List of National Ethics Committees

Total Page:16

File Type:pdf, Size:1020Kb

List of National Ethics Committees List of National Ethics Committees Region EURO Country Albania Committee Name Albanian National Bioethics Committee Address Rr. Reshit Petrela No 27 Tirana, ALbania Phone +355 42 682029313 Website Contact Email [email protected] Region AFRO Country Algeria Committee Name Conseil National de l'Éthique des Sciences de la Santé Address Ministère de la santé, de la population et de la réforme hospitalière 125 Boulevard Abderrahmane LAALA, EL-MADANIA Alger, Algérie Phone +213 21279964 Website http://www.sante.dz Contact Email [email protected] Region PAHO Country Argentina Committee Name National Committee of Ethics in Science and Technology (Comité Nacional de Ética en la Ciencia y la Tecnología) Address Address Ecuador 873 4 ° piso (C1214ACM) Ciudad Autónoma de Buenos Aires, Argentina Republic Phone (+5411) 4891-8796 (direct) internal 4891-8300 7812 Website http://www.cecte.gov.ar Contact Email [email protected] Region PAHO Country Argentina Committee Name Argentina National Bioethics Advisory Commission Address Ministry of Health and Social Welfare Defensa 120 1345 Capital Federal Argentina Phone +54 11 516765 00 Website Contact Email Thursday, March 05, 2015 Page 1 of 26 Region WPRO Country Australia Committee Name Australian Health Ethics Committee (NHMRC). Address AHEC Secretariat NHMRC GPO Box 1421 Canberra ACT 2601 Phone +61 (02) 6217 9070 Website http://www.nhmrc.gov.au/health-ethics/australian-health-ethics-committee-ahec Contact Email [email protected] Region EURO Country Austria Committee Name The Bioethics Commission Address Bioethics Commission Secretariat 1010 Vienna, Ballhausplatz 2 Austria Phone +43(1)53115-2932 Website http://www.bundeskanzleramt.at/site/3575/default.aspx Contact Email [email protected] Region SEARO Country Bangladesh Committee Name National Research Ethics Committee (NREC) Address c/o Bangladesh Medical Research Council (BMRC) BMRC Bhaban Mohakhali, Dhaka - 1212 Bangladesh Phone +88 02 88 28396 Website http://www.bmrcbd.org Contact Email [email protected] Region EURO Country Belarus Committee Name National Bioethics Committee of the Republic of Belarus Address Belorusian State Medical University, av? Dzerzynskogo 83 220116, Minsk, Minskaya oblast Belarus Phone +375 17 2726196 Website Contact Email Thursday, March 05, 2015 Page 2 of 26 Region EURO Country Belgium Committee Name Belgian Advisory Committee on Bioethics Address Rue de l'Autonomie 4-1 er étage, 1070 Bruxelles Belgique Phone +32(0)2 5250910/11 Website http://www.health.belgium.be/eportal/Healthcare/Consultativebodies/Commitees/Bioethics/index.htm Contact Email [email protected] Region AFRO Country Benin Committee Name National Ethics Committee for Research in Health (Comite National pour l'Ethique de la recherche en sante) Address 04, BP 1226 Cadjehoun Cotonou République du Bénin Phone +229 D: 21333485; P1: 97334417/ P2: 95010141 Website http://www.ethique-sante.org Contact Email [email protected] Region PAHO Country Bolivia Committee Name The National Ethics and Bioethics Steering Committee Bolivian Academy of Medicine Address Bolivian Academy of Medicine Calle Ballivian No. 1266 Casilla Postal 14094 La Paz Bolivia Phone +591 2795815 Website Contact Email Region Country Bolivia Committee Name Comité Naciónal de Bioética Address Phone Website Contact Email [email protected] Thursday, March 05, 2015 Page 3 of 26 Region AFRO Country Botswana Committee Name Ministry of Health Research and Development Committee Address Ministry of Health Headquarters, 1st floor, office number 6 P/Bag 0038 Gaborone, Botswana Phone +267 3952000 Website Contact Email Region PAHO Country Brazil Committee Name Comissão Nacional de Ética em Pesquisa (Conep) (National Bioethics Commission of Brazil) Address Ministério da Saúde