REGISTERED NZ CHARITY NO CC30635
21ST ANNUAL REPORT 2016-2017
Prepared for Annual General Meeting
TO BE HELD 4pm Saturday 22 July 2017 AT Waipuna Hotel and Conference Centre Auckland
Prostate Cancer Foundation National Helpline 0800 477 678 [email protected] www.prostate.org.nz Registered NZ Charity No. CC30635
03
CONTENTS
1 AGENDA 04
2 MINUTES 05
3 ATTENDEES 08
4 RECOMMENDED CHANGES TO THE RULES 09
5 PRESIDENT’S REPORT 12
6 CHIEF EXECUTIVE’S REPORT 18
7 TREASURER’S REPORT 23
8 SUPPORT GROUPS 25
9 AUDIT REPORT 28
10 ANNUAL ACCOUNTS 31 04
The Prostate Cancer Foundation of New Zealand AGENDA ANNUAL REPORT 2017 For the 21st Annual General Meeting To be held at 4.00pm Saturday 22nd July 2017 Venue: Waipuna Hotel and Conference Centre, Auckland
1 WELCOME AND OPENING
2 APOLOGIES
3 OBITUARIES
4 APPROVAL OF THE MINUTES OF THE 20TH AGM HELD 23RD JULY 2016
5 MATTERS ARISING FROM THE MINUTES OF THE PREVIOUS AGM
6 PRESIDENT’S REPORT Motion: “That the President’s Report be adopted.”
7 TREASURER’S REPORT Financial Statement Summary. (A full set of Accounts is available on our web site at https://prostate.org.nz/about/
Motion: “That the Treasurer’s Report be adopted.” Budget
8 CEO’S REPORT
9 SUPPORT GROUP REPORT
10 RESULTS OF POSTAL BALLOT Motion: “That the voting papers be destroyed.”
11 CHANGES TO THE RULES RECOMMENDED BY THE BOARD Motion: “That the Meeting adopt the changes to the Foundation’s Constitution as circulated to members before this Meeting.”
12 NOTICE OF MOTION Motion: ‘That, on the recommendation of the Board of the PCFNZ, Life Memberships will be awarded at the AGM for long and meritorious service to the PCFNZ’: Moved by Ken Cook; seconded by Danny Bedingfield; Carried.
13 RATES TO BE SET FOR: • Subscriptions (Single and Couple: Currently $20 and $30 respectively) Motion: ‘That Member subscriptions be …………………….’ • Honoraria Motion: ‘That honoraria be …………………….’ • Appointment of an Auditor Motion: ‘That RSM Hayes be appointed auditor for the 2017-2018 financial year.’
14 GENERAL BUSINESS 05 MINUTES For the 20th Annual General Meeting held at 4.00pm Saturday 23rd July 2016 Venue: Rydges Latimer, Christchurch.
1 4.00PM: WELCOME AND OPENING A welcome was given by members of the tangata whenua, Kai Tahu. The President then extended a welcome to those PCF members present, and to the representatives of the Prostate Cancer Foundation of Australia.
2 APOLOGIES Dennis Terry of Katikati; Sue Osborne of Auckland; Sir Peter Leitch of Auckland, and Prof Brett Delahunt of Wellington.
Motion: ‘That the apologies be accepted’: Moved by Richard Kittelty; Seconded by Tony Buckland; Carried
3 OBITUARIES John Sutcliffe, Tauranga David Race, Napier Joe Tapara of Chatham Islands Peter Gorringe, Hamilton
4 APPROVAL OF THE PREVIOUS MINUTES Motion: ‘That the minutes of the AGM held on 25th July 2015, as previously distributed, be approved as a true and accurate record”: Moved by Ian Chapman; Seconded by Rod Calver: Carried.
5 MATTERS ARISING FROM THOSE MINUTES There were none
6 PRESIDENT’S REPORT This had been previously distributed. The President apologized for the length of the report, but pointed out there were quite a number of issues he needed to deal with. Charities Services will put the whole Annual Report on their web site. He pointed out our disappointment that the DHBs and PHOs had not distributed the Prostate Cancer guidelines to GPs. We had expected this to happen during 2015. We are now a respected Charity. We need to capitalize on the contacts we have made. He acknowledged the work of the Board, and the real commitment of the Staff.
Motion: “That the President Annual Report be accepted”: Moved by Mark von Dadelszen; seconded by Ants Parder; Carried. Ants praised the quality of the report.
7 TREASURER’S REPORT Dene handed out copies of the footnotes which had been omitted from his previously distributed report. He outlined the new financial reporting format we are now required to use. 06
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Our welfare fund is now up and running. It is a legacy of a former Board member, Syd Pitman. This fund is covered in the budget. He pointed out there is a growing gap between our expenses and our revenue.
Questions: 1) Do we use social media to generate money? Yes 2) Do we use push pay phone system of raising funding We are exploring a wide range of options. Some we might not choose to use. The President spoke about new sponsorships, using The Farmers as an example of new income. They brought in $114,000 last year. We recently held a meeting of all sponsors. If anyone has ideas on ways to raise funds, or new sponsors, contact the CEO. Rod Calver said he would like to see the day when we have some paid people on the road, as does the Child Cancer Society.
Financial Statement Budget These had been previously distributed. There was no discussion.
Motion: ‘That the Treasurer’s Report, The audited financial statement, and the Budget, be accepted and approved”: Moved by Dene Ainsworth, Seconded by Keith Townshend; carried.
