S1982 CONGRESSIONAL RECORD — SENATE March 22, 2018 his wife Caitlyn Bellina, and he has sions and he signed up additional peo- The PRESIDING OFFICER. Without three boys. ple under the Texas Right to Try laws. objection, it is so ordered. In the end, he signed up 176 people. This is what Matt Bellina said in tes- f timony: We just checked with Dr. Delpassand, Please let them know that I have had ALS and 148 of those individuals are still MEASURE READ THE FIRST too long to meet the exclusion criteria for alive today because of his courage. TIME—H.R. 5247 any promising trials. No drug company will That is why we need to pass a Federal Mr. JOHNSON. Mr. President, I un- offer me treatments under the current ex- Right to Try law, so individuals with panded access guidelines. Two reputable derstand there is a bill at the desk, and that level of courage don’t risk their I ask for its first reading. companies have already indicated that they careers, and those patients have a would try to treat me under the rules of this The PRESIDING OFFICER. The bill. A vote against this is essentially a vote chance to live. clerk will read the bill by title for the to kill me. It is a vote to make my wife a I would like to yield to the Senator first time. widow and leave my boys fatherless. I can’t from Indiana for his remarks. The legislative clerk read as follows: stop anyone from voting that way, but The PRESIDING OFFICER. The Sen- A bill (H.R. 5247) to authorize the use of el- please ask them to have respect to look my ator from Indiana. igible investigational drugs by eligible pa- family in the eye when they cast their vote. Mr. DONNELLY. Thank you, Mr. tients who have been diagnosed with a stage Frank Mongiello is another victim of President, and thank you to the Sen- of a disease or condition in which there is ALS. I just met with him a few hours ator from Wisconsin. reasonable likelihood that death will occur ago. I first met with him when he could I echo my support for this legisla- within a matter of months, or with another speak—he can no longer speak—but he tion. We worked together nonstop to eligible illness, and for other purposes. spoke at our press conference, and here get this accomplished, as has been Mr. JOHNSON. I now ask for a second is his quote. He paraphrased Abraham mentioned. reading and, in order to place the bill Lincoln and he said: This passed the Senate 100 to nothing on the calendar under the provisions of already. We are hopeful to wrap this President Lincoln said, ‘‘If I am killed, I rule XIV, I object to my own request. die only once; but if I dread it, I die over and up. The House just sent us a vote back, The PRESIDING OFFICER. Objec- over again.’’ and we will continue to work nonstop tion is heard. Frank went on to say: to get this done because it is the right The bill will be read for the second thing to do. time on the next legislative day. I have an 80-percent chance to be dead in 2 I think of the McLinn family in my years, and, for me, seeing these potential f drugs out on the market and not being able home State, and they are a representa- to take them is like dying over and over tion of families all over the country STRENGTHENING PROTECTIONS again. struggling with the same challenges. FOR SOCIAL SECURITY BENE- The final namesake of this bill is lit- Our job is to try to make their lives a FICIARIES ACT OF 2018 little bit easier, a