An Ethical Argument for a Specific Model of Palliative Care in Nigeria
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Duquesne University Duquesne Scholarship Collection Electronic Theses and Dissertations Spring 1-1-2017 An Ethical Argument for a Specific oM del of Palliative Care in Nigeria Dozie Egbe Follow this and additional works at: https://dsc.duq.edu/etd Recommended Citation Egbe, D. (2017). An Ethical Argument for a Specific odeM l of Palliative Care in Nigeria (Doctoral dissertation, Duquesne University). Retrieved from https://dsc.duq.edu/etd/127 This One-year Embargo is brought to you for free and open access by Duquesne Scholarship Collection. It has been accepted for inclusion in Electronic Theses and Dissertations by an authorized administrator of Duquesne Scholarship Collection. For more information, please contact [email protected]. AN ETHICAL ARGUMENT FOR A SPECIFIC MODEL OF PALLIATIVE CARE IN NIGERIA A Doctoral Project Submitted to the McAnulty Graduate School of Liberal Arts Duquesne University In partial fulfillment of the requirements for the degree of Doctor of Healthcare Ethics By Dozie R. Egbe May 2017 Copyright by Dozie R. Egbe 2017 AN ETHICAL ARGUMENT FOR A SPECIFIC MODEL OF PALLIATIVE CARE IN NIGERIA By Dozie R. Egbe Approved November 9, 2016 ________________________________ ________________________________ Henk ten Have, MD, PhD Henk ten Have, MD, PhD Professor, McAnulty College and Professor, McAnulty College and Graduate School of Liberal Arts, Center Graduate School of Liberal Arts, Center for Healthcare Ethics for Healthcare Ethics (Committee Chair) (Center Director) (Center Director) ________________________________ (Center________________________________ Director) (CommitteeGerard Magill, Chair) PhD (CenterJoris Gielen, Director) PhD Vernon F. Gallagher Chair & Professor (CenterAssistant Director) Professor McAnulty College and Graduate School (CenterMcAnulty Director) College and Graduate School of Liberal Arts, Healthcare Ethics (Centerof Liberal Director) Arts, Healthcare Ethics (Committee Member) (Center (Committee Director) Member) ________________________________ James Swindal Dean, McAnulty Graduate School of (Committee Chair) Liberal Arts iii ABSTRACT AN ETHICAL ARGUMENT FOR A SPECIFIC MODEL OF PALLIATIVE CARE IN NIGERIA By Dozie R. Egbe May 2017 Dissertation supervised by Professor Henk ten Have, MD, PhD The need for palliative care in Nigeria is huge. But Nigeria has minimal palliative care activity that does not correspond to the great palliative care needs in the country. The great needs are heightened by poverty and poverty induced conditions. However, Nigeria has untapped sociocultural values that can boast palliative care in the country. Such values can be activated and constructively integrated in the practice of palliative care in Nigeria. This project looks back to what palliative care has been in history and in developed nations to argue for a constructive and positive manner palliative care can evolve in Nigeria to address the peculiar situation of poverty and poverty induced conditions that make palliative care patients in Nigeria vulnerable. The capacities of palliative care as found in its history and its modern practice favor the integration of sociocultural values iv and other favorable structures on ground that can boast palliative care in Nigeria. This will ensure that palliative care maintains its core meaning while integrating and injecting structures and values that are meaningful to palliative care patients in Nigeria. The specific model of palliative care in Nigeria as argued in this project, is designed to mobilize all affordable resources in a strategy that will ensure holistic care for the sick while at the same time attend to how they live not just how they die. The model also allows for easy access of care as it is designed to penetrate hard-to-reach communities of the country and to deliver care in any setting- rural or urban, in hospitals, palliative care units, or residential care homes. v DEDICATION In Blessed Memory of my loving mother Agatha Nwogbo Egbe (1926-2015). You will always be remembered and cherished. Your selfless life, unconditional love and unwavering care will be missed but not forgotten. vi ACKNOWLEDGEMENT I wish to express my immense appreciation to all those who played significant role in making this project a reality. My boundless and greatest gratitude goes to Almighty God for his protection, guidance and all his blessings. I am deeply indebted to my late bishop, Simon Akwali Okafor (Bishop Emeritus of Awka Diocese). He started me off on this academic journey when he offered me the opportunity to come to United States for further study. May he continue to rest in peace in the bosom of the lord. I am equally very grateful to his successor and my local ordinary Most