8 CEO’S REPORT Graeme expressed his thanks to the Board, with whom he experiences a good working relationship. He also thanked his staff, especially Claire, the consummate multi-tasker. He outlined the jobs of the other staff, and noted that having Carol as an events organizer is already showing extra income. National Office is moving our message dissemination from reading to viewing – greater use of web site and social media. Ants asked about TrueNTH. Graeme said it is being developed by Movember. He, Rod and Danny are part of the team negotiating for that.
Motion: “That the CEO’s report be accepted with a show of appreciation”: Moved by Mark von Dadelszen; Seconded by William Boag; carried with acclamation.
9 SUPPORT GROUP REPORTS The President noted that the value of these reports is in showing what different groups are going. He suggested co-ordinators read them carefully. We can all learn from them. Beth Boag spoke about the desire for her women’s group to have material they can read. Also, we should encourage people to visit the brochures on our web site. Mark spoke about the Decision Support Tool that will be provided to GPs. It is an authoritative resource. 07
Motion: “That the Support Group Reports be accepted”: Moved by Chris Jones; Seconded by John McFedries. Carried.
RESULTS OF POSTAL BALLOT FOR BOARD VACANCIES
The three successful contenders for Board Member are: • Danny Bedingfield • Ron Reid • Merv Stark
Motion: “That the ballot papers be destroyed” : Moved by Mark von Dadelszen; Seconded by Dene Ainsworth; Carried. Ray Goldring asked whether we can do the Ballot electronically. National Office will do a brief.
10 NOTICES OF MOTIONS None
11 RATES TO BE SET FOR: • Subscriptions (Single and Couple: Currently $20 and $30 respectively) Motion: “That the subscription amounts remain the same”: Moved by Richard Kittelty; Seconded by Ian Chapman; Carried • Honorariums Motion: “That the honorariums remain as they are”: Moved by Venn Plummer; seconded by Ken Cook; Carried • Appointment of an Auditor Motion: “That we appoint RSM Hayes (RSM New Zealand) as our auditors for the new year;” Moved by Dene Ainsworth; Seconded Ken Cook: Carried. Previous auditors Crowe Horwath have been on notice to improve their effectiveness. The President spoke about his personal experience with RSM Hayes.
12 GENERAL BUSINESS The President introduced Jim Hughes GAICD, Snr Assoc, ANZIF, National Chairman of the Prostate Cancer Foundation of Australia. Jim spoke about the good relationship between our two organisations, and he noted the growth of PCFNZ over recent times The meeting concluded at 5.22pm. 08
The Prostate Cancer Foundation of New Zealand ATTENDEES ANNUAL REPORT 2017 at the 2016 Annual General Meeting
Peter Hickey Erica Wigston Gayle Hunt Graeme Montgomery Mac Macdonald Tenia Brendling Marian Macdonald Mohan Herath Ants Parder Elaine Baxter Ven Plummer Kristen Errington Trish Plummer Edward Lamb Keith Townshend Nicola Leavold John Waugh Kay Stokes Beth Boag Ross Wadman Bruce Avery Sharon Wilson Carol Drew Julie Crawley Mary-Jo Holdaway Mark Sames Chris Malcolm Mark von Dadelszen Merren McKay Dene Ainsworth Paula O’Boyle William Boag Jan Ainsworth John McFedries Jan Reid Chris Jones Eileen Von Dadelszen Richard Kittelty Tania Brady Ron Reid Claire Gard Danny Bedingfield Carol Roche Merv Stark Graeme Woodside Ken Cook Chris Bland Graeme Woodside Wendell Hynes Geoff Cardwell Catherine Russell Peter Cropp Graeme Steel Marylin Cropp Judi Steel Ray Goldring Kevin McGlinchy Marie Goldring Bob Penty Hugh Isdale John Wigston 09 RECOMMENDED CHANGES TO THE RULES
That the following Rules be altered as indicated below (deleted letters and words being struck through and additional words underlined) for the reasons set out after the affected Rules:
1.3 DEFINITIONS
In these Rules the following terms have the following meanings unless the context otherwise requires: “Associate Organisation” – an organisation or group representing a community of interest in prostate cancer, other prostate-related illnesses and male-specific cancers in New Zealand, with one member appointed as the Associate Organisation Representative. “Associate Organisation Representative” – a member of an Associate Organisation who liaises with the Board. “Honorary Member” means a member elected under Rule 5.1(bd). “Support Group” – a group of interested persons in a defined geographic area who meet to help and support each other and advance the purposes of the Foundation, with one member appointed as the Support Group Representative. “Support Group Representative” – a member of a Support Group who liaises with the Board. “Voting Member” – a financial Active, or Life or Honorary Member, and any Associate Organisation Representative.
Explanations: • The definition of “Honorary Member” should refer to Rule 5.1(d). • Deleting the phrase “or Honorary” in the definition of “Voting Member” makes this definition consistent with Rule 5.1(d).
5.0 MEMBERSHIP
5.1 The classes of membership and the method by which Members are admitted to different classes of membership are as follows:
(a) Active Member An Active Member is an individual, couple or incorporated or unincorporated body admitted to membership under Rule 6.0 and who or which has not ceased to be a Member under any other Rule. A financial Active Member may exercise only one vote at General Meetings and in postal ballots under Rule 17.8, but in the case of a couple they shall each have a vote pursuant to Rule 8.1.
(b) Supporting Member A Supporting Member is an incorporated or unincorporated body admitted to membership under Rule 6.0 and who or which has not ceased to be a Member under any other Rule. A Supporting Member shall have no membership rights, privileges or duties.
