Clinical Nurse Specialist in Mitochondrial Diseases

CLINICAL NURSE SPECIALIST IN MITOCHONDRIAL DISEASES

POST OF: CLINICAL NURSE SPECIALIST IN MITOCHONDRIAL DISEASES

We are seeking to appoint a clinical nurse specialist, specialising in mitochondrial diseases, at the John Radcliffe Hospital, Oxford University NHS Foundation Trust. The post holder will contribute to the nationally commissioned Highly Specialised Service for Mitochondrial Diseases.

The appointment is on a part-time basis (0.5 whole-time equivalent).

Candidates are highly recommended to visit the department and hospital, and are invited to contact Dr Victoria Nesbitt, Clinical Lead for the Mitochondrial Diseases and Mrs Ginny Mountford, Matron for Clinical Genetics, Oxford University Hospitals NHS Foundation Trust (01865) 221007.

The following papers are attached:

1. Advertisement

2. Job Description

3. Person Specification

4. Outline Job Plan

5. Division and service information

6. Main Conditions of Service

7. Oxford University Hospitals NHS Foundation Trust Profile

1. Advertisement

OXFORD UNIVERSITY HOSPITALS NHS FOUNDATION TRUST

CLINICAL NURSE SPECIALIST IN MITOCHONDRIAL DISEASES

Applications are invited for a clinical nurse specialist, with a special interest in mitochondrial diseases, to join the NHS Highly Specialised Service for Rare Mitochondrial Diseases at the Oxford University Hospitals NHS Foundation Trust (OUHFT). The vacancy has arisen due to the expanding local clinical service and the need for further nursing support for this national service.

Oxford is a large tertiary neurosciences centre, with a busy Clinical Genetics department, and offers a wide range of clinical and academic interests. Oxford is renowned for its expertise in neuromuscular diseases, and is a member of the European Reference Network for such conditions. We are looking for an enthusiastic nursing colleague to develop the role of nurse specialist within the mitochondrial service, together with a well-established group of colleagues from paediatrics, clinical genetics, adult neurology and other disciplines. The post will include providing liaison for the nationally commissioned Highly Specialised Service in Mitochondrial Diseases, and it will deliver a weekly mitochondrial clinic and MDT as well as ward liaison service. While this is a clinical post, there are ample opportunities to participate and develop interests in teaching and academic work in this large University Hospitals Trust.

Applications should be made to the NHS Highly Specialised Service for Rare Mitochondrial Diseases, Level 3, Women’s Centre, John Radcliffe Hospital, Oxford University Hospitals NHS Foundation Trust, Headley Way, Headington, Oxford, OX3 9DU.

To gain further details of this post go to NHS Jobs via: www.ouh.nhs.uk/about/working-for-us/default.aspx

Please apply via this website and e-mail your CV to [email protected] quoting vacancy reference XXX and your application reference number as issued by NHS jobs.

In the interest of equal opportunities, we want to make sure that information about candidates is provided in the same format so all applicants should fill in the standard application form on the NHS Jobs website.

2. Job Description

1. JOB TITLE: 0.5 whole-time equivalent Clinical Nurse Specialist in Mitochondrial Diseases

2. GRADE: Clinical Nurse Specialist (band 6)

3. DEPARTMENT: Clinical Genetics

4. ACCOUNTABLE TO: Matron for Clinical Genetics

5. PRINCIPAL ACTIVITIES:

The post-holder’s duties will be primarily at the John Radcliffe Hospital but it is a condition of the appointment that the postholder will be willing to work in any of the Trust’s locations.

Clinical It is preferable that the post-holder will have sub-specialist expertise in neurology and/or clinical genetics, as shown by previous experience in doing specialist clinics and working within a subspecialty multidisciplinary team. The post holder will also have knowledge of the management of mitochondrial disorders.

The Clinical nurse specialist will provide holistic support to patients with mitochondrial disease and work within a multi-disciplinary team. The post-holder will be expected to support clinical activities, including, but not limited to, in-patient reviews, out-patient and telephone clinics under the supervision of the medical consultants for the team.

