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2010 Program ISOQOL 17th Annual Conference of the International Society for Quality of Life Research Translating Quality of Life Measurement into Decision Making October 27-30, 2010 London, UK London Hilton Metropole Final Program Table of Contents Table of Contents Schedule-at-a-Glance ......................................................................................................................... 3 Welcome ................................................................................................................................................ 4 Scientific Program Committee .......................................................................................................... 5 ISOQOL Leadership ............................................................................................................................ 6 About ISOQOL/General Information .........................................................................................7 - 8 Program Schedule, Wednesday...................................................................................................9 - 14 Program Schedule, Thursday ................................................................................................... 15 - 21 Program Schedule, Friday ......................................................................................................... 22 - 28 Program Schedule, Saturday .................................................................................................... 29 - 35 Posters .......................................................................................................................................... 36 - 54 Exhibitors .................................................................................................................................... 55 - 56 Acknowledgements / Contributing to ISOQOL .................................................................... 57 - 58 Advertisements .......................................................................................................................... 59 - 63 Hotel Floor Plan ..................................................................................................... Inside Back Cover 2010 Meeting Dates / Location .........................................................................................Back Cover 2 Schedule-at-a-Glance Wednesday Thursday Friday Saturday October 27 October 28 October 29 October 30 7:00am Registration Opens 7:00am Registration and Exhibits 7:00am Registration and Exhibits 7:00am Registration and Exhibits Room West Wing Lobby West Wing Lobby West Wing Lobby 9:00am- Workshop 8:00am- Poster Session 1 on Display 8:00am- Poster Session 2 on display 7:45am- Concurrent Symposia 4:00pm Analysis of Longitudinal 6:45pm Viscount Suite and Foyer 6:45pm Viscount Suite and Foyer 9:15am See page 31 Studies of HRQOL in SAS, SPSS and R 7:45am- Welcome Remarks 7:45am- President’s Address 8:00am- Poster Session 3 on display Clarence Room 8:00am Sandringham Suite 8:00am Sandringham Suite 3:30pm Viscount Suite and Foyer 9:00am- Workshops 8:00am- Plenary Session 8:00am- Plenary Session 9:30am- President’s Award Lecture 12:00pm 1 Belgrave Room 9:30am Psychometric Methods for 9:30am The Routine Use of Patient- 9:45am Sandringham Suite 2 Berkeley Room Developing and Evaluating reported Outcome 3 Chelsea/Richmond Room Rating Scales: Why I Do What Measures in Health Service 9:45am- Plenary Session 4 Waterloo/Tower Room I Do Decision Making: Challenges 11:15am Dissemination and 5 Regents Room Sandringham Suite and Opportunities Integration of PRO Data into 6 Will not be presented Sandringham Suite Clinical Care 7 St. James Room 9:45am- Oral Concurrent Sessions Sandringham Suite 8 Cadogan Room 11:15am See page 14 9:45am- Oral Concurrent Sessions 11:15am See page 22 11:30am- Plenary Session 12:00pm Lunch on your own 11:30am- Oral Concurrent Sessions 1:00pm Discussion with Health Care 1:00pm See page 16 11:30am- Oral Concurrent Sessions Luminaries 1:00pm- Workshops 1:00pm See page 24 Sandringham Suite 4:00pm 9 Waterloo/Tower Room 2:00pm- Concurrent Symposia 10 Belgrave Room 3:30pm See page 18 2:00pm- Concurrent Symposia 1:00pm- Reception and Meet the 11 Will not be presented 3:30pm See page 26 2:30pm Author Poster Session 12 Berkeley Room 3:45pm- Oral Concurrent Sessions Viscount Suite and Foyer 13 St. James Room 5:15pm See page 20 3:45pm- Oral Concurrent Sessions 14 Chelsea/Richmond Room 5:15pm See page 28 2:30pm- ISOQOL Business Meeting 15 Cadogan Room 5:15pm- Reception and Meet the 3:30pm Sovereign Suite 16 Regents Room 6:45pm Author Poster Session 5:15pm- Reception and Meet the Viscount Suite and Foyer 6:45pm Author Poster Session 3:30pm- Meet the Experts: Modern 4:30pm- Mentor-Mentee Reception Viscount Suite and Foyer 5:15pm Test Theory and the Future 5:30pm Windsor Room 6:45pm SIG Meeitngs | Committee of Health Measurement Meetings 6:45pm SIG Meeitngs | Committee Sovereign Suite 5:30pm- Welcome Reception Meetings 7:00pm Balmore Suite Fundraiding Committee 7:00 pm Conference Dinner York Room Strategic Partnership Viscount Suite 7:00pm- Special Session: Getting G Committee 8:30pm Theory to Work for You TCA SIG Hilton Meeting Rooms 1-6 Room Balmoral Suite New Investigator SIG Balmoral Suite PLEASE NOTE: WORKSHOPS REQUIRE ADDI- TIONAL FEES AND REGISTRA- TION IS RE- QUIRED. 