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Washington DC Update 10/15/14 - Submitted Washington DC Update 10/15/14 - submitted {Don’t forget to checkWashington out the Family Voices/NCFPP DC Update ACA webpage and the most recent NCFPP blog post on coverage of children “aging out” of Medicaid.} July 25, 2018 Greetings from Washington! It’s been an active time in DC. The House has been busy preparing for its August recess, and has passed several health related bills. The administration has been busy as well. It has announced a second 30- day public comment period for the controversial Kentucky and Mississippi Medicaid work-requirement waivers. It has also released its plan for reunifying immigrant children and their families they had separated at the border. The Health Resources and Services Administration has announced a special challenge (with an award) to encourage the creation of technology to improve care coordination for children and youth with special health care needs. And the Medicaid and CHIP Payment and Access Commission has released an issue brief on the characteristics of and access to care for CYSHCN. Not only that, but it will soon be the 28th anniversary of the Americans with Disabilities Act (July 26) and the 53rd anniversary of Medicaid and Medicare (July 30th). [Check out these new state Medicaid and CHIP snapshots.] Finally, an important announcement: Do not eat this cereal: CDC issues blunt warning about Honey Smacks as outbreak grows to 100 (Washington Post, 7/12/18). UPCOMING WEBINARS AND CALLS (All topics; in chronological order, by first webinar in a series where applicable.) NEW Managed Long-Term Services and Supports (MLTSS) for People with Intellectual and Developmental Disabilities: Strategies for Success Wednesday, July 25, 12:30 pm-1:30 pm ET National Association of States United for Aging and Disabilities (NASUAD) Ticket to Work and Reasonable Accommodations Wednesday, July 25, 3:00 pm-4:00 pm ET Social Security Administration NEW Brain Under Construction: Building Pathways to Resilient Futures Thursday, July 26, 12:00 pm-1:00 pm ET HHS Partnership Center Summer Webinar Series, National Institute on Drug Abuse (NIDA) Family Voices, Inc. • Mailing Address: P.O. Box 37188, Albuquerque, NM 87176 • Physical Address: 3701 San Mateo Blvd NE, Suite 103, Albuquerque, NM 87110 • Phone: 505-872-4774 • Toll Free: 888-835-5669 • Fax: 505-872-4780 • Website: www.familyvoices.org 1 The HOPE Initiative Launch Webinar Thursday, July 26, 11:00 am ET National Collaborative for Health Equity and Texas Health Institute in partnership with Virginia Commonwealth University’s Center on Society and Health The Health Opportunity and Equity (HOPE) Initiative is a new resource that provides data on health, opportunity, and equity for all 50 states and the District of Columbia, funded by Robert Wood Johnson Foundation. A Conversation on Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway? Thursday, July 26, 1:00 pm-2:00 pm ET Lucile Packard Foundation for Children’s Health See also A Conversation on Models of Care Delivery for Children with Medical Complexity, an earlier webinar in this series; webpage also has related links. Ask TRICARE Thursday, July 26, 1:00 pm-2:00 pm ET Military One Source This Q&A webinar will include a panel of subject matter experts to answer your questions about TRICARE health care, pharmacy, and dental programs. Read more. Collaborating with Non-Traditional Partners to Develop Diverse Family Leaders (for family organizations) Thursday, July 26, 1:30 pm-2:30 pm ET National Center for Family/Professional Partnerships Outreach and Enrollment Strategies to Reach Rural Communities Tuesday, July 31, 1:00 pm-2:30 pm ET Insure Kids Now (HHS Connecting Kids to Coverage National Campaign) Innovations in Education for Youth Recipients of Supplemental Security Income (SSI) (Part 3 of a 5-part series on transitioning to employment for youth receiving SSI) Tuesday, July 31, 2:00 pm-3:00 pm ET Health and Human Services Partnership Success Story Tuesday, July 31, 3:30 pm-4:30 pm ET Alliance for Strong Families and Communities Advisory Committee on Heritable Disorders in Newborns and Children (webcast) Thursday, August 2, 9:30 am-3:00 pm ET Office of Disability Employment Policy, U.S. Department of Labor - Register by Monday, July 30, at noon ET - Comments due July 27 Family Voices, Inc. • Mailing Address: P.O. Box 37188, Albuquerque, NM 87176 • Physical Address: 3701 San Mateo Blvd NE, Suite 103, Albuquerque, NM 87110 • Phone: 505-872-4774 • Toll Free: 888-835-5669 • Fax: 505-872-4780 • Website: www.familyvoices.org 2 NEW What Families, Family-based Support Organizations and EHDI Programs Want: Findings from a National Needs Assessment Thursday, August 2, 1:00 pm-2:00 pm ET Hands & Voices™ NEW Igniting Change from the Ground Up: Uplifting Best Practices for Community Organizing and Leadership Engagement Tuesday, August 7, 2:00 pm-3:00 pm ET Prevention Institute Demonstrating Medicaid's