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Public Health Ethics Intensive Course NATIONAL CENTER FOR BIOETHICS IN RESEARCH AND HEALTH CARE Public Health Ethics Intensive Course SYLLABUS April 24-26, 2012 Tuskegee University Kellogg Hotel and Conference Center at Tuskegee University COURSE DESCRIPTION The purpose of the Public Health Ethics Intensive Course is to provide a rigorous course for graduate students, faculty, and practitioners that builds capacity and com- petency in public health ethics, bioethics and research ethics, focused specially on the influence of race/ethnicity, gender/sex and class on the spheres of ethics. The pre- sentations, intellectual conversations, and small group discussions will center around salient issues regarding the synergies between bioethics, which includes health care ethics and biomedical research ethics and public health ethics, that focuses on popu- lation health. The unavoidable tension between these spheres of ethics will be the topic of much of the discussions. COURSE OBJECTIVES At the end of the course the participants will be able to: 1) Discuss the ethical challenges and opportunities that influence human subject research, health care delivery, and public health policy and practice; 2) Build on the theoretical foundations and principles of public health ethics by critically engaging practical decision making related to human subject research, health care delivery and public health practice; 3) Articulate how determinative factors such as race/ethnicity, gender/sex, and class play a role in public health ethics by honing skill sets of ethical reasoning. 1 COURSE SCHEDULE Tuesday, April 24, 2012 8:30 a.m. – 9:15 a.m. Registration and Continental Breakfast Auditorium Foyer 9:15 a.m. - 9:25 a.m. Welcome: President Gilbert Rochon, Ph.D., M.P.H. Auditorium 9:25 a.m. – 9:35 a.m. Mayor Omar Neal Auditorium 9:35 a.m. – 9:45 a.m. Chairman Louis Maxwell Auditorium 9:45 a.m. – 10:00 a.m. Overview: Rueben C. Warren, D.D.S., Dr. P.H., M.P.H., M.Div. Auditorium 10:00 a.m. – 11:00 a.m. Opening Plenary: Bioethics and Public Health Ethics Auditorium Keynote Presenter: Leonard Harris, Ph.D. Responders: Leonard Ortmann, Ph.D. Lucius T. Outlaw, Ph.D. 11:00 a.m. – 12:30 p.m. Small Group Session Auditorium and Meeting Room D 12:30 p.m. – 1:30 p.m. Lunch Ballroom A and B 1:30 p.m. – 3:00 p.m. The Legacy of the USPHS Syphilis Study Plenary Auditorium Keynote Presenter: Peter J. Paris, Ph.D., M.A. Responders: Ralph V. Katz, D.M.D., M.P.H., Ph.D. Riggins R. Earl, Jr., Ph.D. 3:00 p.m. – 4:30 p.m. Small Group Session Auditorium and Meeting Room D 4:30 p.m. – 6:00 p.m. Tour Meet in Hotel Lobby Wednesday, April 25, 2012 7:00 a.m. – 8:00 a.m. Continental Breakfast Auditorium Foyer 8:00a.m. – 9:00 a.m. Ethics and Health Disparities Plenary Ballroom Keynote Presenter: Bailus Walker, Ph.D., M.P.H. Responders: David A. Anderson, D.D.S., M.D.S. Moon S. Chen, Jr., Ph.D., M.P.H. 9:00 a.m. – 10:30 a.m. Small Group Session Ballroom and Meeting Room D 10:30 a.m. – 11:30 a.m. Ethics and Health Care Plenary Ballroom Keynote Presenter: Cedric Bright, M.D., FACP Responders: Edward Gabriele, Ph.D. David R. Baines, M.D. 11:30 a.m. – 1:00 p.m. Small Group Session Ballroom and Meeting Room D 1:00 p.m. – 2:00 p.m. Lunch Ballroom 2 2:00 p.m. – 3:00 p.m. Ethics and Environmental Justice Plenary Ballroom Keynote Presenter: Beverly Wright, Ph.D. Responders: Carlton M. Waterhouse, J.D., M.T.S., Ph.D. Stephanie Miles-Richardson, D.V.M., Ph.D. 3:00 p.m. – 4:30 p.m. Small Group Session Ballroom and Meeting Room D 4:30 p.m. – 6:30 p.m. Tour Meet in Hotel Lobby Thursday, April 26, 2012 8:00 a.m. – 9:00 a.m. Ethics and Research Plenary Ballroom Keynote Presenter: Luther Williams, Ph.D. Responders: Vivian Pinn, M.D. Deleso Alford, J.D., LL.M. 9:00 a.m. – 10:30 a.m. Small Group Session Ballroom and Meeting Room D 10:30 a.m. – 12:00 p.m. Closing Plenary: Lessons Learned Ballroom Rueben C. Warren, D.D.S., Dr. P.H., M.P.H., M.Div. 12:00 p.m. – 1:00 p.m. Lunch Ballroom 3 SELECTED COURSE READINGS Bayer, Ronald, Lawrence O. Gostin, Bruce Jennings and Bonnie Steinbock, eds., Public Health Ethics: Theory, Policy and Practice. New York: Oxford University Press, 2007. Gabriele, Edward F. “Ethics Leadership in Research, Healthcare, and Organizational Systems: Commentary and Critical Reflection.” Journal of Research Administration. 42(1): 88-102 (2011). Katz, Ralph, et. al. “The Legacy of the Tuskegee Syphilis Study: Assessing Its Impact on Willingness to Participate in Biomedical Studies.” Journal of Health Care for the Poor and Underserved. 