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CAWS NEWS April 2011.Indd S P R I N G N E W S L E T T E R 2 0 1 1 Journeys Families Take pring is here and we are moving into summer, I ready for the AGM so we can discuss and vote. Thank can hardly wait for the sun! you Yves for working on these with me. S As we move toward the annual general The Toronto visit also gave us the meeting for this year I ask that the provincial contacts opportunity to visit with author, Claire Tacon. Her examine their commitment to CAWS and if they want information was included in the last newsletter. She continue, take a leave or have someone else fi ll their shared her experience of being able to speak with position. Ontario now has two contacts, a great way many folks since the publication of our last newslet- to share the work load! Thank you to those that have ter and is very appreciative with those of you for your committed. The AGM has been set for June 24th at willingness to share your stories. Claire has a book 3:00 p.m. mountain time. Please let me know if you coming out this fall, so watch for “In the Field”. are interested in participating as the AGM is held by This past March Sheena was in- conference call and I have to set up the connections. vited to speak at a conference in Toronto, of which While recently in Toronto I had her cousin Bradley and I had the pleasure of being a chance to meet up with Yves Theoret, one of the companions for the trip. Sometimes there just needs to Ontario contacts. We talked about how the families be someone younger in attendance during travel. You of Ontario are trying very hard to form a network that see, one of Sheena’s goals in Toronto was to attend will connect and support families on a provincial basis. the Much Music Live headquarters taping and the age We also talked about each province getting together to group is 18-25 and well - I just don’t quite fi t that age formalize and become a group that can provide input group so - thank you Bradley for coming with us - you and feedback to the provincial contact. What does that are a life-saver! look like: a society / a network in each province, that The conference was to encourage provides organized concerns and needs to our CAWS youth to look towards a future that is wide open as national organization? I ask that you think about our they choose to make it. There were about 100 partici- conversation so we can discuss at our AGM. We are pants including youth, family members, transition fa- also working to revise our Bylaws and will have them cilitators, teachers and many others. What a great way 3 CAWS Contacts 4 Across our Country Inside 6 Music in her Heart 8 Dream Makers this Issue... 10 Research 11 Youth Voice 15 Bulletin Board 16 Donation Form SPRING NEWSLETTER 1 APRIL 2011 to have our youth look at following their dreams when and Sheena was so frustrated that she closed the store. they hear the dreams of others and how those dreams It was Halloween day and not a good day to close the have taken on reality. Not only did Sheena share her store. So, with much conversation and understanding story of being an entrepreneur but also we heard about staff, who were waiting to go to work, we managed a young man who is a racecar driver and trying out to have the staff go and pick her up and get the store for his NASCAR license; an artist/ open before noon. Journeys families take! musician who has great ideas about Sheena’s brothers do not live close, how to carry those into the future, so are not there for immediate help and assistance but and a young woman who has her we have many friends who are close by. We now have level one in Child Care. What an a long list of family and friends who put their names inspiring conference for youth. on a list that I email out to everyone before we leave I am not sure if I and they are then connected if someone isn’t able to mentioned before but traveling is fi nd Sheena for a time or if she needs some help. They something Fraser and I avoided will take her out to dinner or pick her up after her unless Sheena was coming - it was night at Kinettes or evening at Gitter’s, take her shop- just too much planning to leave her ping or just watch a movie with her. We would not be behind and ensure that all would able to take our time away if not for the friends who go well. Two years ago we decided have become surrogate family! that we should