Esplanada dos Ministérios Bl. G.Ed. Anexo Ala B. Sls. 136 a 147 - DF Cep: 70058 - 900 Phone +55 61315 2951 Website http://www.conselho.saude.gov.br/Web_comissoes/conep/index.html Contact Email [email protected] Region WPRO Country Brunei Darussalam Committee Name Ministry of Health Address Commonwealth Drive Bandar Seri Begawan BB3910 Brunei Darussalam Phone Website Contact Email [email protected] Region AFRO Country Burkina Faso Committee Name Comité national d'éthique pour la recherche en santé (CNERS) Address 09 BP 7009, ,Ouagadougou 03 Burkina Faso Phone +226 50 36 0083 Website Contact Email [email protected] Thursday, March 05, 2015 Page 4 of 26 Region WPRO Country Cambodia Committee Name Ministry of Health Address National Center for Traditional Medicine 112, St. 261 Tuek Laak III Toul Kok, Phnom Pehn Cambodia Phone Website Contact Email Region PAHO Country Canada Committee Name Commission de l'éthique de la science et de la technologie (CEST) Address 1200 route de l'Eglise Bureau 3.45, 3ème étage Sainte Foy, Québec Canada Phone +1 418 528 0965 Website http://www.ethique.gouv.qc.ca/ Contact Email [email protected]; [email protected] Region PAHO Country Canada Committee Name Canadian Institutes of Health Research, CIHR Address Canadian Institutes of Health Research Standing Committee on Ethics 410 Laurier Avenue W., 9th Floor Address Locator 4209A Ottawa CANADA K1A 0W9 Phone General Enquiries +1 613 941 267 , Ethics Office: +1 613 946 4773 Website http://www.cihr-irsc.gc.ca Contact Email [email protected] Region AFRO Country Cape Verde Committee Name Comité National de Ética en Recherche Pour la Santé. Address 47, Praia, Ilha de São Tiago Cape Verde Phone +238 2610125, +238 2610199 Website Contact Email Thursday, March 05, 2015 Page 5 of 26 Region WPRO Country China Committee Name Ethics Committee, Ministry of Health Address C/o Chinese Medical Association No 42 Dongsi Xidajie Beijing 10710 PRC Phone Website Contact Email [email protected]; [email protected] Region AFRO Country Congo Committee Name Comite d'ethique de la recherche en sciences de la sante Address Delegation Generale de la Recherche Scientifique et Technique 2499, Brazzaville Congo Phone +242 551 21 17 Website Contact Email [email protected] Region AFRO Country Cote d'Ivoire Committee Name Comité Consultatif National de Bioéthique de la République de Côte d'Ivoire Address BP V 297, Abidjan, Côte d'Ivoire Phone +225 02037504 Website Contact Email [email protected] Region PAHO Country Cuba Committee Name Comité Nacional Cubano de Bioética (Cuban National Commission for Bioethics) Address Academia de Ciencias de Cuba Capitolio Nacional Prado y San José Habana Vieja, La Habana 12400 Cuba Phone +537 862 6545, 8670599 Website Contact Email [email protected] ; [email protected] Thursday, March 05, 2015 Page 6 of 26 Region EURO Country Cyprus Committee Name Cyprus national committee on Bioethics Address Corner of Νicos Kranidiotis & Makedonias, 2411 Engomi Nicosia Phone (+357) 22-809038 / 22-809039 Website http://www.bioethics.gov.cy Contact Email [email protected] Region EURO Country Czech Republic Committee Name The Bioethics Commission of the Research and Development Council Address nábřeží Edvarda Beneše 4 11801, Praha 1 Czech Republic Phone +420 224 002 358 Website http://www.vyzkum.cz Contact Email [email protected]; [email protected]; [email protected] Region EURO Country Czech Republic Committee Name Central Ethics Committee of the Ministry of Health of the Czech Republic (Centralni Eticka Komise Pri Ministerstvu Zdravotnictvi Ceske Republiky) Address Central Ethics Committee of the Ministry of Health of the Czech Republic, Palackého nám.4 128 01 Prague 2 Czech Republic Phone +420 224972471 Website Contact Email [email protected] Region AFRO Country Dem. Rep. of Congo Committee Name Comité national de bioéthique Address 2994, Route de