Annual Review 2017 2017 Was an Extraordinary Year of Transition and Change for Red Nose
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annual review 2017 2017 was an extraordinary year of transition and change for Red Nose. Following the momentous events of 2016 which saw six, formerly separate SIDS & Kids entities come together as a single organisation unified Report CEO’s under the Red Nose name, the 2016-17 financial year saw unprecedented levels of organisational development. Contents One cannot underestimate the enormous 2017 has seen Red Nose take significant and at times overwhelming amount of work and solid steps toward securing our future. undertaken in this first year, as each entity Steps that will ultimately ensure we are 3 CEO Report dedicated themselves to establishing an able to achieve our long term vision of a 4 Our Pledge to Australian Families efficient and effective national organisational future where no child dies suddenly and 6 About Us structure with best practice governance. unexpectedly during pregnancy, infancy This year-long period of consolidation or in childhood. Key achievements from 8 Achievements across all facets of the organisation this year included: 10 Research included consolidation of entity finances, 12 Services infrastructure, assets, government • Roll-out of our national Red Nose – contracts and legal agreements. Saving Little Lives brand, launched in 14 Fundraising October 2016, raising awareness for 16 Gallery I applaud the previous management for this new consumer facing brand name, 18 Community Fundraising taking such a giant step forward, creating the messaging, and actions informing the public 20 Shop Red Nose change needed to strengthen Red Nose into of our new national vision and purpose. the future as a national organisation which 21 Red Nose Clothing & Collection represents 89 per cent of Australians. A • Creation of strong and deliberate 22 Grants & Funding leading cause-related charity lead by a single frameworks to support development 23 Thank You to our Partners Board and management structure, who had of sustainable, targeted, and long term the foresight to come together and drive our income streams and models including 24 Volunteering new national entity to fruition. In particular commencement of shifting organisational 25 Mission Partner the achievements of outgoing CEO Leanne structures to sustainable cost models. annual review 2017 annual review Raven and outgoing Board Chair Graham 2017 annual review 26 Media • Development of new assets and Henderson, whose years of involvement in 28 Governance revenue streams that are brand and various projects and initiatives over many 34 National Scientific Advisory Group audience aligned, to support future red nose nose red years have led us to where we are today. nose red 36 Audit and Finance Committee Report commercialisation. Leanne, who was CEO of National SIDS Through all of this we say thank you. Thank Council of Australia from 2007-2016, then you to our families, our local communities, our CEO of Red Nose from 2016-2017, was partners, and our founders for standing with instrumental in engaging with Government us and supporting us through this change. to help fund services and advocate for our cause. Graham was involved with Red Nose Thank you for continuing to stand with us as for 13 years, commencing on the Victorian we tackle the next phase of our development. SIDS & Kids Board in 2004, and the National we are confident the transforming steps SIDS Council of Australia Board from 2006. undertaken this year will propel Red Nose toward an exciting future. This brings us to 2017: one year on from establishing our bold and courageous Theron Vassiliou new vision. Chief Executive Officer With thanks to outgoing Chairman Graham Henderson, who resigned in November 2017, following 13 years’ service to Red Nose (SIDS & Kids). Craig Heatley was 2 elected Chairman in November 2017. 3 There are unborn babies and children in our We now have a new and bigger challenge – to From today we pledge to continue funding Introducing our pledge community dying suddenly and unexpectedly tackle all sudden and unexpected deaths in research and education into the causes of every day – and for many we still don’t know babies from 20 weeks’ gestation to four years all sudden, unexplained and preventable to Australian families why. Each year in Australia, 3,200 children of age. This means understanding why late childhood deaths in Australia, doing under the age of four die suddenly and term stillbirth and other sudden, accidental everything in our power to find the answers unexpectedly – that’s more than double the deaths such as drownings, poisonings and that will keep your child safe. national road death toll. Break this down, and road accidents occur as well as continuing to that’s nine children each day who will never explore the root cause of SIDS. And with this new mission, we’ve decided to Our Pledge get to reach their full potential, and nine