little bit better, so tle Jordan McLinn. We met him when Mr. JOHNSON. Mr. President, I ask he was 6 years old, and now he is 8. His that all of the people who are strug- gling with Right to Try challenges can unanimous consent that the Com- mother Laura is a tireless advocate. I mittee on Finance be discharged from know the Senator from Indiana knows get a chance to live their life to the fullest and for a long time. further consideration of H.R. 4547 and the McLinns well. the Senate proceed to its immediate The FDA advisory committee on So, the hour is late. I just want to consideration. April 25 heard from, I think, 55 wit- second the efforts of my friend and col- The PRESIDING OFFICER. Without nesses about a drug called eteplirsen to league from Wisconsin, and we will objection, it is so ordered. treat Duchenne’s muscular dystrophy. continue to move forward. The clerk will report the bill by title. The advisory committee, having heard The PRESIDING OFFICER. The Sen- The senior assistant legislative clerk from people like Laura and Jordan ator from Wisconsin. Mr. JOHNSON. Mr. President, I read as follows: McLinn wanting access to that drug, thank the Senator from Indiana who voted no. Fortunately, the FDA—and A bill (H.R. 4547) to amend titles II, VIII, has been a real champion and a real and XVI of the Social Security Act to im- this is pretty rare—overruled the advi- partner. I know he tried to get as many prove and strengthen the representative pay- sory committee, and Jordan now is at House Members to vote for the House ment program. least being treated. They are tireless bill as he could. There being no objection, the Senate advocates for Right to Try. By the way, that was the good news. proceeded to consider the bill. These are the people we need to help. I am calling on the House now, since Mr. JOHNSON. I ask unanimous con- These are the people whom Right to we have an objection in the Senate on sent that the bill be considered read a Try was meant for. their bill, to please take up the Senate third time and passed and the motion I don’t know why it took the House 7 bill. It is a nonpartisan bill that passed to reconsider be considered made and months to craft a bill and finally vote unanimously through the Senate. laid upon the table. on it. I can’t tell you how many people Don’t wait another hour. I know they The PRESIDING OFFICER. Without during that 7 months sought treatment are in recess for a couple weeks, but I objection, it is so ordered. in other countries. I can’t tell you if am calling on them, as soon as they The bill (H.R. 4547) was ordered to a anyone during that time period pos- come back from recess, take up the third reading, was read the third time, sibly lost their life because they didn’t Senate bill, pass it, and get it on the and passed. have access to treatment. I don’t know President’s desk. It is well past time to why the House felt compelled to f give these patients, these terminally change the bill that we carefully craft- ill patients and their families, the SIGNING AUTHORITY ed that passed unanimously. I don’t Right to Try and the right to hope. So know why they simply didn’t take up Mr. JOHNSON. Mr. President, I ask I want to again thank the Senator the Senate bill and pass it, but I do unanimous consent that the junior from Indiana. know Right to Try saves lives. Senator from Oklahoma be authorized I will