(c) Life Member A Life Member is: (i) A person honoured for meritorious services to the Foundation, or (ii) An individual, couple or incorporated or unincorporated body previously admitted to Life Membership by paying a subscription for life membership, and who or which has not ceased to be a Member under any other Rule. A Life Member may exercise 10
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only one vote at General Meetings and in postal ballots under Rule 17.8 and shall have all the rights and privileges of an Active Member and shall be subject to all the duties of an Active Member except those of paying annual subscriptions.
(d) Honorary Member An Honorary Member is a person honoured for services to the Foundation or in an associated field elected as an Honorary Member by resolution of a General Meeting passed by a two-thirds majority of those voting. An Honorary Member shall have no membership rights, privileges or duties.
Explanation: • There is no longer a need for a category of “supporting member” as people can simply sign up for newsletters through the website. • The definition of Life Member was complicated by the phrase which is now sub-paragraph (ii), and rearranging the format of the Rule makes it easier to understand.
11.2 THE BOARD SHALL BE ELECTED BY POSTAL VOTING:
At least three months prior to the date proposed for the next Annual General Meeting (“Election Date”) the Secretary shall notify all Voting Members pursuant to Rule 5.6 calling for nominations of Voting Members for the following positions:
EVEN-NUMBERED YEARS ODD-NUMBERED YEARS
President Treasurer
Secretary Vice-President
Three Board members Three Board members
Such notice shall include a nomination form and shall specify the date such nominations must be in the hands of the Secretary, such date being not less than 45 days prior to the Election Date. Nominations shall be signed by a nominating Voting Member and be signed by the Member nominated and shall be accompanied by a biography not exceeding one A4 page, At least 35 clear days prior to the Election Date the Secretary shall distribute to all Voting Members pursuant to Rule 5.6 a notice specifying nominations received for Board positions (including the names of the Voting Member or Members who have nominated the candidate) and, in the event that there are a greater number than required for specific positions, forwarding a voting paper accompanied by the biographies of the candidates for election. Such voting paper shall specify the latest date (not less than three clear days prior to the Election Date) it must be in the hands of an independent person appointed by the Board to be counted as a valid vote. That independent person shall deliver to the Secretary the results of the election (including the number of votes cast for each candidate) in a sealed envelope.
Explanation: • The Board considers that those voting should know who has nominated candidates. 11
13.2 THE SECRETARY SHALL:
(a) Maintain the Membership Register as required by Rule 5.3(a),
(b) Hold the Foundation’s common seal, records, documents, and books (and paper records may be digitally recorded and stored),
(c) Maintain the Register of Disclosures referred to in Rule 12.17(b),
(d) Lodge with Registrar of Incorporated Societies the annual return required by the statute under which the Foundation is incorporated and lodge with the Charities Board the annual return required by the Charities Act 2005,
(e) Deal with and answer correspondence, and
(f) Perform such other duties as directed by the Board.
13.3 The Secretary shall deal with and answer correspondence and perform such other duties as directed by the Board.
Explanation: • This Rule repeated what is in Rule 13.2(e) and (f). 12
The Prostate Cancer Foundation of New Zealand PRESIDENT’S REPORT ANNUAL REPORT 2017
This year we celebrate 21 years since formation of the Foundation, and it is appropriate in this year’s report to reflect on the Foundation’s progress, particularly over more recent years, and to review is heading now.
THE “STATE OF PLAY” is an important element of what we do today. More recently, we have also sought to promote When we review the “state of play” in the awareness of testicular cancer. Foundation we should also recognise challenges most not-for-profit organisations currently face: Today, I believe, the Foundation is a highly • Constant Volatility, Uncertainty, Complexity, respected and very effective charity. That and Ambiguity (“VUCA”), and reputation is based on the Foundation’s • Changes in the environment we work in recognisable “brands” (such as “Blue occur more frequently and are ever more September”), the sincerity and integrity of unpredictable. those who represent it (our Support Group Co- Ordinators, Board and staff), the quality of what Those challenges should prompt us to constantly we publish, the campaigns and events we run, rethink, redefine, and reshape to adapt to and and the reputation of our Patrons, Ambassadors, anticipate change (and to modify the mind-sets commercial partners, sponsors and supporters. and capabilities of those in governance and Increasingly, we are being approached by management). The Foundation’s increased and businesses that want to be associated with us – effective use of social media is a good illustration that does not happen unless a charity is seen to of the way it has adapted to change. be reputable and to be doing good work.