new change our name. We are no longer SIDS and families in Australia each and every day who But, how do you fight something you don’t Kids. From today, we are Red Nose and our have their world turned upside down forever. understand? You fight to understand it. mission is to create a future where no baby or child dies suddenly and unexpectedly. SIDS and Kids was established 40 years ago That’s why we pledge to find a solution to so that no other family would experience eliminate all preventable deaths in babies That’s our pledge to you. the grief and loss of our founder Kaarene and small children. Fitzgerald and her family did, when their son and brother Glenn, aged 8 months, died from Our target is zero. SIDS (Sudden Infant Death Syndrome). SIDS was considered a medical mystery back then but through funding vital research and education, we’ve successfully reduced SIDS by 80% in Australia, saving over 9,000 little lives in the process. But our work cannot stop here. annual review 2017 annual review 2017 annual review red nose nose red nose red 4 5 Our Vision A future where no child dies suddenly About Us and unexpectedly during pregnancy, infancy and their pre-school years. Our Mission Saving the lives of babies and children during pregnancy, infancy, and childhood and supporting bereaved families. What we do annual review 2017 annual review Through our evidence-based education In advocacy, we work with baby and infant 2017 annual review programs, Red Nose provides safe sleeping product manufacturers and retailers to resources and education to new and ensure products are safe and consistent expectant parents, health care professionals, with our evidence-based safe sleeping red nose nose red saving nose red child care centres and carers. Since 1990, recommendations. We also work with health this education has successfully reduced professionals who care for new and SIDS and fatal sleeping accidents in expectant parents and their babies, Australia by 80%, saving 9,450 little lives. ensuring evidence-based recommendations are in line with national and industry We fund research into the possible causes standards. We also work with media outlets of stillbirth and sudden and unexpected nationally to ensure content is consistent death in infancy (SUDI), including SIDS with our messaging. little and fatal sleeping accidents. Outcomes from our research inform our public Our Red Nose Grief and Loss services health campaigns. provide a range of support options for any person impacted by the death of a child. These options include counselling, support groups, a 24-hour bereavement support line, dedicated resources and a website. Health professionals can refer individuals or families to us for ongoing support lives and counselling. 6 7 9,450 babies’ lives saved Achievements 9,450 Report Chairmans annual review 2017 annual review $16.7m 1.1m 3000 80% 2017 annual review red nose nose red nose red $16.7 million invested 1.1 million education 3,000 counselling 80% reduction in research to date brochures provided sessions annually in SUDI deaths in to parents annually Australia since 1989 8 9 An update on the Kaarene Fitzgerald PhD scholarship: Underlying mechanisms of SIDS – investigation in to the effects of Research intra-uterine growth restriction on Research the heart and circulation Research Red Nose funds research into the possible causes of stillbirth and sudden Dr Emily Cohen was the recipient of a three-year Some of the early changes in heart shape and and unexpected death in infancy (SUDI), Kaarene Fitzgerald PhD scholarship to pursue function appeared to persist well into infancy. research into the underlying mechanisms of SIDS Alterations in infant brain maturation were also including SIDS and fatal sleeping accidents. at The Ritchie Centre, Department of Paediatrics, noted. These changes were mainly observed during Monash University in Melbourne. Dr Cohen early infancy, when the risk of SIDS is the greatest. Outcomes from our research inform our started started her doctoral research in 2014, Although an improvement over time was seen, investigating the effects of intra-uterine growth altered early brain and heart development may also public health campaigns restriction (IUGR) on the brain and the heart in contribute to poorer long-term neurodevelopmental newborns and infants born preterm. and cardiovascular outcomes in infants born preterm and IUGR. IUGR is when a baby is born too small for the duration Trans-Tasman Research Grant In September 2016, an historic collaboration of the pregnancy. It significantly increases the risk So far this study has produced four research papers between Red Nose and Cure Kids (New of Sudden Unexpected Death in Infancy (SUDI) and for publication and the results have been presented With the change of name from SIDS and Kids, Zealand) resulted in the creation of the Red Nose shifted its research focus to a more has also been linked to poorer neurodevelopmental at various national and international conferences.