Matadi, Commune de Ngaliema Kinshasa-Ngaliema, Kinshasa Congo, The Democratic Republic Of The Phone +243 81 68 68 102 Website Contact Email Thursday, March 05, 2015 Page 7 of 26 Region EURO Country Denmark Committee Name Danish Council of Ethics Address The Danish Council of Ethics Rentemestervej 8 DK-2400 Copenhagen NV Denmark Phone +45 72 21 68 60 Website http://www.etiskraad.dk Contact Email [email protected] Region EURO Country Denmark Committee Name The National Committee on Health Research Ethics Address Finsensvej 15 2000 Frederiksberg Denmark Phone +45 72269370 Website Contact Email [email protected] Region PAHO Country Dominican Republic Committee Name Comisiòn Nacional de Bioetica(National Bioethics Commission) Address Calle Restauración, equina 27 de Febrero San Francisco de Macorís Duarte, Dominican Republic Phone +809 588 6049 Website Contact Email [email protected] Region PAHO Country Ecuador Committee Name Comité Nacional de Bioética del Ecuador (Ecuador National Commission for Bioethics) Address UNESCO, Quito Foch 265, Apartado 17-07-8998 Quito Ecuador Phone +593 2529085 Website Contact Email [email protected] Thursday, March 05, 2015 Page 8 of 26 Region EMRO Country Egypt Committee Name Egyptian National Bioethics Committee Address 17th Ismael Abou El Fotouh St. Dokki, Cairo Egypt Phone +20 2 335 6659 Website http://www.egnatcom.org.eg Contact Email [email protected] Region PAHO Country El Salvador Committee Name National Research Ethics Committee (Comité de Ética de Investigación Clínica) Address Consejo Superior de Salud Pública Paseo General Escalon, No 3551 San Salvador, El Salvador Phone +503 21212525 Website Contact Email Region PAHO Country El Salvador Committee Name Comisión de Bioética Address Phone +503 220 57 378 Website Contact Email [email protected] Region EURO Country Estonia Committee Name Estonian Council of Bioethics
Recommended publications
  • Joint Committee on the Handling of Security-Relevant Research Publishing Information
    October 2016 | Progress Report Joint Committee on the Handling of Security-Relevant Research Publishing information Published by Deutsche Akademie der Naturforscher Leopoldina e. V. President: Prof. Jörg Hacker – German National Academy of Sciences – Jägerberg 1, 06108 Halle (Saale), Germany Editor Dr Johannes Fritsch, Yvonne Borchert German National Academy of Sciences Leopoldina Contact Office of the Joint Committee on the Handling of Security-Relevant Research German National Academy of Sciences Leopoldina Head: Dr Johannes Fritsch Reinhardtstraße 14, 10117 Berlin, Germany Tel.: +49 (0)30 2038 997-420 [email protected] www.leopoldina.org/de/ausschuss-dual-use Contact at the Deutsche Forschungsgemeinschaft (DFG, German Research Foundation) Dr Ingrid Ohlert German Research Foundation Kennedyallee 40, 53175 Bonn, Germany Tel.: +49 (0)228 885-2258 [email protected] www.dfg.de Design and setting unicom Werbeagentur GmbH, Berlin Recommended form of citation German National Academy of Sciences Leopoldina and Deutsche Forschungsgemeinschaft (DFG, German Research Foundation) (2016): “Joint Committee on the Handling of Security- Relevant Research”, progress report of 1 October 2016, Halle (Saale), 22 pages Joint Committee on the Handling of Security-Relevant Research Preface 3 Preface This progress report begins with a summary in Chapter A of the developments leading up to the establishment of the Joint Committee on the Handling of Security-Relevant Research by the Deutsche Forschungsgemeinschaft (DFG, German Research Founda- tion) and the German National Academy of Sciences Leopoldina in November 2014. Chapter B reports on the tasks of the Joint Committee and its activities up to 1 Octo- ber 2016, with particular focus on the progress of implementing the DFG and the Leo- poldina’s “Recommendations for Handling Security-Relevant Research” of June 2014.