quote one example, Dr. f to sign duly enrolled bills or joint reso- Delpassand, a courageous oncologist LEGISLATIVE SESSION lutions from Friday, March 23, through from Houston. He was engaged in an Monday, March 26, 2018. FDA trial treating an aggressive form The PRESIDING OFFICER. Without of endocrine cancer. It was working. So MORNING BUSINESS objection, it is so ordered. he petitioned the FDA to allow addi- Mr. JOHNSON. Mr. President, I ask f tional patients to be added to the trial. unanimous consent that the Senate re- The FDA said no, but Dr. Delpassand sume legislative session for a period of APPOINTMENTS AUTHORITY had a Right to Try bill in Texas. It morning business, with Senators per- Mr. JOHNSON. Mr. President, I ask didn’t have liability protection. He mitted to speak therein for up to 10 unanimous consent that notwith- risked his career and all of his posses- minutes each. standing the upcoming adjournment of

VerDate Sep 11 2014 10:28 Mar 23, 2018 Jkt 079060 PO 00000 Frm 00098 Fmt 4624 Sfmt 0634 E:\CR\FM\G22MR6.119 S22MRPT1 SSpencer on DSKBBXCHB2PROD with SENATE March 22, 2018 CONGRESSIONAL RECORD — SENATE S1983 the Senate, the President of the Sen- CONSTRUCTION AND DEVELOPMENT, UNITED STATES CATED WHILE ASSIGNED TO A POSITION OF IMPORTANCE GOVERNOR OF THE AFRICAN DEVELOPMENT FUND, AND AND RESPONSIBILITY UNDER TITLE 10, U.S.C., SECTION ate, the President pro tempore, and the UNITED STATES GOVERNOR OF THE ASIAN DEVELOP- 601: majority and minority leaders be au- MENT BANK. To be lieutenant general INTERNATIONAL MONETARY FUND thorized to make appointments to com- MAJ. GEN. DAVID D. THOMPSON STEVEN T. MNUCHIN, OF CALIFORNIA, TO BE UNITED missions, committees, boards, con- IN THE NAVY ferences or interparliamentary con- STATES GOVERNOR OF THE INTERNATIONAL MONETARY FUND, UNITED STATES GOVERNOR OF THE AFRICAN DE- THE FOLLOWING NAMED OFFICER FOR APPOINTMENT ferences authorized by law, by concur- VELOPMENT BANK, UNITED STATES GOVERNOR OF THE IN THE UNITED STATES NAVY TO THE GRADE INDICATED rent action of the two Houses, or by INTER–AMERICAN DEVELOPMENT BANK, AND UNITED WHILE ASSIGNED TO A POSITION OF IMPORTANCE AND STATES GOVERNOR OF THE INTERNATIONAL BANK FOR RESPONSIBILITY UNDER TITLE 10, U.S.C., SECTION 601: order of the Senate. RECONSTRUCTION AND DEVELOPMENT FOR A TERM OF The PRESIDING OFFICER. Without FIVE YEARS. To be admiral objection, it is so ordered. DEPARTMENT OF STATE VICE ADM. CHRISTOPHER W. GRADY CARLOS TRUJILLO, OF FLORIDA, TO BE PERMANENT THE FOLLOWING NAMED OFFICER FOR APPOINTMENT f REPRESENTATIVE OF THE UNITED STATES OF AMERICA IN THE UNITED STATES NAVY TO THE GRADE INDICATED TO THE ORGANIZATION OF AMERICAN STATES, WITH THE WHILE ASSIGNED TO A POSITION OF IMPORTANCE AND ORDERS FOR MONDAY, MARCH 26, RANK OF AMBASSADOR. RESPONSIBILITY UNDER TITLE 10, U.S.C., SECTION 601: 2018, THROUGH MONDAY, APRIL 9, DEPARTMENT OF ENERGY To be vice admiral 2018 ANNE MARIE WHITE, OF MICHIGAN, TO BE AN ASSIST- REAR ADM. TIMOTHY J. WHITE Mr. JOHNSON. Mr. President, I ask ANT SECRETARY OF ENERGY (ENVIRONMENTAL MAN- THE FOLLOWING NAMED OFFICER FOR APPOINTMENT AGEMENT). IN THE UNITED STATES NAVY TO THE GRADE INDICATED unanimous consent that when the Sen- BRENT K. PARK, OF TENNESSEE, TO BE DEPUTY AD- UNDER TITLE 10, U.S.C., SECTION 624: MINISTRATOR FOR DEFENSE NUCLEAR NONPROLIFERA- ate completes its business today, it ad- To be rear admiral (lower