Rev. Paulinus Ezeokafor who continued with the support and has not relented. My sincere thanks to my supervisor Professor Henk ten Have, MD, PhD, who painstakingly directed this project. I thank him for his time, insight and diligence in the review of this work. Equal thanks go to the committee members who went through this work and approved it. I immensely express my special thanks to my mentor in the Center for Health Care Ethics, Professor Gerard Magill, PhD. Vernon F. Gallagher Chair & Professor McAnulty College and Graduate School of Liberal Arts. His counsel, good will and motivation helped make this work a reality. Words are insufficient to express my boundless gratitude for his unparalleled support, direction, good hearth, and generosity. I equally recognize and appreciate the pain-staking effort of Anthony Ike in this work. He has always been a great friend and a pillar of support. He employed great care and thoroughness as he proofread every chapter of this work. For all these and more I will ever be grateful. I have not forgotten Peter IK Osuji who dedicate a great chunk of his time to go through some parts of this work. vii I am highly indebted and grateful to my friends John Chidi Obasi and Innocent Obelle who together with the support of my late bishop played different roles that made my coming to United States to study a reality. Their support is highly priced. I cannot forget my family immediate and extended for their prayers, good wishes and general support. I remain grateful to my siblings Edwin, Francis, Basil, Fidel, and Felicia. Their support is always a pillar of strength to me. I have immense appreciation for the family of Dozie and Regina Obiekezie whose home is my second home in America. Their resolute friendship and hospitality will always be remembered and cherished. I will also like to thank my colleagues at the office of pastoral/spiritual care of UPMC. The positive energy they bring to the work environment was very motivational. Finally, to all my great friends and well-wishers, I appreciate your support and prayers, and I say thank you. viii TABLE OF CONTENTS Page Abstract .............................................................................................................................. iv Dedication .......................................................................................................................... vi Acknowledgement ............................................................................................................ vii Chapter One: Introduction ...................................................................................................1 Chapter Two: Origin and Development of Palliative Care in Western Countries ………15 A. Palliative Care: Origin, Evolution, and Earliest Concepts……………………….16 1. Origin, and Evolution…………………………………………………….23 2. Concepts………………………………………………………………….24 i. Earliest Concepts………………………………………………...24 ii. Modern Concepts………………………………………………...28 B. Current Practice and Models……………………………………………………..32 C. Nature of Palliative Care…………………………………………………………36 Chapter Three: From Developed Nations to Developing Nations: Lessons of Palliative Care in Developed Nations for Developing Countries…………………………………..47 A. Lessons of Developed Palliative Care in Western Countries for Developing Countries…………………………………………………………………………49 1. Availability of Palliative Care…………………………………………...52 i. Advanced Pain and Symptom Management…………………….54 ii. Attention to Psychological and Spiritual Needs/Concerns of Patients and Families…………………………………………….57 iii. Development of Multidisciplinary Teams……………………….58 ix 2. Adaptations to Structures on Ground…………………………………….61 3. From Basics to More Current Pressing Issues…………………………...65 B. Status of Palliative Care in Developing Nations…………………………………67 1. Lack of Palliative Care…………………………………………………..67 i. Characteristics of a Developing Nation………………………….68 2. Palliative Care a Necessary Response…………………………………..70 i. Current Meaningful Efforts………………………………………73 ii. Additional Issues of Different Nature……………………………76 Chapter Four: Palliative Care in Nigeria………………………………………………...88 A. Nigeria as a Developing Nation……………………………………………….....88 1. Nigeria: A Developing Nation with a difference ………………………..90 i. Population, and Economic Growth……………………………....90 a. Population………………………………………………..90 b. Economic Growth………………………………………..91 ii. Disease Control…………………………………………………..92 2. Poverty and Poverty Induced Conditions………………………………..95 B. Peculiar Situation: The Double Burden of Sickness for Palliative Care Patients…………………………………………………………………………100 1. The Effects of the Peculiar Situation…………………………………...100 i. Need for Palliative Care………………………………………..100 ii. Burdens of Poverty and Diseases……………………………….101 a. Burdens of Poverty……………………………………..102 b. Burdens of Diseases/Sickness………………………….103 x iii.