Recommendations by the Next Generation
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Recommendations by the Next Generation 2019-2020 #EUHealthGen Think Digital Think Patient Think Global Table of Contents Forewords Recommendations Zeger Vercouteren . 7 Interconnected Care . 16 The Future Is Cross-Border: Ensuring the Portability Katie Gallagher . .8 . and Accessibility of Personal Health Records within the European Union Olivier Costa . 9. Europe as a Health Innovation Hub . 30. Gardenia Trezzini . 10 . Europe: a Leader and World-Class R&D Innovation Hub for the Benefit of Patients, Healthcare Systems and the Economy Jason Descamps . 10 Sustainable and Healthy Lifestyles . 44. Alessandro Da Rold . 11. Paving the Way for Europe’s Next Generation of Health Thomas Gelin . 12 Tackling Cancer in Europe . 56 Remaining One Step Ahead to Beat Cancer Bjelle Roberts . 13 . Mental Health and Healthy Workforce . 70 Towards a Healthy Workforce in the EU – Implementing Actions for Sustainable Work Life THE NEXT GENERATION OF EU HEALTH LEADERS The European Health Parliament (EHP) is a Brussels That is why the EHP was created in 2014. The based movement connecting and empowering the initiative connects promising young professionals and next generation of European health leaders to rethink challenges them to develop solutions for European EU health policies. Along with its partners: Johnson health policy that are both innovative and actionable. & Johnson, European Patients’ Forum, EU40, College Each year the EHP convenes a diverse group of 60 of Europe, Porter Novelli, Euronews and Mavence the young professionals representing all healthcare EHP provides the next generation of European leaders sectors. Participants work together for six months to with the connections, knowledge and platform they develop policy recommendations that address today’s need to build a healthier and more innovative Europe. most pressing European health issues, which are picked in cooperation with the European Commission. The EHP answers Europe’s need for fresh ideas in EHP participants are selected for their contribution health. Health systems are facing immense pressures to and potential to lead in European health policy and to adapt their spending and other resources to come from a range of educational and occupational match changing demographics, rising disease backgrounds. burdens, stronger patient empowerment and modern technologies. The EHP believes that the solutions required must come from the young European health leaders who influence the policies that will ultimately concern their generation as they age. FOREWORDS ZEGER VERCOUTEREN Worldwide Government Affairs and Policy Vice President, Europe, Middle East & Africa and Global Supply Chain Johnson & Johnson This is a special moment in the history of the European indicating that the future of healthcare can also be Health Parliament. The start of a new European policy increasingly digital. In addition, these difficult times cycle, combined with the need to adapt and improve have served as an important reminder of our primary following the COVID-19 crisis, has made this a unique responsibility, to protect the lives and improve the well- opportunity for renewal and innovation. This edition being of European patients and citizens. has been a year of firsts: the EHP’s first-ever health hackathon, introducing a dynamic and innovative What sets this unique initiative apart is the fact that working style to the program; and the EHP’s first-ever the EHP members voice the concerns and aspirations all digital plenary session, introducing a greener, informed citizens have for European health policy. fresher and equally engaging platform for bringing Their recommendations on five major policy topics together a diverse range of stakeholders. As we (Mental Health and Healthy Workforces; Tackling look to the future of European health in a period of Cancer in Europe; Europe as a Health Innovation Hub; renewal, please join us in re-writing the rule book and Interconnected care; and Sustainable and Healthy welcoming a few more firsts that could help improve Lifestyles) are innovative, actionable and to the point. people’s lives. This makes their work so valuable to the EU institutions and its policymakers as demonstrated by the great In 2020, Europe is reacting to a public health crisis interest, engagement and support of many EU policy that has challenged and stretched health systems makers and stakeholders. across the continent. Alongside the response to the pandemic, health systems are facing ongoing Not only do the EHP members set out in this document pressures to adapt their spending and other resources their recommendations for how to carve this path to match ever-changing demographics, rising disease in five key topic areas, many of the EHP’s young burdens, stronger patient empowerment and modern healthcare leaders will undoubtedly play a role in technologies. The task for all those working in health bringing this future into fruition in the years to come. is to look to the future to carve a path to recover and The EHP helps students and young professionals from to build ever more resilient, innovative and efficient very diverse backgrounds and nationalities to connect healthcare systems. genuinely with the European project. The EHP provides these next generations of European leaders with the This 5th edition of the EHP is exactly that – a look to connections, knowledge and platform they need to the future of European health envisaged by the next build themselves a healthier and more innovative generation of future health leaders. In this edition, Europe – the rest is up to them! the EHP members were tasked with situating their recommendations within the frame of three cross- Johnson & Johnson, in collaboration with the other cutting themes: EHP partners, truly prides itself on preparing and empowering EU young professionals to advocate › Think Patient for what matters most to their generation. On behalf › Think Digital of Johnson & Johnson, I would like to wish the EHP › Think Global members the very best of luck in all their future endeavours and look forward to staying closely in In the midst of the COVID-19 global health crisis, touch and following their growing careers with real we cannot help but be reminded of the importance interest. of these themes. COVID-19 is a global problem, reminding us that, in an ever more interconnected Follow the buzz generated on social media by this world, our health solutions must be global too; young and knowledgeable crowd – let’s all join this amongst this, we have all adapted and adopted digital year: #EUHealthGen to follow all our updates and solutions which have helped us remain connected #EHPGoesDigital to follow our virtual meetings. Recommendations by the Next Generation • 7 KATIE GALLAGHER Senior Policy Adviser European Patients’ Forum (EPF) 2020 is proving to be without any doubt one of the For EPF, these are all fundamental: nobody will most challenging years for healthcare in the human help us drive positive change and person-centred history. The COVID-19 pandemic had and it still innovation in health systems beyond COVID-19 better having a radical impact on the lives of almost every than patients themselves. They have invaluable single person in the world and it fundamentally shook experiential knowledge and expertise through living our health systems. with a disease and they must be supported and included in shaping and navigating health system, If from one side the crisis has exacerbated existing picking up what really works and where there are issues such as access to care, medicine shortages gaps and weaknesses. and health inequalities, on the other side it had also exposed new gaps and challenges, showing us once In conclusion, I would also like to applaud all again the complexity of healthcare. the committees for engaging with and securing endorsements by an impressive wide range of However, great challenges can also push for positive important stakeholders, including key Members of changes and innovation. COVID-19, for example, has the European Parliament, European Commission demonstrated again how innovation in healthcare, officials, patients and civil society representatives, both digital and organisational, if designed and national and regional experts. This is excellent news, implemented in the right way, is fundamental to and it adds even more credibility and recognition, support and improve care delivery and quality. even beyond the EU Brussels bubble to the brilliant recommendations put forward by the EHPers. That is why, the EHP and its focus on fresh and innovative solutions to common health challenges, Health is changing at global proved once again to be an incredibly positive initiative. With healthcare being more and more at level and initiative as the the forefront of the European debate, it is of outmost EHP, with its energy and importance to come together to discuss the future of fresh ideas can support health and care. policy makers in shaping the future of health in the EU, For EPF, it has been a pleasure to have been partners of the 5th edition of the EHP. The contribution of so strengthening our health many talented young passionate professionals who systems and making them have worked hard in tackling the most pressing issues more resilient to current for health in Europe was impressive and timely. It and future challenges . My was great to see this strong team of motivated and warmest congratulations to knowledgeable individuals address these issues with expertise and competence and develop concrete, everyone at the