Value through Storytelling Wednesday, August 8, 3:00 pm ET Georgetown Center on Children and Families NEW ACEs: The Role of Life Experiences in Shaping Brain Development Thursday, August 9, 12:00 pm-1:00 pm ET HHS Partnership Summer Webinar Series THE ADMINISTRATION Reunification of Immigrant Families (Updated) As reported in last week’s Update a federal court ordered that children under age five be reunited with their families by July 10, and that all other children be reunited with their families by July 26. The administration did not meet the first deadline; only about half of the young children were reunited with their parents, in part because officials were trying to ensure that reunification would be safe for the children and they would be reunited with actual family members. In a July 13 statement HHS said that it has identified 2,551 minors 5 to 17 years of age in the department’s custody who could potentially be eligible for reunification with a parent in the custody of DHS. Update: Special Pre-Unification Screening For “A Special Needs Child with A Disability.” On July 18, the Department of Health and Human Services (HHS) announced that it had published its plan for reunifying immigrant children with their parents --The Tri-Department Plan for Stage II of Family Reunification. Of note -- the plan states: “A home study shall be conducted for… a special needs child with a disability.” This step for placing an “unaccompanied alien child” -- which is how the children separated at the border are being classified -- is actually mandated by the William Wilberforce Trafficking Victims Protection Act of 2008 (at page 122 STAT. 5078, sec. 235(c)(3)(B)); 8 U.S.C. §1232(c)(3)(B)). It is not clear, however, how this requirement is being implemented, given that the parents in the current situation do not have a “home” to study. Family Voices, Inc. • Mailing Address: P.O. Box 37188, Albuquerque, NM 87176 • Physical Address: 3701 San Mateo Blvd NE, Suite 103, Albuquerque, NM 87110 • Phone: 505-872-4774 • Toll Free: 888-835-5669 • Fax: 505-872-4780 • Website: www.familyvoices.org 3 Reunification Status On July 19, the administration reported that about 60 percent (1,606) of the children between ages 5 and 17 could be reunited with their parents. The remaining children could not be reunited because their parents had not yet been interviewed, have criminal records or otherwise should not be reconnected, or have waived their right to be unified with their children. (Some parents believe that their children will have a stronger asylum claim than the parent, so elect to leave without their children.) See 364 Children Reunited with Families After Being Separated at Border (The Hill, 7/19/18). During a July 20 status hearing before the court, HHS reported that it had reunited 450 children between the ages of 5 and 17 with their parents. The judge was pleased with this progress. See Judge Praises Administration On Reunifications (The Hill, 7/20/18). July 26 is the deadline by which all children are supposed to be reunited with their parents (assuming safety clearances). CONGRESS Electronic Visit Verification (EVV) Legislation Ready for President’s Signature On July 17, the Senate approved a House-passed bill to delay for one year (until January 1, 2020) the implementation of a requirement that Medicaid agencies adopt “electronic visit verification” (EVV) for personal care services provided at an individual’s home. The legislation also includes language to express a “sense of Congress” that the Centers for Medicare and Medicaid Services (CMS) should hold at least one public meeting in 2018 to solicit stakeholder feedback on its May 2018 guidance on EVV, and should continue to communicate with stakeholders, including family caregivers, during EVV implementation. The bill is now ready for the president’s signature. Disability advocates had sought this legislation because of concerns that EVV has the potential to invade the privacy of people with disabilities, limit their independence and community access, and lead to cuts in services. A delay will give advocates more time to work with Congress, CMS, and the states to address these concerns. House Passes Several Health Bills As reported by the House Energy and Commerce Committee, the House passed several bipartisan health-related bills this week: • The Palliative Care and Hospice Education and Training Act (H.R. 1676), which would direct HHS to award grants to improve the training of palliative-care health professionals, increase awareness about the benefits and services of palliative care, and enhance research on palliative care through leveraging existing authorities and funds at the National Institutes of Health (NIH). • The Dr. Benjy Frances Brooks Children’s Hospital GME Support Reauthorization Act of 2018 (H.R. 5385), which would reauthorize the Children’s Graduate Medical Education (CHGME) program for five years.
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