half) journ, to then convene for pro forma TION, NATIONAL NUCLEAR SECURITY ADMINISTRATION. DEPARTMENT OF LABOR CAPT. DAVID A. WELCH sessions only, with no business being THE FOLLOWING NAMED OFFICER FOR APPOINTMENT JAMES EDWIN WILLIAMS, OF UTAH, TO BE CHIEF FI- IN THE UNITED STATES NAVY TO THE GRADE INDICATED conducted, on the following dates and NANCIAL OFFICER, DEPARTMENT OF LABOR. times, and that following each pro WHILE ASSIGNED TO A POSITION OF IMPORTANCE AND DEPARTMENT OF EDUCATION RESPONSIBILITY UNDER TITLE 10, U.S.C., SECTION 601: forma session, the Senate adjourn until MARK SCHNEIDER, OF THE DISTRICT OF COLUMBIA, TO To be vice admiral the next pro forma session: Monday, BE DIRECTOR OF THE INSTITUTE OF EDUCATION REAR ADM. SCOTT A. STEARNEY March 26 at 11:30 a.m.; Thursday, SCIENCE, DEPARTMENT OF EDUCATION FOR A TERM OF March 29 at 3:45 p.m.; Monday, April 2 SIX YEARS. DEPARTMENT OF STATE at 12 noon; Thursday, April 5 at 11:30 IN THE ARMY ROBERT FRANK PENCE, OF VIRGINIA, TO BE AMBAS- SADOR EXTRAORDINARY AND PLENIPOTENTIARY OF THE FOLLOWING NAMED ARMY NATIONAL GUARD OF a.m. I further ask that when the Sen- THE UNITED STATES OF AMERICA TO THE REPUBLIC OF THE UNITED STATES OFFICER FOR APPOINTMENT IN FINLAND. ate adjourns on Thursday, April 5, it THE RESERVE OF THE ARMY TO THE GRADE INDICATED EDWARD CHARLES PRADO, OF TEXAS, TO BE AMBAS- UNDER TITLE 10, U.S.C., SECTIONS 12203 AND 12211: next convene at 3 p.m. on Monday, SADOR EXTRAORDINARY AND PLENIPOTENTIARY OF April 9; and that following the prayer To be general THE UNITED STATES OF AMERICA TO THE ARGENTINE REPUBLIC. and pledge, the morning hour be BRIG. GEN. TIMOTHY J. HILTY TREVOR D. TRAINA, OF CALIFORNIA, TO BE AMBAS- deemed expired, the Journal of pro- IN THE NAVY SADOR EXTRAORDINARY AND PLENIPOTENTIARY OF THE UNITED STATES OF AMERICA TO THE REPUBLIC OF ceedings be approved to date, the time THE FOLLOWING NAMED OFFICER FOR APPOINTMENT AUSTRIA. for the two leaders be reserved for their IN THE UNITED STATES NAVY TO THE GRADE INDICATED WHILE ASSIGNED TO A POSITION OF IMPORTANCE AND INTERNATIONAL BANK FOR RECONSTRUCTION use later in the day, and morning busi- RESPONSIBILITY UNDER TITLE 10, U.S.C., SECTION 601: AND DEVELOPMENT ness be closed; further, that following To be vice admiral ERIK BETHEL, OF FLORIDA, TO BE UNITED STATES AL- leader remarks, the Senate proceed to TERNATE EXECUTIVE DIRECTOR OF THE INTER- VICE ADM. MATTHEW J. KOHLER NATIONAL BANK FOR RECONSTRUCTION AND DEVELOP- executive session and resume consider- IN THE AIR FORCE MENT FOR A TERM OF TWO YEARS. ation of the Boom nomination; finally, THE FOLLOWING NAMED OFFICERS FOR APPOINTMENT EUROPEAN BANK FOR RECONSTRUCTION AND that notwithstanding the provisions of IN THE TO THE GRADE INDI- DEVELOPMENT CATED UNDER TITLE 10, U.S.C., SECTION 624: rule XXII, the cloture motions filed JUDY LYNN SHELTON, OF VIRGINIA, TO BE UNITED during today’s session ripen at 5:30 To be major general STATES DIRECTOR OF THE EUROPEAN BANK FOR RECON- STRUCTION AND DEVELOPMENT. p.m. on Monday, April 9. BRIG. GEN. VINCENT K. BECKLUND BRIG. GEN. CHARLES S. CORCORAN DEPARTMENT OF STATE The PRESIDING OFFICER. Without BRIG. GEN. BARRY R. CORNISH objection, it is so ordered. BRIG. GEN. CHRISTOPHER E. CRAIGE KEVIN EDWARD MOLEY, OF ARIZONA, TO BE AN ASSIST- BRIG. GEN. ANDREW A. CROFT ANT SECRETARY OF STATE (INTERNATIONAL ORGANIZA- f BRIG. GEN. ALLAN E. DAY TION