Teaching/Research OUHFT is a teaching hospital trust, and the post-holder will be required to participate in programmes for teaching clinical students, training junior nurses and in clinical examinations. It is expected that this will be an integral part of everyday clinical activity. Research experience in muscular diseases and/or genetic disorders will be welcome and be supporting evidence of a sub- specialist interest in this field. While this is a clinical post, contribution to academic work will be encouraged.

Clinical Governance The post-holder will participate in all clinical governance activities, including clinical audit, clinical effectiveness, risk management, quality improvement activities as required by the Trust, and external accrediting bodies.

Personal and Professional Development The post-holder will be required to keep him-/herself fully up-to-date with their relevant area of practice, and will have to be able to demonstrate this to the satisfaction of the Trust. Professional or study leave will be granted at the discretion of the Trust, in line with the prevailing Terms and Conditions of Service, to support appropriate study, postgraduate training activities, relevant CME courses and other appropriate personal development needs. The Trust is committed to supporting the appointee for the continued process of revalidation.

Management The post-holder will be required to work within the Trust's management policies and procedures, both statutory and internal, accepting that the resources available to the Trust are finite and that all changes in clinical practice or workload, or developments requiring additional resources must have 3

prior agreement with the Trust. He/she will undertake the administrative duties associated with the care of their patients, and the running of their clinical service under the direction of the lead clinician and matron. Administrative support and facilities for the post holder is provided in the form of office space, and the band 4 and band 3 secretarial support the department receives. .

Risk Management The management of risk is the responsibility of everyone and will be achieved within a progressive, honest and open environment.

Staff will be provided with the necessary education, training and support to enable them to meet this responsibility.

Staff should be familiar with the: . Major Incident Policy . Fire Policy and should make themselves familiar with the ‘local response’ plan and their role within that response.

Responsibilities for Health & Safety The post holder is responsible for ensuring that all duties and responsibilities of this post are carried out in compliance with the Health & Safety at Work Act 1974, Statutory Regulations and Trust Policies and Procedures. This will be supported by the provision of training and specialist advice where required.

Infection Control Infection Control is everyone’s responsibility. All staff, both clinical and non clinical, are required to adhere to the Trusts’ Infection Prevention and Control Policies and make every effort to maintain high standards of infection control at all times thereby reducing the burden of Healthcare Associated Infections.

All staff employed by the Trust have the following key responsibilities:

 Staff must decontaminate their hands prior to and after direct patient contact or contact with the patient’s surroundings.  Staff members have a duty to attend mandatory infection control training provided for them by the Trust.  Staff members who develop an infection (other than common colds and illness) that may be transmittable to patients have a duty to contact Occupational Health.

Equality and Diversity The OUHFT values equality and diversity in employment and in the services we provide. We are committed to promoting equality and diversity in employment and will keep under review our policies and procedures to ensure that the job related needs of all staff working in the Trust are recognised. The Trust will aim to ensure that all job applicants, employees or clients are treated fairly and valued equally regardless of sex, marital status, domestic circumstances, age, race, colour, disablement, ethnic or national origin, social background or employment status, sexual orientation, religion, beliefs, HIV status, gender reassignment, political affiliation or trade union membership. Selection for training and development and promotion will be based on the individual’s ability to meet the requirements of the job.

Freedom of Information

The post holder should be aware of the responsibility placed on employees under the Freedom of Information Act 2000 and is responsible for helping to ensure that the Trust complies with the Act when handling or dealing with any information relating to Trust activity.

Patient and Public Involvement The Trust is committed to, and has a statutory duty to involve service users, carers and the public in the work of the organisation. We consider that patient and public involvement is the responsibility of every individual working for our Trust. All staff have a responsibility to listen to the views of patients and to contribute to service improvements based on patient feedback. You will be expected to support the Trust with this through your working practice.