PCFNZ 1996-2017 AWARENESS
The Foundation formally incorporated as the The need to raise awareness about prostate Prostate Awareness and Support Society of cancer was one of the two core reasons for the New Zealand Incorporated on 16 August 1996. establishment of the Foundation, and it remains That name accurately described most of what one of our most important activities. While the organisation did in its early days, and what activities during our Blue September campaign it continues to do now. What the original name are now our primary means of raising awareness, did not explicitly refer to was advocacy for other events that raise awareness take place prostate cancer patients and their families, which throughout the year. Many of those awareness 13
WE ANSWER CALLS activities also generate significant income from SUPPORT TO OUR 0800 HELPLINE donations. Blue September 2016 was, again, Support for prostate cancer patients and their successful in spreading the awareness message families was the other core motivation for and in raising funds. However, the new “Face Your forming the Foundation, and that support is the Fears” activities did not have the widespread “human” face of the Foundation. In my opinion, 24 impact predicted, but the lessons learned from this is arguably the most important reason for hours of the day that have been factored into future planning. the Foundation’s existence. Since 2014, our annual conferences (held We answer calls to our 0800 helpline 24 hours of in the same weekend as our Annual General the day, 365 days of the year, and callers include 365 Meetings) and patient forums have informed our not only prostate cancer patients but also days of the year members and medical professionals as well as members of their families. Our Support Group interested members of the public about current Co-Ordinators are, similarly, effectively on-call at issues and developments in prostate cancer all times and much of what they do is not formally diagnosis, treatment and care. The quality of recorded, and not adequately recognised. the presentations at those sessions is high, and is a testament to the careful planning of those A major strategic objective in recent years has events by our CEO and staff and to the respect been to increase the number of Support Groups accorded to the Foundation. around the country, and, if requested to do so, the Foundation now arranges for professionally Internationally, April is the month when most trained people to facilitate and guide Support testicular awareness campaigns are run, and this Groups. Some people are, at first, hesitant to year (2017) marks the first time the Foundation attend a Support Group meeting, but the sharing has run such a campaign. of experiences (and the humour) wins most Our corporate sponsors, our Patron, our people over. Many Support Group participants Ambassadors, our members and volunteers comment on the benefits they gain from throughout the country, and many community attending meetings as they deal with the ups organisations generously support our various and downs of their prostate cancer journeys. activities, and, particularly, awareness events. We also now have two Support Groups for What many people may not be aware of is the partners, and these provide the partners of huge amount of staff time and dedication that prostate cancer patients and survivors with underpins most of those events. We very much valuable peer support. appreciate not only the work of our volunteers Our support services are provided primarily by but also the work of our staff! volunteers, but our staff answer most of the 0800 helpline calls, and provide substantial support our Support Groups. We could not do this work without you all! 14
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ADVOCACY For almost 4 years, Foundation members and the CEO have been contributing, in advisory roles, An additional major focus of Foundation activities to the development and implementation of the in more recent years has been to advocate on Ministry of Health’s Prostate Cancer Awareness behalf of prostate and testicular cancer patients and Quality Improvement Programme. and their families. Advocacy takes many forms, and includes: • That work is due for completion within the next year, and the Foundation will maintain • Making submissions to the Parliamentary an ongoing proactive and assertive interest Health Select Committee, in the delivery of the planned (and promised) • Making representations to the Minister of improvements to ensure that District Health Health, other politicians, District Health Boards around the country and the Ministry of Boards, and medical insurance providers, Health deliver those improvements. • Supporting prostate and testicular cancer • We are very concerned that too many general patients with legitimate complaints about how practitioners have failed to become aware medical professionals have dealt with them, of and to implement the 2015 Prostate including assistance with complaints to the Cancer Management Referral Guidance, and Health and Disability Commissioner, we are seeking to find ways to improve their • Making representations to Pharmac in respect knowledge and practices. of medicines,
• Maintaining good relationships with PCFNZ STAFF AND VOLUNTEERS pharmaceutical companies, When it was established in the mid-1990’s the • Providing people to serve on Ministry of Health Foundation was run entirely by volunteers who committees, including the working group and laid the foundation for what we are today. Three sub-groups advising on the implementation years after employing its first full-time employee of the May 2013 Prostate Cancer Taskforce working from home, in 2013 a part-time recommendations on the Diagnosis and employee joined the Foundation team in a small Management of Prostate Cancer in New office in Penrose, Auckland. Now, four years later, Zealand Men, and we have four full-time employees and two part- • Establishing and maintaining relationships time employees working from well-appointed with a number of organisations associated offices in Albany. with prostate and testicular cancer, including the Urological Society of Australia and New The reality is that the Foundation simply could Zealand, the New Zealand Urological Nurses not achieve what it now does in advancing its Society, and the Prostate Cancer Foundation purposes (awareness, support and advocacy) of Australia. without our amazing employed staff, ably led by our CEO Graeme Woodside. We owe them 15