    [Show full text]
  • San Marino Legal E
    Study on Homophobia, Transphobia and Discrimination on Grounds of Sexual Orientation and Gender Identity Legal Report: San Marino 1 Disclaimer: This report was drafted by independent experts and is published for information purposes only. Any views or opinions expressed in the report are those of the author and do not represent or engage the Council of Europe or the Office of the Commissioner for Human Rights. 1 This report is based on Dr Maria Gabriella Francioni, The legal and social situation concerning homophobia and discrimination on the grounds of sexual orientation in the Republic of San Marino , University of the Republic of San Marino, Juridical Studies Department, 2010. The latter report is attached to this report. Table of Contents A. EXECUTIVE SUMMARY 3 B. FINDINGS 3 B.1. Overall legal framework 3 B.2. Freedom of Assembly, Association and Expression 10 B.3. Hate crime - hate speech 10 B.4. Family issues 13 B.5. Asylum and subsidiary protection 16 B.6. Education 17 B.7. Employment 18 B.8. Health 20 B.9. Housing and Access to goods and services 21 B.10. Media 22 B.11. Transgender issues 23 Annex 1: List of relevant national laws 27 Annex 2: Report of Dr Maria Gabriella Francioni, The legal and social situation concerning homophobia and discrimination on the grounds of sexual orientation in the Republic of San Marino, University of the Republic of San Marino, Juridical Studies Department, 2010 31 A. Executive Summary 1. The Statutes "Leges Statuae Reipublicae Sancti Marini" that came into force in 1600 and the Laws that reform such Statutes represented the written source for excellence of the Sammarinese legal system.
    [Show full text]
  • Germline Intervention in the Human Embryo: German Ethics Council Calls for Global Political Debate and International Regulation
    Deutscher Ethikrat Germline intervention in the human embryo: German Ethics Council calls for global political debate and international regulation AD HOC RECOMMENDATION PAGE 2 Berlin, 29 September 2017 The technical opportunities offered by genome editing (for example Although the results of the recent experiments have since the CRISPR-Cas9 method) raise complex and fundamental ethical become the subject of controversial debate4, one thing is sure: questions particularly where they are used to modify the human these experiments are about the long-term goal of making in germline. Last year there was still by and large agreement – for vitro treatment possible in the earliest stage of human life by instance at the annual conference of the German Ethics Council de- means which will also correct the embryo’s sperm and/or egg voted to this topic – that there would be sufficient time for the nec- cells and thereby allow the modifications to be passed on to essary thorough and comprehensive reflection since applications potential progeny. In other words, this research will lead to in humans were still far away from actual implementation. Recent modifications to the human germline which are as precise and developments, however, demonstrate that, in this particularly sen- effective as possible and are undertaken systematically and in- sitive area, research has advanced far more quickly than expected tentionally. They are, therefore, to be judged in a morally differ- and precedents are being created at least in some countries. As, ent way to random mutations that are tolerated as side effects however, this touches not only on national interests but also on the of, for instance, chemotherapy or radiotherapy.
    [Show full text]
  • TR2010/0136.01-01/001- Technical Assistance for Improved Strategic
    National Programme for Turkey 2010 under the Instrument for Pre-Accession Assistance This project is co-financed by the European Union and the Republic of Turkey TR2010/0136.01-01/001- Technical Assistance for Improved Strategic Management Capacity Germany Country Report 30/01/2015 1 Table of Contents Page 1. General Information 4 1.1. Sources and Aims 4 1.2. Structural Aspects of the German State 4 1.3. Area and Population 7 1.4. GDP and Financial and Budgetary Situation 10 1.5. Main Economic and Commercial Characteristics 12 2. Government and Public Administration of the Federal Level 15 2.1. Federal Constitutional Structure (head of state, head of government, parliament, judiciary) 15 2.2. Central Bodies (chancellor, ministers) 16 2.3. Public Administration 17 2.3.1. Public Administration: employees 17 2.3.2. Public Administration: assessment and training 19 2.4. Reforms to the Structure of Government (past, in progress, planned) 22 3. Four Examples of Länder/Federal States (according to size, history, economic structure and geographic direction) 26 3.1. Baden-Württemberg - General Structure 28 3.1.1. Government and Public Administration 28 3.1.2. Reforms 30 3.2. Brandenburg - General Structure 32 3.2.1. Government and Public Administration 32 3.2.2. Reforms 33 3.3. Lower Saxony - General Structure 34 3.3.1. Government and Public Administration 35 3.3.2. Reforms 36 3.4. Saarland - General Structure 38 3.4.1. Government and Public Administration 38 3.4.2. Reforms 39 4. Strategic Planning and Public Budgeting 41 4.1.
