
52 ANNUAL REPORT FY 2019 We are launching the NKF Patient for patients seeking information about align with CKD risk factors and labo- • Increase earlier detection and care Network, an interactive registry of CKD. We think the new design will be ratory findings reported in the online of CKD; and patients with kidney disease. As the simpler and easier to navigate than health assessment. • Increase incentives to develop new, online platform builds, patients will be our old site. Please let us know what President Donald J. Trump signed an cutting-edge treatments, including able to get personalized information to you think, too! Executive Order with a bold vision advancing home dialysis. help them navigate their disease; find We are also rolling out a major educa- for transforming kidney care for the clinical trials that help in the battle with We look forward to working with the tion series called “Kidney Pathways” 37 million of Americans affected by the disease; or connect with specialists Administration on this transformation. that we hope will enable patients in all kidney disease. During a speech in or facilities working in the forefront of stages of CKD to better understand July 2019, attended by NKF volunteers, We know that FY20 will bring so kidney medicine. It is our hope that, the disease and play a more active patients, care partners, and leader- many advances in our fight against eventually, scientists will have access role in managing their care. Kidney ship, as well as government officials kidney disease and that is in large to the largest data set of patients and Pathways is an online system that and other kidney organizations, the part because of our many stake- their experiences, which will help them delivers a curriculum-based format President laid out a detailed plan to: holders. Thank you! better understand overall kidney health offering need-to-know essentials that and accelerate drug development. The • Help increase living and deceased possibilities are endless, and we hope organ donation; this will become an incredible resource for as long as there is a need. The NKF Patient Network was announced in May 2019, and we expect active enrollment to begin in May 2020. Also, we are funding a new prize contest for kidney patients that could help “build a better mousetrap” when it comes to living full, productive and functional lives. The contest will award cash prizes to patients for their home- grown ideas and life-hacks that help them manage CKD or ESKD. KidneyX: Patient Innovator Challenge, funded by NKF is a public-private partnership between the U.S. Department of Health and Human Services and the American Society of Nephrology. We can’t wait to see what these intrepid kidney warriors dream up. You will also see some changes NKF CEO Kevin Longino, top left, joined stakeholders on the stage in July when coming to our website in FY20. We President Donald J. Trump signed the landmark Executive Order. are redesigning this important platform
ANNUAL REPORT FY 2019 53 Fueled by passion and urgency, NKF is a lifeline for all people a ected by 30 East 33rd Street kidney disease. As pioneers of scientiic research and innovation, NKF focuses New York, NY 10016 on the whole patient through the lens of kidney health. Relentless in our work, Kidney.org we enhance lives through action, education, and accelerating change.
© 2019 National Kidney Foundation, Inc. 03968122_DBJ 54 ANNUAL REPORT FY 2019