I record our all more than many may realise, as working opportunity at the AGM to ask questions and for the Foundation is not a simple 8am – 5pm, to propose things for consideration, and that THANKS Monday – Friday job because the Foundation is keeps the Board in touch with and responsive to all of our involved in many events and activities outside to the membership around the country. Please those hours. Our staff work those out-of-normal encourage people to join as members – we do HARD- hours willingly, in large part because they are need you! WORKING passionate about the Foundation’s purposes and activities. I record our thanks to all of our hard- When I first joined the then Committee of the team! working team! Foundation in 2009 it met every couple of months, but achieving anything was agonisingly We must continue to ensure that we have slow. The Board now meets for about 10 enough personnel to support the Foundation’s hours quarterly, and that time is, in my opinion, activities without imposing undue workloads on very productive. Late every year we have a any particular individuals, and the CEO and Board governance training session to educate and are currently addressing this issue. Related to energise the Board, and the 2016 session was this, following balance date we have taken up the especially valuable. opportunity to lease more space in the Albany complex to accommodate staff growth and You have a very committed group of people improve staff working conditions. governing the Foundation, and those who hold defined offices or chair Board committees spend Despite having an increasing number of employed hours on Foundation activities. Their sacrifices staff, our volunteers and, in particular, our include frequent absences from their families, dedicated Support Group Co-Ordinators and giving up leisure time, and committing many your Board members, continue to be absolutely hours to Foundation activities and business essential to what we do. between Board meetings. To give you some idea of those hours (and I can only speak for myself), I have averaged over 35 hours per month on FOUNDATION GOVERNANCE Foundation business since the 2016 AGM. The Foundation is an incorporated society, and our members are vital to us. Ultimately, whether TO BE EFFECTIVE A CHARITY NEEDS TO RAISE or not the Foundation succeeds in achieving its AND SPEND MONEY purposes rests in the hands of the membership, because it is the members who elect our Board The Foundation’s Board and CEO are very (who are themselves members), and the quality conscious of the need to aim, every year, to and commitment of those elected has a major “balance the books,” but we also understand that impact on how well the Foundation is governed. we need adequate human and other resources Our AGM is important as the Board is always to maintain our increasing public profile and to accountable to our members who have the increase our effectiveness. Six years ago the 16
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ANNUAL REPORT 2017
Foundation really only had one major promotional families, and also helps to raise funds to support and fundraising event; Blue September. Today, our work. while Blue September remains as our major focus annual activity (with much of the work previously In my opinion, the Foundation’s current reputation done by contractors now brought “in-house”), we and effectiveness primarily results from the have an increasing number of other promotional foresight of your Board and the work of our CEO and fundraising activities happening throughout and staff. It is appropriate, in an Annual Report, the year, many of which are organised by other to comment on the costs of doing our charitable entities but with our assistance and involvement. “business;” which is to advance our charitable Quite simply, more events and activities purposes. My Annual Report last year referred to occurring in the community results in us better a 2013 address by Dan Pallotta and, essentially, spreading the message that men need to check his theme was that you have to spend money for prostate and testicular cancer, makes people to make money, whether you are a business more aware that we are available to support or a charity. Translating this philosophy to the prostate and testicular cancer patients and their Foundation’s activities, the following table may put things into some perspective:
FINANCIAL YEAR 2010-2011(A) 2016-2017(B)
Total income $707,930 $1,271,074
Total operating expenses (c) $571,543 $1,237,587
Percentage of operating expenses (c) to total income 80.73% 97.37%
Total salaries (d) $82,533 $363,507
Percentage of salaries (d) to total operating expenses (c) 14.44% 29.37%
Percentage of salaries (d) to total income 11.66% 28.60%
NOTES:
2010-2011: This was the first full year the Foundation had one full-time employee.
2016-2017: At 31 March 2017 the Foundation had three full-time employees, one part-time employee for all of the year, and another full-time employee for 8 months (and, as noted above, numbers have increased since balance date).
What are recorded as “operating expenses” include grants for research and training, and the costs of awareness campaigns and of providing support services and advocacy.
Reference to “salaries” alone may be misleading as the Foundation also uses contractors rather than staff for some specific purposes such as campaigns and events, and bringing some work “in-house” is one reason for some of the changes in the percentages in the last two columns of the table over the last six years. 17
There remains PRESIDENT’S CLOSING COMMENTS possible for me to fulfil my commitments as your President: The need for the Foundation is ongoing (unless PLENTY someone finds a way to eliminate prostate and • Most importantly, my wife, Eileen, for her loving testicular cancers), but we are doing far more and encouragement and counsel, TO DO, what we are doing is far more effective than was • My law firm partners who support my and you have the case six years ago. However, there remains community service, A BOARD, A CEO, plenty to do, and you have a Board, a CEO, and • All my fellow Board members and their families, AND STAFF staff committed to the cause. • Graeme Woodside and each one of our National COMMITTED By the time this Report is considered at our Office staff, to the cause. Annual General Meeting in July, the Foundation • The Foundation’s Patrons (Sir Peter Leitch will already be almost a third of the way through and Professor Brett Delahunt), sponsors, its 2017-2018 financial year. That always seems commercial partners and Ambassadors, somewhat incongruous, but it is an inevitable • The members of our Medical Advisory and consequence of the need to hold an AGM after Medical Research Committees, and audited annual accounts are available. This • Our members (especially the Co-Ordinators and Report provides a snapshot of the Foundation’s committee members of our Support Groups) ongoing activities, and, in that sense, the timing who support men diagnosed with and suffering of the Report is immaterial. from prostate and testicular cancer and their I sign this Annual Report as the Foundation’s families, and PCFNZ’s other activities. President, but only after the Board has discussed Mark von Dadelszen it in draft. As is now customary (but always QSM sincere), I record my thanks to those who make it 15 June 2017 18
The Prostate Cancer Foundation of New Zealand CHIEF EXECUTIVE’S REPORT ANNUAL REPORT 2017
We continue to enjoy the support of a wide network of constituents – members, volunteers, sponsors and supporters, and the many people who individually support the work of the Foundation.
BLUE SEPTEMBER Social media is an expanding medium that drove over 20,000 visits to the This was the ninth year of Blue September faceyourfear.org.nz website and will be used campaigns, and for the second year, we engaged more in future campaigns. the services of Chemistry Interaction as our media agency. The campaign theme was “Face Despite the wide coverage we were disappointed your Fear” – a reference to the inhibitions many that the intended public participation in the men have about getting a physical examination campaign did not reach our expectations. We for prostate cancer. The objective of this have taken time to review the reasons for this campaign is to raise awareness, encouraging men and will be refocussing future campaigns using to get tested, and also to raise a significant level a more direct message aimed at both raising of funds for the ongoing work of the Foundation. awareness and donations.