    [Show full text]
  • Principles and Review Procedures of Research Ethics in the Social and Economic Sciences
    A Service of Leibniz-Informationszentrum econstor Wirtschaft Leibniz Information Centre Make Your Publications Visible. zbw for Economics Rat für Sozial- und Wirtschaftsdaten (RatSWD) (Ed.) Research Report Forschungsethische Grundsätze und Prüfverfahren in den Sozial- und Wirtschaftswissenschaften RatSWD Output, No. 9 (5) Provided in Cooperation with: German Data Forum (RatSWD) Suggested Citation: Rat für Sozial- und Wirtschaftsdaten (RatSWD) (Ed.) (2017) : Forschungsethische Grundsätze und Prüfverfahren in den Sozial- und Wirtschaftswissenschaften, RatSWD Output, No. 9 (5), Rat für Sozial- und Wirtschaftsdaten (RatSWD), Berlin, http://dx.doi.org/10.17620/02671.1 This Version is available at: http://hdl.handle.net/10419/224189 Standard-Nutzungsbedingungen: Terms of use: Die Dokumente auf EconStor dürfen zu eigenen wissenschaftlichen Documents in EconStor may be saved and copied for your Zwecken und zum Privatgebrauch gespeichert und kopiert werden. personal and scholarly purposes. Sie dürfen die Dokumente nicht für öffentliche oder kommerzielle You are not to copy documents for public or commercial Zwecke vervielfältigen, öffentlich ausstellen, öffentlich zugänglich purposes, to exhibit the documents publicly, to make them machen, vertreiben oder anderweitig nutzen. publicly available on the internet, or to distribute or otherwise use the documents in public. Sofern die Verfasser die Dokumente unter Open-Content-Lizenzen (insbesondere CC-Lizenzen) zur Verfügung gestellt haben sollten, If the documents have been made available under an Open gelten abweichend von diesen Nutzungsbedingungen die in der dort Content Licence (especially Creative Commons Licences), you genannten Lizenz gewährten Nutzungsrechte. may exercise further usage rights as specified in the indicated licence. www.econstor.eu RatSWD German Data Forum RatSWD Output 9 (5) Principles and Review Procedures of Research Ethics in the Social and Economic Sciences Executive Summary There is a need to act with regard to research ethics in the social and economic sciences in Germany.
    [Show full text]
  • Information on Shares Held by Henkel AG & Co. Kgaa and the Henkel
    Information on shares held by Henkel AG & Co. KGaA and the Henkel Group as of December 31, 2018 Schedule of shareholdings 2018 2 Information on shares in affiliated companies and other investments 1. Fully consolidated subsidiaries Share Henkel Group Direct Share Equity Net Income in percent Henkel AG & Co. KGaA in million euros in million euros in percent Algeria Henkel Algérie S.P.A. Dely Ibrahim 100.00 0.00 63 29 Argentina Henkel Argentina S.A. Buenos Aires 100.00 99.97 28 6 Australia Henkel Australia Pty. Ltd. Kilsyth 100.00 0.00 401 15 Henkel Finance Australia L.P. Kilsyth 100.00 99.90 – 69 – 9 Austria Henkel Austria Gesellschaft mbH Vienna 100.00 0.00 117 6 Henkel Central Eastern Europe Gesellschaft mbH Vienna 100.00 0.00 483 53 Henkel Central Eastern Europe Operations Gesellschaft mbH Vienna 100.00 0.00 503 32 Sonderhoff Engineering GmbH Dornbirn 100.00 0.00 48 3 Sonderhoff Polymer-Services Austria GmbH Hörbranz 100.00 0.00 1 0 Belarus Henkel Bautechnik TAA Zaslawye 66.00 0.00 5 2 Belgium Henkel Belgium N.V. Brussels 100.00 0.00 203 12 Henkel Belgium Operations N.V. Brussels 100.00 0.00 657 154 Bosnia and Herzegovina Henkel Adhezivi BH d.o.o. Bileća 100.00 0.00 9 1 Henkel BH d.o.o. Sarajevo 100.00 0.00 1 1 Brazil Henkel Ltda. São Paulo 100.00 33.59 124 10 Bulgaria Henkel Bulgaria EOOD Sofia 100.00 0.00 2 2 Henkel Bulgaria Operations EOOD Sofia 100.00 0.00 6 0 Schedule of shareholdings 2018 3 Share Henkel Group Direct Share Equity Net Income in percent Henkel AG & Co.