AFFAIRS). BRIG. GEN. ERIC T. FICK PEACE CORPS ADJOURNMENT UNTIL MONDAY, BRIG. GEN. CHAD P. FRANKS MARCH 26, 2018, AT 11:30 A.M. BRIG. GEN. JOHN R. GORDY II JOSEPHINE OLSEN, OF MARYLAND, TO BE DIRECTOR OF BRIG. GEN. GREGORY M. GUILLOT THE PEACE CORPS. Mr. JOHNSON. Mr. President, if BRIG. GEN. STACEY T. HAWKINS BRIG. GEN. CAMERON G. HOLT DEPARTMENT OF STATE there is no further business to come be- BRIG. GEN. KEVIN A. HUYCK MARIE ROYCE, OF CALIFORNIA, TO BE AN ASSISTANT BRIG. GEN. DAVID J. JULAZADEH fore the Senate, I ask unanimous con- SECRETARY OF STATE (EDUCATIONAL AND CULTURAL BRIG. GEN. KEVIN B. KENNEDY AFFAIRS). sent that it stand adjourned under the BRIG. GEN. KYLE J. KREMER previous order. BRIG. GEN. PETER J. LAMBERT DEPARTMENT OF JUSTICE BRIG. GEN. WILLIAM J. LIQUORI, JR. There being no objection, the Senate, BRIG. GEN. RANDALL REED THOMAS T. CULLEN, OF VIRGINIA, TO BE UNITED at 1:01 a.m., adjourned until Monday, BRIG. GEN. LENNY J. RICHOUX STATES ATTORNEY FOR THE WESTERN DISTRICT OF VIR- BRIG. GEN. CARL E. SCHAEFER GINIA FOR THE TERM OF FOUR YEARS. March 26, 2018, at 11:30 a.m. BRIG. GEN. JOHN E. SHAW ROBERT K. HUR, OF MARYLAND, TO BE UNITED STATES ATTORNEY FOR THE DISTRICT OF MARYLAND FOR THE f BRIG. GEN. BRAD M. SULLIVAN BRIG. GEN. STEPHEN C. WILLIAMS TERM OF FOUR YEARS. DAVID C. JOSEPH, OF LOUISIANA, TO BE UNITED DISCHARGED NOMINATION IN THE MARINE CORPS STATES ATTORNEY FOR THE WESTERN DISTRICT OF LOUISIANA FOR THE TERM OF FOUR YEARS. The Senate Committee on Environ- THE FOLLOWING NAMED OFFICERS FOR APPOINTMENT IN THE UNITED STATES MARINE CORPS TO THE GRADE IN THE AIR FORCE ment and Public Works was discharged INDICATED UNDER TITLE 10, U.S.C., SECTION 624: from further consideration of the fol- AIR FORCE NOMINATION OF ARTHUR W. PRIMAS, JR., To be major general TO BE . lowing nomination by unanimous con- AIR FORCE NOMINATION OF GREGORY J. PAYNE, TO BE BRIG. GEN. JAMES W. BIERMAN, JR. COLONEL. sent and the nomination was con- BRIG. GEN. DAVID J. FURNESS AIR FORCE NOMINATION OF MICHAEL J. PATTERSON, BRIG. GEN. JOHN M. JANSEN firmed: TO BE LIEUTENANT COLONEL. BRIG. GEN. MICHAEL E. LANGLEY AIR FORCE NOMINATION OF BRAD R. MATHERNE, TO BE TIM THOMAS, OF KENTUCKY, TO BE FEDERAL COCHAIR- BRIG. GEN. DAVID A. OTTIGNON LIEUTENANT COLONEL. MAN OF THE APPALACHIAN REGIONAL COMMISSION. BRIG. GEN. THOMAS D. WEIDLEY AIR FORCE NOMINATION OF JONATHAN A. MORRIS, TO f IN THE AIR FORCE BE MAJOR. THE FOLLOWING NAMED OFFICER FOR APPOINTMENT IN THE ARMY CONFIRMATIONS IN THE UNITED STATES AIR FORCE TO THE GRADE INDI- CATED WHILE ASSIGNED TO A POSITION OF IMPORTANCE ARMY NOMINATIONS BEGINNING WITH RACHEL L. Executive nominations confirmed by AND RESPONSIBILITY UNDER TITLE 10, U.S.C., SECTION ADAIR AND ENDING WITH D014124, WHICH NOMINATIONS the Senate March 22, 2018: 601: WERE RECEIVED BY THE SENATE AND APPEARED IN THE CONGRESSIONAL RECORD ON FEBRUARY 5, 2018. EUROPEAN BANK FOR RECONSTRUCTION AND To be general ARMY NOMINATIONS BEGINNING WITH ROSE ABIDO DEVELOPMENT AND ENDING WITH JOSEPH P . WZOREK II, WHICH NOMI- LT. GEN. TIMOTHY M. RAY NATIONS WERE RECEIVED BY THE SENATE AND AP- STEVEN T. MNUCHIN, OF CALIFORNIA, TO BE UNITED THE FOLLOWING NAMED OFFICER FOR APPOINTMENT PEARED IN THE CONGRESSIONAL RECORD ON FEBRUARY STATES GOVERNOR OF THE EUROPEAN BANK FOR RE- IN THE UNITED STATES AIR FORCE TO THE GRADE INDI- 5, 2018.

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