Several of our Ambassadors – Mark Hadlow, Buck All our existing sponsors continued their support Shelford, Jay-Jay Harvey and Monty Betham for the campaign, and we also were pleased to fronted this campaign, which featured television welcome Mazda and Storage King to our “family” and radio commercials, extensive social media of sponsors. I would like to record my thanks coverage and an increasing focus on using digital for the great support we receive from all these screens in over 800 retail outlets and medical sponsors: Placemakers, Farmers, SKYCITY, Corys centres – a medium that has now largely replaced Electrical, The Coffee Club, Auto Super Shoppes paper posters. We also drive messages through and M2 Magazine. Each sponsor develops their our public relations strategy and are pleased to own way to support Blue September which see 100+ pieces of high quality, targeted media results in over $600,000 in donations! coverage over the month. 19
Support KEY EVENTS SUPPORT AND OUTREACH SERVICES Groups During the year, many sponsors, community Support Groups are a key strategy for providing groups, sports clubs and individuals organised the support we offer to men and their families are a KEY events aimed at raising funds for the Foundation while on their journey with prostate cancer. STRATEGY and spreading the awareness message. This is reported in more detail separately by our National Operations Manager, but I would like to for providing I want to thank all who take the initiative and place on record my sincere thanks to all those the support support the Foundation in this way. who lead those groups, and the regular attendees who provide peer-to-peer support. Many, many we offer. Some of the highlights include: volunteer hours are given to this programme by • The Roast of Sir Peter Leitch (our Patron) that many dedicated and well-informed people and it was a shared event with the Auckland Rescue is a programme for which the Foundation is held Helicopter Trust, and included a number of in high regard. celebrities “roasting” Sir Peter – all in jest. • Rugby and Rugby League matches and after- The Online Support Forum is a new support match functions organised by several clubs service developed this year and is hosted on our website. We recognise that attending a support • Golf tournaments arranged by sponsors and group is not for everyone, often because of time golf clubs or location, so this is an alternative support • Oktoberfest organised by the German service the Foundation can provide. People Business Association register and log on to this facility to share their • Bikers in Blue and Scoot4Loot – motorcycle concerns, ask questions and seek advice from enthusiasts riding to raise funds and show others linked into the Forum. This is moderated their support in several centres around and we appreciate the involvement of Dr Jim the country Duthie who provides regular professional medical • The Poker Night organised by SKYCITY information on the Forum. • 24 hours of LeMons – a 24-hour race at We receive frequent requests to give face-to- Hampton Downs for $1000 cars, including face awareness presentations at workplaces and the PCFNZ Toyota prepared (and kept running community groups around the country, using a to the end) by Mayne Automotive. standard PowerPoint presentation developed by • Corporate Boxing events – in Auckland the Foundation. We also host displays at some and Wellington trade shows and community events including Big Gay Out and Manawatu Fieldays.
A series of Patient Education Forums was arranged in Christchurch and Auckland (and extended to Wellington, Dunedin and Tauranga in 20
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2017) to focus on incontinence and erectile is attended by a wider group including health dysfunction. We are grateful for the support professionals, patients and their families and and involvement of local clinicians giving sponsors and supporters. presentations, and particularly to David and Pam Sandoe (former Chair, Prostate Cancer Our theme “Changing the Landscape” focused Foundation of Australia) for facilitating the on the developments being made in diagnostic forums this year. We also acknowledge the techniques and treatments for prostate cancer. support of Coloplast and Janssen Many were touched by the reality of this disease Pharmaceuticals for their sponsorship of by the moving speech from former All Whites these Forums. captain and our ambassador, Steve Sumner, recounting his experiences of his ongoing encounter with the disease. TESTICULAR CANCER PROMOTION There is significant cost in bringing our whole In April 2016 we became aware that April was “team” together in one place for a weekend. recognised as International Testicular Cancer I want to acknowledge the support of Lion Awareness month. This new opportunity to Foundation who provided $25,000 towards promote awareness was noted and during the cost of the training day and Janssen the early months of 2017 we began to put a Pharmaceutical who provide major sponsorship campaign together with the generous support for the conference. of FCB, a major advertising agency in Auckland. The #GoBallsOut campaign was developed and launched in late March and included All Black and testicular cancer survivor Aaron Cruden.
While the campaign period falls outside the time
frame of this reporting period I am pleased to say this was a huge success domestically and RESEARCH GRANTS internationally and will be reported on in more detail next year. We are currently funding 3 research projects • Mercy Radiology, Auckland conducting an evaluation of high risk prostate cancer NATIONAL CONFERENCE 2016 – patients using 68Ga-PSMA PET/CT prior to CHRISTCHURCH radical prostatectomy. This is a new scanning We were delighted with the significant number technique developed to image the spread of who attended the National Conference weekend metastases in patients with advanced disease. in Christchurch in late July. The Saturday provides The aim is to gather data that will support an opportunity to gather our Support Group advocacy to DHBs to fund these scans for Coordinators together for encouragement and patients in public clinics as it is currently only training, while the public conference on Sunday available privately. 21
• University of Auckland conducting a clinical • A relationship with the NZ Urological Nurses audit of PSA testing among Pasifika men Society (NZUNS) was formalised with the with Prostate cancer: Case studies of four signing of an MOU in November. This will involve Pacific health clinics in Auckland. The aim is us developing a closer working relationship and provide a sample of data that will give a better attendance at our respective conferences. understanding of the rates of testing among • I have been elected to a 2-year term to chair Pasifika men that will inform strategies to CANGO, a collective of the major cancer improve awareness and support services for charities that is involved in advocacy for this sector. cancer patients with the Ministry of Health and • University of Otago “Investigation of a public health providers. tumour-associated peptide library as an • Pharmaceutical companies, Medicines NZ immunotherapeutic vaccine for prostate and PHARMAC – we continue to develop good cancer.” This research is ongoing and working and support relationships and are has produced positive results from the involved in advocacy for improved treatments initial stages. and medicines for patients.