    [Show full text]
  • Saintsand Madmen
    SAINTS AND MADMEN THE LIMITS OF INTEGRITY Konzeption: Amber Carpenter York Susan Neiman Potsdam Rachael Wiseman Durham Internationale Tagung Mittwoch, 4. – Freitag, 6. Juni EINSTEIN FORUM Einstein Forum Am Neuen Markt 7 14467 Potsdam Tel. 0331-27178-0 www.einsteinforum.de [email protected] Speakers and Themes Jeremy Bendik-Keymer Rejecting Integrity, Choosing Humanity Integrity maintains the connotation of being untouched. Two of its prominent images – that of upholding norms or of being idealistic – reinforce that connotation through the concepts of rules and of forms. Incorruptibility is then found in being rigid or absolutely being. I believe there is an undemocratic politics and a stultifying view of moral education in this nest. I would prefer something humane: a trustworthy goodness comfortable in anarchy, disobedience, non-conformity and becoming, stuff of the comedy of life. What happens to what we want out of integrity when we begin with the assumption that the good part of life – and also the moral – involves being in touch with life and with people? Secondly, what happens to the good stuff of life – and the moral – when we avoid being normative or being ideal, that is, when we turn away the very concepts of norms and of ideals? Thirdly, what happens when good people aren’t seen as undeviating or absolute but are seen as in the process of becoming? What is incorruptibility when we reject integrity and prefer humanity? Educated at Yale and at the University of Chicago, Jeremy Bendik-Keymer is Elmer G. Beamer-Hubert H. Schneider Professor in Ethics and Associate Professor of Philosophy at Case Western Reserve University in Cleveland, Ohio.
    [Show full text]
  • Convention on the Elimination of All Forms of Discrimination Against
    United Nations CEDAW/C/DEU/7-8 Convention on the Elimination Distr.: General 21 October 2015 of All Forms of Discrimination against Women Original: English Committee on the Elimination of Discrimination against Women Consideration of reports submitted by States parties under article 18 of the Convention Seventh and eighth periodic reports of States parties due in 2014 Germany* [Date received: 2 October 2015] Note: The present document is being circulated in English, French and Spanish only. * The present document is being issued without formal editing. 15-18271 (E) 151215 *1518271* CEDAW/C/DEU/7-8 Recommendation 12: Parliaments 1. The Länder were consulted. They, in turn, involved the municipalities. Recommendation 14: Previous concluding observations 2. The Federal Government gave an account of progress made towards the realization of equal pay in its interim report of 2011. 1 Since that report was submitted work has in particular focused on improving equal pay. This issue will also be addressed in the present report (see the remarks concerning recommendation 40). Likewise, this report will document extensively the situation of women in the labour market and in leadership positions (see the remarks concerning recommendation 35 et. seq.). Recommendation 16: Accountability of the Federal Government 3. The present report addresses, if possible within the word limit, also implementation at Länder and municipal level (see additionally the Länder Exhibit). 4. Not without reason did the Federal Republic of Germany choose a federal system in its Constitution (the Basic Law) after the end of the Second World War. This form of government has considerable advantages, in particular in view of sustaining democracy, respect for human rights and the balance of power.
    [Show full text]
  • AMA Journal of Ethics® December 2019, Volume 21, Number 12: E1042-1048
    AMA Journal of Ethics® December 2019, Volume 21, Number 12: E1042-1048 HEALTH LAW What Is Prudent Governance of Human Genome Editing? Scott J. Schweikart, JD, MBE Abstract CRISPR technology has made questions about how best to regulate human genome editing immediately relevant. A sound and ethical governance structure for human genome editing is necessary, as the consequences of this new technology are far-reaching and profound. Because there are currently many risks associated with genome editing technology, the extent of which are unknown, regulatory prudence is ideal. When considering how best to create a prudent governance scheme, we can look to 2 guiding examples: the Asilomar conference of 1975 and the German Ethics Council guidelines for human germline intervention. Both models offer a path towards prudent regulation in the face of unknown and significant risks. Introduction In recent years, there has been a significant debate regarding human genome editing. The debate has intensified with the advent of CRISPR1,2 and the births of twin girls in China whose genomes were edited at the embryo stage using CRISPR technology.3 This new technology has certain risks of unknown magnitude coupled with potentially far- reaching consequences—ranging from safety and efficacy concerns, to more nuanced social and ethical implications, to globally profound implications, such as the shaping of human evolution. The potential risks and consequences of genome editing have raised concerns around the world. Debates are currently unfolding about how best to regulate this technology.4,5,6 Regulation can take many forms, which may include a moratorium on the technology’s use or assessment and enactment of restrictions and standards by regulatory agencies.