19 (2008): 1168- 1180. Katz, Ralph V. and Rueben C. Warren, eds. The Search for the Legacy of the USPHS Syphilis Study. Lanham, Maryland: Lexington Books, 2011. Pastor, Manuel, Robert D. Bullard, Beverly Wright, et al. In the Wake of the Storm: Environment, Disaster, and Race after Katrina. New York: Russell Sage Foundation, 2006. Walker, Bailus, Jr., and Rueben Warren. “Convergence of Disciplines: An Approach to Health Disparities Research”, To Be Published. Washington, Deleso Alford. “Examining the ‘Stick’ of Accreditation for Medical Schools Through Reproductive Justice Lens: A Transformative Remedy for Teaching the Tuskegee Syphilis Study”. Journal of Civil Rights and Economic Development. 26(1): 153-195 (2012). Washington, Deleso Alford. “Critical Race Feminist Bioethics: Telling Stories in Law School and Medical School in Pursuit of ‘Cultural Competency’”. Albany Law Review. Vol. 72 (2009). Waterhouse, Carlton. “Abandon All Hope Ye That Enter? Equal Protection, Title VI and the Divine Comedy of Environmental Justice.” Fordham Environmental Law Review. (Spring 2009). 4 Leonard Harris, Ph.D., M.A. Leonard Harris is a professor of philosophy at Purdue University, West Lafayette, Ind. He is director of the Society for the Advancement of American Philosophy Summer Institute, Critical Pragmatism and Harris’s Insurrectionist Ethics; and Indian Council of Philosophical Research, visiting scholar. He is former director of the Philosophy and Literature Ph.D. Program, and former director of African -American Studies at Purdue University. He has served as non-resident fellow at the W.E.B. Du Bois Institute for Afro-American Research, Harvard University, 2001-2002; and Fulbright Scholar, Addis Ababa University, Ethiopia, 1998-1999. Harris is former visiting scholar at King’s College, Cambridge, U.K. He earned his Ph.D. in philosophy at Cornell University, Ithaca, NY, his M.A. in philosophy at Miami University, Oxford, Ohio, and a B.A. in English and philosophy at Central State University, Wilberforce, Ohio. His scholarship includes: co-author of “Philosophic Values and World Citizenship: Locke to Obama and Beyond,” 2010; “Alain L. Locke: The Biography of a Philosopher;” editor of “Racism,” 1999; “The Critical Pragmatism of Alain Locke,” 1999; “Children in Chaos: A Philosophy for Children Experience,”1991; and “Philosophy Born of Struggle: Anthology of Afro- American Philosophy from 1917.” Peter J. Paris, Ph.D., M.A., M.Div. Peter J. Paris is the Elmer G. Homrighausen Professor Emeritus of Christian Social Ethics at Princeton Theological Seminary. He has authored or edited eight books Including “The Spirituality of African Peoples and Religion and Poverty: Pan-African Perspectives”. He has been elected president of four national academic associations in the United States; holds B.A. and M.Div. degrees from Acadia University and M.A. and Ph.D. degrees from University of Chicago. He has also taught at Howard, Vanderbilt, and Harvard Universities, Union Theological Seminary in New York, and Trinity Theological Seminary in Ghana. Born and raised in Nova Scotia, he holds dual citizenship in Canada and United States. He has lectured widely in Nigeria, Ghana, Kenya, South Africa, Jamaica, Brazil, India, Canada and the United States. Paris has received four honorary doctoral degrees and is editor of the series, “Religion, Race and Ethnicity” at New York University Press. Bailus Walker, Jr., Ph.D., M.P.H. Bailus Walker, Jr. is professor of environmental and occupational medicine and toxicology at Howard University College of Medicine. He is former professor of environmental health at the School of Public Health, State University of New York in Albany. He has served as dean of the public health faculty at University of Oklahoma Health Sciences Center; and former commissioner of Public Health for the Commonwealth of Massachusetts and chairman of the Massachusetts Public Health Council. He has also served as state director of public health for Michigan. Walker is a past president for the American Public Health Association, and a distinguished fellow of the Royal Society of Health (London, England). He is also a distinguished fellow of the American College of Epidemiology. Walker has published over 100 articles in peer- reviewed journals on environmental and occupational risk factors of disease and disability. He is an NIH adviser on environmental and community health aspects of biodefense research and senior science adviser (environmental health) to the National Library of Medicine. He was elected to membership in the Institute of Medicine, (IOM) 5 National Academy of Sciences (NAS). Walker has received numerous awards and honors including the Gaylord W. Anderson Distinguished Public Health Leadership Award, the University of Minnesota’s highest honor. Cedric M. Bright, M.D., FACP Dr. Cedric M. Bright was installed as the 112th president of the National Medical Association (NMA) in July 2011. Throughout his career, Bright has championed the elimination of health care disparities. He has been involved in health disparities research and has presented papers and abstracts at multiple national and local venues.
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