Additionally we provided funding support for a • PCFA –We enjoy very cordial working urology nurse to attend a conference in Australia relationships with both the Chair Jim Hughes and are supporting two other urology nurses with and CEO Anthony Lowe and appreciate the advanced level study. support and advice they offer.
STRATEGIC RELATIONSHIPS NATIONAL OFFICE AND STAFF
As CEO I continue to represent the Foundation in The Foundation can be very proud, and grateful a number of organisations and activities. for the excellent team in the National Office. They • Urological Society of Australia and New are dedicated and frequently go well beyond the Zealand (USANZ). The PCFNZ President and call of duty working both additional and abnormal CEO attend both the Australasian and New hours to represent the Foundation at many Zealand conferences and continue to engage events and activities. The staff at 31 March with the clinicians and nurses primarily 2016 were: involved in treating prostate cancer patients. Claire Gard National Operations Manager • Ministry of Health Prostate Cancer Working Carol Roche Events and Promotions Manager Group – I have an ongoing role on the Equity Nick Warner Communications Coordinator and Public Information Sub-Group where we Tania Brady Accounts Assistant have an influence on the content and process (resigned April 2017) of distributing information from the Working Group to health professionals and I would like to express my thanks to them for the the general public. work they do, and the way they do it, working as a 22
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PLEASE ACCEPT team to achieve the mission and objectives It was my sad experience to share in the passing my thanks of the Foundation. of three key supporters of the Foundation and to FOR ALL THE attend or be represented at their funerals. Rea Wikaira, Phil Hunt and Steve Sumner, and their SUPPORT YOU GIVE THANK YOU TO SUPPORTERS families have supported us through very difficult in so many I continue to be amazed at the number and times. Their passing brings home to me the ways. variety of people and groups who become seriousness of the diseases we fight, and makes involved supporting the work of the Foundation. me more energised to work to reduce the effects To identify any, would be exclude some – please on so many New Zealand men. accept my thanks for all the support you give in so many ways. Graeme Woodside Chief Executive We have a committed team of Ambassadors who volunteer their time and influence to further the work of the Foundation, especially in Blue September. Our Patrons, Sir Peter Leitch and Professor Brett Delahunt, are always willing to advise and assist, and we value them highly. Both take every opportunity to advance our message. I especially want to thank Sir Peter Leitch for agreeing to be the subject of a thorough “roasting” at the special event at SKYCITY. That event alone raised over $65,000 for the Foundation. 23 TREASURER’S REPORT
This year’s report is a departure from the reports that I have submitted in the past.
I do not propose to provide you with an to men and their whānau affected by prostate inordinate amount of narrative but will, instead, and/or testicular cancer?’ provide some key points of interest relative • End of year result, overall, was a profit of to the Foundation’s annual financial report $33,488 compared to a deficit in the previous supplemented by accompanying graphs. year of $18,828.
FINANCIAL COMMENTARY – POINTS The following are extracts taken from a report OF INTEREST published in October 2013 produced by research organisation More Strategic : • Total donations, fundraising and other similar revenue was $1,073,272 an increase “The amount a charity spends on administration of $170,904 [+18.9%] on the previous and fundraising is a poor indicator of the impact financial year; they have on their mission ... Indeed, many • Membership fees decreased by $2,632 not-for-profits suffer from underinvestment [-37.5%]. While this is a small component in growing their fundraising income meaning in our overall revenue streams, we need they can help fewer people in the future. Like to understand the reasons behind the a commercial enterprise there is a need to decrease and that may be best achieved continually invest to sustain fundraising growth.” by surveying those who chose not to renew In conclusion, the following graphs are a pictorial their memberships; representation of: • Total overall revenue for the year increased by 21.5% to $1,271,074, a pleasing outcome in I. Total revenue and expenditure 2014 to 2017 the current economic environment; incl. • Total expenses were $1,237,586 an increase II. The percentage movement in revenue and of $172,881 or 16.2% – there were a number expenditure 2014 to 2017 incl. of factors that contributed to the increase III. Expenses as a percentage of revenue 2014 and the President in his report comments on to 2017 incl. some of those. The Foundation’s challenge IV. Expenditure, by category, 2016 to 2017 incl. is to ensure that we maintain a good fiscally balanced approach in relation to what we do, Dene Ainsworth when we do it and how we do it. The overriding Treasurer guideline has to be ‘are we making a difference June 2017
1. Reseach Findings on Public Perceptions of Not For Profit Costs 2. www.morestrategic.com.au 24
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Revenue & Expenses 2014 to 2017 Expenses As A Percentage Of Revenue2014 to 2017 Revenue & Expenses 2014 to 2017 $1,400,000 120% $1,400,000 Expenses As A Percentage Of Revenue2014 to 2017 $1,200,000 $1,200,000 120%100% $1,000,000 $1,000,000 $800,000 100%80% $800,000 $600,000 60% $600,000 80% $400,000 $400,000 40% $200,000 60% $200,000 $0 20% 40% $0 2014 2015 2016 2017 2014 2015 2016 2017 Revenue Expenses 0% 20% 2014 2015 2016 2017 Revenue Expenses
0% 2014 2015 2016 2017
Expenses By Category (%) 2016 to 2017
Revenue & Expenses 2014 to 2017 - Movement (Change) Revenue & Expenses 2014 to 2017 - Movement (Change) OtherExpenses By Category (%) 2016 to 2017 By Percentage By Percentage 40 Volunteer/Employee Costs 40 Other 35 35 Research Grants/Donations 30 Volunteer/Employee Costs 30 25 25 Service Provision 20 Research Grants/Donations 20 15 15 Fundraising 10 Service Provision 10 5 5 0% 5% 10% 15% 20% 25% 30% 35% 0 Fundraising 0 2014 2015 2016 2017 2017 2016 -5 2014 2015 2016 2017 -5 -10 0% 5% 10% 15% 20% 25% 30% 35% -10 -15 2017 2016 -15 Revenue Expenses Revenue Expenses
25 SUPPORT GROUPS
Expenses As A Percentage Of Revenue2014 to 2017 2016-17 has been a successful year for our 120% Expenses As A Percentage Of Revenue2014 to 2017 support groups/networks. We have 32 support 120%100% networks around the country which provide valuable 100%80%
60% 80% support and resources to prostate cancer patients
40% 60% and their families.