Serious Incidents All staff must report incidents and near misses so that the Trust can reduce the risk of harm by investigating and incorporating risk reducing measures to safe guard patients, visitors and staff, in accordance with the Trust Incident Reporting Policy.

Children’s Rights The post holder will endeavour at all times to uphold the rights of children and young people in accordance with the UN Convention Rights of the Child.

Safeguarding Children and Vulnerable Adults The Trust is committed to safeguarding children and vulnerable adults throughout the organisation. As a member of the trust there is a duty to assist in protecting patients and their families from any from of harm when they are vulnerable.

Information Governance You must maintain a Trust email account. All staff must complete annual information governance training. which can be completed on-line. For further details, go to the Information Governance intranet site: http://orh.oxnet.nhs.uk/InformationGovernance/Pages/Default.aspx

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3. Person Specification

Post: CLINICAL NURSE SPECIALIST IN MITOCHONDRIAL DISEASES

Requirements Essential Desirable

Qualifications/Training

Professional qualifications NMC registration Masters degree in nursing, clinical Diploma / degree level study genetics, or clinical research

Professional training General training in adult neurology or clinical Post registration experience within genetics, to specialist level or equivalent. neurology and/or clinical genetics

Experience

Work experience General training in adult neurology or clinical genetics, to specialist level or equivalent. Previous experience of looking after Subspecialty interest in neurology and/or patients with mitochondrial disorders. clinical genetics, as shown by previous experience of running specialist clinics, and working as part of a subspecialty multi- Previous experience of working with disciplinary team. children and young people

Level of responsibility Ability to manage complex clinical problems. Meets NMC requirements for mentorship

Skills and Knowledge

Leadership skills Excellent leadership skills. Knowledge of the current organisation of the NHS and the Government’s Ability to work independently and as part of a agenda for its modernisation. team, taking the lead if required. Evidence of effective leadership skills / knowledge e.g. Leadership course

Organisation and Effective administrative and time management Management training and experience management skills skills. Training in clinical management.

Professional - extra skills or Evidence of significant contribution to Previous experience in performing skin achievements successful teamwork biopsies Knowledge of adult & child safeguarding Competence in venepuncture, cannulation and intramuscular injections

Communication and Good spoken and written English. interpersonal skills Highly developed communication and interpersonal skills. Computing skills, including ability to use a word processor, spreadsheet programme and web browser.

Teaching and training skills Experience of formal and informal contributions Evidence of formal training in teaching. to teaching and training.

Clinical governance Evidence of effective and sustained contribution experience to clinical governance, clinical risk management and clinical audit activities

______Research skills Research or audit experience Peer reviewed publications

Other Requirements

NMC Registration Full registration and licence to practise

Transport Driving Licence and access to a car

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4. Outline Job Plan Weekly Provisional Programmed Activities

An indicative timetable and Job Plan is outlined below. The final Job Plan for the post will be agreed with the Clinical Lead upon appointment and will be subject to annual review and potential renegotiation.

Day Time Location Work Categorisation No. of PAs Monday 09:00-13.00 West wing Neuroradiology DCC 1.0 (WW) meeting (1:12), Paediatric Neurology meeting (1:12), charity liaison, audit & research, telephone clinic (1:4) Wednesday 09:30 – 13:30 Women’s MDT (1:2), skin DCC 1.0 Centre biopsies, telephone consultations 13:30 – 17:30 WW Admin DCC 1.0 Friday 08:30 - 13:00 WW Mitochondrial DCC 1.0 Clinic (3:4), telephone clinic (1:4) 13:00 - 17:00 WW Admin DCC 1.0 Total 5

Annual and study leave arrangements must be co-ordinated within the specialty to ensure there is an acceptable level of clinical cover.