3 2010 Welcome On behalf of the 70 members of the Scientific Program Committee, we welcome you to Co-Chair: Co-Chair: Stefan Cano, PhD, UK Jane Scott, PhD, UK London, home to the 17th Annual Meeting of ISOQOL. We hope you will enjoy both the scientific program and host city over the next few days. This year’s meeting focuses on the theme “Translating Quality of Life Measurement into Decision- Making”. This theme represents a triad of topical areas, which link the use of patient rating scales from practice to policy via the cornerstone of psychometrics. We will explore the key issues of the day through plenary sessions that will address the use of patient rating scales for decision making in clinical research, clinical trials and national health policy, as well as addressing important questions about the science that underpins their use. To complement and build on the plenary presentations, we have three invited symposia that focus on specific topics in methodology, clinical research and clinical practice and two question and answer sessions that provide an opportunity for delegates to interact with some of the key luminary figures in policy making and modern psychometric methods. Also new this year are several inovations: a poster workshop, and prizes for best posters representing the three tracks of the conference (i.e., clinical practice, clinical research and methodology). The remaining core of the conference program is made up from over three hundred presentations during the many symposia, oral, and poster presentations. We have split these presentations into tracks reflecting the three key elements of the program to help you navigate the busy and exciting program. We invite you to make the most of your time in the city and enjoy the sights, sounds and flavours of London. We look forward to welcoming you in person at the opening reception Wednesday night and winding down during the conference closing dinner on Saturday at the London Hilton Metropole Hotel. For your free time, your registration packet has hints, tips and suggestions for local sightseeing. Finally, and as per ISOQOL tradition, we would like to give something back to local charities each year. So, this year you can bring a book to donate, donate your conference bag at the end of the meeting, or make a cash donation all of which will go to support the Red Cross. Thank you for joining us for this year’s annual meeting in London. At the end of the meeting, we hope you will have been stimulated with new ideas, have made new contacts and friends, and maybe even have learned something new. 4 Scientific Program Committee ISOQOL 2010 Scientific Program Committee Members Methodology Subcommittee Publicity Subcommittee Tomoaki Kimura, PhD Japan Jeremy Hobart, MD, PhD, UK (Chair) Fabio Efficace, PhD, Italy (Chair) Miako Kimura, , PhD Brazil John Brodersen, PhD, Denmark Sara Ahmed, PhD, Canada * Paul Kind, PhD UK Cheryl Coon, PhD, USA Yasmene Alavi, PhD, UK * Madeleine King, PhD Australia Karin Coyne, PhD, USA Francesco Cottone, PhD, Italy * Anne Klassen, PhD Cam=nada Sheri Fehnel, PhD, USA Wenwei Huang, PhD, Hong Kong, PRC Sharon Kletchko, MD New Zealand Cynthia Girman, DrPH, USA Colin Johnson, Mchir, UK Masahiro Kohzuki, MD, PhD Japan Carolyn Gotay, PhD, Canada Anandi Law, PhD, USA Paul Krabbe, PhD The Netherlands Peter Hagell, PhD, Sweden Pei Lin Lua, PhD, Malaysia Karen Kuhlthau, PhD USA Anandi Law, PhD, USA Deborah Miller, PhD, PhDUSA * Donna Lamping, PhD UK Joy MacDermid, PhD, Canada Ana Maria Rodriguez, MSc , Canada Anandi Law, BPharm, PhD USA Annabel Nixon, PhD, UK Susanne Singer, PhD, Germany William Lenderking, PhD USA Susan Parsons, MD, MRP, USA Randall Winnette, BS, UK Lauren Lent, MS USA Donald Patrick, PhD, USA Teresa Young, BSc, UK Minghui Li, MS China Anita Slade, PhD, UK Kathleen Lohr, PhD USA Jeff Sloan, PhD, USA Abstract Reviewers Gail Low, PhD Canada Diane Wild, MSC, UK Neil Aaronson, PhD The Netherlands Zhiqiang Lu, BPharm, PhD USA Lesley Wiseman-Orr, BSc PhD, UK Sara Ahmed, PhD Canada Pei Lin Lua, PhD Malaysia * Jordi Alonoso, PhD Spain Deborah Lubeck, PhD USA Clinical Research Subcommittee Carla Bann, PhD USA Joy Macdermid, PhDCanada John Browne, PhD, Ireland (Chair) Susan Bartlett,
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