20% 40% The groups that have regular meetings often SUPPORT GROUP LOCATIONS 0% 20% 2014 2015 2016 2017 invite professional speakers along to discuss
0% prostate cancer, treatments and possible side 2014 2015 2016 2017 effects of the disease. This provides information
Expenses By Category (%) 2016 to 2017 that can help support and empower men and their families to cope in these difficult times. OtherExpenses By Category (%) 2016 to 2017 Meeting with and hearing from others affected
Volunteer/Employee Costs by the disease not only encourages them to Other share their feelings but also helps support others Research Grants/Donations Volunteer/Employee Costs going through a similar journey. Service Provision Research Grants/Donations
Fundraising Several of our support groups have professional Service Provision counsellors to facilitate the meetings and 0% 5% 10% 15% 20% 25% 30% 35% Fundraising provide back-up support to the support group 2017 2016
0% 5% 10% 15% 20% 25% 30% 35% coordinators. Regular visits are made to groups
2017 2016 by staff and Board members to catch up with
support group coordinators and offer them assistance and support.
All our support groups are managed by trained volunteers who have had an experience with prostate cancer. Some coordinators work as couples and support both men and partners. Each support group has its own style and these vary around the country but they all include passionate people who support their local community in providing the services we offer. We appreciate all the hard work that support group coordinators provide and the Foundation couldn’t do the work we do without their help.
New Zealand Map © Free Vector Maps.com 26
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SUPPORT GROUPS / NETWORKS
LOCATION SUPPORT CORDINATORS Ashburton John Waugh Auckland North Shore Katherine and Wendell Hynes Auckland Central and Bays Catherine Russell (Facilitator) Auckland West John and Lillian Woodards Auckland East Botany Erica and John Wigston Auckland Franklin Mac and Marian Macdonald AKL- Rainbow Blue Keith Townshend AKL Women’s group Deborah Haimes Cambridge Graeme and Marlene Montgomery Christchurch Merivale Ants Parder Christchurch Central Tony and Liz Buckland Dunedin Ken Cook Hawkes Bay Ven and Trish Plummer Hamilton Dene Ainsworth Invercargill Trish and Terry Wright Kaitaia Chris Sorensen Katikati Rod Calver Masterton Robert and Susan Brader Nelson Bill Fergie New Plymouth - (Taranaki) Peter Hickey Palmerston North Chris Bland Porirua Danny Bedingfield Rotorua Gayle Hunt Tauranga Tony and Heather Dodunski Timaru Bob Penty Waihi Graeme Wilkinson Wellington City PALS GROUP Hutt Valley Bill Guthrie Wanganui Brian Deadman Westport John Lee Whangarei Wayne Smith Women’s Group Hawkes Bay Beth Boag 27
WE APPRECIATE INDUCTION TRAINING 0800 HELPLINE
ALL THE hard An induction training day is held annually to We provide an 0800 number that is answered work THAT train new support group coordinators, staff and 24/7 to provide information and support to SUPPORT GROUP facilitators. The day provides information about men and families during their journey with both COORDINATORS the Prostate Cancer Foundation that includes prostate and testicular cancers. Typically, people PROVIDE AND governance and policies and procedures of the call when diagnosed seeking information on Foundation, an overview of prostate cancer, treatment options, and also during and after THE FOUNDATION managing support groups and the importance treatment seeking information on any side couldn’t do of self-care. This year 26 attended the induction effects or struggles they are experiencing. THE WORK WE training which was held at Jet Park Hotel DO without in Auckland. Where appropriate callers are referred to our their help. support group coordinators around the country who in turn offer support to men and their ANNUAL TRAINING DAY families at a local level. The Prostate Cancer Foundation provides an Claire Gard annual training day for all our support group National Operations Manager coordinators in conjunction with the annual National Conference. Our aim is to provide support group coordinators with the skills and ability to be confident in running a support group and providing emotional support to men and their families diagnosed with prostate cancer, either face to face, or on the telephone. This year we had over 60 attend and the topics included: • Growing members • Understanding grief and loss • Sharing stories of other groups • Self-care and managing challenges to look after oneself • Role of the support group coordinator and the support of a facilitator. 28
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The Prostate Cancer Foundation of New Zealand
ANNUAL REPORT 2017 47 Prostate Cancer Foundation National Helpline 0800 477 678 [email protected] www.prostate.org.nz Registered NZ Charity No. CC30635