    [Show full text]
  • 12 Global Summit
    Dakar, Senegal 22-24 March 2018 12th Global Summit of National Ethics / Bioethics Committees Bioethics, Sustainable Development and Societies Supporté par le Ministère de la Santé et de l’Action Sociale Prepared on behalf of the Steering Committee of the 12th Global Summit by Johannes Köhler. 2 Welcome from the Chair of CNERS Through my voice, the National Ethics Committee for Health Research of Senegal (CNERS) would like to express to its counterparts present in Berlin in 2016, all its gratitude for having accepted to entrust to it the organization of the 12th edition of the Global Summit National Ethics and Bioethics Committees. This biennial summit initiated in 1996 in San Francisco, is one of the most important meetings on ethics and bioethics. So, the CNERS is honored to host this prestigious meeting and wishes you all a warm welcome. This summit, which is being held for the first time in sub-Saharan Africa, represents for us, a consecration of a sustained work of more than 15 years in the field of ethics of health research and protection of the rights of people involved in research projects. The theme "Bioethics, Sustainable Development and Societies" is relevant and current for our sub-region. Indeed, it is an opportunity to explore sustainable development under the lens of bioethics and in taking into account the diversities and the specificities of societies around the world. The Sustainable Development Goals set for the year 2035 objectives that are common to all nations, and States are invited to demonstrate innovation and self-engineering to achieve the objectives set.
    [Show full text]
  • Italy and the Republic of San Marino
    Integrated Country Strategy Italy and The Republic of San Marino FOR PUBLIC RELEASE FOR PUBLIC RELEASE Table of Contents 1. Chief of Mission Priorities ................................................................................................... 2 2. Mission Strategic Framework ............................................................................................. 5 3. Mission Goals and Objectives ............................................................................................. 7 4. Management Objectives. .................................................................................................. 13 FOR PUBLIC RELEASE Approved: August 3, 2018 1 FOR PUBLIC RELEASE 1. Chief of Mission Priorities Italy has long been one of our closest allies and best trading partners, with exceptionally strong bonds between our people, including tens of millions of Americans of Italian descent, and the exchange of millions of travelers and students between our two countries every year. Italy embraces its role as a founding member of NATO and the European Union, and Italian politicians and diplomats frequently observe that Italy has had a consistent foreign policy since the beginning of the Italian Republic in 1946, despite frequent changes of government. Under NATO, Italy hosts over 30,000 U.S. military and Department of Defense civilians and their families on five bases. Italy has been the second leading troop contributor to both the Defeat-ISIS Coalition in Iraq and the Resolute Support Mission in Afghanistan, and is strongly committed to UN peacekeeping. Italy has been a steadfast partner in international forums and our single most important ally for projecting military power into the greater Mediterranean. Due to its historical relationships and geographic proximity to North Africa, Italy has been vulnerable to the influx of migrants across the Mediterranean and has been a leader on addressing instability in Libya and the root causes of the migration crisis in the Sahel.
    [Show full text]
  • DP-Genome-Editing-EN-Web
    Discussion paper focusing on the scientific relevance of genome editing and on the ethical, legal and societal issues potentially involved ISSUED BY THE ETHICS COUNCIL OF THE MAX PLANCK SOCIETY 1. Introduction and motivation for the discussion paper Christiane Walch-Solimena As an organization dedicated to fundamental research, the intense controversies have emerged around some of its Max Planck Society (MPG) is committed to pursue issues at applications. Thus, first experiments in human embryonic cells the very frontiers of current knowledge and bears a special re- have been performed already since 2015 in China1 intended to sponsibility to critically evaluate novel scientific developments. correct certain disease-causing mutations. These publications Such assessment includes both the scientific potential as well have set off discussions throughout the scientific community as the risks that may be faced if the scientific findings may be and beyond about the ethical and safety implications of this put into practice one day in the future. To this end, the MPG research. An International Summit on Human Genome Editing Ethics Council has been asked to assemble a working group focused on the future of human genome editing and convened to outline and discuss questions arising from a revolutionary by the US National Academy of Medicine, the UK’s Royal Socie- technology that in recent years has opened up unforeseen ty and the Chinese Academy of Sciences in December 2015 opportunities in the manipulation of genes and genomes: the voiced the need for an ongoing global forum. Statements on CRISPR-Cas9 gene editing and genome engineering technolo- ethical and societal questions of genome editing, also cover- gy.
    [Show full text]