5. Division and Service Information

DIVISION: Medicine, Rehabilitation and Cardiac

Divisional Director: Tim Peto General Manager: Kathleen Simcock Divisional Nurse: Louise Rawlinson

DIRECTORATE: Specialist Medicine

Clinical Director: Richard Turner Operational Services Manager: Thomas Farrell Matron: Ginny Mountford-Flint

DEPARTMENT: Mitochondrial Diseases

______Clinical lead: Victoria Nesbitt Clinical services manager: Carl Fratter

NHS HIGHLY SPECIALISED SERVICES FOR RARE MITOCHONDRIAL DISEASES

The NHS Highly Specialised Services (HSS) for Rare Mitochondrial Disorders were established in April 2007 to provide a comprehensive high quality NHS service for this rare group of disorders, with centres in Oxford, London and Newcastle. Highly specialised services are provided by the NHS for services with small numbers of patients, such as rare mitochondrial disorders, which are best delivered nationally through a very small number of centres of excellence. Mitochondrial Disorders are an extremely complex and diverse group of disorders. They can cause virtually any symptom in any organ at any age. Patients may present to a variety of different clinical specialties, and diagnosis is often difficult. Also, many aspects of mitochondrial disease can be helped or prevented by early diagnosis and subsequent care. Therefore, the need for a specialised national service has been recognised by the NHS, with the main objective of improving the diagnosis and clinical care for patients with rare mitochondrial disorders. The three centres have an international reputation for clinical care and research in mitochondrial disorders, and provide comprehensive specialised services including:

 multi-disciplinary clinical service consisting of genetic counselling and clinical management for adults and children  diagnostic service for patients with suspected mitochondrial disorders, including analysis of samples referred from local clinicians  clinical management advice for clinicians  specialist nursing input for symptom management, advice and support for health and social care issues – signposting, liaising with local health and social care, and advocating on behalf of individuals as required  specialist physiotherapy assessment and advice – signposting and referring onto local community therapy and social care services as required  comprehensive information for patients and carers  national patient forum for education and information including national patient days  patient access for participation in research to develop new diagnostic techniques and clinical trials to improve the treatment of Mitochondrial Disease

The West Wing, John Radcliffe Hospital, Oxford

The West Wing houses a large neurosciences ward with dedicated neurology and neurosurgical beds, a large neuro-intensive care unit, the neurosurgical operating theatres, a neuro day case unit, the departments of neuroradiology, neuropsychology, neurophysiology and neuropathology, and the Nuffield Department of Clinical Neurosciences, as well as the departments of ophthalmology, ENT, maxillofacial and plastic surgery.

______Currently the Mitochondrial Service hold two clinics per month in the Neurology Out- Patients Department.

The Horton General Hospital in Banbury

The Horton General Hospital in Banbury serves the growing population in the north of Oxfordshire and surrounding areas. Services include an emergency department, acute general medicine and elective day case surgery, trauma, maternity and gynaecology, paediatrics, critical care and the Brodey Centre offering treatment for cancer.

The Mitochondrial Service currently offer an out-patient clinic in the Horton Hospital once every 2-3 months, and the post holder will be expected to attend this clinic with the clinical lead.

6. Main Conditions of Service

1. The post is covered by the national Terms and Conditions of Service of Hospital Medical and Dental Staff (England and Wales) and the Conditions of Service determined by the General Whitley Council for the Health Services (Great Britain), as amended from time to time. As the Trust develops it will review these terms and may vary the national agreements to respond to local conditions and reflect Trust requirements following negotiation with the NMC Local Negotiating Committee.

2. The new clinical nurse specialist will be required to maintain his/her private residence in contact with the public telephone service, and to reside within ten miles by road from the John Radcliffe Hospital unless specific approval for a greater distance is given by the Trust.

3. The successful candidate must hold full registration and licence to practice with the NMC.

4. The successful candidate must have diploma or degree level nursing (or equivalent for non-UK applicants of equivalent status), and be on the NMC Register in the specialty appropriate for the post at the time of taking up the appointment.

5. The successful candidate is not required to subscribe to a recognised professional defence organisation to fulfil his/her contractual obligations to this Trust, but should ensure he/she has adequate defence cover as appropriate, for example, for private and Category 2 work, and for NMC disciplinary proceedings.

7. Oxford University Hospitals Trust Profile

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