be able to start and I send my thanks to Carol, Andrea, travel without Sheena in our company and she should Lisa, Tara, Brittany T, Lara, Bradley, Lionel and Mon- be able to survive at home - we would just work to put ica, Alise, Bonnie, Deb and Blake, Wade, Matthew, supports in place. So we planned a vacation in Hawaii, Verdeen, Grandpa Swayze. So after many years we not Canada where it would be easier to come home if do take a chance and we do leave the country and this we had to, but across the ocean. The fi rst time we went, time for three weeks with Sheena joining us shortly to we were just settling and just starting to relax when we celebrate her 24th birthday in Maui!. received a call from Sheena that she had H1N1. What With this newsletter, you will receive do we do? Do we pack up and go home or see what some Toonies for Time hearts. Please support CAWS we can put into place from Maui. We stayed. Sheena’s with this fundraiser. Proceeds will contribute to the wonderful store staff made the commitment to Sheena printing cost of our new brochure, this newsletter - closed the store and went to stay with Sheena for a and our 2013 family conference. It is great to see few days. Sheena was in quarantine for 7 days and she provincial contacts getting families together over the survived and so did we, with the commitment of the summer. Check out page 15 in this newsletter to see staff. what is happening in your province and don’t forget to The next time we went, there was a take lots of pictures to send to Gloria for our summer problem with loneliness and transportation to work. newsletter. We managed to get staff to take care of that issue by having them pick her up. Then the third time we Orvella Small thought we had the transportation issue all taken care President of as Sheena would only have to take the taxi once and Coming to you from Maui! what a disaster. The taxi came but didn’t wait for her CAWS Annual General Meeting June 24, 2011 For details contact Orvella SPRING NEWSLETTER 2 APRIL 2011 A S S O C I A T I O N C O N T A C T S PRESIDENT MUSIC CAMP COORDINATOR Nova Scotia Orvella Small Basia Morawski-Bergeron Anne Louise Desrosiers Box 5025 102 MacDonald St. 1675 Cambridge St. High River, AB T1V 1M3 Kirkland, QC Halifax, NS B3H 4A5 (403) 649-5604 H9J 3Z7 (902) 422-0270 (403) 652-0716 (514) 697-0178 [email protected] [email protected] [email protected] New Brunswick PAST PRESIDENT Alberta Marianne Mepham Diane Reid Jaimie Tinling 44 Calais Crescent 209 Inverness Park SE 32 Cascade Place Lower Coverdale, NB E1J 2K9 Calgary, AB T2Z 3K6 Cochrane, AB T4C 1G6 H: (506)384-9426 (403) 257-3581 (403)855-1115 (403)837-7408 W: (506)860-2374 (403) 660-2155 [email protected] Marianne.Mepham-Newton [email protected] @horizonnb.ca British Columbia [email protected] TREASURER Cindy Sanford David Olson Box 26206 Newfoundland 248B East 21st. Street Richmond, BC April Williams North Vancouver, BC V6Y 3V3 1680 A Torbay Rd V7L 3B6 (604) 564 7779 Torbay, NL A1K 1H2 (604) 990-7718 [email protected] (709)437-7596 [email protected] [email protected] Manitoba EDITOR/SECRETARY Coralee Crowe Ontario Gloria Mahussier 27 Regis Drive Monique & John Plessas 19 Pereverzoff Place Winnipeg MB R2N 1J9 163 Wolverleigh Blvd. Prince Albert, SK. S6X 1A8 [email protected] Toronto, ON M4C 1S1 (306) 922-3230 [email protected] (306) 922-3457 (fax) MB Convenor for Family Events [email protected] Lucille Beaudin Yves Theoret Box 30 [email protected] MEMBERSHIP St. Eustache, MB R0H 1H0 Mike Mahussier (204) 353-2551 Quebec 19 Pereverzoff Place [email protected] Ken Brownridge Prince Albert, SK. S6X 1A8 514-823-1012 (306) 922-3230 Youth Correspondent (306) 922-3457 (fax) Sheena Small Saskatchewan [email protected] [email protected] Kelly Fraser 3434 Eagle Crescent VIDEO LIBRARIAN Nunavut/N.W.T. Prince Albert, SK S6V 7N5 Barbara Morawski-Bergeron Position Vacant (306) 922-3783 (514) 697-0178 Volunteer required [email protected] [email protected] Visit our website www.CAWS-CAN.org If you would like to fi nd out more about the role of a Provincial Contact contact Orvella Small, CAWS President If you would like to volunteer in your province, call your Provincial contact person. SPRING NEWSLETTER 3 APRIL 2011 A C R O S S O U R C O U N T R Y Ontario Ontario Walk For Williams Discover! This is "Hugs For Williams Syndrome's" fi rst walk.
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